"P.O.T.S." Postural Orthostatic Tachycardia.

Looking  & Praying For Brighter Days Ahead!
Looking & Praying For Brighter Days Ahead!
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Postural Orthostatic Tachycardia = “POTS” Syndrome


Postural Orthostatic Tachycardia is a very serious dysautonomia. Dysautonomia means that there is a dysregulation of the autonomic nervous system. The nervous system is the mass regulator of the body organs. It involves the heart rate, blood pressure, temperature, respiration and other vital functions. A malfunction in an organ can take place. Therefore the patient may experience a plethora of maladies.



A healthy Immune system is important and crucial to one’s well being! It is composed of one’s cells, protein, tissues and organs that help protect against germs and microorganisms. It is what keeps us healthy!




P.O.T.S. is known as the invisible illness!



P.O.T.S. can often be a quite debilitating condition. It is a degenerative disease of the peripheral nervous system marked by orthostatic hypotension. The nervous system is an extensive network that regulates homeostasis’ POTS causes one’s heart rate to fluctuate immensely when shifting from a supine sitting position to standing. There is difficulty in the patient maintaining normal homeostasis during positional changes of the body. Their equilibrium can suddenly shift. In some cases the slightest movement can cause an extreme fluctuation in the heart rate along with increased and decreased blood pressure. It can be an emotional roller coaster! Each patient is different some become bedridden and cannot walk... Prayer is much needed!



Due to the lowering or HIGH blood pressure one can experience cerebral hypo perfusion, lightheadedness, gastronimical problems, exhaustion, stress, extremely low pressure, fatigue, unquenchable thirst and faintness. Dyspnea, tinnitus, headache, muscle weakness, neck pain, intense chest pain and disorientation are symptomatic possibilities as well.




Posterior Orthostatic Tachycardia Syndrome is extremely serious! P.O.T.S. patients look normal and they are usually High Achievers...




P.O.T.S. is hard to diagnose it is not usually detected in a routine exam or blood test. It can be easily overlooked or misdiagnosed. There are wide arrays of symptoms that accompany P.O.T.S. It can easily be overlooked because routinely a patient’s heart rate is normally taken sitting down. We have learned that the heart rate for the P.O.T.S. patient changes significantly when standing. It is possible that it can also take several years to recuperate from this! A necessary change in diet that is inclusive of at least 64 ounces of water each day as well as juices is usually recommended.



Standing is something that we normally take for granted! When we stand our blood vessels contract and our heart rate increases! Our systolic blood pressure usually remains the same and our diastolic slightly increases! This is not true with the P.O.T.S. patient. It takes three times the amount of normal energy just to stand. Their quality of life is usually equated to that of a congestive heart failure or chronic obstructive pulmonary disease patient! An example would be to visualize as if they are always running in place!


Exercise is recommended but must be closely monitored because it can also tend to exacerbate the symptoms as well. Ankle weights can be used but should not be used all day. The body will be accustomed to the extra weight and make the adjustment and the weights will not remain as effective.


Fludrocortisones & mineral corticoid are often used to treat P.O.T.S. They are used to increase sodium levels and increase blood volume and blood pressure. An increase in sodium and water is necessary as well. The patient’s symptoms fluctuate from day to day they vary and are many…



I was quite surprised to discover that in 2007 it was estimated that the number of diagnosed cases were rising and (1) one out of every (100) teens have been determined to have P.O.T.S.! It is seen in ages anywhere between (15) fifteen to (50) fifty!


Each case is unique and the treatment is tailored to each individual patient. Patients are recommended to eat smaller frequent meals to prevent blood pooling. Patients must stay well hydrated! It is recommended to squat; rather than bend over forward at the waist. Therefore this greatly alters their simple normal body movement from position to position. One has to become aware of the impact of readily shifting positions and move accordingly.



Alcohol consumption should be avoided since it enhances peripheral venous pooling that exacerbates hypotension and can also lead to a dehydration state. Avoiding something as simple as blowing up balloons and extreme heat is necessary not to aggravate the onset of symptoms. Heat dilates blood vessels causing the P.O.T.S.symptoms to worsen.



Helpful Suggestions


These may be possibly helpful?

Lifting = Lifting items and even holding arms up in the aIr can cause a shift in the spinal fluid pressure so do so mindfully and cautiously.

Sleep = Sleep disturbances do often occur due to the symptoms. The patient is advised to get plenty of rest! More sleep than average is usually needed. If necssary get up and walk around and allow your blood to circulate throughout your body even if you must return to bed rather than stay in bed for days on end..

Walking = Upon awaking and getting up, walking around right after getting out of the bed is recommended for the constricting leg muscles and helps to avoid blood pooling. The increased circulation may be helpful in some cases!

Warmth = A nice neck pillow is recommended! A sock filled with warm rice can be also quite soothing when heated in microwave to alleviate headache pain. This only takes just a few minutes. Test and first and be sure it is not too hot!

Compression = Dressings of abdominal binders and compression stockings may be used to prevent blood pooling.

Ice = Rubbing ice on the bottom of your feet can also be helpful!

Exercise = Aerobics for about twenty minutes three times per week is recommended if tolerable. Swimming when not feeling faintness. ( Remember each patient is different)

Activities = Scheduling activities in the afternoon are helpful since symptoms tend to be more pronounced in the morning.


P.O.T.S. = A nervous system condition. Beta Blockers are often prescribed to tighten up the blood vessels. A change in diet and exercise is recommended to help facilitate healing...


It is recommended that Epineprhine often used by dentist for many reasons should be avoided it stimulates the heart and may compound symptoms!



TRAVELING aboard an airplane one can experience some of the driest air in the world! It can dehydrate a normal person … Due to the dry pressure in an airplane the P.O.T.S. patient needs to be well hydrated before flying. Requesting a roomier seat is recommended in order to give them room to elevate their legs and avoid the formation of blood clots!


P.O.T.S. is also known as the “hyper adrenergic syndrome.” It can occur due to many abnormalities to the body! Many are still unknown! It is very complicated to diagnosis P.O.T.S. and distinguishing between causes and effects are quite complicated! Stress should be avoided whenever possible! Again it is considered the “Invisible Illness!”


~ I had never before heard of P.O.T.S.! This has been a life lesson and real learning experience … This last month has been a series of multiple trips to ER and to the hospital! To make an extensive story short… One of our adult sons who has been extremely healthy and in great physical shape has been recently diagnosed with Postural Orthostatic Tachycardia Syndrome? Thank God that he has never done drugs, nor does he drink or smoke! We have been informed his is an extremely unique case. As a result of an earlier football injury from being a quarterback a few years ago he was given a lower spinal epidural a few months ago recommended by his private physician... Several weeks later he was taken to ER with a lingering headache lasting for over a week. He was then diagnosed as being dehydrated and sent home and they omitted giving him an IV... Only to return the very next day unable to walk…was then continuously given and IV and a shot along with some magnesium for his headache and sent home… (He then experienced all the symptoms mentioned and more concerning P.O.T.S.!) Only to return again and finally be hospitalized... Since this Invisible Illness mimics many symptoms... They finally simply admitted that they did not quite KNOW what to do?



So we continued to PRAY! Many intelligent doctors as well as nurses are not aware of P.O.T.S. this is another reason why it is called an Invisible Illness... They eventually placed him in a cardiac unit where his every movement was monitored 24/7 for days... After many tests by a plethora of specialists it was determined that the combination of prior treatments have resulted in Posterior Orthostatic Tachycardia! As well as Tubular Necrosis and other complications.... My son is now home with his family!


After being examined by a plethora of Doctors and Specialists they have determined that his immune system was compromised by the initial dosage of drugs that were administered to him it has been an arduous rare medical journey. He has seen some of the top specialist.... Our son is an excellent Video Producer/Editor among many other things. He maintains a very disciplined lifestyle, diet and physical workout regime. I share sparingly the details in order to protect his privacy. Yet I realize the need to make others aware of the need to pay attention to your health and not take life for granted... To see or talk to him you would not imagine what he goes through. After much preparation he continues to fly, travel and provide very well for his family. We know that it is the LORD who continues to keep him! Even they know he is in the Lord's hands...


This unexpected diagnosis for someone who has always been quite healthy, has further increased his/our FAITH and continued TRUST in the LORD! We have relocated to be close by ... We continue to remain prayerful! I realize that doctor’s practice but God heals… We are very grateful that our LORD continues to keep him! I cannot imagine life without the LORD!




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Comments 45 comments

Happyboomernurse profile image

Happyboomernurse 5 years ago from South Carolina

Hi DeBorrah K. Ogans,

Thank you for this comprehensive, beautifully illustrated article on POTS. Though I have seen patients with small clusters of the symptoms you described, I had never before heard of POTS. This is obviously a syndrome that more health care workers and physicians need to be instructed in.

My thoughts and prayers are with you, your son and your family as you continue to deal with this syndrome. As you so beautifully stated, "Doctors practice but God heals."

Thanks for sharing this touching and useful hub. I'm sure many in the HubPages community will be sending prayers and loving thoughts your way.


stars439 profile image

stars439 5 years ago from Louisiana, The Magnolia and Pelican State.

Dear Mr's Deborrah : Hope your son is doing better. So very sorry you have had such heart ache and troubles. God Bless You and wishing you and your wonderful family pleasant Holidays this season.


cristina327 profile image

cristina327 5 years ago from Manila

This is an excellent and interesting hub. Thank you for sharing this great wealth of information about POTS. I will include your son in my daily prayers. Remain blessed always DeBorrah K. Ogans. Best regards.I wish you also and your family a blessed Christmas.


prasetio30 profile image

prasetio30 5 years ago from malang-indonesia

Nice information, DeBorrah. Actually, I never knew about this before. I learn much from you. Thanks for share with us. I also enjoy the video below. Oh...God, why do this happen? But I am glad you came up with solution. I hope your tips useful for us....amen. Thanks my friend. I give my vote to you. Good work, DeBorrah. Have a nice day. I always pray for you, your son and your family. Take care!

Blessing and hugs,


JeanieR profile image

JeanieR 5 years ago from Sequoia National Forest, CA

DeBorrah, thank you for the wealth of information about POTS. I can see that your education program on this is part of taking what the enemy intends for evil and turning it to good for those who love the Lord. I pray with you that great, great good will come from this situation and that your son will grow rich in faith and wisdom through his experience.


DeBorrah K. Ogans profile image

DeBorrah K. Ogans 5 years ago Author

Happyboomernurse, You are quite welcome! Thank you for being my first gracious and most encouraging visitor! Your comments are welcomed and much appreciated! I so agree it is necessary for doctors and nurses to become more knowledgeable in this area…

Thank you for your prayers as well as the prayers of many others! The Hub Pages is a WONDERFUL and diverse community! GOD BLESS ALL OF YOU...

YES! "Doctors practrice & GOD HEALS!" One should never under estimate the Power of the LORD especially when the doctors are not sure how to proceed?

I am glad that this was useful! I pray that others might be helped if they are experiencing any of these symptoms are even if it is just to enlighten Others to POTS… I PRAISE and THANK GOD that we can be assured of HIS constant presence in our lives… Thank you again for stopping by to share, In HIS Love, Grace, Joy, Peace & Blessings! GOD BLESS YOU!


DeBorrah K. Ogans profile image

DeBorrah K. Ogans 5 years ago Author

Stars, THANK YOU! I/ WE are HOPEFUL and TRUSTING the LORD! I am most THANKUL that my son is leaning on the LORD each day! It is times like this when we must put our FAITH into action! We are praying that the LORD's WILL is done in HIS life as he goes through...

It is a journey but I KNOW that the LORD will see HIM ALL the way through this. I truly BELIEVE that nothing comes our way that the LORD is not aware of... In HIS time HE will work it out for GOOD! We continue to REJOICE in the LORD! GOD IS ABLE!

Thank you for your encouraging words! God Bless you and your family as well! In HIS service & Love, Grace, Joy, Peace & Blessings! May you and yours have a MARVELOUSLY BLESSED CHRISTMAS!


DeBorrah K. Ogans profile image

DeBorrah K. Ogans 5 years ago Author

Cristina, You are so welcome! So glad this has been helpful! There is still much more for us to learn... We continue to TRUST the LORD! I Thank you for your encouraging words as well as your prayers!

May the Lord Bless you as you pray for others! Nothing you do goes unnoticed by the Lord! May HIS WILL be done in your life!

Thank you as Always for sharing your wise insightful hubs, In HIS service, Love, Grace, Joy, Peace & Blessings! GOD BLESS YOU and yours may you ALL have an ENJOYABLE MERRY CHRISTMAS!


A M Werner profile image

A M Werner 5 years ago from West Allis

DeBorrah, our prayers, thoughts and hearts go out to you and your family. May the Lord work out His lasting will in all your lives! Problems can pull people apart or they can bring people closer together. Together, touching and agreeing, all things are possible in the Savior! Keep strong in your faith! He heals! He heals! All things work together for good! Thanks for this wealth of information. You never know whom your words will touch out there. Peace


BkCreative profile image

BkCreative 5 years ago from Brooklyn, New York City

I appreciate you sharing this personal experience - this makes the difference. I have never heard of this and I suppose so often we are not familiar with a condition until it happens to us or someone close. I'm glad to hear your son in well.

You mention dehydration - I just read that in the morning we should always start with some water because after a night's sleep we are quite dehydrated. Some time ago I started drinking a glass of warm water before I did anything else - and now I cannot function if I don't do this - it is missed.

Now too with heat on in the house for winter I am quite aware of how this - even though it is very little heat - is drying my nasal passages.

How interesting too that you pointed out how blood pressure is taken when we are sitting - always. I think next time I will ask to have it done when I am standing and see what happens.

So much information here - including certain tips that will benefit everyone.

Thanks so much for this hub. It is so appreciated. I will bookmark it and share it. It's so great we have a forum like this to share vital information.

Rated up of course.


Lifegate 5 years ago

DeBorrah,

Thanks for sharing this. To be honest I never knew something like POTS existed. Thanks for making me aware.


DeBorrah K. Ogans profile image

DeBorrah K. Ogans 5 years ago Author

Prasetio, I had never heard of POTS before either and it is interesting to see that a lot of the medical staff is not that familiar with it… I found the video interesting. I pray that this is helpful to others as well that they too may become more aware; one just never knows… This is a life learning experience for all of us as well…

We remain prayerful and are trusting God as our son continues to heal… Thank you for your concerns. We are thankful for the many prayers going forth… Thank you for stopping by to share, In HIS Love, Grace, Peace & Blessings! Hugs to you as well! GOD BLESS YOU!


DeBorrah K. Ogans profile image

DeBorrah K. Ogans 5 years ago Author

JeanieR, You are so welcome. This opened up a door that I had no clue existed? Therefore I too had to study and research to better understand…

However i know firsthand that when you commit to the Lord there is much spiritual warfare that takes place on many levels… This is why I say we remain prayerful and we are so thankful… As you stated “what the enemy intends for evil and turning it to good for those who love the Lord” This is so true. It became quite clear that we would have to really TRUST the LORD in this and pray continually…. FAITH and TRUST in GOD are key…

I am most grateful to KNOW that we serve God who is FAITHFUL and everything is under His control! "Give THANKS to the LORD; for HE is GOOD HIS LOVE endures forever..." Psalm 106

Thank you for stopping by to share! Your wise spiritual insight and prayers are much appreciated! In HIS Love, Grace, Peace & Blessings! GOD BLESS YOU!


Gypsy Willow profile image

Gypsy Willow 5 years ago from Lake Tahoe Nevada USA , Wales UK and Taupo New Zealand

Thank you for explaining POTS to us. It is a very unfortunate way that you had to learn about it through your son's misfortune. You are in my thoughts and I wish your son well.


DeBorrah K. Ogans profile image

DeBorrah K. Ogans 5 years ago Author

Allen THANK YOU so much! Your thoughts & Prayers are welcomed and much appreciated! “It is my prayer that the LORD’S Will is done in our lives! I don’t ever take His presence in our lives lightly and I realize that one will encounter much spiritual warfare because of it. On the other hand I realize that nothing comes our way that He is not aware of…

I TRUST the LORD and my trust continues to grow we are living in some unusual times… I do not KNOW what I/we would do without the LORD!

You are so welcome and I pray that others are helped by this as well...

As you stated “Together, touching and agreeing, all things are possible in the Savior!” Amen & Amen! We continue to touch and agree in prayer… My son starts his day in prayer and Bible Study. I KNOW that you are aware of the immeasurable importance of spending time with the Lord! To GOD Be The GLORY!

Thank you for sharing and caring, In HIS Love, Grace, Joy, Love & Blessings! God Bless you and your family!


James A Watkins profile image

James A Watkins 5 years ago from Chicago

I am sure sorry to hear about this. I had not heard of POTS before. I did say a prayer for your son in Jesus name. Thank you for sharing your story, and this valuable information. God Bless You and Your Family.


DeBorrah K. Ogans profile image

DeBorrah K. Ogans 5 years ago Author

BK Creative, You are so welcome! It is an interesting experience when the doctors are puzzled…? You have an extremely healthy person who begins to experience all these symptoms and…? What would we do without prayer?

That is a great idea about water in the morning… I am an avid water drinker and have always encouraged drinking plenty water. This type of dehydration is not readily remedied by just drinking water. He went home and drank enormous amounts of water but his body remained dehydrated it went right through him…. His sodium levels and electrolytes were really depleted because when this happens its gets your whole body to the place your transmission signals to the nerves are off and….

His heart rate would alarmingly shoot way up when standing… Yes I recommend having it checked standing as well… He continues to monitor his heart rate and blood pressure and…

Again I am glad that this is helpful. It is not at all a pleasant place to be when you experience something like this. Hopefully others will be able to say check me for POTS and if they say what is that ask them to call someone who KNOWS and…!

I too have learned much through The Hub Page community and I am most appreciative of the many that share… It all helps us to be better prepared when the unexpected happens… Thank you for stopping by to share and God Bless! In HIS Love, Grace, Peace & Blessings!


DeBorrah K. Ogans profile image

DeBorrah K. Ogans 5 years ago Author

Lifegate, You are welcome! Thank You for stopping by... God Bless In HIS, Love, Grace, Peace & Blessings!


DeBorrah K. Ogans profile image

DeBorrah K. Ogans 5 years ago Author

Gypsy Willow, God Bless You! Your heartfelt sentiments are appreciated... I/we are prayerful and are looking to the Lord...In HIS Love, Grace, Joy, Peace & Blessings!


Lady_E profile image

Lady_E 5 years ago from London, UK

Its the first time I've heard of it. Thanks for raising awareness with all the useful tips.

I pray for complete healing for your son. He is God's gift to you and No weapon fashioned against him will Prosper. May God keep you and your family strong, particularly in faith.

"It is Well".

Love

Elena x


Cari Jean profile image

Cari Jean 5 years ago from Bismarck, ND

I have never heard of POTS either - I always like learning new medical info, esp. when it involves the heart as I have a congenital heart condition. I'm wonering that with the tachycardia involved, would an icd be of any help at all the the patient?

I'm so sorry to hear your son has been diagnosed with this - I will keep in my prayers!


His daughter 5 years ago

I had never heard of this, DeBorrah. Have you ever heard of Be In Health? It is a ministry that with the help of numerous physicians, they are discovering many spiritual roots to diseases. They have a website.


DeBorrah K. Ogans profile image

DeBorrah K. Ogans 5 years ago Author

James A Watkins, All things considered I am most grateful! I can truly say that inspite of it all I TRUST the LORD! GOD is GOOD and my son is coming along. He is doing remarkably well all things considered… He KNOWS that He is in the LORD’S hands and we / I remain in prayer and rest in seeing the Lord continue to bring Him through… He is well aware of spiritual warfare and continues to press forward. He is currently camped in the Book of James & his daily Proverb! We continue to stand on the Lord’s Promises realizing that the effectual fervent prayers of the righteous avails much! I can truly say To GOD Be the GLORY!

We continue to PRAISE GOD and offer “prayers of Faith!” Thank you for your welcomed prayers as well as the prayers of others. The Lord has blessed him in many ways… (It is one of his sons who wrote the poem I published earlier) There is nothing like knowing that we serve an all knowing, loving, compassionate God who is able to do the “IMPOSSIBLE!” I thank the Lord for HIS continued PEACE and presence! In HIS Love, Grace, Joy, Peace & Blessings! Again Thank YOU! May the Lord Bless you & yours…


DeBorrah K. Ogans profile image

DeBorrah K. Ogans 5 years ago Author

Lady E, Thank You! You are so right! The Lord has gifted him in many ways… He is a video editor and he is also the son that plays the drums…. We remain prayerful for him and with him! He continues to keep an encouraging spiritual rhythm in all of this. There have been many challenging moments but I can truly say “GOD is GOOD!”

It is in times like this we must TRUST GOD! "Thy rod and thy staff they comfort me...!" As you say:” No weapon fashioned against him will Prosper.” Amen & AMEN! There has been much spiritual warfare about us… I believe this wholeheartedly! God Bless You and I stand in agreement with your heartfelt prayer! Yes FAITH is the anchor that KEEPS HIM! PRAISE GOD!

Thank You for stopping by to share your words of encouragement! In HIS Love, Grace, Joy, Peace & Blessings! HUGS & LOVE to YOU!


DeBorrah K. Ogans profile image

DeBorrah K. Ogans 5 years ago Author

Cari Jean, It was a first for me/us as well… After multitudes of tests exams; one doctor said that he thought he was going to just name a new disease after my son… In his case I am not sure about the ICD…

May the Lord continue to keep and strengthen you as well! Thank you for your welcomed prayers!

Life can present many challenges… But Thank GOD for JESUS! Through Him we are able to rise to the occasion knowing that He will see us through… We continue to look to the LORD! Thank you for stopping by to share, In HIS Love, Grace, Joy, Peace & Blessings! GOD BLESS YOU!


DeBorrah K. Ogans profile image

DeBorrah K. Ogans 5 years ago Author

His daughter, It was a first for me as well... No, I have not heard of "Be in Health?" I will check out their website! Thank you for sharing, In HIS Love, Grace, Joy, Peace & Blessings!


no body profile image

no body 5 years ago from Rochester, New York

Thank you for turning this life lesson into our education. We all know that we will be hit by one thing or another until we go home. It makes me wonder what the Lord has in mind for me, whenever. I am not THAT old but I am older than my wife. I wonder what she may have to have faith regarding with me or I her. I am always apprecative of the work that goes into your hubs. I Love you for your efforts DeBbie. May God bless you and your family.


DeBorrah K. Ogans profile image

DeBorrah K. Ogans 5 years ago Author

Nobody, You are so welcome! We had a wonderful visit with our son today and he is doing remarkably well all things considered! We are living in some interesting times... Too many unusual things happening... This really makes us that more mindful not to take life for granted... Things can change so abruptly... I am most THANKFUL that he knows that he and his future is in the hands of the LORD!

Cherish everyday with your wife and just keep growing together in the Lord! Then, if and when anything comes your way the Lord will help you weather the storm... We truly CAN TRUST the LORD! God Bless you Bob!

Thank You for stopping by to share, In HIS Love, Grace, Joy, Peace & Blessings!


TINA V profile image

TINA V 5 years ago

POTS is not a common disorder. I’m glad that I found this hub. You’ve shared important information that made us aware of its possible symptoms and how to prevent it. An annual physical examination is really advisable. I’ll bookmark this for future reference.

It’s also good to know that your son is doing well now and back home with your family. Your faith and prayers to God indeed healed him. Thank you for sharing this with us.


DeBorrah K. Ogans profile image

DeBorrah K. Ogans 5 years ago Author

Tina V, POTS was something that I/we had never heard of; it has been an interesting journey... So glad this was helpful. I AM most thankful that my son continues to grow stronger he has certainly learned that when everything else fails you can always TRUST the LORD! We remain prayerful...

Thank you for stopping by to share, In HIS Love, Grace, Joy, Peace & Blessings!


almasi profile image

almasi 5 years ago

Thank you for presenting the facts in a very easy to understand way and may God continue to heal your son in all dimensions as the doctors treat him.


DeBorrah K. Ogans profile image

DeBorrah K. Ogans 5 years ago Author

Almasi, You are welcome! Thank you so much for your encouraging words... I KNOW that GOD truly is able! I am THANKFUL beyond words for the LORD'S PRESENCE in our lives...

Thank you for taking the time to stop by and share, In HIS Love, Grace, Joy, Peace & Blessings!


Peggy W profile image

Peggy W 5 years ago from Houston, Texas

So sorry that your son was diagnosed with POTS but happy to hear that he is doing better. Like others, I had never heard of it. 1 in 100 teenagers have it? Wow! One occasionally hears of a high school football player dropping dead while practicing. Perhaps an undiagnosed case of POTS? Rating this useful and up and will tweet it so that others can learn about this. Blessings to your entire family, especially your son!


DeBorrah K. Ogans profile image

DeBorrah K. Ogans 5 years ago Author

Peggy W, It really does make you wonder when you hear of athletes suddenly dropping dead for no apparent reason... Interesting point. You just never know! It has been an interesting journey. But we remain prayerful. I must say he has been a real "trooper" through all of this... It has must definitely brought him that much more closer to the Lord. We Thank the Lord because we know that He has continued to keep him... We TRUST the LORD!

Thank you for sharing and your blessings are much appreciated! In HIS Love, Grace, Joy, peace & Blessings!

God Bless YOU!


krissygirl161 5 years ago

I was just dx with pots syndrome a month ago and I'll tell you right now the people in the ER don't understand it. They send you home when your hear rate is 170 standing up and it can be quite scary. Our ER here tells me well you dont stand all the time. Your exhausted because everything is such an effort. But everyday is different. Its not just that so far that i have noticed as just being dx its digestion. Having days where my stomach really hurts and neausea.


krissygirl161 5 years ago

DeBorrah, I appologize for not catching the first time I read this article that your son was sick with Pots. Being newly Dx, I was reading the stuff about pots syndrome. I hope he is feeling better. I know how frustrsting this syndrome is. I Just got turned down by a cardiologist today because my case is too complicated. :( Just being a pots syndrome case. He told me to stop taking midodrine, take toperol and go on with my day. Did he not hear me when I said my bp isn't always high enough to take the toperol. Really this is a very hard syndrome to treat. My pulse can be 170 today and bp wako which is so weird for me. Thankfuly I have an appt with an electrophysiologist who in a couple weeks although hes a couple hours away. Im sorry Im rambling. Im just very scared. this is very new. I am sorry about your son. May Gods Loving hands bless him with good health!! Thank you for this information, I found useful. I should of brought it to my Drs appt. Kris.


DeBorrah K. Ogans profile image

DeBorrah K. Ogans 5 years ago Author

Krissy, You are right about ER. I have been there with our son on many occassions and they often do not have a clue what to do. He in fact has to explain to them what is going on... Which can be taxing when you are in a "crisis" situation... The symptoms can be quite debilating as you know.

I have learned that it is important to eat as healthy as possible and on those days when you have no energy; rest. Keep a journal of how you are feeling... It is important that your body stays properly hydrated! It is important to pace yourself and helps to have a support system and be able to talk about however it is you are feeling... Please let your family and friends see the videos below to better understand what is going on...

Be encouraged You can get through this. Each case is different as to the frequency of symptoms... No one is in your body but you so when you need to go to ER go... call your doctor and most of all pray! It really helps! God Bless YOU!


DeBorrah K. Ogans profile image

DeBorrah K. Ogans 5 years ago Author

Krissygirl, POTS is very complicated and the symptoms are serious! It can be scary! I realize that it is not easy just to go on with your day since each day can be different. You can be feeling okay one moment then the next moment you can suddenly be totally exhausted along with a fluctuating heart rate…. This can leave you a bit insecure because you are not sure if you can walk more than a few steps so you cannot really go out and feel safe at times... It has been quite a journey!

My son has had every possible test there is and seen specialists after specialists. He now has a nephrologist as well to monitoring the affect that it has had on his kidneys… The various prescribed medications can have additional side effects as well…

I don’t know where you are in your relationship with the Lord… He starts his day off with prayer and bible study to prepare his mind and body for the day it has helped tremendously. After going to ER so many times and the doctors being stumped we/he knew that he would have to Trust God. They admitted to us at the hospital that a lot of it was over their heads… I have no answers but I do offer you HOPE! It can be frustrating but try as much as you can to focus on getting better… Don’t over tax yourself and when you go to the doctor share with them your journal of symptoms. I pray that you get a doctor who has compassion and knows it is not all in your head. Since you look normal they don’t see different until they take your heart rate sitting and standing..

It has been amazing… We had no clue. I had never heard of this as I said before! I share this to give you HOPE! I have seen how discouraging this can be… Believing that the Lord made the body He is the best one to consult and pray that He uses the doctors and nurses as instruments to bring about healing…. It truly helps knowing the Lord is always with you…. It is not easy my prayers are with you Keep looking to the Lord and let me know how you are coming along… Again Thank you for stopping by I pray that this is helpful! Take care! GOD BLESS YOU!


krissygirl161 5 years ago

THannk You for getting back to me. Im in a weird spot right now. After being so frustrated you get frustrated out. Luckily nobody has been questioning I seem to be in "crisis" alot lately. Funny that's exactly what I call it. I just need to find a Doctor in my town that isn't afraid to take care or the one that does is highly not recommended and after having two weeks of care I agree. Yesterday I saw a cardiologist and he said my case was too complicated, he didn't want to take on my case but to discontinue this drug. Continue that drug... Im thinking you dont know me..You know how sometimes in pots its hard to regulate your blood pressure. well I take a drug to increase my blood pressure. Well I stopped taking MY bp med and that all together because my bp dropped to 70/44 and called the putz for my pots and he never called me back so my hr went up passed out at work ended up in er and here we are today. Lookin for a doc And because my bp was high that day which is a very new thing. That's the new thing when im in "crisis", he thinks its that easy to just discontinue my med to increase my bp. I do rely on God and believe things happen for a reason. I apologise for rambling. Yesterday I hit my breaking point with doctors not taking my symtoms serious and I guess I was frustrated out. To many trips to the ER in the last week combined with that these cardiologists


DeBorrah K. Ogans profile image

DeBorrah K. Ogans 5 years ago Author

Krissy, My heart goes out to you because POTS is so very complicated. There are some serious symptoms that you are experiencing and when no one knows quite what to do it can be disconcerting. Making sure his electrolytes are good and staying hydrated has helped my son he takes potassium and magnesium… Along with a steady diet of lean meats, nuts, cranberry , pomegranate, orange juices, soy milk, fruits and vegetables.

He has always been really healthy and active so it is quite different… Their prognosis is it takes a while to heal… perhaps years... So TRUST GOD and put yourself in His hands...

The ER experience can be challenging since they do not quite know what to do for you? We learned that

they simply are not sufficiently trained in this area even at the most reputable hospitals and are somewhat intimidated when you have to tell them what to they need to do… The doctors are not all on the same page but have acknowledged that the onset of my sons POTS was brought on by being prescribed improper medications…

I truly meant it when I say TRUST the LORD ask for HIS direction> Take quiet time and tune into your body. Speak life into it. Doctors practice but God heals! Be encouraged by the Miracles in the Book of Mark…. I pray that the Lord touches you in the way that only He can… He will see you through this…

Take care & GOD BLESS YOU!


rasta1 profile image

rasta1 3 years ago from Jamaica

A lot of solid information within the article. This is my first hearing about POTS. Thank you for the enlightenment.


DeBorrah K. Ogans profile image

DeBorrah K. Ogans 3 years ago Author

Rasta, You are welcome. The research was interesting and informative for me as well since I too was unaware of POTS ... Thank You for stopping by to share, Peace & Blessings!


sweetie1 profile image

sweetie1 3 years ago from India

Deborrah I am sorry to learn that you had to fight this disease in your family. You put up a very solid information just like a trained medical personal would give. Thanks for sharing.


DeBorrah K. Ogans profile image

DeBorrah K. Ogans 3 years ago Author

Sweetie, Thank you for your thoughtfulness! It has been an educational journey.... We continue to learn. Through God's Grace, prayer, meditating on the Word, and trusting in God we are thankful that the Lord continues to keep him.

Thank you for stopping by to share, Peace & Blessings! God Bless You!


18 months ago

I hope your son improves with time. Just so you know, POTS isn't degenerative.

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