What Is The Hushed Truth About Lyme Disease? A Recovery Story, Part 3.

My Motto
My Motto

The journey continues...........

So, here I am again, with another installment in my narrative series on the Hushed Truth About Lyme Disease. Oh, and hushed it is! So much suspicion about the origin of the disease! Some say it was created/discovered as a biowarfare pathogen complex. Others say it's been around for over a century. Many indivduals have another view. I have my own suspicion. Regardless, it's here, it's real, & it needs to be investigated.

It's now more than 3 weeks into treatment & the symptoms are much worse. It's mostly concentrated in my left elbow, which often stabs me unexpectedly. The fatigue is up & down. I still can't seem to make my legs move out with the energy I once possessed. It almost feels as if there are lead weights attached to each leg. My mind & spirit say "run legs!"..... But they just won't respond in the normal, ignited fashion I'm accustomed to. It's frustrating. I was used to going about my daily activities with warp speed, often being labeled 'hyperactive'. I now trail behind the elderly shopper in Walmart who shuffles along behind the shopping cart.

A bad day......

Herxheimer Reaction

For therapeutic purposes, I'm sharing my account in the video at right.  Remember, a Herxheimer reaction occurs from the "die-off" of Lyme bacteria.  Once the antibiotic kills it, the beasts release toxins into the body that need to be 'flushed out' through detoxification.  Each night I soak in a tub of water, epsom salt, hydrogen peroxide, & ginger root.  This helps eliminate the nasty toxins from the body. 

Looking for a Lyme Literate Doctor?

Exercise & Lyme

"Exercise is important not only to stimulate muscles and nerves, but also to help move the bacteria out of its hiding places in the heart and brain, and into the bloodstream where it may be detected and destroyed by the body's natural immune system".
Read more here:

http://www.lyme-disease-research-database.com/lyme_disease_treatment.html

Better in some ways.....

I'm not worse with ALL my symptoms. Some days feel 'normal' and others don't; with the exception of 'one good day verses 2 bad days' or '2 bad days verses 2 good days'. Let's not forget 'one good/bad day' split in half.

For the most part, I usually spend two days recovering after working two days in a row. So my three-day weekend work schedule sets me back a bit.

___________________________

I'm continuing to exercise with a combination of strength training & cardio. The only difference is that I'm not pushing as hard for the cardio workout, it's too exhausting. As far as exercise goes, the most important thing right now is to maintain flexibility & movement in my joints.

The Lyme attacks the most vulnerable places in the body, joints being at the top of the list. Arthritis patients are given different forms of physical therapy to stay mobile. The same goes for Lyme patients: keep moving! Of course, there are times when it's impossible to do anything, due to the extreme fatigue & exhaustion (or the pain). But when I feel like it, I'm diving into my physical therapy with as much 'gusto' as I can summon. Continuing to maintain muscle mass & strength in my limbs is important to my recovery.

Reflections........

Emotionally?

Let's be blunt. I've been depressed, but not all the time. The worst thing I've had to deal with is agitation during the workday. Little things, that don't normally bother me, set me off for no apparent reason. I become tense fairly easily.

I'm angry. I'm angry because I should have protected myself with insect repellent. But I don't continually blame myself. I'm angry at the Infectious Diseases Society for not recognizing Lyme for what it is: a continuing chronic illness. I'm ticked-off (ha) because there's no urgency to get to the bottom of this challenging disease. I'm raging over the fact that State Medical Boards are going after doctors who treat Lyme aggressively. What can I do about it? I can continually write about my own experience & post it for the world to see.

"Just for today, I will be unafraid. Especially I
will not be afraid to enjoy what is beautiful,
and to believe that as I give to the world, so
the world will give to me."

Read Part 1 in this series.

Read Part 2 in this series.

Read Part 4 in the series.

Read Part 5 in the series, the final chapter.

**************I'm sharing my thoughts in the video below about starting a new antibiotic regime.

More by this Author


Comments 24 comments

Bill Manning profile image

Bill Manning 6 years ago from Orlando, Fl.

Thanks for sharing this hub. My sister got Lyme disease when she went out west hunting. However since it happened years ago the doctors did not know what it was or what to do.

So she died from it. Hopefully there will be more work done on this disease that few really understand. Good luck with your fight. :)


donotfear profile image

donotfear 6 years ago from The Boondocks Author

Bill Manning: How tragic for your family! I'm so sorry she was not diagnosed. She must have had coinfections as well. I'm so sorry you lost her. It goes to show you how uninformed the medical community is concerning this disease.


sheila b. profile image

sheila b. 6 years ago

Please don't blame yourself at all. If you'd had any idea you'd get lyme didease, you would have used repellant. I was hoping to read you're doing much better. You're doing a really good service writing about this, and sharing everything you learn and experience.


donotfear profile image

donotfear 6 years ago from The Boondocks Author

sheila b.: Thank you so much for your words here. I need to hear that. I just want to get the word out about this illness.


Cagsil profile image

Cagsil 6 years ago from USA or America

Hey Donotfear, I've read all 3 hubs and I'm glad your attitude is positive. It will help you greatly in the long run. I can only offer you my assurance that mind over matter is more important than most anything else. You must keep yourself pushing forward, with whatever strength you can muster. Again, I'll keep you in positive thoughts and remain faithful in your ability to handle it. You're stronger than you might think, but I also think you are beginning to realize that more and more each day. Remain safe. :) Thank you for sharing. :)


donotfear profile image

donotfear 6 years ago from The Boondocks Author

Cagsil: Thanks again for the words of support & encouragement.


Hello, hello, profile image

Hello, hello, 6 years ago from London, UK

This is a wonderful and inspiring hub. Thank you for your courage to write it. You are a wonderful and strong person and that will be you great help. All my best wishes. Let us know how you are getting on.


Specialk3749 profile image

Specialk3749 6 years ago from Michigan

I read your hub because I have been having a lot of joint pain, especially at night. My doctor's firt thought is the new meds she put me on, but she has taken me off them and it has been almost a week and I am still having the pain. My daughter suggested that I might have lyme disease! I laughed her off because she was the one bit by a tick, not me (to my knowledge). I have another dr. appointment coming up and I will mention this to my doctor. My aches and pains will be a reminder to be thinking and praying for you.


aguasilver profile image

aguasilver 6 years ago from Malaga, Spain

donotfear, which is a great hubname by the way, especially considering your condition.

Suggestion, get or make some colloidal silver, I know there are some testimonials out there that accredit it with dealing with Lymes, and having been involved with CS use and research for the last 8 years or more, have seen it treat a multitude of viral/bacteriological problems, and it CANNOT harm you, provided it has been made correctly.

I will cost you pennies to make and if you want more info, either see my hub on dosage or email me and I will 'talk' you through it.

John

aguasilver@gmail.com


aguasilver profile image

aguasilver 6 years ago from Malaga, Spain

Just found this one for you, and like the writer, I do not sell colloidal silver, I just know what it can do.

http://www.healthboards.com/lyme-disease/545.html

John

PS, it is safe to make it yourself, I can tell you the 'rules'!


donotfear profile image

donotfear 6 years ago from The Boondocks Author

hello hello: Thank you for our kind words. It is much appreciated. I'll make it. I refuse to lay down & die.

Specialk3749: Wow, I hope you don't have it. Get to a LLMD fast if you don't get the answers you need from your regualar doc. Thanks for commenting!

Aguasilver: I'm going to follow up with your advise. I'd already been thinking about it seriously, as I know about colloidal silver. Thanks for the info.


aguasilver profile image

aguasilver 6 years ago from Malaga, Spain

That's good donotfear, I'm sure it will help your case, take a look at my Curses or Blessings hub also, you must know that no curse can alight without a perch, and Lymes fits the category of a curse, so check out the videos on that hub and deal with anything that would allow this to happen.

It works, believe me!

John


heart4theword profile image

heart4theword 6 years ago from hub

Keep on Living, as long as you have breath to be, you are making a difference in others lives! I agree with aguasilver! Check out your other options, physically and spiritually.


donotfear profile image

donotfear 6 years ago from The Boondocks Author

heart4theword: Thanks for the encouragement. I've already checked into many options. I've just started an intense chiropractic treatment that includes much physical therapy & concentration. I won't give up.


cheaptrick profile image

cheaptrick 6 years ago from the bridge of sighs

Hello D.Sorry it's been so long between visits,I've been tied up.I will call my friend at U of Florida again and ask him to get as much info as he can on this.Soon as I hear from him I'll e mail you what he says.Don't know what to say to encourage you but I hold you dear as a virtual friend and think of you often.

Dean


donotfear profile image

donotfear 6 years ago from The Boondocks Author

Hey Cheaptrick: Thanks so much for your interest in my plight. I'm doing a lot more to aid my body in the healing process. I feel priviledged to be assisted by such encouragement. You're a trooper.


embee77 profile image

embee77 6 years ago

Your story is difficult and I'm sorry you have to deal with this. I admire your courage in facing your pain and the ignorance of the medical establishment from day to day. Your dedication to spreading the word about Lyme Disease is to be celebrated. You're doing a wonderful service with your advocacy. Best wishes and God bless.


donotfear profile image

donotfear 6 years ago from The Boondocks Author

embee: Thank you so much for your encouraging words. I've turned into an activist over this thing. I just can't let it go....I feel like I've got to do something & writing here is the best way I know to spread the news.


susanlang profile image

susanlang 6 years ago

Its Aug. 27, 2010, how are you feeling these days? I hope better than we last spoke! (BIG HUG)


nevergivingup38 6 years ago

Hello thank you for doing this. I am now learning all I can about Lyme. I was bit as a child and now at 38 have been diagnosed as having Multiple Sclerosis with a lot of neurological problems and loss of vision in my left eye. I know in my heart and soul that I have Lyme not MS and the more I learn of the symptoms, the more I know I do. I have an appointment with a LLMD in November I can not wait to see him. It will be nice to talk to someone that will believe me when I tell him I have severe pain and exhausting fatigue as well as twitching and headaches and all sorts of symptoms. I am like you I wil never give up and I will fight until I beat this too. God Bless you for going through this and sharing your story.


donotfear profile image

donotfear 6 years ago from The Boondocks Author

nevergiveup: I'm so glad to hear you're finally getting the help you need. Isn't it a tragedy that we suffer in near silence with scrutiny from the major medical field? I pray you get the answers you long for. Share your story every time it's appropriate. The more we talk, then more aware the public becomes.

Susanlang: I'm much much better, thank you!


fetty profile image

fetty 6 years ago from South Jersey

Hello Donotfear, I am going to ask you two things . For now do not get overly worked up on the research this can only upset you and delay your recup. Take the new antibiotic and be vigilant about how it is affecting you. ( if you are allergic, etc. ) You are your own best doctor right now. God Bless. I had some of your symptoms 15 years ago when a lot less was revealed than today. You need your strength and to be positive to fight on. This will not defeat you, believe me. It's just really lousy going through this , I know, too. God bless.


Kathy 4 years ago

Thank you for your brave posts. I've been suffering for over 20 years. Was misdiagnosed. Keep having faith, and advocating for yourself. You are not alone. I get extreme fatigue, lesions, and lumps on my skin, migraines almost every day . It is so misunderstood, and I'm dam angry too.


donotfear profile image

donotfear 4 years ago from The Boondocks Author

Thanks Kathy. Keep fighting the good fight of faith.

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