Autism, Autistic Enterocolitis and visiting Dr Krigsman. Please apologize Fiona from Autistic Rights Together.

Adam Godley our son who has Inflammatory Bowel Disease and cannot get proper treatment here in Ireland at present.
Adam Godley our son who has Inflammatory Bowel Disease and cannot get proper treatment here in Ireland at present.

I gave an interview on the Richie Allen Show to raise awareness of Adams story.

Dear Santa, Adam has Autism and Bowel Disease, please send him help and medical care this year. Thanks.

My daughter Sasha, with her cousin Don O'Neill  Theia Fashion Designer, and his new husband Pascal.
My daughter Sasha, with her cousin Don O'Neill Theia Fashion Designer, and his new husband Pascal.
Our son Adam, who is being denied proper medical treatment here in Ireland for his serious Bowel issues.
Our son Adam, who is being denied proper medical treatment here in Ireland for his serious Bowel issues.
Sasha and Adam at Carrigafoyle, Ballylongford.
Sasha and Adam at Carrigafoyle, Ballylongford.
Sasha and Adam, at Listowel Racing Festival last year.
Sasha and Adam, at Listowel Racing Festival last year.

Our son's regression into autism.

On the 27/07/2016 I Mary Godley, gave an radio interview on, 'Peoples Internet Radio, Out of the Bag Show,' with host 'Sean Maguire,' here in Ireland. It was a story that began here in Ireland and then took listeners 2,500 miles across Europe, to a hospital in the capital of Sofia in Bulgaria. This interview tells the story of how Adam, who before we went to Bulgaria had multiple diagnoses including autism, ADHD, Oppositional Defiant Disorder, Developmental Delay and suspected Inflammaotory Bowel Disease.

Our son Adam was born in September 2007 and he was born healthy and had an uncomplicated birth. We now know that he had a reaction to his two, his four and his six month vaccines, but we were never told this at the time, or nor was it ever even suggested to us at all, that it was even a possibility. Then only days after Adam’s six month vaccines he ended up in hospital after he stopped breathing in his cot one night. He had had a severe viral infection for a few days before that. Again it was never suggested to us that it could be a vaccine reaction.

Adam had another reaction to his MMR, again it wasn’t immediate so I never linked the two until later. After this vaccine, Adam ended up at Ireland’s after-hours doctor’s clinic which in our area is called Southdoc. Before we took Adam there he was screaming and clutching his head while pacing around our house. Then he started laying down on his bed and he became very lethargic and sleepy. As his dad, Brian, says now after that night Adam was never the same again. Still even to this day, and despite the number of Freedom of Information requests and Internal reviews and un-granted requests for an independent check of their computer memory, Southdoc and the Health Service Executive (Irish Health Service body), are both still saying that this night never happened, as they can find no record of Adam being there that night. So obviously what they are saying is that I and my husband Brian and our daughter Sasha and Adam himself, all just all imagined the night our son had all the symptoms of Acute Disseminated Encephalomyelitis (ADEM), that being swelling of my son's brain which led to brain damage. It is now well documented that the MMR vaccine does and can cause this as an adverse reaction. How I wish that it hadn’t happened but unfortunately it did happen.

Doctors didn’t want to test Adam for anything after that. I had to fight with my doctor to get Adam even referred for an autism Assessment. Before that Adam had needed grommets and I had to ring up a Consultant myself, because his doctor wouldn’t do a referral, he didn’t think one was necessary. When I fought with him about this he blurted out that I didn’t understand ‘the politics behind autism in Ireland.’ In hindsight he was sure right about that. As I really had no idea then what a hard journey lay ahead of us.

It wasn’t until Adam was four and we got a letter about his Booster Vaccines, that I decided I needed to study them this time, before allowing anymore vaccines to be given to my son. I was a much wiser woman this time around because at that stage I could see that things weren’t right and that there were all sorts of lies being told to me. When I started reading the science behind vaccination I was just horrified. And I really I couldn’t believe all the lies that I had been told and just foolishly believed. Suddenly the callous disregard for my child made sense. I understood then why his medical needs were so overlooked.

Dr Krigsman speaks about Autistic Enterocolitis

Photos of my son's diseased terminal ileum that it is being claimed we are imagining.

Adam is often in pain with his Bowel Disease
Adam is often in pain with his Bowel Disease
We just wanted medical treatment for our sick child Adam. But now we are being constantly harrassed.
We just wanted medical treatment for our sick child Adam. But now we are being constantly harrassed.
Adam beginning his journey to see Dr. Krigsman, in Sofia, Bulgaria,after years of being in pain.  Our children need to be heard.
Adam beginning his journey to see Dr. Krigsman, in Sofia, Bulgaria,after years of being in pain. Our children need to be heard.
Dr Arthur Krigsman is a Paediatric Gastroenterologist who diagnoses and treats Gastrointestinal issues and IBD that autistic children often suffer from.
Dr Arthur Krigsman is a Paediatric Gastroenterologist who diagnoses and treats Gastrointestinal issues and IBD that autistic children often suffer from.
Pillcam image of my son's diseased terminal ileum
Pillcam image of my son's diseased terminal ileum
Pillcam image of my son's diseased terminal ileum
Pillcam image of my son's diseased terminal ileum
Pillcam image of my son's diseased terminal ileum
Pillcam image of my son's diseased terminal ileum

Taking our son Adam to Sofia in Bulgaria was a huge undertaking.

This subsequently led me onto Adam’s Bowel issues. Adam had terrible diarrahea every day which was foul smelling and he could often have four or five bouts of it every day. He was also often doubled over in pain and would lie on the floor and often start banging his head off the floor, the wall, or even the garden fence. I tried very hard to get Adam referred for tests, but here in Ireland nobody wanted to help my son. Once doctors, Consultants or any Medical professional really, saw my son had autism the shutters went up. Then they didn’t want to test him for anything. It is so unfair and a complete violation of these vulnerable children's human rights that they are considered to be no more than just instruments of the politics behind autism. Also that they are just being left to suffer, for no other reason other than the fact that they have a controversial type of bowel disease and autism. As a parent it causes me such pain and anger to know that if my son didn't have autism, he would have been helped long ago.

So things got so bad that me and Adam's dad, Brian decided we would have to try and take Adam somewhere to get help for him as none was available here in Ireland. He was in so much pain and lashing out at me constantly. I couldn't take it anymore and his dad was so distressed from watching Adam consistently injuring himself and me.

We didn't have any money to go, so I had to sell my car and borrow from family to be able to afford the trip. My research had indicated that there were two Paediatric Gastroenterologists in New York who did diagnose and treat Gastrointestinal issues and Bowel issues in children with autism. They are Dr. Timothy Buie and Dr. Arthur Krigsman. unfortunately though I couldn't get our health insurance to cover America, they said they would only cover a facility in Europe. Then by chance I found out that Dr. Krigsman came to a hospital in Sofia, in Bulgaria, once or twice each year to diagnose and treat European patients. We knew it was still going to be a nightmare journey to take Adam on a plane trip from Ireland to Bulgaria, but we were quite desperate for help at the time and no-one in Ireland would help us.

So we had a lot of paperwork to do before we went and were extensively interviewed beforehand by Dr. Krigsman as he needed to be sure that Adam's issues warranted further investigations. So we had to also send him over blood test results, urine and stool sample tests and lots of other information. So after Dr. Krigsman had done his investigations he said that yes, he felt Adam needed to have further tests done.

So we went on our journey and we had to bring Adam from Kerry Airport to Stanstead in London, then at Stanstead, customs took our food for Adam off of us, as it was packets of liquid soup. We tried explain and they could clearly see that Adam had autism but it was no good, they said without a doctors letter we couldn’t take it with us. Then we had to stay in London over-night and we flew from there to Sofia in Bulgaria, the next morning.

We arrived in Sofia war weary, stressed beyond belief and Adam was hungry and very agitated. I turned my phone on when we got off the plane and there was message from another mom, whose family was also in Sofia. I thought it was some kind of a sick joke at first. As the message said that Dr. Krigsman , had been rushed to Tokuda hospital during the night and that he had had a heart attack. He had just had an emergency stint procedure done, which had saved his life. I just couldn’t believe that it was true but we were soon told that it was. Me and Brian were just devastated and we took Adam to the hospital canteen and thank god they had something that Adam would eat. So we sat there with Adam while he threw food everywhere and people as usual, stared at us. But we couldn’t even move, we were shell shocked and we didn’t even speak to each other for half an hour. We couldn’t take it in. All the stress, all the fighting to get here and now the procedures were cancelled. I eventually told Brian, I just can’t go back to Ireland with nothing, they will crucify me and I still won’t even have any proof that Adam is sick. It just didn’t look good.

So there we were medical refugees, in a country where we didn’t even speak the language, to get procedures done that could very easily have been done in Ireland but for more than five years, no-one would do them. Because once a doctor in Ireland hears or sees that your child has autism, that’s it, the shutters come down and your child is fine, he doesn’t need any tests done and it’s all his autism.

Dr. Krigsman giving a lecture about the 'new,' bowel disease.

Tokuda Hospital, in Sofia, Bulgaria, an established, internationally renowned, award winning hospital.
Tokuda Hospital, in Sofia, Bulgaria, an established, internationally renowned, award winning hospital.
Tokuda Hospital is Japanese owned and there are 280 more similar hospitals, in Japan.
Tokuda Hospital is Japanese owned and there are 280 more similar hospitals, in Japan.
Some of the Medical staff at Tokuda Hospital
Some of the Medical staff at Tokuda Hospital
Dr Krigsman, with some of the wonderful Bulgarian mom's Zori and Meena and Dr. Krigsman PA Aftyn. they all help the families that come to Bulgaria.
Dr Krigsman, with some of the wonderful Bulgarian mom's Zori and Meena and Dr. Krigsman PA Aftyn. they all help the families that come to Bulgaria.
Adam is 8 now and he needs more help with his Bowel Disease but no-one in Ireland wants to know..
Adam is 8 now and he needs more help with his Bowel Disease but no-one in Ireland wants to know..
I just want proper medical care for my son and for all the intimidation to stop.
I just want proper medical care for my son and for all the intimidation to stop.
Sean Maguire, Peoples Internet Radio. Thank you for finally giving us a voice.
Sean Maguire, Peoples Internet Radio. Thank you for finally giving us a voice.

Dr Krigsman had a heart attack while we were flying to Bulgaria.

I got so frustrated at times here in Ireland, that sometimes I wondered that if I took Adam to the doctor with his hand falling off, would I be still told that ‘oh that’s grand, go home and put a bit of tape around it and he’ll be fine, it’s a common problem with autistic kids but nothing at all to worry about. ‘

So there we were on the 17th of March 2015, which of course is St. Patricks day in Ireland. The irony wasn’t lost on me that on the day when everyone around the world celebrates how great it is to be Irish, here we were 2,500 miles away just trying to get our son’s chronic bowel problems investigated because in over five years despite being to every doctor, a Geneticist, an Immunologist, and Psychiatrists, Psychologists and much more, no-one would ever even investigate our sons chronic on-going diarrhea or even listen to me when I pleaded with them that my son was in pain. Instead nobody cared or would acknowledge that Adam needed any medical help whatsoever.

After a while we booked into a nearby hotel, we had been supposed to stay in the hospital accommodation but we couldn’t face staying there now. We spoke with Dr. Krigsman’s P.A. Aftyn as well as Meena and some other Bulgarian mom’s who have a school nearby for children with autism and they all help out and act as translators while families are visiting. The next day we decided we may as well try and book flights home but it was too expensive and we couldn't afford it so we decided that we would just have to stay until the Friday . Then that evening Aftyn contacted us and said Dr Krigsman was being checked out by his Cardiologist on Thursday morn and if he was given the all clear that he really wanted to go ahead with the procedures just for the two Irish families, as we had traveled so far. Then we were really excited and hopeful again.

Then the next morning came and we were expecting a call at around twelve noon. One pm came and no call, two pm came and still no call, at that stage we knew something was wrong. At about 2.30pm Aftyn phoned. She said ‘I am so very sorry, me and Dr. Krigsman both begged the Cardiologist to let the procedures go ahead but he said it was out of the question, that Dr Krigsman had just had a heart attack and he needed total rest. I just cried and I couldn’t even speak. Aftyn then said the hospital wanted to offer us compensation for our travelling expenses as we had come such a long way and could we meet her in reception. We walked down to the hospital and it was snowing and I felt like I had to get them to change their minds, somehow. We went to reception and both us and the other family were in bits, we couldn’t hold the tears back. Then just as Aftyn began speaking to us her phone rang. She was saying ‘What, are you serious? Unless you are certain please don’t say it because I have the two families here now and they can’t take anymore.’ My heart jumped I could see it in her face. Hospital Management had changed their minds and they were going to allow the procedures, under strict supervision, the next day.

So that evening we had our consultation with Dr. Krigsman while he was still in the Cardiology Department, and he then skyped us later that night to make sure Adam was ready for the procedures the next day. So at 12 noon the next day Adam had an Endoscopy, a Colonoscopy and while Adam was under an anaesthetic Dr Krigsman inserted the Pillcam, which was a tiny camera that travelled down through Adam’s Gastrointestinal tract and came out in his stools. There was a camera recording it for approximately seven hours, so that’s how we got the photo’s we now have of the diseased areas of Adam’s small intestine.

RIP Harry Procko - 4 year old boy with autism and severe Gastrointestinal symptoms was sent home to die, without the appropriate tests being carried out. Anothe

Dr. Arthur Krigsman passionately believes in helping these  children.
Dr. Arthur Krigsman passionately believes in helping these children.
Children with autism are more likely than other children to present with severe bowel and gastrointestinal issues.
Children with autism are more likely than other children to present with severe bowel and gastrointestinal issues.
Symptoms of potential bowel issues in autistic children.
Symptoms of potential bowel issues in autistic children.
Dr Krigsman is based in New York but also has clinics in Austin, Texas and Sofia in Bulgaria.
Dr Krigsman is based in New York but also has clinics in Austin, Texas and Sofia in Bulgaria.

Adam had the investigative procedures at Tokuda Hospital, in Sofia, Bulgaria

The journey home was no less grueling, thankfully we had been given medication to help us to get home, and since then accessing help to implement Dr. Krigsman’s recommended treatment for Adam has been an on-going challenge. Eventually we did manage to find a Consultant here to oversee Adam’s care and Adam did so well for a while. He had normal stools and Bowel Movements for the first time in his life, also his moods were good and his behaviours improved. But then unfortunately there were issues Adam's medication and then Dr. Krigsman recommended changing it, but then unfortunately I couldn’t find anyone here who could or would agree to further continuing Dr. Krigsman’s recommended treatment for Adam. We have tried other medications since, for Adam’s Bowel Disease and have been moderately successful but it is heart-breaking for me as Adam's mother to know that I cannot give my son what he needs i.e. the recommended treatment for his Bowel issues. That is why I had to speak out now, as I can no longer let my sick child suffer in silence because I am being intimidated into shutting up. As his mother I must find the courage to speak up, my son deserves that. As I know there are many more children like Adam here in Ireland and all over the world, who are being left to suffer in silence. Its not good enough anymore. My child is a human being and his rights need to be recognized and acted for.

These vulnerable children, like Adam can't tell us with words that they are in terrible pain because they cannot speak. So instead when they are suffering from stomach pain they often start having self-injurious behaviours and lash out at others too. Here in Ireland they are mostly being offered Risperidone, which is an anti-psychotic medication, when this happens. It broke my heart and Brian's, when in spite of all the medical evidence that I had to confirm Adam had a diseased small intestine, that instead of offering to continue Dr. Krigsman's recommended treatment for Adam, that instead he was prescribed Risperidone. This is a complete disgrace, for my sick child and all the others like him. I cry constantly when I have to give Adam this medication but sometimes I just don’t have a choice as there is nothing else I can do without the medical support that I need for my son. So unless we ever find a consultant here to treat Adam’s Bowel Disease fully, then we do fear greatly for Adam’s future medical care. As definitely his stools are not as good as they were and Dr. Krigsman predicted that without the recommended treatment that Adam will regress completely in time. I fear this process is underway.


Is it unacceptable that the Irish Government, the Irish Health Service and the Irish Medical Profession will not help Adam to get the recommended treatment for his very real Gastrointestinal issues?

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Dr. Timothy Buie also diagnoses and treats serious Gastrointestinal Issues in children with autism.

As an Autism Advocate should Fiona O'Leary help Adam to get proper and the recommended treatment for his bowel issues?

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Please Fiona, apologize for the hurt you are causing us because of your lies.

Fiona my son has autism and I myself have Asperger's Syndrome. What about our human rights??
Fiona my son has autism and I myself have Asperger's Syndrome. What about our human rights??
Fiona ran in the last Irish general election but was unsuccessful in getting elected. She wanted to give autistic people a voice was her reason, she has said.
Fiona ran in the last Irish general election but was unsuccessful in getting elected. She wanted to give autistic people a voice was her reason, she has said.
Autistic Rights Together asks us to embrace our autism. That's fine for me I am High Functioning and I don't have Bowel Disease. But what about my son Adam?
Autistic Rights Together asks us to embrace our autism. That's fine for me I am High Functioning and I don't have Bowel Disease. But what about my son Adam?
I am begging you Fiona, please help my sick son with autism to get treatment for his 'disease of the bowel,' as you called it.
I am begging you Fiona, please help my sick son with autism to get treatment for his 'disease of the bowel,' as you called it.

Fiona O'Leary of Autistic Rights Together completely lied about our story.

Ms Fiona O Leary of Autistic Rights Together initiated a smear campaign against me and my family. Why?

I wanted to tell our story first before addressing the very hurtful and completely untrue comments made recently by an Autism Advocate here in Ireland, her name is Fiona O’Leary and she advocates fro the rights of autistic children and adults through her group Autistic Rights Together. I really just want Fiona to fully appreciate how her remarks were so hurtful and untrue. Especially when you take into account the fact that Dr. Krigsman did in fact risk his life to help Adam, our son. I subsequently contacted Fiona O'Leary of Autistic Rights Together, to ask her why did she say such hurtful and untrue things about me and my family? Unfortunately, she really didn't explain why yet, but instead she claimed she wasn't talking about me and my family.

Subsequent to this I contacted the journalist who wrote one of the hurtful articles, in the Irish Examiner and she did confirm by email that she was talking about me and my family and our time at Tokuda Hospital when we consulted with Dr. Krigsman. Also Norma Costello, Journalist, then said she was going to write another article about my family and the words she wrote in her email were, 'it isn't looking good and it will probably lead to investigations.' We were very disturbed by those comments and became fearful for our well-being and that of our children, after that. Since then I continue to receive threats and intimidation by email, phone and Facebook from various different sources and people. It seems like an awful frightening and unbelievable way to have to live, simply because you wanted to help your child to get medical treatment that he needed?

This then led to me speaking out about our story on, People's Internet Radio on Sean Maguires, 'Out of the Bag,' radio show, which airs here, from Ireland. I met Sean in Heuston Railway Station in Dublin last Sunday and we had a great chat. Also he is so knowledgeable about the law and I am sure I can learn so much from him over the coming months. Sean, like my family, has also been on the receiving end of unwanted comments and smears by Ms Fiona O'Leary on behalf on Autistic Rights Together, in the past. I spoke on his show last Wednesday night and the Podcasts are posted here. Hopefully it won't be taken down.

Ms O'Leary did however subsequently confirm that she was definitely talking about Dr Arthur Krigsman and his Bulgarian Clinic on the 'Today FM with Anton Savage,' on the 13/07/2016 last. I had so hoped that by speaking out on the Radio, that Fiona might still realize the hurt that she caused us (and I still do), in the newspapers and on the Radio. But unfortunately to date this has not happened. Instead I have received more threats and we are living in fear of what may happen to us next. Therefore I wanted a written record of this all just in case anything happens to me or my family this week. It is unimaginable to believe that this is how you are treated here in Ireland, just because you have a child with autism who also happens to have severe bowel issues.

So Dear Readers,

We now so desperately need the world to know that this is what is happening to us. Please share our story far and wide. As it is the only way to now help to protect us and to keep us safe and well.

Thanking you,

Brian, Mary, Sasha and Adam Godley

Update: Today the 10th September 2016 it is now sometime since I wrote this article and unfortunately to date I have still not received proper medical care for Adam. Instead Adam is actually having worse trouble at the moment in accessing any medical care at all.

Also Fiona O'Leary of Autistic Rights Together has still not apologized for her hurtful comments, nor has she helped my autistic son in anyway. Instead her and her husband Tim have been very busy writing music and songs i.e. 'Millions of children,' and 'the Conspiracy Bus.'

PLEASE THOUGH KEEP READING AND SHARING, I WON'T BE SILENCED AND I WILL NEVER GIVE UP NO MATTER WHAT IS THROWN AT ME. MY SON NEEDS ME AND I WON'T FAIL HIM THIS TIME.




Adam has a bowel disease that often leaves him silently suffering and in pain. He needs medical care but unfortunately here in Ireland his pain and suffering is

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Comments 25 comments

4 months ago

Childhood Diarreha for 5 years straight and all doctors refused to help the kid? That's bs right there. Pains could be confused, sure, but actuall diarreha that doesn't go away for 5 years is not something subjective you can confuse. That kid would have had a team of specialists all over him six months after the diarreha started ¬¬

This all reeks of propaganda.


thewritingowl profile image

thewritingowl 4 months ago from Ireland Author

Sure,are you part of the linch mob? Thanks for stopping by but now be on your way person who only has the guts to call themsleves 'D.'


thewritingowl profile image

thewritingowl 4 months ago from Ireland Author

There we go another comment above, see I am not lying about the intimidation and the threats. Thanks for authenticating my article even more mysterious 'D.'


Donald Machintosh 4 months ago

Great Article Maddy

I wonder could you tell the world exactly what treatments your son has been prescribed by Dr Krigsman, and perhaps you will tell us how well he is as a consequence?

But most importantly, did you show those intestines to a Gastro expert in your native land Ireland?


Micheal Jaskson 4 months ago

It looks like your son has crohns disease.


thewritingowl profile image

thewritingowl 4 months ago from Ireland Author

Why do you think that? All the Bowel diseases I have looked at do have similar symptoms though. Also I know the standard treatment for all of then is pretty similar, so how interesting.


Minnie 4 months ago

Maddy, your story is so moving ...

Please, would you answer the question of Donald Machintosh? What are the treatments Dr Krigsman has prescribed to Brian? I'd be very interested for my son, please answer!

All the best,

Minnie


thewritingowl profile image

thewritingowl 4 months ago from Ireland Author

Hi Minnie It was just standard treatment as you would get for any Bowel Disease i.e. the same as is usually given here in Ireland for Chrohns Disease or Ulcerative Colitis i.e. just standard prescribed meds. I would advise you to ask your doctor or Paediatrician or Gastroenterologist what the standard treatments are here in Ireland or anywhere for any other Bowel Diseases and there is your answer. Any further queries, please contact Dr. Krigsman's office or there is another Paediatric Gastroenterologist mentioned i.e. Dr Timothy Buie, I would think his treatments would be similar, although I have never spoken to him about it so check. Hope this helps.


Donald Machintosh 4 months ago

Thanks for the information Mary.

So it is just regular everyday treatment you can get in Ireland.

And you recieved no mystery Diagnosis either it seems.

Its a shame then that you spent a fortune on a wasted visit the a Dr Krigsman in Bulgaria.

It this why you seem so angry at people in general?

My petition is helping of course :)


thewritingowl profile image

thewritingowl 4 months ago from Ireland Author

Couldn't get the diagnosis here obviously, you have any read of our story at all?


Maire Shortt profile image

Maire Shortt 4 months ago

I don't know why, nor do I care why, your gaslighting or making inappropriate, questions and comments to Mary, whomever is purporting to be Donald Macintosh, if this is really who you are and your intentions, your making yourself look a fool flaming her. I suggest you research and educate yourself before your inappropriate questions and insinuations as they just make you look more ignorant, biased and ill educated with shady motives and no one here including Mary need put up with continued ignorance. Mary I hope you don't pay attention to nefarious intentions under the guise of questions and statements like,'...is this why you seem so angry in general' and quite possibly legal offences by pretending to be someone else online. You have never seemed angry, just cool headed retorts in righteously defending an illness and injury one should never have to defend. An attack on your family by the ignorance of people having to be living under rocks to not see whats happening in the news and on mass with parents and GP' practises discontinuing immunizations and only the simple-minded, suffering severe black and white thinking , steeped in denial, carry on like this, because lies need attacks and bullies to perpetuate, unlike the truth. There is nothing you can do for delusions of others. And you behind a keyboard making insinuations at a Family and child over bowel disease, passive aggressively, you know where you can take that when your done making an arse of yourself. Did someone's wayward teen get ahold of the keyboard and type after imbibing for a laugh- for goodness sake. Maturity, it a good thing, try it.


thewritingowl profile image

thewritingowl 4 months ago from Ireland Author

Thank you for that comment Maire, its good to know the message is getting out there and people are listening.


Alena 4 months ago

You should consider GAPS diet to heal the gut and autism. Read the book Gut and Psychology Syndrome by Dr. Natasha Campbell-McBride.


thewritingowl profile image

thewritingowl 4 months ago from Ireland Author

Thanks Alena, I have read the book and we tried hard to implement full Specific Carbohydrate diet (same except no bone broth), must get stricter about it again now though. Made the broth the as well, but for love nor money he would not take a mouthful of it after first few days. Hated it intensely. I think if we could have done it when he was a lot younger would have been more successful. He is as stubborn as could be now at this stage.


Hrframe 4 months ago

I am on a Facebook site that discusses feacal matter transplants. Website is "the power so poop". Also I would recommend Keira Riveras book "healing the symptoms of autism". The CdAutism Facebook page has some great parents working really hard to help heal their kids. Microbiome in the gut is paramount - often these kids laked good diversity before they were vaccinated and then after the fact the vaccines are like napalm. Then on going antibiotics completely destroy the gut bacteria. Two steps - healing the gut wall and we as a family are trying to implement the gaps diet. Put gelatine in all soups,stews and put broth in as gravey/fluid. All grains, dairy and whey casein are damaging to gut wall. So much reading and research. Little steps. Your story is like soo many others. Keep up the hard work.


Ann Farr profile image

Ann Farr 3 months ago

My daughter was a part of Dr. Buie's study in our early journey. My daughter is, as Dr. Buie's video states, both Vitamin D deficient and lactose intolerance. She would only self-feed bread and milk. Dr. Buie glosses over these issues, antibiotics used in infancy, and the blood-brain barrier being opened by adjuvants in vaccines. Mary Godbey, you have access to what you need to help your son but its not covered by insurance. It's an expensive road ahead but it is worth it to see a healthy child with minimal autism symptoms. Get in touch if you would like to know my experience with Dr. Buie. MAPS and DAN! doctors.


thewritingowl profile image

thewritingowl 3 months ago from Ireland Author

Interesting Ann, thanks for sharing. What was most successful for you for your daughter do you think?


Timelord 3 months ago

Mary, the reason Fiona is having a go at you has nothing to do with the bowel issues. It's to do with your claim that vaccines caused your son's Autism. That is demonstrably wrong. Autism is genetic. The only fault here lies in the doctors refusing to take the adverse reactions seriously, thereby failing to prevent the sensory overload that pushed your son down the Spectrum to low functioning. When the first adverse reaction occurred it should have been investigated as to why and it wasn't. That's not the fault of the vaccine. That's the doctor's fault.

Stop putting this over as a vaccine issue because that is what is stopping everyone from standing by your side in Irish health services. They won't listen to that line. You need to separate everything and treat them separately - starting with the bowel issues. Don't mention vaccines or Autism. Concentrate on the bowel issue alone when it comes to treatment. It will be causing a persistent sensory overload which keeps your son on the low end of the Spectrum. Get rid of the overload and his functioning levels will improve. BUT! He will always be Autistic.


thewritingowl profile image

thewritingowl 2 months ago from Ireland Author

Thanks for your interesting perspective Timelord. In response,

(1). I have merely asked Fiona to rertract her lies about me and my family and the medical diagnosis Adam received from Dr. Krigsman, nothing else. Also I never publically released our story until recently so that first claim of yours is also false. The only other thing I ever asked Fiona to do is to just help me (as I am autistic and Irish), to get medical treatment for my son's bowel and gastrointestinal issues, as you know Adam is also autistic and Fiona perpetrates to be an advocate for people like us.

(2). Also really it shouldn't matter if it was a vaccine or the tooth fairy that caused my son to have a diseased small intestine, it is still there and it is very real. So it is bound to be causing my son preventable and treatable pain and suffering and its a disgrace its not being properly looked after here in Ireland.

(3). Adverse reactions to vaccination can cause A.D.E.M as detailed in my article, this is an inflammation of the brain and has nothing to do with sensory overload, although the ensuing damage to the brain can I agree often cause severe sensory dysfunction, that is well documented.

(3). Nobody would investigate my child's gastrointestinal issues for many years, even at a time when I myself had not done the investigations into vaccination in the beginning, so obviously I did not suggest in the first few years of looking for help for Adam's Bowel Issues that it was in anyway related to vaccines and still it made no difference i.e. no-one still investigated them. So your claim that he would have gotten help only for the mention of vaccines by me, is completely false as I did do what you say to do and I repeatedly asked for help for my son's medical condition without in anyway suggesting then, that his bowel issues were in anyway related to vaccination. Of course I have also spent years suggesting that Adam's Bowel issues are a separate issue to his autism and again, I was debunked! That meaning they kept telling me that all his GI issues were because of his autism, so once again this suggestion of yours has also been extensively tried and yielded zero results unfortunately.

Also where are you getting your theory that his bowel issues are causing his sensory overload and that that is affecting his level of functioning? I would think that the pain he is in from his bowel issues is certainly undoubtedly going to affect his level of functioning as is the amount of damage done to his brain and his immune system from the adverse reactions to his vaccines.

Of course I know he will always be autistic as I am autistic myself. However I fortunately don't suffer like Adam does as I do not have Bowel Disease although I have suffered from IBS in the past.

Thank you for reading and commenting again.


thewritingowl profile image

thewritingowl 2 months ago from Ireland Author

Thanks for commenting again Timelord and I hear what you are saying but for legal reasons unfortunately to protect myself and my family, I can't publish your comment. I will just reiterate what I said in my last comment as I don't feel you could possibly have read it. So please do as it answers all the issues that you address. Thanks for commenting. All the Best.


Marc Van Rein 2 months ago

Hi, I came across this a while ago and I can't find any mention of you and/or your family by the woman Fiona O'Leary.

Have I missed something? It looks like a grudge on your part and probably slander.

True she says she is an Autism Advocate and from what I have found on the net she is ruthless in exposing abusive practises upon autistic people and seems to work very hard. The fact that you have singled her out and named her and shared a pretty nasty petition about her while failing to shame and expose the many well oiled and highly funded autism charities who do little and nothing to protect Autistic people speaks volumes to the observer as to your motives.

Just my opinion and that of many others I assume.


thewritingowl profile image

thewritingowl 2 months ago from Ireland Author

Thanks for your opinion Marc Van Rein. Due to on-going legal considerations I can't comment too much but hopefully all will be more clearly clarified in the full course of time. Sorry if its not clear enough to you from my article. All I was asking FOL Autism Advocate to do, in my article was to apologize for the hurt caused to us, retract the hurtful untruths and most importantly as an autism advocate in our country, to help with my campaign to get my sick son Adam (and all the other children with autism and chronic bowel problems, like him), the appropriate medical care here in Ireland, so that hopefully then other autistic children and their families don't have to spend years suffering with chronic bowel pain, without any help because of 'the politics.' I am sorry if that seems unreasonable to you, to me it seems quite logical.FOL has such a media presence that she could help us so much but I know what she does is entirely her own choice. Have a nice weekend.


Marc Van Rein 2 months ago

Hello, your response makes no sense to me, you want Fiona O'Leary to apologize for what I don't see exactly?? you have not publicly asked the prominent autism charities to help as far as I can see, only blame an individual working for autism rights voluntarily. I don't get it , if you are really not just grudge and bully tactics.


thewritingowl profile image

thewritingowl 2 months ago from Ireland Author

Sorry if you don't get it Marc Van Rein, I have of course asked many many people for help over the years. You would know that if you had read all of my article. Please do feel free to stop by again and read some of my other autism articles.


thewritingowl profile image

thewritingowl 2 months ago from Ireland Author

Hi Marc I can assure you I am in no way upset about your opinion, why do you think I am? As I have too many real and more pressing worries to be honest. Also you are of course entitled to your opinion and the best of luck to you. My tactics? i.e. which involve wanting the truth of Adam's tough story out there and asking for help for him? How do you feel that makes me aggressive? Excuse me maybe it is my Asperger's, but I am just not following you at all? I can assure you Adam is my focus and raising awareness of his very real pain and suffering and that of other autistic kids like him is all I want to do. That is why getting the truth out there and dispelling the myths and the lies about their bowel issues, is of paramount importance. I am sorry if you don't agree. But please remember anger only brings you down, try to stay positive and strong and hopefully we can all achieve our goals in our own way.

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