Help Dealing with Epilepsy

I have had epilepsy for almost 25 years. I have several types of seizures, take several anti convulsants, and I’ve also had a vagus nerve stimulator (VNS) fitted. As you can see from my photos I'm not one to give in to my epilepsy. I like to have fun, but relax when I need to as well.

If you find any of this information useful then I am glad I have helped. If you would like to contact me please feel free to do so, I will give the best advice I can.

  • Don’t let it take over your life, you must fight back.
  • If there are side effects to medication that induce bullying; ignore the bullies.
  • Stay strong even if you end up with severe injuries.
  • Ask for help, there are normally a lot of support networks around for you. Take advantage of them.
  • If you are young with epilepsy, make sure you still have fun. Do not become a recluse.
  • Be open about your epilepsy, tell people you have it. They’ll be happier you did that, so they know what to do if you have a seizure around them.
  • Don’t be afraid to get upset and/or have down days. It happens to us all no matter how positive we are.
  • Have realistic goals; don’t feel like a failure if your brain is not allowing you to complete something.
  • If you are scared of new tests, repetitive tests, new medication or if you hear the words “we’ve run out of drugs to try,” then show your fear. If you want to cry in the doctor’s office then do so; they’ve seen it hundreds of times before.
  • Ask questions at any appointments you have. Make sure you get as much information from the doctors and/or nurses as you can. You don’t want to walk away thinking ‘oh I wish I’d asked...’
  • Make your life and environment as safe as you can. For example: make sure someone is with you when crossing roads.
  • Some seizures can cause memory loss; this can make you exceptionally angry when you can’t remember saying certain things. Stay calm and know that you cannot help it.
  • You must keep smiling! There will always be someone worse off than you somewhere.

Me acting like a fool and trying silly hats on!
Me acting like a fool and trying silly hats on!
Very tired
Very tired
Partying away at my friend's wedding!
Partying away at my friend's wedding!
Half way up Ben Nevis; the highest mountain in the U.K, with my aunt.
Half way up Ben Nevis; the highest mountain in the U.K, with my aunt.
Acting a fool again; lying on a bench covered in snow in California!
Acting a fool again; lying on a bench covered in snow in California!
With my brother at his wedding! I was so proud.
With my brother at his wedding! I was so proud.
Half way up Mont Blanc; the highest mountain in Europe!
Half way up Mont Blanc; the highest mountain in Europe!

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Comments 4 comments

Debby Bruck profile image

Debby Bruck 4 years ago

Georgie ~ Keep hope alive. You are strong. Blessings for healing, Debby


Georgie98 profile image

Georgie98 4 years ago from UK Author

Thanks for commenting Debby, I am trying to stay as strong and as positive as I can. If I can help others then great.


nishlaverz profile image

nishlaverz 4 years ago from N.E England

You are an inspiration to others. I've seen first hand what fits and seizures can do to the sufferer and their families. My Sister-in-Law suffers from none epileptic seizures. She has undergone tests and treatment now for over 5 years since they started. They still don't know why they keep happening. They were originally put down to stress once epilepsy was ruled out.


Georgie98 profile image

Georgie98 4 years ago from UK Author

Thank you for stopping by and commenting nishlaverz.

I have several triggers to my seizures and stress is one of them. I started out by having just one type of seizure and for many years I only had to worry about one trigger. As I got older and more types were discovered I had to be concerned about more things. But as you get older it's just something you deal with. Like dealing with drug side effects...you cope because you have to.

That's too bad about your sister-in-law still not having a diagnosis after more than 5 years. Tell her to keep smiling and to stay positive. She'll have down days but she has to fight back, one day they'll find a solution. Try looking at this website: www.epilepsy.org.uk/ it has helped me immensely over the years. Especially when I had surgery.

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