What causes your baby to have blue extremities

This is just her hand... but it also will go up her arm past her elbow
This is just her hand... but it also will go up her arm past her elbow

What really is acrocyanosis?

I have done a lot of research within the last month or so. My five month old daughter started turning a very dark purple almost blue on her hands and feet whenever I would change her clothes, or give her a bath. I assumed it wasn't a huge problem because the minute I would start dressing her or dry her off she would then return to her normal pink color. I started to become more concerned when I saw that it was now going to her arms and legs, and a few times it looked like it was happening to her chin. I called the doctor's office and the nurse didn't seem to be too worried (but I had this horrible feeling that I had done something wrong.) You see I have a horrible reflux problem so I was prescribed Nexium. I was told by my OB and by the pharmacist that it was ok to take while I was pregnant because it was a category B (meaning it never harmed any lab tested animals). I did try to go without the medication but my reflux is so bad I was in constant agony all day every day. After thoroughly checking with all the doctor's and talking to my significant other we decided it would be ok for me to start taking the Nexium again. Now, here is the frightening part; right when I really started to get concerned about my daughter's purple skin I saw a commercial from a lawyers office on TV that said if you took any of these medications while pregnant and your child has a heart defect you may have a case.... Nexium was one of those medications. Now I was frantic. I called the doctors and like I said the nurse wasn't concerned but she said she would talk to the doctor. The doctor got on the phone and basically said what the nurse said Nexium is a category B, so it's ok to take while pregnant and that a lot of babies will experience some issues with acrocyanosis.

What is Acrocyanosis? Well, all my research has found; is that because of an immature circulatory system, infants have a hard time with keeping their extremities perfused when they start to get chilly. I don't know, but for some reason I am having a hard time with just accepting that this is normal. I have never seen this in any other baby (even when they are cold). I asked the doctor if she would be willing to see some pictures I have taken. After I was able to finally see the doctor she looked at the pictures (here is one of the pictures I showed her) and tells me that it's most likely normal but that the purple color is pretty impressive so she wants me to see the cardiologist. She said just to make sure. Finally I can get my daughter tested, and if these results turn up negative, I think then I can sit back and just accept that "it's normal" and try to deal with it.

Have you exeperienced this? Do you know anyone that has? What did you/they do about it? Has anyone else taken Nexium while pregnant? If so have you experienced any problems?

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Comments 8 comments

horsenora 5 years ago Author

Well we went to the cardiologist today, and her EKG was normal. There is nothing wrong with her heart. The doctor said she is just very sensitive to the cold weather.


Brandy 4 years ago

I am going thru the same thing with my daughter she has a hole in her heart


kkendra 2 years ago

I am going threw that right now i am sitting in the hospital with my eight month okd daughter right now they have sent specialistin and everything just waiting to see what they gunna do it has been going on for three montha now and they r just now wanting to do something for it


Michelle 2 years ago

My son is 7months old and has been doing this sense he was born,but his arms and legs turn a plum purple when he gets cold or if u hold him a certain way. Im trying to find another doctor to look at him bc im not satisfied with what the answer of its normal for some kids to do that. I don't know if this has anything to do with him being 4 weeks early bc my platelet count kept dropping with him in my belly.


Jonathan 2 years ago

It is normal for infants to have acrocyanosis. What you should really be worried about is when they have central cyanosis which is turning blue on the lips and nose. There is nothing to worry about. Just to make sure there isn't any cardiac anomalies we instruct parents to make an appointment with a pediatric cardiologist. I would say 95% of all acrocyanosis is benign, keep the baby wrapped up nicely and don't forget the hat.

Jonathan RN, PNP


bev 2 years ago

I am having a problem my daughterhas had this since she was born health visitors recommended further examination ,she is now 2 and a half goes blue purple lips hands feet wen cold exerciselike jumping around and wen ill, been dismissed by consultant as nothing paranoid mom as everytime we go she is ok so they say its normal...it has got worse and asked for cardiogram to put my mind at ease but was refused...tried taking friend who has witnessed it but totally dismissed by consultant ... everyone comes upto me sayinghow blue she is etc but can't get help


Michele 2 years ago

My daughter is doing the same thing and I also took Nexium.


Amber 2 years ago

My son did this turned purple all over staring at age 2 weeks. My sister works at a local top notch hospital talked to the ped carisologist who direct admitted him. We ran every tater known to man over the next 2 days.... He was diagnosed with acrocynosis. Basically explained to us as "babies turn blue and we have no idea why" every test came back normal I had to accept this answer. He eventually by 8-9 mo outgrew this, but doc told us it can persist until age 5 and in a very small percentage of cases can last until teenage and adulthood years. Don't panic momma just get the test so you can sleep easy and that is all you can do. Babies are strange creatures but god made them strong and resilient. :)

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