Children With Special Needs

We have been blessed with beautiful children and even more adorable grandchildren. They each have individual personalities and physical traits. We can’t imagine our life without even one of them and the joys that they have brought to our family. We always worry when any family member is sick or going through a difficult time. Nothing seems as important as attending to a sick or sad child.

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We have had our share of sickness and sadness in our family. Challenges come and go, but there are a few that are chronic. A new experience we are having recently is learning how to deal with special needs children. The newest member of our family was born with spina bifida. At one time there was hope that it could be corrected in utero, however, it was discovered that the condition was quite severe and with kyphosis in a very delicate place, this was impossible.

The little baby girl was born by cesarean section. Part of her spinal cord was outside of her skin and enclosed in a thin sac that had grown over it. Within two days, the baby had two operations. One to repair her very curved spine and another to put a shunt in her head so that she would not have swelling of the brain. Sadly she has no feeling in her lower extremities and will have limited mobility. Spina bifida has varying degrees of severity.

This same family has another child who has spent quite a bit of time in the hospital due to urinary tract infections. Things had been going pretty well until she started school. In kindergarten she got another UTI and was embarrassed at school. Then her condition went downhill from there. Her bladder is never completely empty because she has sphincter issues. She has missed quite a bit of school and has had a lot of pain. We have all been worried about her kidneys being damaged. Currently she has a catheter that comes out of her belly button and drains into a bag that is attached to her leg. She actually is happy to have it because she doesn’t have the drama and pain associated with what to most children is a routine thing.

Siblings of children with special needs are also affected. They sometimes feel overlooked or left out since the needs of their sibling are more urgent. Parents also feel guilty that they are not giving enough time to the other children.

I know that some families are dealing with even worse issues with their children. These conditions are ongoing and persistent. It takes courage and patience to take care of anyone with physical or mental special needs. The family can grow stronger if they work together. Sometimes the challenge is too great and families pull apart. In our case, so many people have some forward to help out in the neighborhood and family. There are also organizations that help out who have are experienced with specific conditions.

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Comments 13 comments

elayne001 profile image

elayne001 7 years ago from Rocky Mountains Author

Thank uliveulearn so much for the encouraging words. The family has a lot of support from neighbors and family which helps so much. I see something special in the eyes of my little grandchildren, especially those with big challenges. They are so brave. Aloha!

uliveulearn profile image

uliveulearn 7 years ago from Canada

You are so right, it takes courage and patience. Everyday presents a new set of challenges. They appear to be such lovely happy girls. I trust this family finds strength and wonder in their smiles as we do from my granddaughter who also has special needs. I wish your family all the miracles that love can bring.

elayne001 profile image

elayne001 7 years ago from Rocky Mountains Author

Thanks so much stars439. I appreciate your visit. Aloha!

stars439 profile image

stars439 7 years ago from Louisiana, The Magnolia and Pelican State.

It is wonderful that you do all that you do. God Bless you Dear Hearts.

elayne001 profile image

elayne001 7 years ago from Rocky Mountains Author

That's great news bat115. I appreciate your comments.

bat115 profile image

bat115 7 years ago from Los Angeles, CA

This is a great hub. one of my best friends was born with spina bifida. he wasn't supposed to live past 4 but we're planning his 36th birthday party for next month.

elayne001 profile image

elayne001 7 years ago from Rocky Mountains Author

Thank you Car Jean for that. It is hard on the whole family. Siblings also have to help more and their needs are not always met. It takes a lot of patience and love. Aloha!

Cari Jean profile image

Cari Jean 7 years ago from Bismarck, ND

Sometimes its hard for family members to accept the child's disability which makes it harder for the child to cope. It is so good to hear that these two beautiful girls have loving family members who are doing everything they can to make their lives better. May God continue to give you strength and peace.

elayne001 profile image

elayne001 7 years ago from Rocky Mountains Author

Appreciate your concern and comments. I was just with the two sweet girls tonight. One will have surgery this week and we hope and pray all will go well. Aloha!

coverley1 profile image

coverley1 7 years ago from Victoria, Australia

Hi just isn't fair that some children are born with such testing difficulties, but to be born into such a loving environment they have happiness & a sense of security on their side. I can sympathise with the elder girl's condition as I have a very similar condition & now rely on a catheter to drain my bladder. Kidney infections are daunting. Hopefully the much needed strength and patience to deal with these issues will come from the loving bond that you all share. All the best to you all.

Hello, hello, profile image

Hello, hello, 7 years ago from London, UK

I am so so sorry for what happened to these beautiful girls. Maybe and hopefully there will be soon a cure. They have so many successes in so many, real difficult, cases. They make such enormous efforts to solve so many illnesses. Let's hope it will be soon in your family. God willing the girls and your family deserve it.

elayne001 profile image

elayne001 7 years ago from Rocky Mountains Author

Thanks LianaK. You are part of the family that helps so much. You are always there as a nurse to help also. Thanks you so much. Aloha!

LianaK profile image

LianaK 7 years ago

I know and love these two girls. They are happy children and their parents and grandparents have done a great job. Both girls feel loved and seem to be thriving. Thanks for the encouraging and positive hub.

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