A dying child's last wishes..........
- Pacal Votan
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Luciendasky wrote:
Pacal Votan wrote:
I was thinking the same this morning. I realized that we should be grateful for every single day and be content with what we have.
I mean when something goes amiss in our lives we tend to cry disaster, because we think it's not fair. And here is this boy whose life is but a couple of years...
I'm good. Thanks.
You have no idea how happy I am that you wrote that Pacal
I have some idea by your email. I was deeply touched by what you said about my friend.
Thanks you, Luci.
I'm in a learning period right now.
97- readytoescape
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Luci,
By the way that other thread that attacked the participants in this one was apparently shut down, you can no longer post a response.
I guess its is probably a good thing, because I was about to light’em up.
94- Luciendasky
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You are in a very wonderful stage, Pacal... when I went through a similar experience - it drastically changed my life for the better
Ready,
you crack me up thanks for fighting for this thread's honor - 94
- Luciendasky
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Since this is a new page, I am going to repost this:
Uninvited Writer Reminds us his name is different from first post:
Noah Biorkman
1141 Fountain View Circle
South Lyon, MI 48178
I am going to repost these to make it easier to find info as well:
http://www.snopes.com/inboxer/medical/biorkman.asp
and view an news clip about him at
http://www.clickondetroit.com/news/21522646/detail.html
Also you can go to the following link and sign up to get updates on how little Noah is doing
https://www.carepages.com/carepages/NoahScottBiorkman
Cosette has written a VERY informative hub:
http://hubpages.com/hub/Christmas-wishes-for-Noah
And for anyone wondering, Noah's family has asked that if you want to send him a present, send $1 instead... they will collect the money and donate it to University of Michigan's research in neroblastoma, little Noah's disease smile
So glad to see so many people working with this... for anyone who has been checking his mother's updates - there is a new one - you can get to it by going to the above link in the above post.
Firefox doesn't work with that site very well, so you may need to use explorer
there is also another article wrttien by Godslittlechild about Noah
http://hubpages.com/hub/RAOK-for-Noah 
95- Crazdwriter
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A morning bump with love from So Cal!
- 94
- Luciendasky
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Morning Bump from Oregon
- 95
- Crazdwriter
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heya lucie! glad to see ppl took over for me...I had to get to bed because I was feeling bad again
- 94
- Luciendasky
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oh no!!! I hope you feel better soon!
- 95
- Crazdwriter
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thanks feeling better now so I hopefully can write.
Bump for Noah! - 95
- Crazdwriter
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Bump for Noah whether ppl like it or not!
88- ledefensetech
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Latest update. Can you believe it, over 10,000 cards?
Hello Everyone!
What a week! Scott and I have had a hard time wrapping our brain around how much support and compassion we have received from people all around the world!!! Noah was the 17th most googled topic on Thursday and 12th on Friday!! Unbelievable!!!!!!!
Thank you to everyone for the support! Thank you to everyone that listened to my requests for peace. Thank you to Mindy for setting up security for my front door today!! Thank you to the South Lyon Police, Fire, and Post Office for the help and support over the past week. Today was the first day that I could relax. We had a person sitting out front guarding the door. My family and I didn't have to worry about whether the person walking up was going to knock or ring the doorbell. Yes, I do have a sign on the door.
I just wanted to note something interesting. Last Saturday, I posted a little note on this carepage -- it said that we were celebrating Christmas this week. If you would like to send Noah a card, send me an email and I will give you my address!! Our friends and family have repeatedly asked us for something to do to help. Asking for a Christmas card was something simple that many people could do. They posted it on Facebook and BAMMMMM!!!!!!! Next thing I know, we are receiving thousands of cards and packages. Tuesday -- 64, Wednesday -- 416, Thursday -- 2,600, Friday -- 5,100 and Saturday -- ??????? At least 10,000. Yes, you read that right -- at least 10,000.
We are opening and reading each and every card. This is taking some time. It is just humbling, shocking, incredible, astounding... the outpouring of love for one sick little boy.
Friday night, Noah loved meeting Santa. He wasn't so sure about the fire truck or Santa coming on the fire truck. We waved from the balcony. Noah feels safe in my bedroom. That's where he spends most of his time. He wouldn't come out of the bedroom so Santa went in. He sat on the floor and opened presents with Noah, Scott, and I. Then I went out to make sure everyone was doing well and Santa sat right next to Noah. Noah wrapped his arms around Santa's neck and wouldn't let go.
The smile on his face was worth it. He smiled from ear to ear.
Saturday, Noah loved opening presents and let me tell you -- there isn't a shortage of them!! We had a crew at the house and he would pick which person he wanted to play with and that person went into the bedroom and played. When he had enough, he would sleep. We decided to have Santa come on Friday for two reasons. 1.) Santa needed to have time to get back to the North Pole. 2.) Noah needed a day of rest between the big events.
Today was a very merry Christmas! Noah, my mom, and I woke to a Christmas tree in our front yard, fully decorated with wrapped presents underneath. Noah thought that was the coolest thing. Again -- the smile said it all. He spent most of the day in my bedroom. No shocker there! He was stingy with his happy face today. He slept quite a bit and he seems to be hurting again.
Noah is having pain in the left elbow and upper body. This is all new pain. However, he's stubborn as a mule and won't let me give him any IV pain meds. We keep increasing his Methadone which we did on Friday. That hasn't seemed to help much. You can see the difference in him. You can see him slowing down. You can see him in pain and just plain getting tired. He's just at that point.
No matter how hard this is or how painful it is, Scott, my family, and I can say one thing -- Noah had Christmas today. And for that, I am grateful.
Merry Christmas Everyone! The world helped make it special for Noah, my family, Scott, and myself. I can guarantee one thing -- This week was a week that none of us will ever forget.
Thanks- 95
- Crazdwriter
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Thanks lede for posting that. It brought tears to my eyes.
- 94
- Luciendasky
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yes... thank you for posting
- 97
- readytoescape
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Me too, Thanks Lede
- 95
- Crazdwriter
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bump
- 94
- Luciendasky
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bump... for Noah
- 95
- Crazdwriter
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bumping it up again
- 94
- Luciendasky
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one last bump before I go... keep it up
96- Zsuzsy Bee
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ledefensetech wrote:
Latest update. Can you believe it, over 10,000 cards?
Hello Everyone!
What a week! Scott and I have had a hard time wrapping our brain around how much support and compassion we have received from people all around the world!!! Noah was the 17th most googled topic on Thursday and 12th on Friday!! Unbelievable!!!!!!!
Thank you to everyone for the support! Thank you to everyone that listened to my requests for peace. Thank you to Mindy for setting up security for my front door today!! Thank you to the South Lyon Police, Fire, and Post Office for the help and support over the past week. Today was the first day that I could relax. We had a person sitting out front guarding the door. My family and I didn't have to worry about whether the person walking up was going to knock or ring the doorbell. Yes, I do have a sign on the door.
I just wanted to note something interesting. Last Saturday, I posted a little note on this carepage -- it said that we were celebrating Christmas this week. If you would like to send Noah a card, send me an email and I will give you my address!! Our friends and family have repeatedly asked us for something to do to help. Asking for a Christmas card was something simple that many people could do. They posted it on Facebook and BAMMMMM!!!!!!! Next thing I know, we are receiving thousands of cards and packages. Tuesday -- 64, Wednesday -- 416, Thursday -- 2,600, Friday -- 5,100 and Saturday -- ??????? At least 10,000. Yes, you read that right -- at least 10,000.
We are opening and reading each and every card. This is taking some time. It is just humbling, shocking, incredible, astounding... the outpouring of love for one sick little boy.
Friday night, Noah loved meeting Santa. He wasn't so sure about the fire truck or Santa coming on the fire truck. We waved from the balcony. Noah feels safe in my bedroom. That's where he spends most of his time. He wouldn't come out of the bedroom so Santa went in. He sat on the floor and opened presents with Noah, Scott, and I. Then I went out to make sure everyone was doing well and Santa sat right next to Noah. Noah wrapped his arms around Santa's neck and wouldn't let go.
The smile on his face was worth it. He smiled from ear to ear.
Saturday, Noah loved opening presents and let me tell you -- there isn't a shortage of them!! We had a crew at the house and he would pick which person he wanted to play with and that person went into the bedroom and played. When he had enough, he would sleep. We decided to have Santa come on Friday for two reasons. 1.) Santa needed to have time to get back to the North Pole. 2.) Noah needed a day of rest between the big events.
Today was a very merry Christmas! Noah, my mom, and I woke to a Christmas tree in our front yard, fully decorated with wrapped presents underneath. Noah thought that was the coolest thing. Again -- the smile said it all. He spent most of the day in my bedroom. No shocker there! He was stingy with his happy face today. He slept quite a bit and he seems to be hurting again.
Noah is having pain in the left elbow and upper body. This is all new pain. However, he's stubborn as a mule and won't let me give him any IV pain meds. We keep increasing his Methadone which we did on Friday. That hasn't seemed to help much. You can see the difference in him. You can see him slowing down. You can see him in pain and just plain getting tired. He's just at that point.
No matter how hard this is or how painful it is, Scott, my family, and I can say one thing -- Noah had Christmas today. And for that, I am grateful.
Merry Christmas Everyone! The world helped make it special for Noah, my family, Scott, and myself. I can guarantee one thing -- This week was a week that none of us will ever forget.
ThanksOh dear God how heartbreaking
- 95
- Crazdwriter
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My thoughts exactly Zsuzsy Bee when I read it...I couldn't stop crying all the way through it.
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