Do You Know Anyone with Misophonia?

Can Not Stand That Noise!

istock photo
istock photo

What is Misophonia

Misophonia is described as hypersensitivity to background sounds or visual stimuli that is usually ignored by most people. This word actually means “hatred of sound.” American neuroscientists, Pawel and Margaret Jastreboff, coined this term in 1991.

An individual with Misophonia does not have the ability to block out the offending noises or triggers and they have an acute emotion response when they come into contact with one of these triggers. The triggers are usually connected to breathing or eating. The most frequently cited objectionable sounds include lip smacking, chewing, swallowing, breathing, teeth or silverware clinking, plate scraping, paper tearing, fingernail biting, computer mouse clicking, or low pitched hums of electrical circuits or machines. Each offending sound can lead to an extreme reaction. The offending sounds actually stimulates the “fight or flight response” and the triggers often lead to extreme, blood-boiling rage. People with this condition know their response is irrational, yet they are unable to control their response.

Selective Sound Sensitivity - Unknown Cause

This is such a newly recognized condition and a rare syndrome that many doctors are unaware of its existence. Misophonia is also referred to as Selective Sound Sensitivity, SSSS, 4S, and a few other names. It is not the same thing as Hyperacusis as that is a condition that makes people sensitive to all sounds.

No one is born with this disorder, but there can be a genetic predisposition. The condition typically begins in young children about the age of 10 to 12. The pattern between different people is strikingly consistent. Obviously a child does not wake up one morning and decide "I think I will let the sound of chewing gum drive me nuts today". Aage R.Moller, a University of Texas neuroscientist, states he has determined that this condition is hard-wired, the same way a person might be right or left handed, therefore, it is not an auditory problem but a physiological abnormality.

About Misophonia

Different reactions to triggers can include rage, panic attack, rage, loss of cognition, physical itching or crawling sensations and a strong urge to flee or fight. Sometimes people make some vocalizations in response to their triggers; others wear earplugs to block provocation.

There may be a gradual onset or a sudden one. It is not a psychological disorder, but a physiological one. These is no problem with the auditory pathway in the brain, but the strong reaction originates in the limbic (the emotional system in the brain) and the autonomic nervous system. These systems are both connected to the auditory system which is responsibility for hearing.

Kelly and Regis

Source

Kelly Ripa

Recently Kelly Ripa admitted she believes she has this condition during an episode of Live! With Regis and Kelly. She stated that since childhood the sound of chewing “drives her nuts”. She trained her children to eat quietly with their mouths closed. She further stated that if her husband eats a peach she has to leave the house.

Misophonia Treatments

There is no known cure for Misophonia. Many people go from doctor to doctor and get a variety of diagnoses that are not correct.

There are a few treatments that have helped some people:

  • One is Tinnitus Retraining Therapy, which is a type of tolerance therapy designed to help people with tinnitus by helping the patient become used to a low level disturbing sound.
  • Cognitive Behavior is designed to help people change their negative thinking and any behavior that might contribute to their condition. They emphasis eating a good diet and exercising to reduce stress, plus monitoring the thought process can also be helpful.
  • Psycho-therapeutic hypnotherapy utilized hypnosis to teach people to respond differently to their triggers,’
  • Sometimes anti-anxiety medications may have a positive impact.
  • Neurofeedback, which is brain wave feedback, is also being tested.
  • Some people use ear plugs or white noise devises to block the triggers.

There are a few support forums where hundreds of people come together to share experience. One of the effects of having this condition is a tendency to isolate; therefore, a support group is very therapeutic.

My Life With Misophonia

In Conclusion

Another Hubber asked me to write about this disorder. I don't know anyone that has Misophonia and there is really no way to know the number of people that suffer from this condition since it is so often misdiagnosed. Quite often it is labeled in one of the psychiatric disorders, unfortunately.

This condition causes a lot of anguish for the person that has the condition, as well as. their family. Some of the treatments have helped at least to some degree but as of right now there is no cure.

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Comments 74 comments

fpherj48 profile image

fpherj48 4 years ago from Beautiful Upstate New York

I do not know anyone with this disorder....in fact, it's a new one for me. I have known people with ear/hearing issues and of course, I am familiar with the "ringing" in the ears problem.

This sounds so horrible for the person who suffers with it....It has to be extremely stressful.

Thank you for enlightening us...UP++


Pamela99 profile image

Pamela99 4 years ago from United States Author

fpherj, Apparently this condition was on 20-20 not long ago, but I didn't know about the program. It does sound like an awful condition. Thank you for your comments.


Faith Reaper profile image

Faith Reaper 4 years ago from southern USA

Wow, how terrible. I do not know anyone with this disorder, but at first when I was reading it, it sounded like what one of my sisters was describing, as she suffers with ringing in the ears, and certain sounds would make it worse. So, now I am wondering is she may have this disorder. Very interesting. In His Love, Faith Reaper


molometer profile image

molometer 4 years ago from Cambridgeshire, England

What a strange condition. It must be very hard for people suffering from this Misophoria.

In my student days I did some research on deafness. I had the opportunity to test some hearing aides. They were awful. All sounds were at the same volume.

Our brains usually filter out background noises like traffic in the distance or even birdsong.

To have them all at the same volume was disconcerting. This condition sounds very similar to that experience.

Well written and informative hub.

All the appropriate votes and sharing this information.


missolive profile image

missolive 4 years ago from Texas

Pamela99, very interesting information. This almost sounds like something that affects those in the autism spectrum. My son would have severe tantrums as a child with sudden or uncontrollable noise and now wears headphones (noise protectors) to school and public places. Although the reactions are similar I believe misophonia is unique. There are certain noises that I find very agitating and so did my dad. Hmmm now you have me wondering. Thanks for sharing your research.


unknown spy profile image

unknown spy 4 years ago from Neverland - where children never grow up.

sounds scary if you have this condition. I never heard of this before and never knew someone that suffer from this condition.interesting to read.


josh3418 profile image

josh3418 4 years ago from Pennsylvania

Pamela,

I have not heard of this disorder before. It sounds horrible! The pain they must endure. I can not even imagine the suffering they must go through

Very informative hub Pamela; I definitely learned something new today.


mary615 profile image

mary615 4 years ago from Florida

Interesting. I've always said that if I were locked in a room where non-stop loud rap music was played, I'd go nuts! I wonder if this condition is like when some animals go crazy at the sound of loud noise like firecrackers, etc. I voted this Hub UP, etc.


Debby Bruck profile image

Debby Bruck 4 years ago

Pamela ~ Fascinating. Thanks for this one. Blessings, Debby


JCielo profile image

JCielo 4 years ago from England

I must admit that I had not heard of this disorder before. I know about Tinnitus, of course, but never this. What makes it so astonishing for me is its selectivity. Thanks. Up and Interesting.


Pamela99 profile image

Pamela99 4 years ago from United States Author

Faith Reaper. I hope your sister doesn't have this disorder, but at least you know of the possibility just in case. Thanks for your comments.


Pamela99 profile image

Pamela99 4 years ago from United States Author

molometer, This is the biggest complaint of people that wear hearing aids, the background noise. I appreciate your comments.


Pamela99 profile image

Pamela99 4 years ago from United States Author

Missolive, Since there is a genetic component, it is certainly worth considering this disorder. I wish the best of health for your whole family. Thanks for sharing your experience and your comments.


Pamela99 profile image

Pamela99 4 years ago from United States Author

unknown spy, It is a rare disorder. Thanks so much for your comments.


Pamela99 profile image

Pamela99 4 years ago from United States Author

Josh, I think is must be very difficult for any person with this disorder and their family. I appreciate your comments.


Pamela99 profile image

Pamela99 4 years ago from United States Author

Mary, I hadn't thought about animals in relation to this disorder. I know very high notes hurt the ears of dogs, but anything is possible. They are not even diagnosing this disorder very well in people yet. Thanks for your comments.


Pamela99 profile image

Pamela99 4 years ago from United States Author

Debby, Thank you so much for your comments. Blessing to you also.


Pamela99 profile image

Pamela99 4 years ago from United States Author

JCielo, It is very unusual. I'm glad you enjoyed the hub and I appreciate your comments.


Giselle Maine 4 years ago

Pamela, this is a fascinating article. I had not heard about Misophonia before, so I learnt a lot from this hub. Very nicely written and well set out, too.


Pamela99 profile image

Pamela99 4 years ago from United States Author

Giselle, I am glad you enjoyed the hub and I appreciate your comments.


always exploring profile image

always exploring 4 years ago from Southern Illinois

Misophonia is a new disorder to me. It must be terrible. Thank you for staying up with the new medical terminology. I love reading your hubs..Thank you for sharing...


neoisdaone 4 years ago

I personally grew up hating gum-chewing and food-chomping sounds. Until about 6 months ago, I thought I was the only one in the Universe to whom this was bothersome. Enter Misophonia. What a relief. I am not alone. Still a horrible condition, but at least my misery is not mine alone. There is even a Misophonia activation scale, where I've scored high in the past. http://www.misophonia-uk.org/the-misophonia-activa... I really hope that someone can figure out what is wrong, and a solution for it. I personally believe it's related to Sensory Processing Disorder, PTSD, OCD, and/or anxiety, but only time will tell. In the meantime, I must carry earphones in my pocket at all times, just in case I need to tune out a bubble0gum popper, a gum-chewer, or a sloppy eater. Sniffling can also get under my skin, as does low-frequency muffled sounds.


Minnetonka Twin profile image

Minnetonka Twin 4 years ago from Minnesota

I had to read your hub just from the title. I had no idea what that word meant. You did a great job on this article and educating us on this disorder. I can't imagine how hard it would be to have this. So many sounds in this crazy world of ours. I would think people would isolate because of it and not want to leave their home. I hit many buttons.


Pamela99 profile image

Pamela99 4 years ago from United States Author

Ruby, I'm glad you found the hub useful and I appreciate your comments.

neoisdaone, Thank your for sharing the website and I hope they find some effective treatments for this disorder. I am sorry to hear you suffer from Misophonia and appreciate you sharing.

Minnetonka Twin, I'm glad to have written a hub about a condition that so little is known about and I sure hope they come up with a cure. Thanks for your comments.


drbj profile image

drbj 4 years ago from south Florida

What a disturbing, little-known disorder, Pamela. You did a remarkable job of research pinpointing it, the triggers and potential methods to alleviate this condition.


Pamela99 profile image

Pamela99 4 years ago from United States Author

drbj, Yes, it is. Thank you so much for your comments.


prasetio30 profile image

prasetio30 4 years ago from malang-indonesia

Very informative hub, Pamela. I had never heard about Misophonia before. So, I learn many things from you. Thanks for writing and share with us. VOTED UP!

Best wishes, Prasetio


Pamela99 profile image

Pamela99 4 years ago from United States Author

prasetio, I am glad you learned something new and I found most people have not heard of this disease because it is rare. I appreciate you comments. Best wishes to you also my friend.


teaches12345 profile image

teaches12345 4 years ago

This is quite an interesting read, Pamela. I do know some people who have symptoms of this. In class, they ask me if I can have the other students talk lower. What do you do? I do ask the class to keep talking to the subject in quiter response, but then you can't always control this when projects require interaction. I like your advice on dealing with this. Hope it helps those who truly have this disorder.


Pamela99 profile image

Pamela99 4 years ago from United States Author

teaches, It sounds like you are dealing with this disorder in your class and I think that it must be very difficult for the child. I also think most other children would not understand. I hope this hub helps others also as that was one of the main reasons I wrote on this topic. I appreciate your comments.


sheila b. profile image

sheila b. 4 years ago

I won't deny some people can be severely bothered by certain sounds, but the people I know who complain about a sound have many such complaints, or in other words, they simply choose to complain rather then learn to ignore the sound. I remember a friend complaining about birds outside his bedroom window chirping in the morning! I love waking to the sound of birds...


toknowinfo profile image

toknowinfo 4 years ago

Very interesting topic. I had never heard about it, and you did a great job of explaining this disorder. Thanks for putting this well done hub together. I learned a lot. Rated up and interesting.


Pamela99 profile image

Pamela99 4 years ago from United States Author

sheila, I love the birds also and some people are just crabby. I think the people with this disorder have something different happening inside their bodies as it starts happening to children around 10. I appreciate your comments.


Pamela99 profile image

Pamela99 4 years ago from United States Author

toknowinfo, I'[m glad you found this hub useful. I appreciate your comments.


RTalloni profile image

RTalloni 4 years ago from the short journey

An, "Oh, so that's what it's called" response might come from more people than we would have thought on first reading this. Glad to see it highlighted here.


Pamela99 profile image

Pamela99 4 years ago from United States Author

RTalloni, I think it is good to know of these unusual diseases and conditions. I appreciate your comments.


MartieCoetser profile image

MartieCoetser 4 years ago from South Africa

Very interesting article about Misophonia, Pamela! I still regard your articles/hubs as the best. Short and sweet, loaded with relevant information and no dribbling :)


tammyswallow profile image

tammyswallow 4 years ago from North Carolina

I never heard of this before, but I did share it with someone I know who gets extremley angry when people chew with their mouths open and smack. I would never have imagined there was a name for this. Very interesting!


Patty Inglish, MS profile image

Patty Inglish, MS 4 years ago from North America

I discovered this aversion to a few sounds in elementary school that result in crawling skin, intense anger, and physical pain like I've been run over by a truck. This occurred from about first grade to middle school. These sounds even hurt my teeth, but nails on a chalkboard do not bother me. It's bad --

We had a family member that, although we had plenty of money, would not spend money on a dentist. Lip smacking, wild tooth sucking, and other LOUD oral sounds every single night and day were so loud that the TV would not drown them out in the next room and family members were yelling. By middle school I was throwing things.

Then the person's teeth began falling out and the sounds subsided and finally ended, but these sounds to this day incite me to the same pain and rage. If someone in a computer lab is making these sounds loudly, I report it to the lab supervisor, who tells the person(s) to quiet down. No food or chewing gum is allowed in there anyway.

The other sound that causes these reactions in me is the "uck" sound - truck, duck, cluck, puck... F-word...another reason I don't like profanity.

I have synesthesia, where words have tastes and colors have sounds, etc. -- This is lessening as I get older, but the sound aversion is still strong. I carry ear plugs with me.


Peanutritious profile image

Peanutritious 4 years ago from Cheshire, UK

I know a man who suffers from Autism and Schizophrenia. He can't stand it if he hears children cry and scream. He starts banging his head against the wall and has to be taken out of the situation immediately. I'm not keen on the sound myself but seriously, how awful it must be to not be able to cope with that situation. You would have to be practically housebound. Voted up.


Pamela99 profile image

Pamela99 4 years ago from United States Author

Martie, I hadn't thought about the "no dribbling" but that is a nice comment. I try to make the medical issues understandable to the lay person as so many doctors talk over our heads. I appreciate your comments.


Pamela99 profile image

Pamela99 4 years ago from United States Author

tammyswollow, I am always amazed when I come across a new disease or condition that I've never heard of either. As a nurse I still continue to learn new things every day. Thanks for your comments.


Pamela99 profile image

Pamela99 4 years ago from United States Author

Patty, Your experience is identical to those symptoms I researched. The reactions are so intense that it is hard to imagine when you don't have the problem. I imagine there was some joy when the person lost their teeth since that wouldn't take care of them! It sounds like some of the problems ended in middle school, which is good.

I would carry ear plugs also. I just briefly read about synesthesia as that is new to me also. The information I briefly looked over is scant, but it did say that this condition runs in families. I'm glad the symptoms are lessening in your case. I appreciate you sharing your personal experiences as we can all learn something new.


Pamela99 profile image

Pamela99 4 years ago from United States Author

Peanutrious, I think if a person has this condition they do isolate from everything I read. I guess it would depend on the seriousness of the condition for each individual to determine what they could tolerate. Certainly someone with autism and schizophrenia are serious conditions, and the intolerance of different individual sounds would probably not be unexpected. Medications can only treat these diseases to a certain degree. Thank you so much for your comments.


Patty Inglish, MS profile image

Patty Inglish, MS 4 years ago from North America

Yes, it was a relief to my neurological system when my relative's bad teeth fell out.

As for synesthesia, no one else on either side of my family had it (for 5 generations back, anyway) and I am allergic to every single narcotic made, along with Splenda. Antihistamines cause me hallucinations and nightmares. While most people love chocolate, it makes me feel awful. But, I hardly ever become ill in any way, so Yippeee!


Pamela99 profile image

Pamela99 4 years ago from United States Author

Patty, You are unique! I would be better off if I felt awful eating chocolate. :-) I do hope you are never in the need of narcotics but glad to hear you have great health otherwise. My husband does not tolerate very many medications either, and that is not so unusual. Probably Truvia or one of the other natural sweeteners is a better choice than Splenda. Thanks for the comments and I wish you continued good health.


Patty Inglish, MS profile image

Patty Inglish, MS 4 years ago from North America

Truvia is great! It tastes good and dissolves well.

As for drugs, I had a root canal without anesthetic once. So, pain threshold is high - Ibuprofen works fine, and did even after ankle/leg surgery, which did not hurt much at all.


Pamela99 profile image

Pamela99 4 years ago from United States Author

Patty, It definitely sounds like you have a high tolerance for pain, which is a real gift in your situation. Some people have a problem with ibuprofen also. It is a great anti-inflammatory but it is best taken with food. I appreciate your comments.


Patty Inglish, MS profile image

Patty Inglish, MS 4 years ago from North America

Yes! I accidentally took two Ibuprofen doses to close together in time once and had dry mouth and a bit of a breathing problem. One must be careful if taking anything at all. Now I write things down on a check off list.


Pamela99 profile image

Pamela99 4 years ago from United States Author

Patty, It sounds like you could have an intolerance to the ibuprofen also since you had a breathing problem. Sometimes people can take a few pills and suddenly develop a serious allergy. A breathing problem would concern me. Breaking out in hives is another symptom to watch out for and it sounds like you are going to have to be extremely careful. Writing down things on a check off list is a smart thing to do and carry in your purse in case you were ever in an accident. I always carry a list of my medications for that reason.


Patty Inglish, MS profile image

Patty Inglish, MS 4 years ago from North America

I'll pay more attention to all that. It's like nose drops, though - sometimes they work and sometimes they make my nose more stuffed up, same with Ibuprofen from time to time. We've had over 20 days of extremely poor air quality here as of Sunday, which is another problem.


Pamela99 profile image

Pamela99 4 years ago from United States Author

Poor air quality I believe is a problem in many cities. I don't know if the air quality in Jacksonville, where I live is really that poor but the number of people with lung diseases and lung cancer is higher than normal here. That would certainly lead me to believe the air quality is an issue. I find the high humidity days are more difficult for me since I have mild lung disease. I have a good quality air purifier in my bedroom and that seems to help.

As for your responses to medication, listening to your body and tracking the symptoms is about all you can do at this point. It's strange how something is no problem one time, then the next time you have a different response. I personally think many of our problems come from the food we eat. I really stay away from processed food as much as possible. I am not a vegetarian , but close. I have found I feel better when I focus on fresh vegetables, fruits, fish, etc. Wishing you the best of health.


Patty Inglish, MS profile image

Patty Inglish, MS 4 years ago from North America

The air purifier sounds like an effective idea to use!


Pamela99 profile image

Pamela99 4 years ago from United States Author

Hi Patty, Yes, my doctor suggested a while back. I did some research and found one that I like very well. I think they are probably a good investment for anyone with any type of lung or sinus problem.


Dolores Monet profile image

Dolores Monet 4 years ago from East Coast, United States

I just spent a day with someone who apparently has this problem and imagine that it must be very hard to deal with. Maybe we should all try to keep our traps shut and eat quietly - it is annoying! A member of my family is a very loud eater so I must make sure the 2 don't sit near each other in the future!


Pamela99 profile image

Pamela99 4 years ago from United States Author

Dolores, I have been around people that eat with their mouth open and/or smack their lips and it almost makes the food unappetizing. I don't have misophonia but you just cannot replace good manners. Thank you for your comments.


tdjunebug54 4 years ago

I have this disorder. It is just horrible! The first memory I have of feeling this way was at age 9. It has just gotten worse over the years.

My worst "triggers" are gum chewing and chewing with an open mouth.

Many, many times I have to leave the area where this is occurring. If I am unable to get up and leave, it causes either anxiety or anger. I've never heard that this is a disorder. I assumed that it was because we were taught that your mouth had to be closed at all times if anything was in it. If we didn't obey that rule, we were punished. To hear it is an actual disorder is shocking. How to deal with it is next.


Pamela99 profile image

Pamela99 4 years ago from United States Author

tdjineburg, I wonder if the rules you had to follow made the disorder worse? There are still unanswered questions in understanding this disorder, but maybe at least you have some answers now. Thanks for your comments.


rajan jolly profile image

rajan jolly 4 years ago from From Mumbai, presently in Jalandhar,INDIA.

The first time I've heard of this condition, Pamela. It seems those suffering from this feel as if a loudspeaker is blaring right next to their ears. Must be a terrible experience to live with.

Voted up, useful and sharing.


Pamela99 profile image

Pamela99 4 years ago from United States Author

rajan jolly, I agree that is much be awful. I am glad it is rare. Thank you for your comments.


CatBar UK profile image

CatBar UK 3 years ago from Southern England

Good article! My particular sound-triggers I feel must be peculiar to myself as they don't seem like other misophonics'. Though I certainly share the same anger-reactions.

I've never heard of anyone else who is upset by the sound of things being shut too forcefully. Odd how a lot of things that I thought were considered bad manners (like chewing with mouth open, slurping, even slamming things) seem so prolific! As if these are now considered normal and acceptable things, and that one is a 'wet blanket' for minding these.


Pamela99 profile image

Pamela99 3 years ago from United States Author

CatBar, One would think some of these things would just be considered good manners, but I guess many people were not taught to chew with their mouths closed, etc. I appreciate your views and your comments.


CatBar UK profile image

CatBar UK 3 years ago from Southern England

Thanks, Pamela. I feel like a bit of an imposter, as if I don't quite 'qualify' for Misophonia as I don't get exactly the same sound-triggers. But even reading about Misophonia is good as I feel it's 'halfway' to my own peculiar triggers/reactions/avoidances.


Pamela99 profile image

Pamela99 3 years ago from United States Author

CatBar, I think there is quite a variety of different reactions for different people. I appreciate you sharing your situation and your comments.


pstraubie48 profile image

pstraubie48 3 years ago from sunny Florida

Good afternoon Pamela.

My daughter is dyslexic and has this to a degree. She is not diagnosed with it but is hyper sensitive to sounds such as chewing and clicking of gum which I love to do. But I respect her issue and do not do it in her midst. I always tell her she can her a flea sneeze a mile away.

This is important information you have shared as there may be people who have it and think that it is just them, you know? thanks for sharing. ps


Pamela99 profile image

Pamela99 3 years ago from United States Author

pstraubie, I was surprised at the number of people who suffer from Misophonia. Thanks for sharing your situation. I appreciate your comments.


CurrentScience303 3 years ago from HighPoint, N.C.

I personally find the sound of chewing, unsettling {I think most people do}, but not to the extreme that Kelly Ripa explains!} / I'm guessing Misophonia has to do with, neurologically: the 'temporal lobes' {sense of presence}, combined with hippocampus {for the strong affective-emotion involved, such as "flight or fight"}, coupled with the parietal lobe of the brain. {for the aural-sense (also, I just read in wikipedia that some persons with Misophonia are also affected by visual stimuli: which further suggests the parietal lobe's role). - To sum up: I propose an overtly sensitive parietal-lobe & hippocampus connection within the brain. Which would further suggest: obsessive-compulsive-disorder medication {such as Prozac}, to help alleviate /tone-down extreme cases.


Pamela99 profile image

Pamela99 3 years ago from United States Author

CurrentScience, I think you have probably given a very probably cause of this disorder. It certainly makes sense and scientist have a long way to go before truly understanding and curing this disorder. Thank you so much for your explanation and comments.


calynbana profile image

calynbana 3 years ago from Toronto

It was really interesting reading your hub. Since I was a young teen I would get really aggravated at many of the sounds you described. I could not eat at the table with my family because I would get so angry with them. Bus rides are really hard because one of the sounds that sets me off is people sniffing. I am usually a very calm and reasonable person, but the rage that is sparked by noises I should ignore is sometimes even noticeable to other people. My husband hates going on buses with me because of how tense and angry I become. I know it is irrational, I know I should ignore the sounds but they drive me absolutely crazy. It is good to know that this is an actual condition, and that possibly there is a real reason I am so easily aggravated. I think I will do some more research into Misophonia. Thanks for posting the hub :)


Pamela99 profile image

Pamela99 3 years ago from United States Author

calynbana, I am glad that you now understand what is happening with you. I would suggest you take some type of music with earphones on buses and other places that will block out some of those sounds. You are getting angry about sounds that most of us never notice. I know you don't want to live your life that way, so I hope you find some solutions. Best of luck and thanks for your comment.s


dooli1981 profile image

dooli1981 2 years ago

My sister, who is 20 years old, suffers from misophonia and she is really struggling with it, and it also affects everybody else in our family because she can't bear to be with us because of the sounds we unintentionally make, but at the same time she doesn't want to be alone. So I can only imagine how hard that must be.

I was looking around for some answers and I cam across a health forum where a 40 year old lady wrote about her misophonia problem and how she has had it since a young girl from about 8 or 9 years old. Another person responded and said that it could be due to a virus which has spread to the brain and more specifically to the temporal lobe region of the brain, which deals with auditory input. He asked the lady if she could remember ever having any type of throat or ear infection when she was younger. She replied saying that she had a very bad ear infection that lasted for a long time because her parents were too cheap to take her to the doctor.

This is interesting because my sister also had a recurring ear infection when she was around 13 or so (and still does have to this day), and so it made me think that there could be a link to this being possibly caused by a virus that has reached the brain.

What do others think? Can you think back to when your problems with misophonia first started and having any type of viral infection of the throat or ears?


Pamela99 profile image

Pamela99 2 years ago from United States Author

dooli, I am so sorry to hear about your sister. I cannot imagine having to live with this disease, and I do not have this disease. I suppose that could be a possible cause and it would be interesting to see what type of research is being done. Ear infections are extremely common in children, so it must still be a rare virus is that is the case. I think that sure don't have all the answers yet, but a cure would sure be wonderful.

I wish I had more information to share with you. I wish you and your sister the best.


dezziexoxo profile image

dezziexoxo 23 months ago

I have not been officially diagnosed, because it's hard to find someone who understands, let alone has even heard of this, but I am 100% sure I have misophonia. I have unfortunately developed several triggers over the past few years such as chewing and any other noises related to food, biting nails, animals "grooming" themselves, wind chimes, dogs barking, whistling, sounds through walls, and many more. I'm 18 years old, I've been dealing with this since I was maybe 12? Possibly earlier. I try to look for articles written about this to see if anyone has found out anything about the disorder. I don't believe it has anything to do with a virus (though I could be proven wrong) because I've never had one that is quite serious. I've read it can be genetic (either your parent can have it or just carry the gene, my mother thinks she may have a more mild form than mine), I've also read it may be associated with synesthesia in some way, where wiring in the brain is slightly different, those with synesthesia can "taste colors" and "see music". Or for example, they will always see the number 3 as the color orange. I'm hoping more research will be done on this soon, I'm majoring in psychology, so maybe I can contribute to the study someday (:


Pamela99 profile image

Pamela99 23 months ago from United States Author

dezziexoxo, It would be nice to have some clear answers to your questions just so you know what to expect and it would be great if there was a cure for you. Iwish you the best and appreciate your comments.

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