Fibromyalgia -What The Doctors Don't Tell You

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Fibromyalgia

As a sufferer of Fibromyalgia this writer has been all over the web in search of answers. Unfortunately, although there are many websites that give a superficial view of symptoms and treatments there are not that many that actually explain Fibromyalgia. This condition has such an impact on the life of the sufferer yet, in some medical circles it is not even recognized as a real medical condition.

The symptoms of Fibromyalgia vary and they are different for each individual. However, the main symptom that every person diagnosed suffer from; is wide spread pain. There are 18 trigger points on the body that doctors use to diagnose Fibromyalgia. These trigger points are located in the neck, shoulders, chest, lower, back, elbows, and knees. In order to diagnose fibromyalgia the patient will usually exhibit pain in 11 of these trigger points. When a patient goes into their appointment the doctor usually presses very lightly on these areas, they are looking for a pain reaction from the patient. A patient without Fibromyalgia will not feel pain in the areas being checked.

Once diagnosed with this condition this writer was given medicine and told to call if the medication was not working. Nothing more was explained about the condition or how it may impact someone’s life. Through life experience this writer has come to the conclusion that this condition impacts one’s life completely and totally. The pain from Fibromyalgia can be sharp and tingly, or dull and achy. Most people who have this condition suffer from sleep disturbances where they have trouble getting into the R.E.M phase of sleep. This leaves the patient exhausted and may cause what is known as fibro-fog; which is exactly what it sounds like the patient may feel as if they are walking around in a fog, become disorganized, and forget things very easily.

Anxiety also plays a major role in Fibromyalgia. Some Fibromyalgia suffers experience chest pain and an increased heart rate this is usually due to anxiety. Anxiety is one of the triggers of this condition. The doctors tell their patients that reducing the stress in their lives will help reduce the flair ups however, it extremely hard for a patient to reduce stress when they are consumed by anxiety, and are not given any ideas on how to reduce stress. Some great ways to reduce stress include: Yoga, meditation, taking a walk, listening to music, soaking in a bathtub, or taking a nap.

This condition not only affects the patient it also affects their family and loved ones. Many people with Fibromyalgia suffer from depression, and when the pain flairs up they may appear to be a hypochondriac, or lazy. Without proper understanding of the condition Fibromyalgia may drive a wedge between the patient and their loved ones. It is best for a person who has Fibromyalgia to educate their loved ones. In addition, a person suffering from Fibromyalgia should learn to read their bodies. When they feel the need to rest they should. Accordingly, when they are having a good day they should not over due it which may lead to flare up.

Moreover, Fibromyalgia patients have reported that certain foods tend to be responsible for flair ups so keeping a food journal for the first few months after diagnosis is extremely helpful. When a person keeps a food journal they are able to recognize a connection between certain foods and Fibromyalgia flair ups. In the same way, exercise plays a major role in keeping flair ups at bay. Unfortunately, when a Fibromyalgia sufferer first starts exercising it tends to cause discomfort however, if not overdone after a while it will help build up the muscles strength therefore making them a little more resistant to the pain.

In conclusion, Fibromyalgia is a real disease that causes widespread pain, fatigue, anxiety and depression. Without proper understanding of this condition the patient may feel hopeless. A person who is diagnosed with fibromyalgia must learn ways to reduce stress that work for them. Education and balance are essential in maintain a normal lifestyle.

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Comments 9 comments

moonlake profile image

moonlake 5 years ago from America

I have had fibromyalgia for years and it is not always easy to deal with. Right at this time I am doing pretty good. Good hub.


Ghaelach 4 years ago

Hi Lisa.

As a nurse and a sufferer of Fibromyalgia you know what you are talking about.

I know from my own problem you don't always get the right answers to your questions.

Take care Lisa and have a nice day.

LOL Ghaelach


thewritingowl profile image

thewritingowl 4 years ago from Ireland

Interesting article , at the moment I am trying to assess what may be wrong with me due to chronic fatigue, palpitations, muscle aches, sleep disturbance, anxiety etc.,


Lisawilliamsj profile image

Lisawilliamsj 4 years ago Author

Thewritingowl, it certainly sounds like it could be Fibromyalgia. The problem is, there is a bunch of conditions that have similar symptoms to Fibromyalgia. Many of them are autoimmune; sometimes these conditions are misdiagnosed at first. The process of determining what is actually wrong can be tedious and nerve wracking. Thank you so much for taking the time to stop by and comment and I hope that you can find out what's going on quickly and start feeling better!


thewritingowl profile image

thewritingowl 4 years ago from Ireland

Yeah thanks too for your reply. All my usual blood tests were fine last time. There are a number of autoimmune conditions in the family though but none seem to fit yet anyway. So as you say will just have to plod on and see.


Lisawilliamsj profile image

Lisawilliamsj 4 years ago Author

The blood tests can be weird. I was diagnosed with Fibromyalgia because of the trigger points (and some symptoms), but I had a positive ANA. They were all set to DX me with Lupus, but when they tested my blood again the ANA was negative. I have had 2 positives and 2 negatives. It is frustrating, so if you ever need to vent feel free to email me!!


Peter 21 months ago

It is important to urstndeand that yoga is not a competitive practice. You need to tune into your own body and how it feels. There may be people in the class who are able to do certain poses that are difficult for you. Don't try to do them if it hurts. Ask if there is a modification that you can do instead. You may also be able to use props such as blocks or straps to make it easier for you to get the correct alignment in the pose. It takes time for your body to open up in a pose. Don't try to force or stretch too strongly. Let your body gently relax and stretch. You can help it along by breathing deeply and directing your exhales to any tight spots. Yoga is about balance. It is the balance of your mind, body, and spirit. What you learn in your class will also help you in your every day life. Have fun.


Betzaida 21 months ago

Hi Igor .. We have posted ure sugsnasles to post office in Halls crk .. Sorry we didn't realize they were with us We hope u have a spare pair for your journey today. It was great to meet you and we will follow you on your travels. Stay safe . You are truly inspirational Cheers Kay and Budgie Nicolle


Janko 20 months ago

Petie - Thank you, Joslyn! I am kicking mylesf for not having had their pictures taken last year for recital. You do such an amazing job capturing them on camera. I can't wait to see the rest of the pictures.

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