Club feet – thanks to medical science clubfeet is not a curse!

Wikipedia: Congenital talipes equinovarus - Clubfeet (bilateral = both feet)
Wikipedia: Congenital talipes equinovarus - Clubfeet (bilateral = both feet)
 poplarchick.com
poplarchick.com | Source

The fact that I was born with clubfeet never affected me in any way. Thanks to medical science my feet were straightened while I was a baby. I grew up with only the knowledge that crawling on my knees or walking on my ankles would have been my lot in life if I was born in a previous century.

But let me be honest – to say it never affected me in any way is a lie. Of course it did. It kept me humble and grateful and able to appreciate many things I would have taken for granted if I was born with normal feet.

I undertook to write about my own case after Judicastro mentioned that a friend of her is expecting a baby and the doctor suspects he will be born with clubfeet. One of my fears was that my children will be born with it, and my first question after they were born was in fact: "Are the feet normal?" God knows why I was so worried about this, because it is one of many deformities that can be expeditiously corrected.

Before I tell my story, just a brief summery of the congenital deformity called clubfeet, clubfoot, club feet, club foot.

The medical term for clubfeet is ‘Congenital talipes equinovarus (CTEV). ‘Talipes equinovarus’ is a Latin word. Talus = ankle, pes = foot, equino = of/like a horse, varus – turned inward. A baby could be born with unilateral (one) clubbed foot, or bilateral (both feet). Two groups of CTEV has been identified - Postural TEV or Structural TEV, which compels persons to walk on their ankles or on the sides of their feet.

In Western countries one in every one-thousand babies is born with one or two clubbed feet. In South African blacks it occurs three times as frequently and six times as frequently in Polynesians. In all cases approximately fifty percent are males.

Clubfeet is not an embryonic malformation, but a developmental deformation. The foot, or both feet, turns into clubfeet during the second trimester of pregnancy.

 

Dr Ponseti (left), Dr Wang (right)
Dr Ponseti (left), Dr Wang (right)
 poplarchick.com
poplarchick.com
dr-deded.blogspot.com
dr-deded.blogspot.com

Treatment of clubfeet

Manipulation will be the first attempt to correct the deformity. It means gradually stretching tendons, then casting and bracing the feet until it is in the correct position. Treatment starts immediately after birth. The doctor changes the cast approximately every third week to do the next stage of stretching, casting and/or bracing. This treatment is known as the Ponseti Method, introduced by Dr. Ignacio Ponseti in the 1950’s. (Some sources allege 1940’s). In the meanwhile this method was improved and applied today with a success rate of 95%.

23 videos demonstrating the Ponseti Method is obtainable at http://talipestogether.com/video?sort=highestRated or Watch a Video on the Ponseti Method

There are also other treatments supporting the Ponsetti Method, like Botox (Botulinum Toxin type A), which is a chemical that acts on the nerves that control the muscle. It weakens the Achilles tendon which allows the foot to be turned into a normal position.

Surgical treatment

In some cases, such as mine, tendons, ligaments and joints in the foot/ankle have to be adjusted with surgery. After surgery, casts have to hold the feet still while it heals over a period of approximately six weeks. Thereafter special shoes, or braces or any of many external fixtures have to be used for up to a year or more. 

Causes

are divided in categories: positional, congenital, teratologic, neurogenic or syndromic.

Some syndromes are: 

  • Edwards syndrome, also called Trisomy 18 – meaning a person has three copies, or two plus a part of a third, of chromosome 18 instead of only two. After Down syndrome this defect is the second most common autosomal trisomy.

  • Compartment syndrome – the compression of nerves, blood vessels and muscles inside a specific closed space.

  • Some say Breech presentation could also be a cause, but my logic mind refuse to agree with them.
  • Ehlers–Danlos syndrome may be the cause – which is a group of inherited connective tissue disorders caused by a defect in the synthesis of collagen. Collagen is the protein that helps tissues to resist deformation.

  • Spina bifida cystica could be a cause, which is a defect caused by the incomplete closing of the embryonic neural tube. This is a cause easy to diagnosed, because the spina bifida has to be surgically closed after birth.

 

Some cases in my family –

We have three cases of Oral-facial-digital syndrome, which affect the development of the oral cavity (the mouth and teeth), facial features, and digits (fingers and toes). The OFD1 gene is to blame for this defect - a gene providing instructions for making a protein whose function is not fully understood, but it appears to play an essential role in the development of many parts of the body, including the brain, face, limbs, and kidneys.

Members of my family born with a defect OFD1. (I include myself because it seems so obvious that this gene may also be the baddy in my case).

  1. My mother’s paternal grandfather was born with a cleft palate.
  2. My mother’s brother was born with his middle finger attached to his ring finger (of both hands.)
  3. I was born with clubfeet.
  4. My brother’s daughter was born with extra tissue like warts to her gums.

My uncle was, and still is, an accomplished musician on many music instruments. Although his fingers were separated when he was about six years old, those fingers always stay together while he plays the piano, as if the brain recognize them as one and not two separate fingers.

My brother’s daughter is a beautiful and highly intelligent young lady with only pictures proving that she was born with warts on her gums.

Alarming is the fact that genetic influences increase dramatically with family history!

My personal story –

Five days before my father turned twenty-two, and four weeks before my mother turned nineteen, I was born. Their first child. With clubfeet.

I can clearly visualize the horrible shock they had to deal with. “Why us? What did we do wrong? What sins we or our fathers or our grandfathers or great-grandfathers committed that justify this kind of punishment?” They were dedicated Christians and their minds were set in the common believes of their time. My mother blamed herself, because she was often a passenger on my father’s Harley Davidson motorbike.

They were reluctant to allow doctors to correct ‘the work of God’. I don’t know who enlightened their thoughts. Perhaps my grandmother. She and my grandfather also refused to give permission for the separation of their son’s fingers, but when he went to school at the age of five and proved that he was unable to write because he could not hold a pen, they conceded that deformities could be the direct interference of Satan in God’s perfect work and that was exactly the reason why God allows medical science to develop. (Is it not interesting, the ability of Christians to justify all their decisions by merely applying the most relevant scriptures?)

It could have been their son’s teacher who enlightened their thoughts, or perhaps it was my grandfather’s father who was born with a cleft palate. I have no idea how he managed to eat, speak normally – as he did, according to my mother - and even distinguishes himself as an accomplished vocalist with a cleft in his palate. Although the history of surgery of cleft lip and palates reaches as far back as 390 B.C., when a cleft lip was closed successfully in China, a successful operation in the Western world did not, according to Wikipedia, occur until 1816 when chloroform was introduced. However, as far as I know cleft palates were not rectified via surgery in South-Africa in the time of my great-grandfather. He must have kept the cleft closed with some kind of a gadget.

Anyway, my parents finally made a decision that drastically changed my destiny and so I was delivered to specialists in the terra firma of medical science. I will forever be grateful to them, because without any treatment, a child's clubfeet result in severe functional disability.

The Ponseti Method, introduced by Dr. Ignacio Ponseti in the same decade I was born, was exercised on me. The treatment lasted for ten months before they finally realized the tendons, ligaments and joints in my ankles and feet have to be adjusted with surgery. The operation was a success. I was, however, almost two years old before I was able to walk. I still have, somewhere in my house, my first pair of special boots that supported my feet and ankles, and I also have one of the larger pairs I had to wear during my growing-up years - ordinary shoes built up at the sides which forced me to walk on the entire foot and not only on the outer halve.

At the age of thirteen final adjustments had to be done to the tendons and ligaments in my ankles and toes, and the bridges of my feet had to be lowered. This was also successfully done.

No calves - but so what? I can walk!
No calves - but so what? I can walk!
Flat, weird-looking feet, but so what, thank God I can walk and run...
Flat, weird-looking feet, but so what, thank God I can walk and run...
In pretty, well-fitting shoes my feet look normal.
In pretty, well-fitting shoes my feet look normal.

How did this affect my personality?

Naturally I cannot remember the pain and discomfort I must have suffered when I was a baby. I only know what my parents told me.

During the day or three when they allowed my feet to rest before the next treatment, I yelled hysterically when I saw my feet moving in front of me. The muscles in my legs were undeveloped because my legs were most of the time in heavy plaster casts, I could not control my feet, they were unknown, weightless objects flying in front of my eyes. I could not grap them with my hands, due to undeveloped coordination between brain, hands and feet. My mother had to calm me down with pillows on my legs. Until today, particularly during times of distress, I need weight on my legs to fall asleep.

It took three nurses to hold me down every time the doctor had to remove a set of casts. The sound of the cast saw frightened me out of my baby mind. Because of my resistance I was on numerous occasions injured by the saw. I never outgrew the fear of noises representing cast saws. When they removed the plasters after follow-up surgery when I was thirteen, I shocked the doctor, two nurses and my mother with an anxiety attack they confused promptly with an epileptic seizure. Until today anxiety overpower me when I hear a sawing noise.

While I was a baby pain made me cry a lot. My mother was afraid I might get addicted to the medicine, therefore she withheld pain killers and encouraged me to bear pain as long as I could. My father made me lie on his chess while he read a book or newspaper aloud. He encouraged me to 'talk to him', and so I moaned and muttered myself often to sleep. That my own voice comforts me, was something I must have learned during that time and that is probably why I've grown into a chatterbox, talking the hind leg off a donkey whenever the opportunity presents itself. “Martie talks too much, therefore she forfeits her chances to be the best achiever in her class,” was a teacher’s comment in one of my school reports.

Until about ten years ago I was not at all able to handle silences. If nobody talked, I woud kill the silence with my own voice, talking-talking-talking. My friends did not mind – they hung on my lips and assured me that they enjoy listening to me. I was regarded as clever, witty and interesting. The fact that my parents often begged me to stop bombarding them with questions and my interpretations of whatever I see and to give their poor ears some rest, did not bother me. I was happy until I was yanked out of my childhood. But in spite of the secrets I only shared with my diary - something I all of a sudden needed - I kept on talking to my friends about everything under the son. I was the leader of all conversations.

My ‘talking disorder’ was identified by my husband (to be), the day he shouted at me: “Can’t you be quite for a minute? I can’t hear my own thoughts because you are thinking aloud all the time, irritating me with every damn thought that pops up in your mind.”

"Okay, now how do I change myself in order to keep him happy?" I asked my diary. And the answer I got was: "Don't share your thoughts with him."

Until today I take my mind off physical and emotional pain with humming. Oh, and singing to my children, and now also to my grandchildren, had the same positive effect on them. (Next time you are in pain, try singing/humming/moaning yourself to sleep.)

I became for the first time aware of the appearance of my legs after the last operation I had at the age of fourteen. I noticed that all the girls, except me, had beautiful calves. My legs above my knees were beautiful, but below the knees I had only straight poles and ugly feet while they had awesome calves and slender feet. Naturally this awareness instigated an inferior complex I still have today, which I inhibit by wearing slacks or dresses long enough to hide my missing calves. Mini's were the fashion when I was a teenager, so I worn the shortest skirts with boots or sandles with bootlaces. Nobody ever noticed there was something wrong with my legs and feet until I told them and showed them my scars.

Although I walk normal, I am not able to walk as far as normal people. I am able to walk one mile, while they can walk five. In shoes with too high heels I am not able to walk at all – two inches is my limit. Comfortable shoes in which my feet look normal and even pretty is hard to find. My feet are not too small – I wear number four shoes – but it is broader than normal feet and the bone structure appear to be bunions on the first joints of the little toes.

Recently artritis in my ankles bothers me sometimes, but after treating the pain and inflammation with some brufin I am up and about again.

I am aware of the fact that there are many people born with clubfeet or a clubfoot who are not so fortunate as I. In many Africa countries no treatment is available for children born with deformities, in some countries they are summarily killed immediately after birth. There are also those who have to cope with pain and discomfort daily because their treatment and surgery were not as successful as mine. My heart goes out to all of them, and they will always keep me humble and grateful and even sad because I was more fortunate than they.

At the same time I am extremely thankful and filled with joy because I am able to walk and run like a normal woman while I could/should have been a deformed victim of some faulty chromosome, gene or syndrome if it was not for medical science and my open-minded parents who were able to realize that the will of God is beyond human comprehension... and therefor not to be underestimated and misjudged by humans.

© Martie Coetser

Click thumbnail to view full-size
Tutankhamun's mask Claudius Larry Sherry Dudley Moore Thaddeus Stevens Kristi Yamaguchi Damon Wayans Mia Hamm Aikman Freddy Sanchez
Tutankhamun's mask
Tutankhamun's mask
Claudius
Claudius
Larry Sherry
Larry Sherry
Dudley Moore
Dudley Moore
Thaddeus Stevens
Thaddeus Stevens
Kristi Yamaguchi
Kristi Yamaguchi
Damon Wayans
Damon Wayans
Mia Hamm
Mia Hamm
Aikman
Aikman
Freddy Sanchez
Freddy Sanchez

Famous people born with unilateral or bilateral clubfoot -

The Roman emperor Claudius, Egyptian pharaoh Tutankhamun (who also had a cleft palate), Prince Charles de Talleyrand-Périgord, 1st Prince de Bénévente, Civil War politician Thaddeus Stevens, American comedian Damon Wayans, sledge hockey player Matt Lloyd, mathematician Ben Greenberg and filmmaker Jennifer Lynch, the British poet George Gordon Brown (Lord Byron), novelist/poet Sir Walter Scott, the famous figure skater Kristi Yamaguchi, soccer star Mia Hamm, baseball pitchers Larry Sherry and Jim Mecir, Freddy Sanchez, football players Steven Gerrard, Miguel Riffo, Charles Woodson, Tom Dempsey (born with a right club foot and no toes, which was his kicking foot responsible for the longest NFL field goal in history) and quarterback Troy Aikman. The Nazi Propaganda Minister Joseph Goebels, Captain De Witt Clinton Fort, actors Damon Wayans, Eric Richard, Gary Burhoff, Eric the Midget, Dudley Moore and, of course, many others we don’t know yet.

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Comments 62 comments

WillStarr profile image

WillStarr 5 years ago from Phoenix, Arizona

Bless your heart Martie!

My mother was born with club feet in 1915. She had surgery, and other than having to wear two different shoe sizes, she led a normal life, walking normally.

She too was worried about passing on the gene, but it never appeared again.

Excellent Hub. Voted up and awesome.


rpalulis profile image

rpalulis 5 years ago from NY

Wow Martie, great hub very informative. I have friends of mine who's daughter had club feet and I can remember her having to wear a brace,I think she is close to 2 years old give or take now, and it has been completely corrected. Excellent hub!


MartieCoetser profile image

MartieCoetser 5 years ago from South Africa Author

WillStarr – I am delighted to meet your mother. A specific problem, or habit, or hobby, or whatever, is positive energy that bonds people – and bonded we are so much stronger and capable to grow. I honestly feel stronger (here in Hubland) now that I know your mother was in the same boat as I. Thanks for coming over to read my hub and tell me about her. I will see you soon.


jandee profile image

jandee 5 years ago from Liverpool.U.K

Martie that was so full of interest ! So glad all turned out o.k,jandee


MartieCoetser profile image

MartieCoetser 5 years ago from South Africa Author

rpalulis – If we keep in mind that one out of one-thousand babies are born with clubfeet, this is actually a very common deformity. I mean the total births in this world are much more than merely 1000 per day. And now I am curious! How many babies are born per day... knowing the number, will tell me how many babies are born with clubfeet per day. I’ll have to google this. Thanks for coming over rpalulis. Please assure your friend that his daughter will grow up like any other normal child. I’ll see you soon.


MartieCoetser profile image

MartieCoetser 5 years ago from South Africa Author

jandee – It is indeed interesting, like all abnormalities in this world. And so wonderful, we are living now, and not centuries ago when anything abnormal was an unknown ‘devil’. Thanks for the read and your pleasant comment.


drbj profile image

drbj 5 years ago from south Florida

I'm so happy your parents finally made the right decision when you were small. I was surprised to learn how often this congenital disorder occurs. Very complete reporting here, Martie.

To answer your question in a comment above, the latest statistics indicate that 490,000 babies are born each day all over the world, and almost 12,000 daily in the U.S. So clubfeet are not uncommon.

How beautiful you are in that photo! Do you still have that enormous bow?


Pamela99 profile image

Pamela99 5 years ago from United States

Martie, You really went through a difficult time as a child and I am glad you shared it as it might help others. You were very thorough in your hub with a lot of information that was new to me. Very well done.


MartieCoetser profile image

MartieCoetser 5 years ago from South Africa Author

drbj – I am too fond of you. I just love your comments, and I will love chewing fat with you. Thanks for the numbers. Let’s keep it simple and presume 500 babies are born with clubfeet daily and 120 of them in the US. Mmmm... Keeping the increase of genetic influence in family histories in mind, this is somewhat disturbing, is it not? Although one may also keep in mind that far less inbreeding occurs since globalization.

Aww, was I not a pretty little baby? Who was not? Nature gives all babies a fair chance to live – making them cute and pretty and adorable. Not even cannibals will eat them. Or what? I can give you a letter, that bow is the living evidence of many bows-in-the-hair-relating traumas I had to endure as a child. You’ve just given me a theme for another hub! Thank you for the visit, my most valued friend. I’ll see you soon.


MartieCoetser profile image

MartieCoetser 5 years ago from South Africa Author

Pamela99 – The roots of many of my personality traits are in the physical pain I’ve endured as a baby. My determination (to keep on screaming, or at least moaning, until somebody [even sleep] turns up to relieve my pain), impatience (with my own pains – I hate pain! Thank heavens I seldom have pain)... I can list many more. My intention with this hub is merely to give hope to parents of babies born with club feet. They don’t have to panic – clubfeet is really a minor deformity easy to rectify. Thanks for coming over. Take care!


jandee profile image

jandee 5 years ago from Liverpool.U.K

Martie,how incredible ! My mind has just gone back to when my first child was born,my daughter. In the hospital I was friendly with the girl in the next bed to me and I have just,this minute,remembered that her baby had, I think, one club foot. We were all saddened and now I am cheered in the knowledge that all would have hopefully, turned out well !

best from jandee


Micky Dee profile image

Micky Dee 5 years ago

Great write Martie! We all have something that makes us imperfect. Of course a lot of my faults are too obvious. God bless you Martie. You handle things pretty well. Be Thank you dear one!


prasetio30 profile image

prasetio30 5 years ago from malang-indonesia

Good information, Marty. Actually I never seen about this before. Thanks for writing this. I get new knowledge from you. Good work, my friend. Vote up. Cheers...

Prasetio


Deni Edwards profile image

Deni Edwards 5 years ago from california

Excellent hub and so full of information and, of course, well-written. I enjoyed it from start to finish.

I really didn't know too much about club feet except that it is fairly easy to correct if people have the means--financial and medical treatment facilities.

Thank goodness your parents came to their senses, Martie!


tonymac04 profile image

tonymac04 5 years ago from South Africa

Great Hub and very interesting info. I read it with pain and pleasure (pain at the sufgfering you and others have to endure from this, pleasure at your honesty and courage).

Thanks for sharing. It's how we deal with these things that makes us great individuals, isn't it?

Love and peace

Tony


minso profile image

minso 5 years ago

MartieCoetser, Very informative and inspiring. Glad that your parents changed their viewpoint and got you treatment. Thanks for sharing.


MartieCoetser profile image

MartieCoetser 5 years ago from South Africa Author

*** jandee – People with only one clubbed foot have more challenges to fight. One of them: One foot will always be smaller than the other, so they always have to buy two pairs of shoes. But this is such a minor problem comparing to many other deformities that people – who are like me - will feel guilty when they complain about it. I am sure that little girl’s foot was taken care of and she is today just as grateful as I am because she can walk like a normal person. Thanks for your much appreciated support, jandee. See you again.

*** Micky Dee – you always manage to melt my heart. Thanks for you kind comment. I prefer obvious faults above those that are hidden behind deceitful smiles. Take care, Micky! You know God bless us all daily.

*** prasetio30 – You have me curious now. Could it be that clubfeet is not common in Eastern countries? Thanks for the vote, my friend. I’ll see you soon.

*** Deni Edwards – Fortunately my parents were members of a medical fund, so I was treated by accomplished specialists. But state-hospitals in my country, and I’m sure in all developed countries, do accommodate people who cannot afford private doctors. Actually we should never think that doctors at state hospitals are not as good as those with independent practices. Chris Barnard who transplanted the first heart in the world was an employee of a state hospital.

Ref my parents who decided to ignore the advice of Bible thumpers - We believe so easily that this and that is not the will of God, until we find ourselves boots and all in the inside of that ‘this and that’. It is all about perception and interpretation. My parents’ perception of God’s will changed quite a few times while they’ve raised me. Thanks for the visit, Deni. Take care.

*** tonymac04 – Thanks for coming over for the read. I believe spectators suffer more than those who are temporarily or permanently in one of the ‘mills of life’, because they don’t get the strength and courage needed to survive in that mill. Your last sentence is absolutely ‘winged words’. While I needed clubfeet to develop certain traits necessary for serving my fellowman in a specific way, others needed other kinds of experiences. At the end of the day it does not really matter who we are or what happened to us, but what we’ve meant to/for others. Mooi loop, my vriend! I’m on my way to read your latest hub.

*** minso – Thanks so much for reading and commenting. I’ll see you soon in your corner.


Christopher Price profile image

Christopher Price 5 years ago from Vermont, USA

Being an artist, your article instantly brought to mind the famous painting by Jose Ribera, "Boy With A Clubfoot".

My mother, while trying to give me a good background in the arts, pointed out to me the happy gap-toothed grin on the young lad looking straight out at the viewer. The contrast of his physical deformity and unbowed stance, with his walking staff carried jauntily over his shoulder, has always been for me a comment on the indomitable spirit of those some would consider handicapped.

I am very happy your situation has turned out so well. I had no idea that the incidence of this deformity is so widespread. My wife was an athlete who played through pain for years. It was only recently discovered that she has foot abnormalities that she has had since birth that she will have to have corrected by surgeries soon.

BTW; have you ever seen Damon Wayans dance? He is a comedian and actor, but he can get down with the best of 'em. I love to dance, and I know funky when I see it! LOL :{)

I am glad you can walk and dance. Your hubs soar!

CP


JY3502 profile image

JY3502 5 years ago from Florence, South Carolina

Martie,

What a brave soul you are to bare your innermost thoughts like this. I'm proud of you. This was a very good article and your writing has improved greatly. Voted up, of course. Love ya, girly!


always exploring profile image

always exploring 5 years ago from Southern Illinois

Marti, Reading this was like reading a medical journal back when i was in nurses training. Your description is exact, very educational.I'm sorry that you had to endure the suffering associated with this genetic disorder, but like you stated, you are stronger, because of it. I have a Granddaughter who was born with a disorder called, The triple X syndrone, which is a genetic disorder. We are unable to find anyone who had this, so it must be really far back. It can be severe, moderate, or mild. There is a slight retardation in her case. I am thankful. It could have been severe.Your story reenforces the knowledge that all are not born perfect, but we are survivers and can overcome anything. Thank you for your wonderful story.

Love and Peace


leabeth profile image

leabeth 5 years ago

Martie, really an informative hub. When reading what you had to endure in your childhood with all the operations, I am sure that you will be able to handle the pain associated with the arthritis in your ankles. In all the time that I have known you I would never have guessed that you had an inferior complex about anything. I have always looked up to you. You are a brave woman!


MartieCoetser profile image

MartieCoetser 5 years ago from South Africa Author

*** Christopher Price – How I enjoyed your comment! Every fascinating word of it. You are a true artist, able to see dimensions not visible to the normal eye.

I almost posted that photo of ‘Boy With A Clubfoot’, but it asked not to be in here. It will go with a poem... I’m still sleeping on it. To be honest, 99,9% of the pictures of clubfeet I’ve seen via Google disturbed me.

I love your reference to the indomitable spirit of those who are considered handicapped. I feel I want to repeat a comment I’ve left on Always Exploring’s latest poem about a gay man. “The body and all its earthy urges are but only a specific and temporary home for the spirit; my heart goes out to those spirits in bodies that do not comply with common expectations.”

Your wife will be in my thoughts. Surgery on feet is quite painful and healing in plasters is extremely uncomfortable. They did the plaster of my right foot too tight after the surgery I had when I was 13, and believe me, that kind of pain takes the cake. It was such a crisis - they could not take the plaster off…. Anyway, they made a plan that irritated me for an eternity of six weeks. And I wonder how many times they did it too tight when I was a baby.

Will I find a video of Damon Wayans on u-tube? Will go and see. And yes, I loved and still love dancing… ballroom dancing. Unfortunately only in flat shoes, so I never entered any competitions.

Thanks for the ‘chat’, Christopher. Take care!

*** JY3502 – It is so nice to see you in my corner for a change, and to know you are proud of me... wow... what a nice boost... :) But serious, JY, your opinion means a lot to me, and I love you too :)

*** always exploring – I appreciate your opinion as a nurse so much, Ruby. I always try to give academic information short and sweet, and then links for those who want to know more about the topic. I’m so sorry your granddaughter was born with that dreaded XXX-syndrome, but I am sure she has proved herself by now as a blessing in your lives. My neighbour’s daughter has the same disorder, and she is the most pleasant girl I know. Thanks for sharing your knowledge and experience with us, Ruby. You are deep in my heart.


MartieCoetser profile image

MartieCoetser 5 years ago from South Africa Author

leabeth – what a pleasant smile you’ve given me! Do you know the song “Die Dapper Muis”? Now I am that mouse boasting he is afraid of nothing, and in the meantime he is afraid of every single threat in his life. Now you know :))) Thanks for coming over, leandra, and for leaving such a kind comment. It is really nice to have you here with me in Hubland. Laat dit goed gaan met jou!


A.A. Zavala profile image

A.A. Zavala 5 years ago from Texas

Fascinating hub. You much stronger than I. Being a young woman with the challenge you were born with must have been difficult. But it appears that the loving support of your family and friends helped build up your self esteem. Thank you for sharing.


AliciaC profile image

AliciaC 5 years ago from British Columbia, Canada

This was a fascinating and informative hub, Martie. I didn’t know much about clubfeet before I read it. You gave a lot of very useful information. I’m glad that your clubfeet problems were corrected while you were young (even though your treatmnent doesn't sound very pleasant), and feel so sorry for people in those parts of the world where treatment for this condition is not given or is not successful.


BobbiRant profile image

BobbiRant 5 years ago from New York

Wonderful how modern medicine can do and correct so much anymore. Loved this hub, thank you for sharing your story, it is great. Glad it all worked out so well for you too. Great write.


MartieCoetser profile image

MartieCoetser 5 years ago from South Africa Author

*** A.A. Zavala – Fortunately I was also born with a competitive spirit. Without challenges to fight (and win) I would have died of boredom. Although my parents were not perfect - they made a few mistakes from ignorance, like all parents do no matter how great they are - they gave me the security and encouragement I needed to build a self esteem. After all, we acquire a healthy self esteem by achieving and accomplishing our own goals and by conquering our own complexes. Without the necessary encouragement, of course, we will not be able to build it properly. I was really fortunate, there were always, and still are, great family members and friends behind me in everything I do. Thanks for your visit, A.A. YOUR support means a lot to me.

*** AliciaC – My heart literally comes to a standstill every time I see a person who is for some or other reason cripple. Somehow people immediately think a person with a physical deformity is also retarded. Just imagine how difficult it would have been for me to prove that it is not true... and perhaps even the opportunity to prove anything would not have been there. Thanks for your kind comment, Alicia. I’ll see you soon.

*** BobbiRant – If everything did not happen exactly as it did, I would not have been here right now to enjoy communication with you. Sometimes I wonder who and where would I have been if... and I’m never able to find anyone else I would have liked to be, or any other circumstances I would have liked to be in. Thanks for reading and commenting. I’m on my way to read your latest hub.


Darlene Sabella profile image

Darlene Sabella 5 years ago from Hello, my name is Toast and Jam, I live in the forest with my dog named Sam ...

Really fantastic hub girlfriend, my daughter had club feet when she was born, as an infant in her crib, we had the shoe boots with the bar between to wait for her to grow normal. We are realated to Robert Burns, and he had the worse case of club foot. Thank you for an excellent hub, love your work, writing and subjects. Thank you rate up up up love & peace darski


Rosie2010 profile image

Rosie2010 5 years ago from Toronto, Canada

Hiya Martie, this hub is awesome! I'm glad you can walk and run and your feet were corrected early on. My daughter took two years before she could walk properly.. her feet were deformed, almost clubfeet but not quite. She didn't need operation but just corrective shoes which she hated. She is flatfooted and drags her feet when she walks. She finds it difficult to run. But she can walk and she is beautiful and I love her so. Thank you for this hub.

Have a nice day,

Rosie


MartieCoetser profile image

MartieCoetser 5 years ago from South Africa Author

*** Darlene Sabella – It must have been hard for you as mother to see your baby in that condition... although I know mothers get the needed strength to cope with the pains of their children. Are you talking about Robert Burns the Scottish poet? I did not know he had clubfeet. Thanks for telling me about your daughter, Darlene. How small is the world? Does she have any problems today with her feet? Take care dear friend, I’ll see you a bit later.

*** Rosie2010 – I have so much empathy with your daughter. The hardest thing for the adolescent is to accept himself/herself as different from his peers. The urge to be different does not come before the late teens, when/if the self esteem is strong enough to prove one’s individuality. In any case, I was never a normal teenager – besides my feet I was totally uprooted... So many bad things happened to me between the age of 12 and 16, I can’t believe I’ve survived them all. But I did, and that is what counts. Thanks for sharing, Rosie. I am sure your daughter gets a lot of support from you. I’ll see you soon.


Nell Rose profile image

Nell Rose 5 years ago from England

Hi, Martie, I never realised how many people were born with this, and I am so glad your parents sorted it out for you, how amazing it is to think that only a century ago, there would have been nothing that anyone could do about it, you are an amazing woman, and I am so pleased that you can walk and run, your feet look fine, I don't think I would notice anything unless you told us, I do have a rather strange tale to tell though, I was fascinated to see that Sir Walter Scott had club feet, my friend is a direct descendant of him, she did her family tree a few years ago, and the funny thing was, we were out one day, and she was trying on shoes. her feet were bare and she said, 'don't look at my feet, they have big bunion looking things on the side, I have no idea why my feet are like that!' then she went on to say that maybe someone in her family in the past maybe had club feet or some anomaly! I can't wait to tell her! thanks for the information, I also have strange feet, webbed toes to be exact, and a very high arch, I can't find shoes to fit me, and high hills are practically suicidal! cheers nell


MartieCoetser profile image

MartieCoetser 5 years ago from South Africa Author

Nell Rose – When I see a woman walks on those high spike-heeled shoes, I just got to believe one needs a license to walk in them. Certainly I will break all my limbs in them including my neck within the first three steps. Many horses are born with a type of clubbed feet due to inbreeding. I suppose when your fiend’s daughter/son marries another descendant of Sir Walter Scott - down a cousin’s line, perhaps - a baby with complete clubfeet may probably be born to them. But nothing to worry about – we live in the 21st century, and this, keeping history in mind, is one of the things I am the most grateful of. Thanks for the visit, Nell. I’ll see you again soon.


CheyenneAutumn profile image

CheyenneAutumn 5 years ago

HI Martie,

This was very well written and informative. My fathers older brother was born with an abnormal cleft palate and was never able to speak properly. As an adult he married and had four children, three of which shared his palate and two of which had club feet at birth and required the surgreies to correct all their problems. What caught my eye in this is not that these things happen but that club feet and cleft palates seem to appear together fairly often. Perhaps a genetic marker that is closely tied...

Thank you for sharing your story and inspiring me to look into the connection more.

Have a great day, and take care of you.

Cheyenne


MartieCoetser profile image

MartieCoetser 5 years ago from South Africa Author

CheyenneAutumn – how interesting! This is another proof that my idea is correct - that the OFD1 gene is also to blame for clubfeet. Shame, it really caused havoc in your uncle’s house. I’m now curious about his grandchildren. Were they also affected?

Thanks for sharing what you know about the topic with me and all readers of this hub. Expect me in your corner soon.


CheyenneAutumn profile image

CheyenneAutumn 5 years ago

Two of his children, that were affected never married, nor had children. The one who did ane he had two children one that had a slight speech problem and the other normal. The one cousin that had neither problem and was "normal" at birth has 8 children and none have either problem.

Birth order, nor gender seem to be connected. There were three boys and one girl in this family. The two oldest boys and the youngest, the girl, were affected. The third born boy was normal. And as life often makes it his was the hardest life. More attention was paid to his siblings who needed special attention - to be sure - but he was often totally ignored and not given the help when he may have needed it because "he is normal, he can do it on his own". Which brings my wandering thoughts back to your hub. Science is a wonderous thingm may we continue to learn.


MartieCoetser profile image

MartieCoetser 5 years ago from South Africa Author

CheyenneAutumn – My parents never treated me differently – according to them I was normal – the defect was rectified and that was that. A defective OFD1 gene can also cause brain-deformity – if this was the case those children did need special attention, and then I can clearly imagine the circumstances the normal child had to face. There are so many interesting ‘stories’ in our families. Thank you so much for responding on my question.


saddlerider1 profile image

saddlerider1 5 years ago

What a wonderful write Martie. I learned more about club feet than I recall. One of my female cousins had club feet and I remember when we visited she would often be in braces and once I saw her in casts.

Although as an adult she looks fine now, she had a couple of operations in her younger years, thus the correction in adulthood. Yes your baby picture is so pretty, but I can imagine the trauma you and your parents went through with your feet.

I also remember a lot of kids catching polio and seeing them in braces, I was one of the fortunate ones. Thanks for sharing this well researched information, it will give people a better understanding of what's involved with having club feet. Hugs


MartieCoetser profile image

MartieCoetser 5 years ago from South Africa Author

saddlerider1 – I can only imagine how unpleasant the treatment was for the baby, but I can clearly remember the two I had when I was 13 and 14. It affected my life negatively in many ways, though I was always grateful.

Two cousins in my family had polio. One suffered only mild complication - one of her legs was affected - but the other one – my age – suffered brain damage and was confined to a sanatorium from the age of five until she died at forty-five. This may give you an idea why I always regarded my own problems as ‘not so bad’.

Thanks for your much appreciated visit, dear saddle. I’m sending you hugs and peace galore :)))


tonymac04 profile image

tonymac04 5 years ago from South Africa

I just had to come and re-read this one after seeing the olittle boy on the news last night who has club feet and the parents can't afford the operation.

Your Hub is very informative and I wonder why more people don't know about this treatment.

Anyway thanks for sharing your experience.

Love and peace

Tony


MartieCoetser profile image

MartieCoetser 5 years ago from South Africa Author

tonymac04 – Don’t tell me treatment is not available at our state hospitals? I’m speechless! The mere thought that parents have to beg for money to straighten their baby’s feet saddens me to tears. I wish I was in a position to do something about this. Thanks for coming over. Take care!


chiara romano 5 years ago

i feel the same way you are feeling i was born with clubbed feet. im only 15 years old i cry my self to sleep everyday knowing that i cant go to the pools with all my friends or to the beach without being scared that they will look at me strange or tease me. i hate the fact that im different to others but at the same time im great full that i can walk and run. but after reading what you wrote has changed my mind a little but then again my feet are very different compared to yours but im glad your happy and i cant wait till that happens to me one day when i wont mind anymore.


MartieCoetser profile image

MartieCoetser 5 years ago from South Africa Author

chiara romano – I know that feeling of inferiority – knowing you are different – and for all to see – and always fearing the opinions of others and even their sympathy.

But put yourself in the pretty shoes of others. They feel actually worse than you. They have to pretend they don’t see what they are seeing, while they are realizing with a shock how lucky and fortunate they are to be not in your shoes. In your presence they feel guilty because they are normal. They don’t really react - by teasing or ignoring you - on your feet, but on their own uncomfortable feelings. Their manners towards you reveal their characters that might be more deformed than your feet.

The power to change the way others treat you, is in fact in your hands. You are not your feet; you are your character/personality. Make it beautiful. Determine your best qualities and your talents and use all you energy and time to develop it. Dress in such a way that your best qualities overshadow your legs and feet. Let your hair style be striking. Emphasize everything that is not deformed in/on you. Not only for you to feel good and grateful because you are not only two clubfeet, but also arms, head, body, etc., but also to make others feel comfortable when they’re with you. Sadly, we all prefer to see beauty instead of ugliness, but because we cannot chance some ugliness into beauty, we focus on the beauty and try to make it more beautiful.

I know how difficult it is to ‘get over’ something that really bothers us, but actually it is not so difficult. We just need to change our thoughts. Replace every negative thought immediately with two positive thoughts, and one-two-three this becomes a habit you will enjoy practicing for the rest of your life :)))) I just know you will soon be over your feet. Feel free to contact me via e-mail.


felicitylovespari profile image

felicitylovespari 5 years ago

Thanks to medical technology advancements. Traveling, I have seen some bad cases in underdeveloped countries and I pray those people can get some real treatments.


MartieCoetser profile image

MartieCoetser 5 years ago from South Africa Author

felicity, thanks for reading and commenting. My heart shrinks when I see those bad cases, and I am so grateful for the privileges I had, and still have. I actually see one of those bad cases every day walking down the street - not only his feet, but his legs as well are clubbed. And yet he walks where he wants to be. Extremely crooked, but so courageous and proud. May all disabled people be blessed with courage and the will to make the best of their lives.


NONGMA 5 years ago

I WAS BORN IN aFRICA WITH A CLUB FOOT ON MY RIGHT LEG. aFTER SURGERY TO GET MY FOOT CORRECTED, I WAS LEFT WITH A HUGE SCAR ON MY ACHILLIS TENDON. NOW I HAVE A WOUND THERE THAT WILL NOT HEAL. hAVE BEEN DEALING WITH THIS FOR TWO MONTHS NOW. NOW HAVE TO HAVE A MICRO VASCULAR FREE FLAP TO COVER THE WOUND. HOWEVER, AS YOU MAY KNOW THE DEFORMITY DESTROYS SOME BLOOD VESSELS OF THE LOWER LEG. I THEREFORE HAVE ONLY ONE VESSEL WORKING EFFECTIVELY. i AM NOT SURE IF FREE FLAP CAN BE DONE ON MY LEG. SEEING THE DOCTOR TOMORROW. I NEED EVERYBODY'S PRAYERS AND MORAL SUPPORT TO SEE ME THROUGH THIS TOUGH TIME.


MartieCoetser profile image

MartieCoetser 5 years ago from South Africa Author

NONGMA – My heart goes out to you and I will keep you in my prayers. I hope with all my heart that your treatment will be successful. One can never predict the many complications of surgery. It is really heartbreaking for me to know that someone out there – you - have to deal with unforeseen additional problems on top of a club foot. Please let me know the outcomes of your appointment with the doctor.


Nongma 5 years ago

Martie,

Just got back from seeing the plastic surgeon. He said two of the vessels on my foot ended just a little below my knee.They were never fully developed to my foot. Therefore he is afraid to do the micro vascular free flap because failure for flap to take might result in me loosing my foot. Right! half a loaf is better than none! He is deciding to debread the wound and then try skin grafting. What a long and rough road to travel! I am hoping for the best. I am about to turn forty and not married. was married one time, had two boys but my husband treated me like nothing because of my leg. I Will like to get well and get married again to someone who will love me for me and travel the world! I sure need my feet.Before my wound I met this guy who really liked me and wanted to date me. He asked if I could wear heels and I said yes I could only wear heels 2.5inc tall. He said to move on!I haven't lost hope. Keep me in your prayers.


MartieCoetser profile image

MartieCoetser 5 years ago from South Africa Author

Nongma – I wish I can speak to you over a cup of coffee. Your foot and its complications currently obviously demand all your attention and strength, just like a baby with many needs. Why not just treat it like a baby? Meaning, you, Nongma, merely take care of it without allowing it to keep you from being you. If I may, I would like to encourage you to focus, while you are taking care of the ‘baby’, on something extremely interesting. A new hobby, perhaps, a challenge, or a community project, like charity work. Go for it; give it your all... just to prevent your foot to steal your joy and opportunities to live a meaningful life. The right man and the opportunity to travel the world will come to you at exactly the right time in your life.

Your plastic surgeon obviously knows what he is doing. So trust him and co-operate. You are welcome to send me emails – If you click on my name you will end up on my profile page. There is a link named ‘contact MartieCoetser’ – Only one message via this link will bring you to my email, and then we can communicate via email.

In the meanwhile, take care. I’ll keep you in my prayers.


Becky Katz profile image

Becky Katz 5 years ago from Hereford, AZ

Martie, my mom was born in 1936 with a club foot. The Dr. who delivered her at home was extremely forward thinking for his time and slapped a cast on it immediately. Changing it every couple of weeks with 2 days in between casts so that the muscles could develop, he fixed her foot without surgery. She never had another problem. She wore the same size shoes and her feet looked just like mine. Sometimes, miracles work through old country Dr.

This was a very good article. I am going to have to read more.


MartieCoetser profile image

MartieCoetser 5 years ago from South Africa Author

Becky Katz - How interesting. This is now another proof of the fact that something, anything, has been done by many long before somebody step forward to introduce it as his personal invention. We find this occurrence in all sectors of life. Thank you so much for your informative comment.


Becky Katz profile image

Becky Katz 5 years ago from Hereford, AZ

The old country Dr. didn't have time to write it up and publish it. They were too busy trying to help people. It took specialists to start publishing, They had time because that was all they did.


MartieCoetser profile image

MartieCoetser 5 years ago from South Africa Author

Becky - That is exactly the way the cookie crumbles.


zann17 profile image

zann17 4 years ago from Bristol, England

Great Hub. My husband was born with a clubfoot, had surgery and now walks with a limp and a walking stick. But he is happy!


MartieCoetser profile image

MartieCoetser 4 years ago from South Africa Author

zann17 - I believe if only one foot is clubbed, it cannot be corrected to be exactly as normal as the normal foot. Oh, and we are not our limbs or organs. Our spirits have no choice but to accept their host... the body, and the sooner the better. I am glad your husband is happy. Thank you so much for your comment.


Eliza priest 3 years ago

You're very lucky! I was born with a clubbed foot in 1996. I have had 7 surgeries for my foot and have a scar that wraps around my whole foot with part of my ankle bone missing. I wear one 9 and one 71/2 shoe size so shopping sucks! But you're very right, it's humbling. My friends can't grasp why I am so open and eager to run. They don't understand it's because I can when for so long I couldn't. In the eyes of most doctors still today I'm a medical miracle. I used to play 3 sports and now I've just dropped down to one but in a game we run 5 to 6 miles alone when in the past people with this disorder could hardly crawl. It's amazing and eye opening


Eliza 3 years ago

chiara romano- don't feel inferior! I'm 16 I get it and you know what? I flaunt it because even though it's not "that serious" we are survivors. If people tease you you tell them to shut the hell up and grow screw themselves because they obviously don't know anything. I used to be terrified to take off my shoes and socks until one day I just did it. I was sick of hiding. And guess what! That was the best thing I've ever done because most people are just curious, as normal humans are curious by nature, and just ask questions. You can choose to answer like I do or you can tell them to mind their own. People don't mean to be rude they just are and that's okay because the only opinion that matters is your own and you know you're beautiful


MartieCoetser profile image

MartieCoetser 3 years ago from South Africa Author

Eliza, thank you so much for your beautiful comments. You have pulled my tears. Only 16 and your are so wise, and what a go-getter you are. I am so proud to have you in my corner. Please keep in touch and share your victories. I wish you only the best of the best and lots of exiting adventures :)


Nadine May profile image

Nadine May 18 months ago from Cape Town, Western Cape, South Africa

Wow Martie what a great post. Thank you so much for sharing your story. Amazing how people can overcome just about anything even a figure skater like Kristi Yamaguchi. I never knew that about Tutankhamun. What a wonderful post. Voted up!


Tinyiko-Finolea-Mathebula 18 months ago

AM ALSO BORN WITH CLUBFOOT N I WAS SO GLAD TO READ UR STORY IS ONE OF THE BEST AND AS AM 17 AM WELL INSPIRED LASTLY IS THAT I FEEL AS IF IT WAZ A BLESSING FOR ME TO HAVE CLUBFOOT......LOVE U MARTIE


TINYIKO-FINOLEA-MATHEBULA 18 months ago

BUT AN OPERATION WAS DONE TO THIS BEAUTIFUL LEGS OF MINE...AND THINGS WENT ACCORDING TO PLAN BECAUSE IT ALL TURNED OUT ALRIGHT


MartieCoetser profile image

MartieCoetser 18 months ago from South Africa Author

Hi Nadine, the things I learn while researching a specific topic always amaze me, and also confirm that I will never be able to know all there is to know. Thanks for the vote!


MartieCoetser profile image

MartieCoetser 18 months ago from South Africa Author

Hi, Tinyiko, I am always very happy to meet someone who was/is facing the same challenges as I. Wonderful to know your operation was successful and that you see your clubfoot as a blessing. Take care!

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