Continuing Our Journey....My Six Year Old Grandson's Fight to Survive--A Pictorial Journal

Update...November 18th, 2016

First of all, thank you to all who are following our family's journey with my precious grandson, Heston Wayne.

Yesterday he had a gj tube placed. The surgery went as planned, thankfully. He took a bit of time to be weaned off the ventilator but nothing disconcerting happened, again thankfully. He has a serious heart condition so a cardiologist was in the OR during the placement.

He had a long night...lots of pain, more than was predicted, and he is sleeping now. Hoping for them to come home today.

Thank you

Thank you once again for your support....and thank you once again to each of you who have already donated...We know how tight money is for all of us...believe me...so your gifts are so very much appreciated.

If you can purchase a tshirt or water bottle, the money will go to pay for formula for Heston Wayne that the insurance company does not cover.

Update...

The links I am providing will give a more detailed account than I will provide but in a nutshell Heston Wayne is truly in a fight for his life...his heart has suffered due to his body's inability to absorb food....and on the 17th of this month he will go in for another surgery which doctors do not like to do because of his now weak heart...this surgery will be to place a jtube next to the g tube...it is idenfified as a gj tube...the ng tube nor the g tube has worked...he continues to lose weight.

We need help getting word out that this family needs financial support as well as prayers and positive energy coming their way.

Christmas will truly be a celebration of love and family and presents will be from the heart as no money is available this year for those extras. But we have had Christmas celebrations like this in the past and they are among the most memorable.

Please share and if you can please help.

Sorry for the delay in getting on here...there is just so much going on with my daughter and grandson that my time on here is very limited. Your good thoughts and prayers are so very much appreciated.

Angels are on the way to each of you today.

Click here to see the site for water bottle fundraiser https://www.booster.com/hestons-heroesunite2?share=6011478308701286&utm_source=facebook&utm_medium=social&utm_content=hestons-heroesunite2&utm_campaign=desktop-post-launch-v2&ref=facebook_social_desktop-post-launch-v2&type=1&side=front

Click here to see the site for tshirt fundraiserhttps://www.booster.com/hestons-heroesunite?share=4371478307568552&utm_source=facebook&utm_medium=social&utm_content=hestons-heroesunite&utm_campaign=desktop-post-launch-v2&ref=facebook_social_desktop-post-launch-v2&type=1&side=front




He wears a smile even when he feels less than great

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Heston Wayne, this afternoon...so big, so brave

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Wish it were better news....

Baby grandson has adjusted to the new way of life with the NG tube but it is not all good, sadly.

He has lost 3 pounds, the exact opposite of why he had the tube placed.

He has malabsorption which I have shared prior. So now the gastroenterologist wants to see if he can determine the cause. There may be some problem with his intestinal tract so this next week, they will explore to see if that is the reason, and see if there is a repair that can be made.

He will also meet with a new nutritionist to see if there is a more powerful liquid formula that he can be given.

The original plan had been for him to have the NG tube for however long and then in a year, a tube would be placed in his tummy, if needed.

The determination has been made that he needs it as soon as possible, it is medically necessary. So, within the next few weeks I will be back to follow up.

The procedure scheduled for today was canceled as the doctor does not want him to have three procedures requiring anesthesia (the placement of the tummy tube and a subsequent follow up to attend to the new tube) as he does not think he is strong enough to endure that much at this time.

Please life up Lil' Man, prayers, positive energy, Angels, send 'em all, please.

And as always know they are on the way to you and yours. And thank you so very much.

Little Man in his Heston's Heroes Shirt (before he had the NG tube placed)

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A Word About "Heston's Heroes"

"Heston's Heroes" is a Facebook page that my daughter, Heston's Momma, has dedicated to information about Heston.

It is like a running diary, a care page, of what his life, his family's life, is like now.

It is a window in their world...as many many lovely people are concerned about him and walk this walk with us.

If you are on Facebook you can just put Heston's Heroes in the search box and the page will appear. Or, you can click on the link below that is provided.

Heston Wayne is six. He is my youngest grandson and for most of his life he has been sick with first one thing and then another.

For most of the last years he has complained about stomach pain and has had little interest in food. He got to the point in the last year where he associated food with pain so became even less interested in eating. Every time he ate, his tummy became distended to some extent, and the pain was excruciating. There have been many sleepless nights for him and his Momma while she lay awake with him trying to help console him through the pain.


Lots of questions in his mind as he travels by air with his Momma to Boston

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Our brave little warrior ...waiting waiting at Boston Children's Hospital

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Awaiting examination at Boston Children's Hospital

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Heston, at Boston Children's Hospital, just after his bone marrow biopsy

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Back home in Florida....Waiting for his tube to be placed

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Very tired ....slept most of the day (after ng tube was placed)

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Momma and Baby resting after the ng tube was placed

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Kind of Waking up after the tube was placed...

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O, No...this isn't good.. Heston calls his bag (he has one at home) his NUKE bag .....After flushing the line, Heston throws up.

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Sweet Pea was feeling exasperated after being sick

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In the Playroom for a few minutes two days after the ng tube was placed

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at home, resting 4 days after NG tube placement

Do you know someone who has or has had an NG tube?

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It is a journey

It was important for me to come back and share with you what is going on with our Heston Wayne at this time.

We are hopeful that he will gain weight since he has this new way to receive nourishment. No one is certain if this will work but at least an effort is being made to help this little one survive.

Insurance does not pay for everything as you know. Expenses yet to be paid to Boston hospital is just over sixteen and one half thousand dollars. Expenses continue to mount here in Florida as well with over $9500 dollars that have not been covered. Any one of you who have family members (or you) who are ill know how costly medical care is.

Trips back to Boston will be necessary too.

A bone marrow transplant is anticipated but no date has been set for that at this time.

My job, self-appointed job, is to inform and to raise monies to help offset expenses. You can help by donating to gofundme, sending pennies, sending positive energy, and prayers.

A huge way you can help is by sharing the video about penny donations and by sharing this hub on social media.

And know once again that Angels are on the way to you and we are so very thankful for your love and concern.

Even more precious hubbers have sent pennies our way in the form of checks...so you know the amount was more than one penny. However, if many many many folks sent pennies, we would have what we need for this year.

In December the whole process begins again...as the deductible is huge...so this will be an ongoing process for who knows how long.

Baby Heston Wayne Before He Became So sick

Malabsorption is a huge factor

Doctors were unable to decide what was causing his stomach pain He had remained at an almost constant weight for 27 months. He did not gain weight. What he did eat did his body no good. He suffers from malabsorption---he body does not receive nourishment when he would eat, no matter what it was.


What is an NG tube?

According to Mayo Clinic postings: "The tube usually bypasses the mouth and is passed through the nose and into the stomach (nasogastric tube) or through the abdomen directly into the stomach (gastric tube) or intestine (jejunal tube)."

At this time Heston has the tube which runs through his nose to his stomach.

Failure to thrive

His Momma shared this: "It isnt so much that he has lost a lot of weight--- it is only like 2 or 3 lbs bit it is the same 2 or 3 lbs He has weighed 17.2 kg=37.92 to 16.2 kg=35.71

This has been the trend for 27 months.. Which gave him the label FTT (Failure to thrive)
He is in the 3rd % for weight and 15 % for height on the national standards growth chart.
I say all the time 17.2 is my arch nemesis because he NEVER EVER goes above that.. Heston even knows now when we go .. He looks and sees 17.2 and will say " ohhhhh mannnnn not again..."

Enjoying Fun Time with Momma....again before he became so very ill

Seeking Answers

Heston Wayne has been introduced to you for years.

There are multiple photos of him here on HubPages in other hubs I have written...not about his illness. I will also post some of the Youtube videos of when he was much younger and had not been stricken by debilitating illness, yet.

Those of you who have followed my posts in the last few months know that Heston is now in bone marrow failure. He traveled to Boston to be seen by a stellar doctor who specializes in Schwachman Diamond syndrome which is what they initially determined he has.

After many tests and much evaluation, it was determined he will probably need a bone marrow transplant at some point and that his nutritional needs were of great concern. It was advised that he have a nasogastric tube (often referred to as NG tube) inserted through which his nutritional needs will be met.

Along the way, he began to have headaches, frequently. No cause was found for those either despite testing and exploration.It seemed that what was causing our baby boy to feel so miserable was not be determined in a timely fashion.Fortunately, a new set of doctors was found and at lightning speed action has been taken.

Hopeful

The trip to Boston occurred in June of this year.-They traveled back to Florida hopeful that the placement of the tube would be life-saving for Heston. Last Wednesday, July 6th, the tube was placed.

He remained in the hospital through Friday afternoon. He and his Momma traveled to their home and we are hopefully on the way to our Little Man showing improvement.

His Momma was cautioned that this may not cause him to gain weight as he suffers from malabsorption and they are uncertain if this will circumvent that. We remain hopeful.

More to come

You can follow what is happening with Heston on Heston's Heroes and know that I will update here periodically as well.

We are so very blessed to have so many who express care and concern for this precious child.

© 2016 Patricia Scott

More by this Author


66 comments

pstraubie48 profile image

pstraubie48 3 weeks ago from sunny Florida Author

Thank you Norma for stopping to read and comment. He IS brave and is not discouraged because this happened...he gets up every day and soldiers on...bless his little heart.

Angels are on the way to you this early morning that is the beginning of a beautiful day. ps


norlawrence profile image

norlawrence 3 weeks ago from California

Great Share. So Sad. All your pictures were great. He is a brave little boy.

Thanks for the share.


pstraubie48 profile image

pstraubie48 3 weeks ago from sunny Florida Author

He really is handling this so very well...just like his brother did when he was young and stricken with a different rare disease. He rarely shows how bad he feels unless it is unbearable pain. Thank you so much Rachel for kind and thoughtful words. This week he goes in for placement of his gj tube so please send along some positive energy and prayers if you will. Angels are once again on the way. ps


pstraubie48 profile image

pstraubie48 3 weeks ago from sunny Florida Author

Thank you, Anita. He is amazing...and I would say that even if he were not my precious grandson.

This coming week is big week as he gets the gj tube placed since the g tube did not work.

Please send positive energy and prayers. Angels are once again on the way to you ps


Rachel L Alba profile image

Rachel L Alba 4 weeks ago from Every Day Cooking and Baking

Oh, that precious Angel. You don't even see a sad look on his face. God's grace is truly upon him and seeing him and all of you through this trial. My prayers are with you and hoping he starts putting on some weight soon.

Blessings to you, Pat and all your family.


Anita Hasch profile image

Anita Hasch 4 weeks ago from Port Elizabeth

What a brave and cute little boy. I pray for his healing soon. I pray for a Doctor with the right knowledge to enter his life and healing.


pstraubie48 profile image

pstraubie48 4 weeks ago from sunny Florida Author

Thank you jemuel...I read your message to Heston Wayne and he said to say 'thank you'...and is deeply touched by each one who reaches out to offer words of encouragement.

Angels are on the way to you this morning. ps


pstraubie48 profile image

pstraubie48 4 weeks ago from sunny Florida Author

Cheeky Kid...all good wishes and thoughts mean so much to us. We continue to be hopeful that answers will come before it is too late...God is in the house.

Angels are once again on the way to you ps


pstraubie48 profile image

pstraubie48 4 weeks ago from sunny Florida Author

Thank you Shyron for your sweet words...he is an Angel baby child for sure. I got hugs and kisses yesterday...love them. He has surgery this week to place another tube in the hopes it will help him gain some weight...we remain ever hopeful.

Angels are headed your way, sweet Lady. ps


jemuelO profile image

jemuelO 5 weeks ago from Cebu, Philippines

What a brave little guy you are, Heston! Such amazing boy with very positive outlook in life. I am sending my thoughts and prayers for you. I pray that you will be healed sooner, so you'll play more, enjoy more, and become an inspiration to many people. Thanks for sharing this Patricia! I am looking forward for an update on Heston's recovery.


Cheeky Kid profile image

Cheeky Kid 6 weeks ago from Milky Way

Wishing him good health and happiness in the days, weeks, and years to come.


Shyron E Shenko profile image

Shyron E Shenko 6 weeks ago

Still gathering Angels and Prayers to send to you with blessings and hugs. Heston, you are an Angel.


pstraubie48 profile image

pstraubie48 6 weeks ago from sunny Florida Author

Yes, Sunshine, I have to agree. He does not understand why this happened to him but he does not dwell on it. His life now is his new normal and he gets up every day and brings joy to each of us. When he is in so much pain and feels so rotten, he has us there to love on him. Thank you so much for stopping to read and comment and for the positive thoughts....Angels are headed your way this morning ps


Sunshine625 profile image

Sunshine625 6 weeks ago from Orlando, FL

You are a champ, Heston!!! Bless his wonderful heart. Sending you all positive thoughts!!


pstraubie48 profile image

pstraubie48 7 weeks ago from sunny Florida Author

We receive your gifts, Audrey, and thank you so much. We are so very humbled by the good wishes and positive energy that come our way. He is an amazing child...we continue to be filled with hope.

Angels are once again headed to you and yours. ps


pstraubie48 profile image

pstraubie48 7 weeks ago from sunny Florida Author

O peachpurple I am writing this comment through tears. My heart is so full of joy that someone who does not know me or my precious grandson except here on HubPages cares enough to send him a hug. And trust me when I tell you he will receive your hug....with God's strength and the love and caring that comes to us from around the world we keep on keeping on.....HOPE reigns in our hearts and in our lives. Thank you so much....I am once again deeply touched.

Angels are headed to your way today bringing many blessings ps


AudreyHowitt profile image

AudreyHowitt 3 months ago from California

What a brave little guy! He seems so very positive and upbeat. Hugs, light and love to you and to your family


peachpurple profile image

peachpurple 3 months ago from Home Sweet Home

I am so sorry to hear your little grandson is so sick.

I wish that my prayers for your little one will help him to feel better and maybe there might be a miracle.

Don't lose hope, pls hug him on my behalf.


pstraubie48 profile image

pstraubie48 3 months ago from sunny Florida Author

Thank you so much for your kind words. We are so blessed to have so many who care about him...He is amazing!!!! In about 10 days he will have surgery again. Angels are on the way to you this afternoon.ps


fpherj48 profile image

fpherj48 3 months ago from Beautiful Upstate New York

Pat....Damned lump in my throat. I'm glad my fingers can do the talking. What a precious PRECIOUS Angel......I would just love to hug him. Children so often put adults to shame with their strong will, stamina and positive attitude.

My heart is so very much with all of you. It's a helpless feeling when you wish you could do something for someone but are so far away.

Love, Hugs, thoughts and blessings......all coming to you! Paula


pstraubie48 profile image

pstraubie48 4 months ago from sunny Florida Author

We are all so appreciative and thankful for the good wishes you send....Heston has made a little video that I am going to add to this hub so you can hear him say it.

Each day is a gift has been our mantra for so many years and it continues to be...thank you thank you bravewarrior for caring.

Angels are headed your way ps


bravewarrior profile image

bravewarrior 4 months ago from Central Florida

My prayers are with Heston and all of you, Patricia. He's such a brave little trooper. I can't imagine going through what he has to endure. And yet he remains positive and cheerful. I hope the doctors can find a cure.


pstraubie48 profile image

pstraubie48 4 months ago from sunny Florida Author

Yes Deb I did and I just sent an email. YOU rock....we are so blessed and so appreciative.

Know that many loving Angels are on the way. ps


aviannovice profile image

aviannovice 4 months ago from Stillwater, OK

Hope you received what I mailed you. I still have you and your family in my thoughts.


pstraubie48 profile image

pstraubie48 4 months ago from sunny Florida Author

Thank you, Ms. Dora. We are taking it one day at a time and are uplifted by lovelies like you who stop in and wish us well. This is a big week of testing and decision making for both Heston Wayne and his Momma.

Please know that Angels are on the way to you this morning ps


MsDora profile image

MsDora 4 months ago from The Caribbean

Yes, Heston is very brave, as are his mother, grandmother and other family members. I cannot help noticing the "Love" plaque in the doorway. Your expressions of faith and family support are encouraging to us as we try to encourage you. Heston and family are on my prayer list now. Will follow.


pstraubie48 profile image

pstraubie48 4 months ago from sunny Florida Author

Thank you, KoffeeKlatch.....we are so appreciative of all good wishes and good vibes. WE remain optimistic and hopeful.

Angels are on the way to you this evening. ps


pstraubie48 profile image

pstraubie48 4 months ago from sunny Florida Author

Thank you, flourish, for your thoughtful comment. We know the matching may be problematic. We are hopeful that when it is time that we will be able to find someone....

Angels are on the way to you ps


KoffeeKlatch Gals profile image

KoffeeKlatch Gals 4 months ago from Sunny Florida

Poor baby, to have gone through so much in his short life. Prayers, angels, good wishes, and hugs are being sent your way for you, your family, and especially Heston.


FlourishAnyway profile image

FlourishAnyway 4 months ago from USA

Thinking of you all with hope and encouragement. Stay strong. Since he may be headed for a bone marrow transplant, it may be helpful to encourage people to get registered if they are healthy and eligible.

My husband and I registered as potential bone marrow donors when we were young 20-somethings and I was in grad school and had a friend who was ill. When I became sick with MS, I had to come off the list according to their rules. My husband, however, has been contacted twice since registering for advanced testing as a potential match sick patients in need of his marrow. He accepted the challenge both times, as he is healthy as a horse. Unfortunately, he wasn't a complete enough match in one case and in the other case the potential recipient was too sick to warrant further rounds of testing of my husband.


pstraubie48 profile image

pstraubie48 4 months ago from sunny Florida Author

You are very welcome, Kiss and Tales Angels are once again headed your way. ps


Kiss andTales profile image

Kiss andTales 4 months ago

Thank you.


pstraubie48 profile image

pstraubie48 4 months ago from sunny Florida Author

you are so precious, Shyron....I will read your message to him....we are so thankful for all of the hugs and good wishes that continue to lift us all up.

Know that hugs and love and many Angels are finding their way to you this evening. ps


pstraubie48 profile image

pstraubie48 4 months ago from sunny Florida Author

Kiss and tales thank you for stopping and for your kind words.

We are so blessed...

Angels are on the way to you this evening. ps


Shyron E Shenko profile image

Shyron E Shenko 4 months ago

Patricia, I will share this in any way I can and I will help in way I can. The angels you have always sent to me

Are gathering blessings and hugs,

To wrap you in their wings

And your family with the love they bring

Tell Heston that, l love him and want him to get well

And tell him all his friends praying together will break the spell.

Many, many Blessings and hugs.


Kiss andTales profile image

Kiss andTales 4 months ago

I have been on HP some years I must admit I too am a grandmother of many and one great! I may be familiar with your hp name more then you personal. My heart reach out in your love for your grandson .I have 6 young ones I can tell you that it is heart breaking to know any child you love is sick and not just one day but eveyday.

I will think about you in prayer may Jehovah hold you close through these hard times that will soon

Change . He has a time to end it all with complete cures.

Isa 33:24 And no resident will say: “I am sick.” The people dwelling in the land will be pardoned for their error.

And in the last book of God's word we read

Re 21:4 and he will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away.”

Our future is based on a reversal of all the bad things that have happen past and present.

May you and your family know this is just temporary life ahead will be different under Jesus Administration .


pstraubie48 profile image

pstraubie48 4 months ago from sunny Florida Author

Linda Thank you so much for taking time to stop and for sharing. Heston is adjusting nicely to his new normal but has surgery this week to further his progress, we hope.

Hoping all is good with you and thank you for sending all of those Angels when you stopped to visit on my page.

More of those precious Angels are on the way to you this morning ps


pstraubie48 profile image

pstraubie48 4 months ago from sunny Florida Author

You are so precious, Jackie, for taking time to help us when you are having your own journey through difficult waters.That is just it...we all have our journey...each one of us faces off with health issues...we are survivors... love and hope move us onward. Angels are on the way.ps


pstraubie48 profile image

pstraubie48 4 months ago from sunny Florida Author

Thank you so much, Peggy. We are so thankful for your good wishes and for sharing that others may know. We remain hopeful!!! Have a lovely day.Angels are headed your way. ps


Peggy W profile image

Peggy W 4 months ago from Houston, Texas

Hi Patricia,

I'll share this with others as I have done with your other hubs so that more prayers and pennies might float your way. It is so sad that your grandson has to endure being so ill. Your entire family suffers. Keep doing what you are doing Patricia. Many blessings!


AliciaC profile image

AliciaC 4 months ago from British Columbia, Canada

I am sending you and Heston hugs and keeping you both in my thoughts, Patricia. I'm also sending you all of the angels that you have sent me over time accompanied by my very best wishes for the future. I'll share this article on HubPages and on my social media accounts.


Jackie Lynnley profile image

Jackie Lynnley 4 months ago from The Beautiful South

He is a beautiful and healthy looking boy I must say but we all know what he goes through and how hard it is on adults much less a child. Having health issues myself right now I am not around as often but I am still putting your pennies hub out there as often as I am here.

All we can do is pray believing and I know you do that. God bless you and yours and know you have the prays and love of a lot of friends. Words are never enough... unless they come from God and we send them back to Him.


pstraubie48 profile image

pstraubie48 4 months ago from sunny Florida Author

Good morning Ruby...so you get it, don't you? You know about this tube ...the discomfort and even pain it can cause but the life-saving benefits of it.

I so appreciate you and your kindness to us. YOU are an Angel.

More Angels are headed your way this morning ps


pstraubie48 profile image

pstraubie48 4 months ago from sunny Florida Author

I know Frank. Our hearts are breaking too that our baby is having to endure this. But we are so so so very thankful that the doctors have taken aggressive steps to help Heston Wayne be on the road to recovery.

Hope does prevail.

I so appreciate your kind words and support ....

Angels are winging their way to you this morning ps


pstraubie48 profile image

pstraubie48 4 months ago from sunny Florida Author

Good morning happymommy...thank you for suggesting resources....we are considering and exploring all possibilities. God is in control ...we know that...He will find a way to help us help our little doll.

And yes...if you read some of my 'when cancer comes knocking' hubs you will see why I believe in miracles. My eldest grandson and my daughter were both told they would leave the planet many many years ago. Doctors have said to them that is only by miracles that they are here.

Thank you so much once again for stopping by.

Know that Angels are on the way to you this morning ps


pstraubie48 profile image

pstraubie48 4 months ago from sunny Florida Author

Thank you, dreamermeg, for stopping to read and comment. We are so blessed to have the support of so many around the nation that we do not stop to think about why or how this happened. We just put one foot in front of the other each day and move forward.

We are so thankful that he has this way to receive nourishment....

Know that Angels are on the way to you this morning ps


pstraubie48 profile image

pstraubie48 4 months ago from sunny Florida Author

Thank you shamoonak for stopping by. We welcome all good wishes and visitors as we make this journey.

Angels are on the way to you today ps


pstraubie48 profile image

pstraubie48 4 months ago from sunny Florida Author

Hi Theresa...thank you so much for the kind words and your support. We too believe God will heal our precious little Heston. He is amazing. He knows that it is the way he is getting nourishment and despite the pain and nausea and vomiting, he soldiers on!!!

Know, my dear, that Angels are headed your way this morning ps


Happymommy2520 profile image

Happymommy2520 4 months ago from East Coast

This was a touching article about your gorgeous grandson. Miracles happen everyday and I truly believe he will get better. I will send prayers and positive energy to him and your family for the next few weeks. There are some resources out there such as the Catholic Charities for help in paying hospital bills, it wouldn't hurt to send them a letter. Sometimes your local social services might be able to help as well. I wish you lots of luck!


pstraubie48 profile image

pstraubie48 4 months ago from sunny Florida Author

O, bill, you are such a special person. I am so thankful that I have gotten to know you here on HP. It makes me annoyed too that little kids are ill, any little kids. But we face off with that feeling and march onward.

Heston does not think of himself as a 'poor little kid who is sick.' He has come to terms with all that is going on and makes the best of each day just like his elder brother does who is also sick and has been all of his life.

Sending you many blessings and Angels across the miles, my friend.

ps


pstraubie48 profile image

pstraubie48 4 months ago from sunny Florida Author

Thank you once again, word, for stopping by. We are guiding Heston in God's way...he knows the power of our Savior in his life and he also knows the power of prayer.

Angels are on the way to you this morning ps


Faith Reaper profile image

Faith Reaper 4 months ago from southern USA

Aw, look at that precious and brave Heston ...Thank you, Patricia, for keeping us posted via this touching pictorial. Heston is a trooper to not pull the tube out. My dear Mother had one and she could not tolerate it in the least.

Prayers going up daily. I have faith our sweet Lord God hears and I know without a doubt He is able to heal. He is Jehova Jire, the God who provides.

Angels heading your way

(((Hugs)))


shamoonak profile image

shamoonak 4 months ago from Pakistan

heart touching!


DreamerMeg profile image

DreamerMeg 4 months ago from Northern Ireland

Poor Heston and his mama has worked so hard to keep him going. I hope that some relief will come for them and you. What a story to have to tell. I am sure you would wish it otherwise.


Frank Atanacio profile image

Frank Atanacio 4 months ago from Shelton

I have hope but my heart still breaks..... God bless you and your family who I'm sure is going through so much


always exploring profile image

always exploring 4 months ago from Southern Illinois

Heston will be in my prayers daily until he is healed. I remember well the first time I placed a NG tube down a two year old child, It was my first for a child. I was so nervous. I looked down at my feet and the hem of my uniform was shaking. I will share this on twitter and face book. Miracles still happen today. God bless Heston and his family.


pstraubie48 profile image

pstraubie48 4 months ago from sunny Florida Author

Hi word55 If you read many of my articles here on HP you know that God is a central part of our lives.

Thank you for taking the time to stop and share your thoughts with us.

Know that Angels are on the way to you ps.


billybuc profile image

billybuc 4 months ago from Olympia, WA

I'm sorry, PS, but my first reaction is this whole thing with your grandson just pisses me off. I just hate to see little kids suffering like this.....I'm sending all the hugs, prayers and blessings I can conjure up...he's a hell of a kid!


pstraubie48 profile image

pstraubie48 4 months ago from sunny Florida Author

He is, Laurinzo...and it is my privilege to share him with the world. He like his elder brother have taken over my heart.

Thank you for stopping.

Angels are on the way to you ps


pstraubie48 profile image

pstraubie48 4 months ago from sunny Florida Author

thank you, Clive, for stopping. You are so right..he is a brave Lil' Man and we are so encouraged by the health care he is receiving.

Angels are once again on the way to you ps


word55 profile image

word55 4 months ago from Chicago

Please read also: http://www.whiteestate.org/books/mh/mh.asp Help Heston to understand the concepts of this book.


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

Thank you DDE for stopping to read. We are so helpful that this will help him to improve. It is a step in the right direction.

Angels are on the way to you this morning ps


word55 profile image

word55 5 months ago from Chicago

Good morning Patricia,

Jesus should be Heston's main hero. He should know of the miracles that Jesus performed for many people throughout the Bible. Jesus is a natural healer for those that believe in Him. Heston should learn of the true Sabbath day and keep it holy as said in Exodus 20:8-11. Heston is very bright. He should be read the scriptures daily via children's Bible, Our Daily Bread magazine and understand the ways of Christ, Jesus. I pray that the Spirit of God in Christ will heal Heston for Heston's belief in Him as his main hero. Amen. There is also a health message in the Bible to be followed. There's nothing better than the positive hope of Jesus to heal and He will.

Natural Remedies

By Ellen G. White

Pure air, sunlight, abstemiousness, rest, exercise, proper diet, the use of water, trust in divine power--these are the true remedies. Every person should have a knowledge of nature's remedial agencies and how to apply them. It is essential both to understand the principles involved in the treatment of the sick and to have a practical training that will enable one rightly to use this knowledge.

The use of natural remedies requires an amount of care and effort that many are not willing to give. Nature's process of healing and upbuilding is gradual, and to the impatient it seems slow. The surrender of hurtful indulgences requires sacrifice. But in the end it will be found that nature, untrammeled, does her work wisely and well. Those who persevere in obedience to her laws will reap the reward in health of body and health of mind.


DDE profile image

DDE 5 months ago from Dubrovnik, Croatia

Wow! I read in detail and you shared such an experience and the young child has to go through so much to be feel a little better. Someone will learn from this story. It is useful and most interesting to anyone who doesn't have a clue of what to do in such cases.


clivewilliams profile image

clivewilliams 5 months ago from Nibiru

touching, brave and sweet


Laurinzo Scott profile image

Laurinzo Scott 5 months ago from Phoenix, Az.

Thank you for sharing your incredible and personal story... Heston seems a delight!!!

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