Upside Down Malformed Kidney : Symptoms Treatment and After Care

science.howstuffworks.com  The Kidneys
science.howstuffworks.com The Kidneys
www.lpch.org  The function of the Kidneys
www.lpch.org The function of the Kidneys
www.stoptears.org  Thalidomide Tablets
www.stoptears.org Thalidomide Tablets

Nephroplasty: Definition: Surgical Repair of the Kidney.

In 1993 I found out that I had been born with an upside down kidney on the right side of my body. I call it an upside down kidney because the doctors explained that it was almost upside down and malformed and had never worked properly.

Either way it was purely a malformed kidney. I never even knew there was a problem until one day when I began to feel really ill.

My stomach had been swollen for years, but I just put it down to being too fat, or maybe suffering with Irritable Bowel Syndrome (IBS). I never realised that a renal problem was the cause.

When you see yourself every day you don't notice any difference in your appearance, and never in a million years would I have thought that I had any sort of kidney disease, or kidney malfunction.

I had been suffering with stress over that period and just presumed that my swollen stomach was caused by poor eating. On this particular day, I started to feel ill with pains in my lower stomach.

The strange thing was that I had felt a stabbing pain in my back just below the waistline. This had been going on for a few weeks, but not so painful that I took any particular notice of it. I even felt it when I was asleep, but it was just a niggling pain.

At 33 years old it never dawned on me at this time that I could possibly have been born with a malfunctioning kidney. Who would have thought it?

I do remember my mother saying that she had been really sick in her pregnancy with me, and had in fact taken Thalidomide tablets, but only for a few days. Thank goodness! Thalidomide was a drug given to pregnant women back in the late fifties and early sixties for an easier time. The side effects were horrendous.

Children had been born with no arms or legs. And many other deformities. I will never know if this is what caused my problems but it does seem a bit suspicious. I had been born without a properly formed gullet and a twisted lower spine. The hospital treated me, and after two months I was allowed home. My gullet is fine, and the spine was straightened.

My mother said she had taken out an insurance policy at the time to cover any extra medical expenses that I may need for my deformities.Back then the treatment was good, but she wasn't going to take any chances.




www.acidrefluxsymptomsnow.com  Stomach problems? It can be a sign of kidney problems.
www.acidrefluxsymptomsnow.com Stomach problems? It can be a sign of kidney problems.

First Signs

When I began to be sick I presumed that I had picked up a tummy bug. The pain in my stomach wasn't too bad at that point but it got steadily worse as the night went on.

My partner called the Doctor, but he just said to drink a lot of fluids and hope that it would be gone in the morning.

Sadly this wasn't to be. By midnight I was vomiting so badly they had to call an ambulance. The Doctor got involved and said don't be stupid, and please don't waste the Paramedics time!

Eventually after much arguing, the Paramedics arrived, took one look at me, and we headed out to the hospital.


Stomach Scan
Stomach Scan | Source

On arrival I was given the usual tests. Blood test, blood pressure and heart monitor. Then I was told that I would be having a scan. Like anybody else I presumed that it would be fine and then I would be released to go home.

The first time I realised that something wasn't quite right, was when the young girl doing the scan, had a frown on her face. She then told me that she was going to go and get another Doctor. By now I was beginning to panic.

When he came in, he checked the scan and told me the shocking news. My right kidney was malformed and upside down. In shock, I listened to him telling me what they were going to do. I had two choices. Take the kidney out, or rebuild it.

I chose rebuild. I didn't like the idea of having only one kidney.

I knew that when I had been born I had been rushed to Great Ormond Street Childrens Hospital London.

As I mentioned above, I had very serious problems. At a few hours old I had major surgery to correct them. And had to stay in hospital for two months. For some reason they totally missed the upside down kidney.

How an X Ray department should look.
How an X Ray department should look. | Source

Frankensteins Lab!

My first surgical procedure was really unpleasant. For a start it was the holiday period near Christmas and the staff were only keeping the main wards and A and E open. So I was taken down a dark corridor, totally on my own apart form the porter who was pushing me in a wheelchair.

On arrival in the X Ray department all the lights had to be turned on, and it was freezing cold. To my horror, I found out that they had to X Ray me, and then stick a needle through my back into the kidney so they could drain off the excess water that had built up inside.

Because the kidney wasn't functioning properly, the water had never drained properly so had built up and made the ureter, the tube from the kidney to the bladder, twice the size to cope with the pressure, hence the swollen stomach.

The water had to be drained. Now imagine a dark X Ray room, and feeling scared and lonely. Then add a huge needle being stuck straight into my back straight through to the kidney.

What I didn't realise before the procedure was that the kidney is the most sensitive organ in the body where pain is concerned. Speaking to a friend who is paralysed from the waist down, he told me that even though he couldn't feel anything, when he had this procedure done he felt every single pain. And it was excruciating.

The kidney acts like a sponge. The second the needle was inserted it sucked it up and 'grew' straight away around it.

I have never ever felt so much pain in my life. And yes I am embarrassed to admit it, I did scream the place down! In the end it took six guys to hold me down. This wasn't a hospital, this was Doctor Frankensteins lab. With only one light on and six guys holding me down and yes, me screaming, you can imagine what it must have been like.

I suggest anybody who is about to have this procedure make sure you are knocked out for it. Trust me, you don't want to go through that pain.

After they had finished I was wheeled back to the ward and promptly fell asleep.


www.healthtap.com The drain from the kidney after operation.
www.healthtap.com The drain from the kidney after operation.
Epidural
Epidural | Source

Epidurals and Round The Clock Care.

After a stay of one week, the Doctors took out the drain. The drain was placed in my side through the skin to the kidney, and trailed down the side of the bed to a big bucket so that the water could seep out.

This actually doesn't hurt as by this time my side was numb. The procedure to remove the drain was unpleasant but not that painful. Taking deep breaths and relaxing helps to reduce the discomfort.

I was then sent home for two months to wait for the main Operation.

On 9th February, I was admitted back into hospital. After being given Pre Med tablets to make me drowsy I was wheeled down to theatre.

I was told the Op took approx 8 hours to do. The surgeons opened me up and took out the kidney. After snipping bits off, and cleaning it up they then replaced it back the right way up.

This sounds a simplistic account, but I was told that our kidneys are deep within the body. So it's a major surgical repair job.

The other procedure was to place a stint in my ureter tube because they found it was twisted. So would help to straighten it.

When I woke up I didn't really know anything for days. I was kept on 15 minute watch by the nurses and doctors. I had been given an epidural in my back, lower spine, to keep the pain at bay.

An epidural is usually given to women who are in labor. The procedure uses a catheter inserted into the lower spine to give strong pain killing drugs or other medication to patients.

I had this for two days as the usual meds wouldn't work because the pain would have been so bad. They kept watch on me because of the epidural and to make sure that I was recovering properly. As I said, it was a very deep wound.


You May Have Kidney Problems If You Suffer With Any Of These Symptoms.


  • Swollen stomach. Not just bloating but long term. The stomach tends to be hard compared to irritable bowel symptoms that can either be hard or soft.
  • Continuous water infections/cystitis. Burning from the bladder.
  • If you see blood in your urine get checked out by the Doctor straight away. I never had this, but it is one of the effects of kidney disease or malfunction.
  • Stabbing pains in your middle to lower back, or at the front. In my case it was on the right hand side.
  • Lethargy. Tiredness and depression.
  • Dizziness. This symptom is classic of kidney disease or malfunction. Your blood pressure goes down really low, hence the dizziness. I noticed it more when I leaned over to get something of a shelf, or near the floor. The whole room would spin.

reference.medscape.com  Medical Surgery Staples
reference.medscape.com Medical Surgery Staples

Dart Boards and Staples!

When I eventually recovered enough to know what was going on, I realised that I had another drain inserted.

Over the next few days I had lots of needles stuck in my stomach to stop blood clots. This can happen after stomach surgery mainly, but other surgical procedures too.

The shots were of something called Warfarin, to thin out the blood. And I must have had six a day! One nurse actually made a joke of it and said she was going to paint a dart board on my stomach!

I stayed in hospital for two weeks. After removing the drain, I stayed to recover for another day, then sent home.

But to be honest I felt as though I wanted to stay for another week.

I couldn't even lift a cup. For at least a month I felt weak, and I just tried to walk around the house to get my strength back.

The district nurse came every few days and changed my bandages. The scar was long and wide. I had staples still in. These are an alternative to stitches. I am not sure if they still use them or not. But at that time they were common. They did look rather like office staples only larger.

It was case of cleaning it and keeping my wound free from infection. Luckily all went well and the nurse eventually came out to remove the staples.

Now that sounds horrific, but in fact I never really felt it as my wound was completely numb because of the surgery. The nerve endings were damaged, and to this day I still can't feel a portion of the skin on my side.

www.ingalls.org  Day Surgery
www.ingalls.org Day Surgery

Day Surgery.

I was still very weak but on my way to recovery. The stitches were out. The wound was healing nicely and all I needed now was one more procedure but that would have to wait six weeks.

After the weeks were up, I went back in hospital for one day to remove the stint in my tubes. I was placed under anaesthetic and when I woke up it was all done.

The whole incident took over three months in all.

Over the following weeks I became stronger and in June I went back to work. It wasn't easy, the pain was still there sometimes.

And there was rather a strange side effect of the operation. I noticed that when I lay down at night to go to sleep the scar tissue would 'twist' inside, rather like bad cramp. In fact it probably was a sort of cramp as it was still healing.

The trouble was, I couldn't get up! You use your stomach muscles to lift up and down. Now they were the ones causing the pain.

This in fact happened quite a few times over the years following the Op. Not very often, and less frequent as time has gone by. But it can still grab me today 20 years on.


Continuing Care.


  • Over the years I have had to have antibiotic treatment for water infections. This happens approximately once every two or three years. It may not always show up as an infection of the water though, it may just appear as a swollen stomach and an uncomfortable feeling in and around the scar. This is an inflammation of the tubes and kidney. Either way, antibiotics are needed.
  • Make sure you keep an eye on it. There shouldn't be any problems long term as this was a medical procedure to repair the kidney. Once it has been done it should be fine. Monitor your urine, and drink lots of water long term.
  • Cystitis can be a painful thing too. Its not necessarily a side effect of treatment, but as many people will tell you, even if you are totally healthy without surgery cystitis can be painful.
  • You want to keep your urinary system clean and healthy. If you are a heavy drinker now is the time to quit. If not, at least cut down on the drink. Your kidneys take a battering when soaked in alcohol, so make sure you drink safely.

If you feel that you may have kidney problems ask your GP for a referral. You can never be too careful.

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Comments 66 comments

Jackie Lynnley profile image

Jackie Lynnley 3 years ago from The Beautiful South

Wow you poor girl! I thought I would joke about you having to pee standing on your head (having an upside down kidney) but this is not funny. We have trouble with kidneys anyway the older we get and blood pressure plus other meds are bad for them but celery seed is very very good to correct what medicines do, like Tylenol too hurting kidneys. It goes a long way so I use a sprinkle almost every day, either on salad or soup or even toast and jam. I don't even taste it. Get you some and see. Pain left my side as soon as I started on it. I want you healthy! We all do. ^


billybuc profile image

billybuc 3 years ago from Olympia, WA

Nell, I had no idea it was possible to have an upside down kidney. Sheez, what a procedure you had to go through. I hope all is well now my friend. Thanks for sharing this so others will know.


Nell Rose profile image

Nell Rose 3 years ago from England Author

Hi Jackie, lol! that is funny though! pee upside down? yep I will try it! I have used celery seed before, its great for water retention, but it makes you pee to many times before you go out, so you have to take it at night! lol! thanks Jackie, yes I am a-okay now, I hope! that was back in the nineties, but it was horrible because of the dark corridors etc, because of the holiday period, the nurses were great though, especially one called diane, she looked after me the whole time, thanks for reading, nell


Nell Rose profile image

Nell Rose 3 years ago from England Author

Hi billy, yes it was a shock and scary too, thank goodness I was younger then, now It would scare the pants of me! lol! but the staff were great, thanks as always, nell


always exploring profile image

always exploring 3 years ago from Southern Illinois

Geez Nell, I am so sorry you had to endure this horrible pain. It is alarming what can go wrong during gestation.. Happy you are well today..Cheers my friend...


Sunshine625 profile image

Sunshine625 3 years ago from Orlando, FL

I never heard of an upside down kidney. Only Nell could teach me this ailment exists. That was a funny thought of you standing on your head ;)

You are an amazing woman and I think it's awesome how you find humor in almost all situations. I'm the same way. Why cry when you could laugh your arse off instead! :)


Larry Fields profile image

Larry Fields 3 years ago from Northern California

Hi Nell,

What a terrible thing for anyone to go through. You have a lot of inner strength. I'm so glad that you survived!

As a young child, I came down with meningitis. This was shortly after I'd had a polio immunization that turned out to be from a bad batch of vaccine.

It was touch and go for several weeks. I don't remember much about it, except for the terrible pain in my neck.

Thanks for sharing your experience with us.


Larry Fields profile image

Larry Fields 3 years ago from Northern California

Nell,

You mentioned alcohol in relation to kidney problems. That plus one other thing in your hub reminded me of a terrible joke.

Q: How many Finns does it take to change a lightbulb?

A: It takes five. One to hold the lightbulb, while standing on the table. And four to drink kosu until the room starts spinning.


ChitrangadaSharan profile image

ChitrangadaSharan 3 years ago from New Delhi, India

So sorry to read what you have gone through. It must be so terrible to suffer like that. But the good thing is, that its over.

Its so nice of you to share your personal experience here, so that others are enlightened.

Wish you a healthy and happy life!


Nell Rose profile image

Nell Rose 3 years ago from England Author

Thanks so much ChitrangadaSharan, yes it was pretty horrible at the time, but its fine now, thanks for reading, nell


Nell Rose profile image

Nell Rose 3 years ago from England Author

Thanks Larry! lol! trust you to add the humor! haha! great to see you, nell


Nell Rose profile image

Nell Rose 3 years ago from England Author

Thanks again larry, that sounds terrible, seems to me that any vaccine has its horrible side, why do we put ourselves through it? in my case the Kidney was something I was born with, upside down darn thing!


Nell Rose profile image

Nell Rose 3 years ago from England Author

Hi Linda, yep I had to be different! lol! my mother was sure it was the thalidomide tablets that did it, not sure if you had them over there? thanks as always, nell


Nell Rose profile image

Nell Rose 3 years ago from England Author

Hi Ruby, thanks so much for reading, yes I was a very ill baby, but somehow they missed the kidney!


MartieCoetser profile image

MartieCoetser 3 years ago from South Africa

The side effects of Thalidomide were indeed horrendous and you will never know if it was the reason of the irregularities you were born with. Fortunately the reason is not the most important, but the fact that medical science eventually solved your problems.

Very interesting hub, Nell. So sorry you had to suffer such tremendous pain.


carol7777 profile image

carol7777 3 years ago from Arizona

I read this word for word..as I have never heard of this before. Anyway I am glad it was successful if not painful and difficult. ANd you still remember the pain..Thanks for sharing all this.


Nell Rose profile image

Nell Rose 3 years ago from England Author

Thanks Martie, yes it was pretty horrendous at the time, but luckily all is fine now, fingers crossed! lol! thanks for reading, nell


Nell Rose profile image

Nell Rose 3 years ago from England Author

Thanks carol, yes it was horrible, mainly because of the dark corridor, and the torture chamber! haha! seriously, those guys were great it was just me, thanks!


Jools99 profile image

Jools99 3 years ago from North-East UK

Nell, very interesting read though I was oohing and aahing for you all the way through - you sound like you really went through it and them missing it the first time must have been infuriating? I had a kidney infection in January which laid me low for about 3 weeks, felt really dreadful and that started with backpain and then chills and fever but nothing compared to what you have been through. Your photos are really good and give a good sense of the whole anatomical problem and a personal experience of something always makes interesting reading (though I bet you wished you had not had it!).


Nell Rose profile image

Nell Rose 3 years ago from England Author

Thanks Jools, yes you're right, wish I never had it! lol! don't worry it was a long time ago now, 20 years, but I still remember it vividly, terror never seems to disipate! haha! thanks for reading, nell


Marcy Goodfleisch profile image

Marcy Goodfleisch 3 years ago from Planet Earth

Wow - I don't think I have ever heard of this condition! I can see where the kidney is designed to function a certain way (biologically), so the size, positioning and function could all be affected. I guess? What an interesting hub - thanks!


innerspin profile image

innerspin 3 years ago from uk

Wow, this was so interesting! Did you feel a benefit from having the repair? It must have taken a long time to recover from the operation. A friend had a kidney removed due to cysts, she's been very well since. It's amazing what doctors can do, and how people get over these things. Thanks for telling your story.


CASE1WORKER profile image

CASE1WORKER 3 years ago from UNITED KINGDOM

Ouch how painful- funny you said about the thalidomide drug- I am the same age as you and my mum said she was in two minds to take it but the sickness passed and she didn't. Really interesting and well presented hub. Voted up and awesome


Nell Rose profile image

Nell Rose 3 years ago from England Author

Hi Marcy, thanks so much for reading, yes it was a strange thing to have, and I never knew my kidney was like that, who would have guessed? lol!


Nell Rose profile image

Nell Rose 3 years ago from England Author

Hi innerspin, yes much better, the strange thing was that I had really bad asthma for years, terrible in fact, and yet when I had the op it got much better! thanks so much for reading, nell


Nell Rose profile image

Nell Rose 3 years ago from England Author

Hi Case, that was lucky! phew! just think if she had, doesn't bear thinking about! thanks so much for reading, nell


AliciaC profile image

AliciaC 3 years ago from British Columbia, Canada

This is a very interesting hub, Nell. I'm sorry that you had to undergo such horrible pain, but I'm glad that the treatment helped you.


travmaj profile image

travmaj 3 years ago from australia

Goodness Nell Rose - what a shock do discover this - the procedures sound totally painful - what a relief it must be for you to have it under control now.

It's very interesting medically - how you explain the symptoms and the treatments offered.

I certainly wish you god health now - thank you for sharing this.


travmaj profile image

travmaj 3 years ago from australia

whoops - GOOD health - although the typo doesn't sound too bad.


Nell Rose profile image

Nell Rose 3 years ago from England Author

Hi Alicia, thanks so much for reading, yes it was horrible at the time, but hopefully its fine now, glad you liked it, nell


Nell Rose profile image

Nell Rose 3 years ago from England Author

Hi travmaj, thanks so much for reading, and yes both versions are good! lol!


aviannovice profile image

aviannovice 3 years ago from Stillwater, OK

Sounds like you went through quite an ordeal. Glad that you made it through all right, but its amazing that you can get those odd muscle pains after 20 years.


Nell Rose profile image

Nell Rose 3 years ago from England Author

Thanks Deb, yes I still get spasms in my scar occasionally, but that's okay I am used to it now, thanks so much for reading, nell


mary615 profile image

mary615 3 years ago from Florida

You and I have something in common. I lost a kidney because of a huge stone that took over the kidney causing it to stop working. My ordeal was nothing compared to what you endured.

Voted UP etc.


livingsta profile image

livingsta 3 years ago from United Kingdom

Sorry that you had to go through such a thing. Good to hear that you are feeling better after the surgery. I wish you good health. Thank you for sharing your experience with us.


Fossillady profile image

Fossillady 3 years ago from Saugatuck Michigan

Wow, Nell . . . you went through so much, but well worth it in the end (I hope). This was an amazing story and for someone who has been lucky health wise it's good to have a clear understanding of what some of us must endure! Very much appreciate your story! Hugs, Kathi


Nell Rose profile image

Nell Rose 3 years ago from England Author

Hi mary, that sounds painful, I am sure it was similar, sorry to hear you lost a kidney, and thanks so much for reading, nell

Hi livingsta, thanks so much for reading, nell

Hi kathi, thanks so much, yes it was a shock to know that my kidney was the wrong way up! lol! but thanks for the hugs, and hugs back at ya, nell


Alastar Packer profile image

Alastar Packer 3 years ago from North Carolina

This was riveting stuff reading about your experience at the Frankenstein lab, Nell. You really went through it. I'll bet the Thalidomine had something to do with things. We have this kidney story in common in a way Nell. Twenty some years ago I had kidney stone but the pain was in the lower abs so it took them twelve hours to figure out I had a pelvic kidney and not only that but the other one was turned around backwards. Been lucky suppose as so far no probs have arisen from these conditions. You on the other hand have gone through the fire and no doubt were strengthened by it. Just like the old saying goes, "What doesn't kill you only makes you stronger." Glad you came out OK m'lady.


Nell Rose profile image

Nell Rose 3 years ago from England Author

Hi Alastar, now that sounds as strange as mine! lol! seriously I am glad you are okay, its amazing how we just don't know about our kidneys until something like this crops up, thanks so much for reading, and yes touchwood I am fine now! lol!


suzettenaples profile image

suzettenaples 3 years ago from Taos, NM

Nell: The life experiences you have had. Who would think an upside down kidney. Thanks for telling us about this. Very informative. Take care and thank goodness you had this corrected.


Nell Rose profile image

Nell Rose 3 years ago from England Author

Thanks suzette, yes it was a bit scary at the time, but I am fine now, thanks so much for reading, nell


midget38 profile image

midget38 3 years ago from Singapore

Wow. Not something that is easy to deal with...not many would have this condition so resources are also limited. Thanks for braving this and sharing this with us.


Jackie Lynnley profile image

Jackie Lynnley 3 years ago from The Beautiful South

I didn't know celery seed did that, I will have to up my intake of it, my ankles are swollen now from walking all day at the zoo! I have read though it also protects you from medicine side effect on kidneys such as Tylenol and the bad soda pops can do. Thanks for your info.


Nell Rose profile image

Nell Rose 3 years ago from England Author

Thanks michelle, yes it was a unique thing at the time, as the doctor said, glad its all done now, and I am fine thanks. just hope nothing else is upside down! lol!


Nell Rose profile image

Nell Rose 3 years ago from England Author

Thanks Jackie, yes it is good stuff celery, mind you it does make you want the toilet far too much! lol! thanks as always, nell


MizBejabbers profile image

MizBejabbers 3 years ago

Nell, when I saw this, I went “Oh, No!” I am so sorry about your ordeal and I’m glad that you are OK. I’m glad to know about the celery seed, too. I love it and will find more things to use it on. I have a horseshoe kidney. I had never heard of this, but the doctor explained that my kidneys never separated into two, and that I have one big long kidney that goes around my body. He said that it was somewhat unusual, but I don’t think he called it rare.

Anyway, my son has Henoch Schonlein purpura, an autoimmune disease that affects the kidneys. He breaks out in purple spots and lesions that look somewhat like ringworm. Anyway, two years ago he suffered complete renal failure and went into convulsions. He was lucky that he wasn’t home alone and that his friend called an ambulance. He had to endure the needle in the back for a biopsy on his kidneys. He said it was excruciatingly painful. A year later I had to take him in for another biopsy to see if the HSP had settled in his kidneys. His doctors won’t give him Prednisone for the HSP unless his kidneys get worse. Prednisone is the standard treatment for HSP. Anyway, as we were waiting for the results, I told him that he’d better not need a kidney transplant because I had a horseshoe kidney and couldn’t donate him one. He said, “Well, I have one, too.” They had found his horseshoe kidney when they were running tests. I guess it must be genetic.

This was a great hub. I found it informative, if unsettling. Voted you up+++.


Nell Rose profile image

Nell Rose 3 years ago from England Author

Hi Miz, I have never heard of a horseshoe kidney either, its amazing all these strange things that can happen. I am sorry to hear about your son and his problems, and yes the pain when they do the kidney needle is excruciating, I hope he is keeping well now, and thanks so much for reading, nell


drbj profile image

drbj 3 years ago from south Florida

What a horrible experience to suffer through, Nell. So happy you are now 'right side up' so to speak. Can't help but wonder if that ghastly thalidomide was responsible for some of your problems.


Nell Rose profile image

Nell Rose 3 years ago from England Author

Hi drbj, yes I think you are right, my mum only used it for a couple of days, but thank goodness for that! great to see you, nell


thumbi7 profile image

thumbi7 3 years ago from India

I can understand what you have gone through. It is not something easy.

I am glad that you are back in good health.

Take care

Voted up and shared


Nell Rose profile image

Nell Rose 3 years ago from England Author

Thanks thumbi, have a great day, nell


Shyron E Shenko profile image

Shyron E Shenko 2 years ago

Oh Nell, this is an amazing trip you have been on. I hope every thing is going well for you now. I am glad you were able to have it turned around instead of losing one, like my husband. And my sister in-law was born with only one and has never had a problem.

I wish you well, and hope you continue to heal.

Voted up UAI, and shared.

Shyron


ologsinquito profile image

ologsinquito 2 years ago from USA

Sorry you had to go through this terrible ordeal. But, looking on the bright side, at least it was something that could be helped with modern medicine.


Alastar Packer profile image

Alastar Packer 2 years ago from North Carolina

Thought I'd read and commented on this one before but what a riveting experience to read over twice! Recently got over a marble- sized kidney stone in the pelvic one and Nell that was a riveting experience too! How does 26,000 dollars sound for the care and blasting of that sucker?!


Nell Rose profile image

Nell Rose 2 years ago from England Author

How much? Alastar that's awful! and painful in your pocket as well as the pain in your body! I hope you feel better now, I know how kidneys can be the most painful thing in the world, I am so glad that we have the NHS over here! thanks for reading again, nell


Nell Rose profile image

Nell Rose 2 years ago from England Author

Thanks ologsinquito yes that's so true, glad you liked it, and thanks for reading, nell


Nell Rose profile image

Nell Rose 2 years ago from England Author

Hi Shyron thanks so much, yes it was a nightmare at the time, but hopefully, and fingers crossed its okay now, sorry to hear your husband lost a kidney, that must have been horrible for him, nell


Alastar Packer profile image

Alastar Packer 2 years ago from North Carolina

Your a sweetheart, Nell, but it's alright. Pretty good private insurance will pick up most of it. Yes, that marble got stuck in the urethra and was oh so painful. But nearly $30,000 to blast it and 24 hrs or so in hospital - whew!


Nell Rose profile image

Nell Rose 2 years ago from England Author

Yes the pain is horrible isn't it Alastar, thank goodness you got it sorted out, thank goodness your insurance covered it, phew!


Jo Elder 2 years ago

You are the only story I have ever read regarding an inverted kidney! I also had one as well! It took 2 years for drs. to diagnose my problem. One day I had excruciating pain my co-worker called me an ambulance! Long story short, they did an MRI and discovered my kidney was completely upside down and was 2.5 x the size of normal! I had a large kidney stone in my ureter that was backing up urine into my kidney. They put in a stent to help drain the kidney and 6 weeks later, I had full surgery which involved removing the kidney , cleaning all the stones out of it and putting it back in the proper way. The urine had been backing up in kidneys for years producing stones! They said I was born that way, and of course we never knew this until I was 42 years old! So sorry to hear what you went through, as I can very much relate. My dr who was about 60, said he had only ever read about things like this but had never actually seen a case like mine before! I hope you don't feel so alone now!


Nell Rose profile image

Nell Rose 2 years ago from England Author

Thank you so much for telling me your story Jo, its great to know that we are not the only people that have suffered this strange abnormality. In fact one person, a doctor more or less said that I had made it up and you can't have an upside down or malformed kidney! lol! well we should know! I found the stent to drain it in the first place was the most distressing as it was painful as you know, just putting a needle in a kidney while we are awake was the stuff of nightmares. I am sure other people have gone through this too, so I hope this helps them to realise that they are not alone, once again thanks for reading and commenting, and I hope you are well now too, nell


The Jet profile image

The Jet 2 years ago from The Bay

My kidneys aren't so great, so I relate to this article very much so. Keep being a warrior.


Nell Rose profile image

Nell Rose 2 years ago from England Author

Thanks The Jet, it was a shock to me, it was something that I would never even have thought of till it happened, thanks so much for reading, and you take care too, nell


The Jet profile image

The Jet 2 years ago from The Bay

God bless.


Beth 17 months ago

So sorry you had to go thru it but so proud of you for writing about it! I am 59 and just found out I was born with an upside down kidney and my mom took just a couple of days of the same medication as you mom when she was pregnant with me! I have been to so many doctors to find out what was wrong with me for years and finally my doctor did an MRI and it finally showed up! You are the only person I have found that had the same symptoms and same MRI results as me and now joe! Thank you so much for writing about it!


Nell Rose profile image

Nell Rose 17 months ago from England Author

Hi Beth, thanks so much for reading and commenting, yes that thalidomide has a lot to answer for, that's if what it was that caused it. many doctors have never heard of it, but as you and I know its possible! are you going for surgery? or is it under control? good luck if you are going to get it sorted out, it takes a while for recovery completely but its best to get it done, and funnily enough it helped my asthma too! evidently something like this can cause it!

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