Epilepsy Phone Apps
Seizure information and alert systems
Living with Epilepsy and trying to maintain as normal a life as possible can be difficult at times.
As a person with epilepsy I have eperienced seizures in situations and environments where nobody was aware of my condition. At times like this I have wished that I had some kind of genie in my pocket that could speak up to ensure that the correct first aid was carried out, or that a familiar person was contacted. It would have meant that the correct information could be related to the medical professionals and loved ones as quickly as possible. (I can be out of it for a little while after I have a Tonic Clonic seizure)
This is why I am so excited about the wonderful range of phone apps to support people who have epilepsy! They provide confidence and help to store correct information. They can also be extremely useful when the patient is trying to gather information for their doctor. Some of them even work as an alert system.
App developed by the UK Epilepsy Society
Free Phone Apps for Epilepsy
Epdetect works by wearing your phone like a detector on your person. The ap has been developed to detect tonic clonic seizures. If a seizure is detected, it will sound an alarm and will contact up to two emergency numbers with a message including your current GPS so that you can be reached quickly. A message will display on the screen of your phone saying “This person may be having an epileptic fit”
To learn more about this app go to www.epdetect.com
Cost : Free
Available to Android phone users and Windows mobile 6.1 equipped phones.
My Epilepsy Diary
Users can track events and manage epilepsy and their treatments together with their healthcare team.
It includes a personal history section that can track not just seizures but daily patterns such as eating and sleeping so as to try to get a better handle on why seizures may happen. Find more information on this app at www.epilepsy.com
Available to iphone users only through itunes
This seizure app is available to iphone users. This app uses video to time and track seizures. It is also possible to record extra details about each seizure. As most of my seizures are nocturnal, I have not found this app very helpful. It may however be very useful to a parent of a child with epilepsy, helping them to record events in order to get an accurate diagnoses from a doctor.
For more information see www.SeizureTracker.com
Available to iphone users only.
One of the main seizure triggers can be lack of sleep or not enough sleep. There are many many sleep apps available that can help you to track how much sleep you are getting and the quality of sleep that you are getting. This may help you to establish a better pattern. Below I have listed just two of them.
This alarm clock app works by analysing your sleep patterns and wakes you up when you are in the lightest sleep phase. More information on this app is available on www.sleepcycle.com
Available to iphone users only
This is a very similar app that uses colour coding to map your sleep patterns. More information is available on this app at www.azumio/apps/sleeptime
Available to iphone and Android phone users
ICollapse - suitable for many types of conditions
Choose an App that works for you!
As you can see there are different apps that do different things. I personally find it very handy to log my seizures and any other symptoms in an epilepsy diary. As I have a very bad memory this makes my visits to my consultant much more informative as I can give him the correct information. I do not use a detector app unless I am in a situation where I am alone or with strangers. However it is a wonderful comfort to know that the alarm on these apps will alert people to what they should do and who they should contact. This has helped to boost my confidence incredibly. Thank God for modern day technology.
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