Journey Towards Less Medication!

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Zombie No More!

I have been taking various anti-seizure meds for most of my life; none of which ever controlled my seizures. By the time I was in my early 30's I was taking 17 pills of medication a day! I continued to take seizures the only thing that did change over the years was the increased dosage of my anti-seizure medications.

Less Pills feel Better

I am not a doctor but I knew how I felt at the time and it wasn't good. The Neurologist that I had at the time seemed to rush me in and out of his practice only to up my dosage once again. It was when I was taking 17 pills a day I made a decision to slowly start to down dose myself. This was a process that I slowly did over the course of many years. But I am glad to say that at 48 yrs of age I am now down to 2 pills a day. I am not having any less seizures or any more but I feel much better taking 2 pills a day compared to 17!

Toxic Levels

I remember when I was down to 7 pills a day I had gone to see my family doctor who I am blessed to still have to this day. I told her that I felt like my blood was poisoned and that my arms felt extra sensitive. I was lacking the correct medical terminology to express myself better but my doctor had some blood work done to check things out. Well she called me at home it was about 7 in the evening to tell me that I was right that in a way my blood was poisoned because the anti-seizure meds I was taking were at toxic levels!

No More 17 pills a Day

What really freaked me out was that this blood work was done when I was taking 7 pills a day. I wondered what it would have been classed under at 17 a day! But on a lighter note I am so happy that I am down to 2 pills a day at this point in my life.

Water Pill gave me 2yrs Seizure Free

I normally will have a seizure in or around my menstrual cycle; other things that can trigger a seizure for me is lack of sleep or too much stress. Over the years I have kept track of my seizures information I passed over to my new Neurologist. He noticed that there was a pattern in which the majority of my seizures happened during my menstrual cycle. He thought that the extra water on my brain during this time could be what was triggering my seizures. He suggested trying an experiment in which he would put me on a water pill. Well I gladly was willing to try it and alas he gave me 2 years seizure free which I am eternally grateful to him for giving me that. When I started to have seizures again he decided to take me off the water pills as it is not good to stay on these for an extended length of time. This doctor unfortunately moved his practice out to B.C. so I decided not to find another Neurologist at that point in fact I have never had another one since.

Not a Zombie Anymore

I feel so much more alive today compared to the time when I was a Zombie. It has been a long journey to this point but has been well worth it. Who knows maybe I will become totally drug free but if not that is okay too. I am making the best of my life carrying on down the road but at least now I am a more active participant instead of the Zombie I once was! Medications are not bad when we find one that helps us to live with our ailments. Medications can totally heal us or they may just make living with a disease or ailment more bearable. Sometimes we have to try many different medications before we find one that suits our personal needs with little to no serious side effects. We have to keep track of our own health - keeping notes perhaps of certain symptoms or side effects we are experiencing when taking certain medications. These notes we can take to our doctors so they have a better idea on how we are reacting to the medications that they are trying us on. If we can give our doctors more information on how we are functioning on a day to day level it will help them in finding a suitable medication that will suit our personal needs. We can't leave everything for our doctors to figure out but we are bound to have a more successful outcome if we choose to work with our doctors instead of against them. One thing we can do for ourselves is to try and live a healthy lifestyle- one of the big changes I made was quitting smoking. I now also make what I call "health drinks" made from various fruit and vegetables blended together to make a smoothie. I drink one of these almost everyday for breakfast; I have noticed feeling more energized since adding these drinks to my diet. The best thing of all is that I went an incredible eleven months without a seizure! I normally have at least one seizure a month; but since making these changes in my life I went almost a year without a seizure- I feel so blessed! We all must try and do what we can to improve our health. If that means making some changes in our lifestyle then we must be prepared to make those changes that will lead us to a happier healthier way of living!

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Comments 15 comments

zionsphere profile image

zionsphere 4 years ago from Oregon

I can't imagine having to take 17 pills a day. I do know what it is like to take seven, and now I am down to none. My illness is different though, and I have that option. Going drugless is a brave choice, especially when doctors are so dead set against you stopping any of your medications. They start to label you as non-compliant, and treat you like a delinquent in need of punishment.

I too was lucky enough to find doctor who are willing to listen, and don't force me to take toxic drugs to treat my conditions. My heart goes out to anyone who still struggles with forced medication. I am glad you are breaking free!


grand old lady profile image

grand old lady 4 years ago from Philippines

Congratulations on taking charge of your own health and healing, with the help of a sensitive doctor. That is a huge achievement. Not everyone has the courage to lessen their medications on their own. You are an inspiration:)


Pamela-anne profile image

Pamela-anne 4 years ago from Kitchener, Ontario Author

Thanks so much Becky for voting my hub up and leaving such a kind comment of support. take care pam.


Becky Bruce profile image

Becky Bruce 4 years ago from San Diego, CA

Pamela-anne, it's so brave of you to share this personal story with everyone. For those that have similar problems this article will come as a blessing! The medications doctors give us often cause so many more problems than we even started with. I'm so glad to hear your pill intake is down to 2 a day and you are feeling much better! Voting up :)


Pamela-anne profile image

Pamela-anne 4 years ago from Kitchener, Ontario Author

Thanks so much for your lovely comment pstraubie48 I am glad of your support take care.


pstraubie48 profile image

pstraubie48 4 years ago from sunny Florida

Sometimes in the past I felt the same; rushed in and out and given more drugs. I wrote about how I spiraled out of control with prescribed drugs for migraines. It was a journey into darkness.

I am so glad you have been able to take control and are living life on a more even keel.


parwatisingari profile image

parwatisingari 4 years ago from India

:) Thats interesting. For a neurologist should have known the toxic levels.


Pamela-anne profile image

Pamela-anne 4 years ago from Kitchener, Ontario Author

I was put on that level of medication by a neurologist thank god I am not on that amount any more thanks for your support. take care.


Pamela-anne profile image

Pamela-anne 4 years ago from Kitchener, Ontario Author

Thanks everyone for your support of my hub.


parwatisingari profile image

parwatisingari 4 years ago from India

who put you on that level of medication?


FaithWriter30 profile image

FaithWriter30 4 years ago from Georgia

My uncle has had Epilepsy for most of his life, stress bringing them on stronger and more frequently. He believed God had healed him from the condition and refused to take his meds as a testament to that belief. He got worse. Through prayer and counseling he began to take the drugs again but in addition to that, he met a lovely woman he would later marry and his once stressful life became all at once peaceful. Now he takes the drugs less often but enough to control the condition and has maybe two seizures per year. God rarely gives us exactly what we want, but miraculously always gives us exactly what we need. My prayers are with you Pam.


thewritingowl profile image

thewritingowl 4 years ago from Ireland

I don't get seizures but I know many people with Fragile X and autism who do. I know what its like though to go to your doctor and just be told, 'all we can do in increase your antidepressant medication,' when you know that increasing the dose will make you feel so zonked out that you wonder what the benefit can actually then be? Unfortunately a lot of health care professionals don't have the time or the inclination to do anything else, liked your article and I wish you the best.


Pamela-anne profile image

Pamela-anne 4 years ago from Kitchener, Ontario Author

Larry I thank you for all your kind words of support and sharing with me your own personal experiences that's wonderful! I believe you are right God is watching over me and may he always watch over you and your family too stay connected! God bless you Larry.


Pamela-anne profile image

Pamela-anne 4 years ago from Kitchener, Ontario Author

Thanks to all who offer support for my hub!


Larry Wall 4 years ago

Pamela-anne

Your story is amazing. I have known some people with Epilepsy. Because of a serious car accident in 2005, my son has been diagnosed as being a candidate for Epilepsy. He has been on anti-seizure medicine since the accident and has not had any seizures. So at this time, he is not listed as having the condition.

However, I knew people in college and in the early part of my career who had Epilepsy, and I know it is not an easy thing to live with. It certainly has not impacted your writing skills. You do a terrific job and your story was very moving but still offered a lot of facts. It takes a certain amount of courage for an individual to be so open about any condition they have, and then they have to learn when not to bring it up. I am speech impaired, but over the years, it is not so noticeable, so I do not raise the issue on job interviews, unless they ask me to repeat a lot if they react to my answers, then that means they understood me and I move on to the next question.

I know you do not have that luxury, but I am certain that God is watching over you. He gave you the courage to reduce your meds without any ill effects. So, I am certain he will continue to watch over you.

Stay strong and may God always bless you.

Larry

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