Misdiagnosed Miscarriage after IVF

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What your Doctor may not know about your pregnancy after IVF

Because of the growing number of women who realize their miscarriages were misdiagnosed, I like to get any information out there that may help women in determining whether they are going to miscarry or are misdiagnosed.

If you have had IVF and are being told that your gestational sac or baby looks one to two weeks behind in development during the first trimester, this one is for you.

Keep in mind, miscarriage is unfortunately all too common. Reading this study will not magically change the course your pregnancy will take. It will however give you information that may save your pregnancy if you are misdiagnosed.

I believe every woman deserves to have no doubt before having her pregnancy ended.

I am not a medical professional. The information I share is meant to supplement the information given you by your doctor. If you feel your doctor is not doing enough for you or not willing to listen to your concerns, I strongly encourage you to take what you've learned here and get a second opinion.

The Study

Gestation sac size in in-vitro fertilization pregnancies

Summary:

The gestation sac size in pregnancies resulting from in-vitro fertilization (IVF) and embryo transfer have been compared with those in spontaneous pregnancies. Small-for-dates gestational sac sizes were found in 36% of the IVF pregnancies. This proportion held for both singleton and multiple pregnancies. With increasing gestation beyond 8 weeks the gestation sac volume increasingly approached normal. In contrast to spontaneous conceptions, IVF pregnancies had a low rate of pregnancy loss once fetal heart movements were demonstrated, when the gestation sac size was small-for-dates. Small sac size in an IVF pregnancy may lead to the misdiagnosis of a failed pregnancy.

Gestation sac size in in-vitro fertilization pregnancies

Our Hypothesis on Why This Happens

it's really pretty common

We've discovered from the many misdiagnosed women online that many of them have a retroverted uterus in common. The transvaginal ultrasound is really not as accurate in women with a tilted uterus. Often we'll look one to two weeks behind during the first trimester. As the pregnancy progresses, the uterus gets pushed back into a more 'normal' position and then dating looks more accurate.

Our guess, and I do think it is a good one, is that this 36% actually had tilted uteri since a number of studies indicate that up to 30 to 40% of women actually have a retroverted uterus.

What Does This Mean For You?

Take this to your doctor

If you have had IVF, you are more likely to pushed into D&C earlier than most women based on what I've been told by women online. If you just wandered into a doctor's office pregnant, the doctor knows your dates may be off and there is more room for error in his eyes. However if he is certain of dates due to the IVF procedure, he is definitely more likely to doom your pregnancy earlier. We this see this quite a bit.

Take this information to your doctor. Unless there is an immediate necessity to end the pregnancy, ask to wait out the diagnosis. Some doctors really don't like to be second guessed so sometimes it is better to say something like, "I know you are probably right, but for my own peace of mind, I'd like to wait a bit longer and see what happens." Ask for a follow-up ultrasound at least seven days out. You want to give that sac enough time to grow adequately. You stand a much better chance of seeing that baby a week out rather than two days out if you are misdiagnosed. And, yes, sometimes we have to wait a few weeks to find out we're misdiagnosed. We've found most misdiagnosed women see their babies by nine weeks but, yes, some women are even further along amazingly enough.

A blighted ovum really should not be diagnosed before nine weeks (or with a growing gestational sac, before 25mm) even in an IVF pregnancy!

If You End Up Misdiagnosed

Please, let us know!

As you can see from our collection of Misdiagnosed Miscarriage Stories IVF patients can be misdiagnosed. I am certain there are far more stories out there and, if you are one of them, I hope you share your story on the site.

I know that if you are misdiagnosed and share your story, you will, in turn, help so many other women.

Important New Guidelines for Diagnosing a Miscarriage

The UK is the first to acknowledge that misdiagnosed miscarriages are indeed a problem. The Royal College of Obstetricians and Gynaecologists has revised its guidelines. If your gestational sac is more than 25mm and/or the CRL is 7mm or more, you should wait a week to verify (if there are no complications). If the measurements are less, you are too early to diagnose. For more information (and something to take to your doctor), please, see my new page:

New Blighted Ovum Guidelines! You ARE Being Diagnosed Too Soon!

I believe every woman deserves to have no doubt before having her pregnancy ended.

If I don't reply to you here, please feel free to e-mail me directly at misdiagnosedmiscarriage@gmail.com

If you feel this page could help others, feel free to click on the Google +1 button at the top of the page (for those of you with Google accounts). Thank you!

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Concerns? 31 comments

Mirriam 7 months ago

am 8 weeks pregnant and i had my first ultra sound were i was told the baby's heart was not beating i didn't believe and 3 more scan from different clinics. 2 scans from diferent clinic told me it was too early to see the heartbeat.but the 3rd clinic told me they didnt see the heartbeat either and told me it was i missed abortion but i dont believe,am not having any signs of miscarriage.i was abit stressed up when i was told i the baby's heart was not beating i lost 2 of my pregnant symptoms,lost appetite and breast tendering but right now a calm and my appetite came.am giving my self time am waiting for 4 weeks more cause i really ant this baby its my first pregnacy.


Cari Kay 11 profile image

Cari Kay 11 13 months ago Author

Do you have an update? Really, if the sac is growing and not yet over 25mm, it just may be too soon to diagnose. (((hugs)))


Rebecca M 13 months ago

Hi

I am 39 years old. We got pregnant with ICSI on December 24, 2015.

FYI I take progesterone vaginal suppositories, oral estrifam pills and estradot patches, etc..

Just a quick background:

Dec 11, 2015 egg retrieval

Dec 16, 2015 Day 5 blastocyst transfer (early stage blastocyst).

Dec 24, 2015 (HCG 29.7, Progesterone 46.2)

Dec 28, 2015 (HCG 95.4)

Dec 30, 2015 (HCG 161)

Jan 4, 2016 (HCG 884, prog. 41, estradiol 514)

Jan 7, 2016 (5 weeks + 6 days)

(HCG 2078, prog 36, estr. 445). She said she saw both embrionic sac and yolk sac. I only saw the embrionic sac.

Jan 11, 2016 (HCG 5314)

Jan 13, 2016 (6 weeks + 5 days) (HCG 7096). Embrionic sac (11mm) and clear yolk sac (nice ring. 4.7mm). She said maybe embryo is in a hidden position and that's why we don't see it.

Jan 15, 2016 (HCG 9385). She said it is not optimal raising.

Jan 20, 2016 (7 weeks + 5 days)

(HCG 16,458, prog. 43.9, estr. 786). We saw a bigger embrionic sac (now 18.6mm) but she says it should have been 27mm!

Yolk sac is the same so fine

Still no embryo and no heart beat!!

She told us it is VERY BAD NEWS and if it wasn't for me she would have already told me to stop progesterone earlier. Because it's me she says we wait a week for one more ultrasound. That's scheduled next Wednesday, jan 27. Feeling afraid.

I freaked so I went to a women's hospital right after the appointment for a second and third opinion.

And they saw the same. While I wait for next Wednesday's appointment I will go to the hospital again tomorrow night and see if any changes have taken place....it's only 48 hours so not sure if much could have taken place....

Is there any hope for me?


Cari Kay 11 profile image

Cari Kay 11 16 months ago Author

I think if there is any doubt, a second opinion is a good idea. Please, keep us updated.


Mary 16 months ago

I had my second ultrasound yesterday at ten weeks. Everything looked the same as it did nine days earlier. Embryo was about 4-5 mm long, just as last time. My hcg levels was measured last week at 30.000 and it had leveled out. I still feel like I'm pregnant, but my breasts are not tender anymore. The doctor sent me home with abortion pills, but it doesn't feel right to take them just yet. I'm thinking I might have a second opinion just to remove that last doubt before I take them.


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