Fibromyalgia Truly is My Thing # 11 : I Have a Dream.

Fibromyalgia Hope Center
Fibromyalgia Hope Center

As promised, I want to share my dream with you all; those of you who have Fibromyalgia and those who do not.

My dream is a physical one. It first came to my mind and heart in 2003, when I was sitting alone in my apartment. I was having a particularly bad time with my Fibromyalgia.  At that time I shared the apartment with a good friend. She was out for the evening and I sat alone in a candle lit room and tried to figure out just what my purpose in life was.

I got out a notebook and for hours I mind-mapped and then began forming what it was that could be done for folks who really needed help and did not have it.

This was before the National Fibromyalgia Association was up and running on the net. At least they now have tons of good information to share.

Still, I see no actual facility dedicated to those who have Fibromyalgia, yet the numbers of those who have it, and have had it for years, is climbing and coming to the forefront.

I’ll not say that I actually found my purpose in life, but I did find something that I still feel is within reach for me to do to help others.

I want to build a physical building and call it the Fibromyalgia Hope Center. It will look like a big circle raised up off the ground. There will be a walking path around the entire facility, with benches along the way to rest. (When you first start walking, it is not easy and you need rest. Later on, you are encouraged to know how many benches you no longer need to sit on.)

It will have lots of greenery. The walls will project peace and calm.

I had a really neat picture I made about the center, but have it packed away in a box somewhere. So I drew another. Above is a rough sketch of what I envision the Center to be.

The Center will have what I like to call a full service program for those who have Fibromyalgia, as well as for the families. Informed families are the basis for a healthy support group.

The Library will contain literature, books, CDs and other items that are directly and remotely related to Fibromyalgia. There will be two rocking chairs, two stuffed chairs and a rug area for children to sit and read. Of course, it will also have plants and a cool atmosphere. Peaceful. You will be able to check out books or just sit and read them.  There will also be humorous books and movies.

I intend the Library to be a place that folks can create their own “support group,” meet and not have to pay a fee.

The Child Care will be exclusively for members to utilize while they are there. So no one will have to avoid the center due to an inability to find someone to care for their children while they get help.

There will be a volunteer group to help in all areas of the Center.

The Medical and Psych areas will be staffed by volunteers to begin with. Eventually we hope to be able to pay for these services. (I have researched in my area and many Chiropractors, MDs, and Psychologists are more than happy to volunteer their services on a limited basis.

The Spa and Fitness area will have an in-ground heated pool as well as a personal trainer to get folks off on the right track. Classes will be available for exercising in the water.

Massage therapy will be available.

There will be several bathrooms scattered around the facility (knowing what it is like for those with IBS).

There are two small money making areas. The Snack Shop and the Party room. The money made from these areas will go into a scholarship fund to help those who cannot afford the membership price.

Membership fees will provide maintenance and upkeep of the facility.

Lectures will be open to the public and free. All lectures will in some way relate to Fibromyalgia.

The same room (The Lecture Room) will be nice enough to book parties, for a fee. This money will also go into the scholarship fund.

I don’t have it all worked out yet, but I really believe I will see this come to fruition in my life time. I would love to be a part of it, but if someone would be able to take it and run with it… that’s great. The whole idea is to help other Fibromyalgia folks.

I am confident that once this is up and running we will see these Hope Centers popping up all over the country,.

Well, there is my desire, my hope, my dream. I have now shared it.

Thanks for stopping by.

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9 comments

WillStarr profile image

WillStarr 5 years ago from Phoenix, Arizona

You impress me more with each Hub.

You are a very grand lady.


Pixienot profile image

Pixienot 5 years ago from Clarksville, Indiana Author

Nah! Just have some grand ideas! Thank you.


Jillian Barclay profile image

Jillian Barclay 5 years ago from California, USA

Dear Pixienot,

Have you thought of starting a 501(c)3? This is for those who want to start a non-profit organization that would be eligible for grants and donations. The key to a 501(c)3 is that it must remain a non-profit. That does not mean that you and your employees cannot draw a salary. You can.

This sounds like a wonderful idea! I say do some looking into it and see if it sounds feasible. Dreams can come true...


Pixienot profile image

Pixienot 5 years ago from Clarksville, Indiana Author

Dear Sweet Jillian,

I have indeed looked into a 501(c)3.

When I first created the Center of Hope I had a lot of physical stamina, but some emotional problems. I forged ahead and lined up the doctors and even had someone who was willing to do the paperwork necessary for the non-profit.

Then people started dying in my family, 9 in 18 months. At that time my life kinda went on a stand-still. By the time I recovered from that, I needed to start all over and simply have not been physically or emotionally up to the challenge.

I have not forgotten, nor will I give up my dream. It will happen. My hope is that I can reach the right people (or win the lottery, which is unlikely since I don't invest in it...smile) and they will do the physical work. There is a lot of work to be done.

Thank you so much for the advice and for the concern. I am so much getting back on my feet that I suspect by June I will be ready to tackle this again and start approaching folks to help me.

Your good thoughts and the good thoughts of others keep me going. I need them. Thank you.


Jillian Barclay profile image

Jillian Barclay 5 years ago from California, USA

Pixienot,

When you are ready, let me know! Seriously, this is something that I would love to be a part of! What could be better than two women who live it everyday, actually contributing to the effort to rid the world of this disabling condition? We might end up laughing too much, so that could be a minor drawback!

Have spent many years as a patient advocate, so I might be able to help a little!


Pixienot profile image

Pixienot 5 years ago from Clarksville, Indiana Author

What a fantastic offer! And don't think I won't take you up on this! I most definitely will. Are you on facebook?

May I contact you there?

WOW!!! I am so excited!!!

Smiles and giggles of joy coming your way.


LoraKayAlexander profile image

LoraKayAlexander 5 years ago

Great! Informative! So good to know. Love


b. Malin profile image

b. Malin 5 years ago

Well now my dear Friend, it needs to be presented to those who could help make this Dream come true...With the Finances to make it happen...there could be Grants etc. It's my practical mind at work...Dreams do come true...with the right connections. Good Hub!


Pixienot profile image

Pixienot 5 years ago from Clarksville, Indiana Author

LoraKay, Thank you for your comment and for stopping by.

B. Yes, it does need to be presented to the right folks with the right finances. I'm not sure who yet, but I do know how. I used to be a public speaker, so I'm sure I could dust the rust off of my vocal cords and give a presentation or two. Need to ponder on to whom!

Thank you so much for your encouragement. And thanks for stopping by.

Lots of smiles coming your way!

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