BRCA positive? Finding support when you have the BRCA mutation.
It can pose a challenge to enter the world of breast cancer when you don’t actually have cancer. I found myself often saying to friends and family, ‘I am having a mastectomy but no, I do not have cancer.’ I tried to explain the statistics but often others didn’t understand my concerns and why I have chosen to have a prophylactic mastectomy and reconstruction and, in addition, eventually have an oophorectomy.
I am not suggesting that family and friends cannot be a network of support but true empathy comes from those who have been or are in your shoes. That is why FORCE (Facing Our Risk Cancer Empowered) is a great opportunity to connect with others who have the BRCA mutation, whether through local meetings, the national conference, message boards or the SOS (Support Our Sisters) program. Take advantage of what FORCE has to offer and learn all you can. The more I knew, the more empowered I felt.
- National nonprofit organization devoted to hereditary breast and ovarian cancer - FORCE - Facing Our
A nonprofit organization for women whose family history and genetic status puts them at high risk for ovarian cancer and/or breast cancer, and for families in which a BRCA mutation may be present.
Okay, you're BRCA positive, now what? 7 things to do
BRCA: A previvor's story, from discovery to empowerment
BRCA positive? Let the FORCE be with you. It could save your life.
Part II Let the FORCE be with you. It could save your life.
More by this Author
The doctors’ primary concerns when you wake up in recovery are your levels of pain and nausea. I wasn’t nauseous and had a mild soreness in my chest. I had a makeshift padded bra on and 4 drains coming...
Nothing can completely prepare you for the unknown, but, from my own experiences, I would like to share my knowledge and perspective. Your doctor’s office will ask for a current breast MRI and standard blood...