Santa Claus and Autism and Bowel Disease. Sick Children with Autism in Ireland Need Help This Christmas.
18 November 2016
Dear Santa Claus,
My name is Mary Godley and I am writing to you for my son Adam Godley. This year Adam is nine years old. We hope that you are well Santa and that you and your team are now getting ready for your busiest time of the year.
The reason that I am writing to you for Adam is because he isn’t able to do it himself because you see Adam has an injured brain. We are still working on his communication though so maybe next year he might be able to help me to write to you. It’s very hard for Adam Santa, because when he was only a toddler he got a really bad virus which gave him brain inflammation and then he got a stroke. Unfortunately, this has caused some permanent damage to Adam’s brain. This has meant that Adam can’t speak very well because the muscles in his cheeks just don’t work properly and he can’t form very many words that anyone can understand. This is massively frustrating for Adam every day, because he knows what I am saying to him, but he can’t get the words out to respond. Adam has never even been able to say, ‘I love you, mom,’ but he tells me in other ways that he does.
Dear Santa, Please bring awareness to Ireland for autism and enterocolitis this Christmas.
My son Adam doesn't know who you are Santa
For this reason too, Adam has never been able to tell me that he even knows who you are. It’s often tough Santa being Adam’s mom at Christmastime because never in the last nine years has Adam ever been even able to tell me what he might really like you to bring him on Christmas Eve. This breaks my heart and I cry about it every year. So you see I find so very hard when people say to Adam, ‘So what is Santa bringing this year?’ As then they wait expectantly for poor Adam to answer but he just can’t. So then he just looks at them in bewilderment and I feel so sad for him. As this is something that everyone else takes for granted and is just one example of what has been taken away from my son Adam. I understand that people mean well and they just don’t get it. But I do remember too how my own eyes used to light up with excitement when people asked this question to my older daughter Sasha.
The story of the birth of baby Jesus
Today I was thinking about the story of Christmas and of the birth of the baby Jesus. As I am sure you know already Santa, Mary and Joseph had to travel a long distance from Nazareth to Bethlehem just before the baby Jesus was born. But when they got to Bethlehem, they had nowhere to stay and everyone they asked for help turned them away. So they knocked on a load of doors and had many of them slammed in their faces. But on they travelled anyway asking over and over for help but no-one would offer them any until at last, they met one sympathetic Inn Keeper. He told them about an old stable that they could go to. At this point Mary must have been in great pain as her child was on the way. So they went to that stable and that was where Mary gave birth to a baby boy.
Silent Night - Story of the Birth of baby Jesus
Adam's Gofundme Campaign here
- Adam has autism & bowel disease. by Mary Kelly Godley - GoFundMe
Adam has autism & bowel disease. by Mary Kelly Godley - Hello, my name is Mary and I am married to Brian. I am setting up this gofundme, to try and raise money for our son, Adam. Adam is nine years old and he is our second child, he also has an o
Please Santa awareness for Scientific Studies for Ireland this Christmas
Sorry Santa I know I am rambling on a bit now but this leads me onto what Adam really needs for Christmas this year. You see Adam doesn’t just have an injured brain he also has a number of psychological diagnoses and medical problems including, autism and Inflammatory Bowel Disease. But you see Santa the Irish Government, the Irish Health Service, nearly all the Irish Doctor's I have asked and even some people who advocate for children with autism here in Ireland, just don’t like to acknowledge that Adam’s gastrointestinal pain is real. Instead they seem to think that we are just imagining it and that really Adam’s bowel issues are actually just all in our heads. Why would want to make it up I don't know but that seems to be the general theory anyway.
So Santa is there any chance when you are passing over the houses of all these people (and I will send you a full list), that,you could maybe drop them off a very long list with all the web-links that I have gathered of all the un-retracted and un-debunked scientific studies that all verify that Adam’s pain and suffering is actually real. I am asking you for help with this, because I have already tried so very hard to get medical care for Adam and I have asked everyone I could think of, for help. I have tried asking Doctors, Politicians, Journalists, Radio Stations, Irish Legal Advisor's, Autism Advocates and some Irish Charities. But strangely enough here in 'good old Catholic Ireland,' where we are globally renowned for being extremely charitable and kind towards those that are vulnerable and in need help, there is still none to be found for my Adam. So Ireland is not always an enlightened and caring as you may have been led to believe Santa.
Life and Christmas for a child with significant autism is very far removed from what most parents experience.
No room in the Inn for Ireland's autistic children who have Bowel Issues.
Because you see Santa when it comes to children with an autism diagnosis who also have gastrointestinal issues then it really is like the story of Mary and Joseph travelling to Bethlehem over and over again. So many doors have been slammed in my face and in the face of Adam. This to me is terrible neglect and abuse of sick, vulnerable children, many of whom can’t even speak, to tell us, that they are suffering and in pain. Yet nobody it seem, is at all bothered about these children. Somehow it’s as if their autism diagnosis just renders them invisible to most of the people that could help them here in this country.
I don’t know Santa if you are aware of Adam’s story at all it’s a long tale but a quick summary is that we had to take Adam all the ways from Ireland to Bulgaria on St. Patricks Day, 2015. We did this to see a Dr. Krigsman who is a Paediatrician and a Gastroenterologist from New York. We did this to finally get a diagnosis and treatment for Adam’s Bowel Disease. Because Santa, we were all psychologically and physically battered and bruised from Adam’s pain and suffering. Every day Santa my son Adam was having acidic foul smelling diarrhea pouring out of him about five times a day. My son was in so much pain Santa, that one evening he bashed his little head off the hall wall so hard that his head cracked the cement on the wall. After this the pungent smelling diarrhea came again and Adam sobbed uncontrollably as he lashed out at me and I got a black bruised eye. I cried for hours after that as I couldn’t imagine how much pain my little boy had to be in to do that.
As a mother Santa, it is the hardest thing in the world to see your child suffering this much and to not be able to take that suffering away from him. I knew Santa that my son was in constant pain from his bowel problems but nobody would help him or even listen to me.
Interview on the Richie Allen Show about Adam's Enterocolitis, autism and the medical neglect of him in Ireland.
Dr Krigsman who is based in New York but also has clinics in Austin Texas and Bulgaria. Diagnoses and treats bowel and GI issues in kids with Autism. There are
Please Santa help bring some awareness for children with autism suffering from Enterocolitis and all sorts of Bowel pain and issues.
Adam has a brain injury and will never know you Santa
Maybe I should have written to you then Santa because Christmas 2014 was so very difficult. Yet still all the doctors and professionals that I took Adam to see would not acknowledge that Adam had any stomach pain at all. Instead they told me that it was all in my son’s head and in mine too. You see Santa here in Ireland and in many other places you will visit this Christmas, many like to believe that my son’s bowel disease doesn’t even exist. As I said already it’s kind of like a modern day take on the story of 'no room in the Inn on Christmas Eve,' that goes on everyday, here in Ireland. There is just never anyone to diagnose or treat these sick children in the conventional medical field. Then if you try alternative treatments such as Biomedical or Homeopathic interventions to try and relieve your child's pain and suffering you are then possibly going to be accused of abuse and can then maybe even expect to be reported to the Social Services or the Police. While every medical door is still being slammed in these children's little faces.Is a parent to just do nothing and let their children suffer I often wonder?
If you want to know the full story Santa then here is a link to our story http://hubpages.com/health/Our-story-of-Autism-Autistic-Enterocolitis-and-on-bringing-Vaxxed-to-Ireland and here is one to Adam’s gofundme campaign appeal here https://www.gofundme.com/26pdk2c. I would like to add too that friends and family who know us and can appreciate what we have been through over the years are being very supportive and I would like to thank them alll for that. As well as other people who have read our story and donated to Adam’s fund. But still those who could help these children on a larger scale for their future health and well-being are remaining ominously and very noticeably silent.
I know too Santa that this is not a usual Christmas present request that you would be used to getting. But for us these days, Christmas now is far from usual or normal. I still do though have many fond memories of when my daughter Sasha was a little girl. As a family we always absolutely reveled in everything about Christmas. Writing to and going to visit you Santa, putting up the Christmas tree and then on Christmas Eve taking Sasha to Church to sing, or maybe to act in the nativity play. Then being woken at dawn on Christmas morning because Sasha was so excited and wanted us to see her presents. Which our little girl would always tear open with excitement and such happiness. It was a wonderful time Santa but now sadly that has all gone for us.
Because our Adam doesn’t have any of that joy and every Christmas Day my heart breaks for him. You see Santa for Adam, Christmas means very little other than playing with the decorations off of the Christmas tree and the tinsel and jumping up and down with excitement at the twinkling Christmas tree lights. Other than that Adam gets up at his usual time and proceeds to do what he does every other day. Adam rarely takes any notice of the presents that you leave for him as he just isn’t aware that they are gifts you have left for him. So if I or Adam’s sister don’t open his presents, then they will be just left under the Christmas tree, unopened. Really for Adam the Christmas festivities are just an inconvenience to his normal daily routine.
Del Bigtree Producer of Vaxxed: From Cover-Up to Catasrophe says parents like us do the hardest job in the world. I wouldn't argue with him about that one.
There are a lot of myths circulating about what Vaxxed the Movie is all about. Del Bigtree, Producer tries to dispel them.
Dear Santa, doesn't every child deserve to be safe, happy and cared for this Christmas and all through the year?
The Politics behind autism in Ireland makes it very difficult for children with autism to get care for their medical problems.
It’s really hard Santa as each year I am more aware of what other boys Adam’s age are now doing and how far removed from that Adam actually is. I try most days to hold back the tears when I think about Adam having no friends. But then I worry so much for his future and I am so very scared about what will happen to my son when I am not here to fight for him anymore. The New Year for me now always brings fear and worry for Adam and it is so difficult to have hope in a world that is completely indifferent to Adam’s pain and suffering. Santa please could you bring Adam some help and support for the coming year. Because Adam is being denied medical help here in Ireland because everyone refuses to acknowledge his pain and suffering and instead they shrug their shoulders and say over and over, ‘oh yeah that’s such a sad story but I can’t do anything about it because that’s just the politics behind autism in Ireland.’ End of conversation.
You see Santa I just don’t get it or understand how that justifies their indifference to these sick children. All I can get from it is that apparently to me, Santa it seems that our Politicians, our Doctors, our Media and even the charities that I have contacted here in Ireland think that children with autism who also have severe bowel issues, are in a different category to other children. All I can imagine is that they see it as like going to church and professing their sins to God and then being absolved of them. As apparently if all these sick vulnerable children are being neglected, maligned and medically ignored then it is fine in situations where it’s because of 'the politics behind autism in Ireland'.
Somehow then that makes it just fine to leave countless vulnerable, non-verbal, sick children in pain for their whole life. Pain for which the only solution that will then be offered is to sedate these sick children with very strong psychotropic medication, because they are injuring themselves and others as it is the only way they have of expressing the pain they are feeling. But as far as all are concerned there is no reason why they should be doing this. Other than for issues that are all in their heads. But God forbid the thought that it might actually be in their gut that the pain is because we don’t believe in all that scientific research that validates this theory, here in this backward country. So Santa if you could only just bring Ireland a bit of scientific awareness this Christmas for the medical issues that children with an autism diagnosis tend to suffer from then it would be marvelous help for so many sick children.
I promise Santa my rant is nearly over now. But finally I just wanted to say that I am going to write an article about this letter also and I am also doing a Podcast. As well as this I will also be making a list of who I will be sending this letter to and it’s going to be a very long list. So if you could help at all by sprinkling your magic on this letter and in-stilling among the hierarchy here in Ireland, even a small bit of human compassion for my sick child and for so many others this Christmas, then that really would be a Christmas miracle. So please Santa do what you can to remind people that their indifference to all these sick, disabled children here in Ireland simply because that’s 'the politics,' and that somehow makes it all okay, is no longer a good enough reason to brush all the pain and suffering of all these children and their families under the carpet.
Please bring the truth about scientific fraud to Ireland in 2017.
I know Santa I am asking for quite a bit and you have a lot of work to do there but I have just one last thing to ask for. I don’t know at all if you have heard of the movie, ‘Vaxxed: From Cover up to Catasrophe?’ Now possibly you might have had letters asking for the DVD of it, or maybe for some T-shirts or for some of the other merchandise from the movie. Anyway if you haven’t had a chance to look into it yet then here is a link to the website: www.vaxxedthemovie.com. Now here in Ireland certain people and the media are spreading all kinds of stories and mythical theories about what VaxXed the Movie is actually about.
I have heard it’s about the anti-vaccine movement, it’s about Dr Andrew Wakefield’s life, or it’s about nothing much except non-sensical ramblings and an abomination of science. All of these descriptions are completely wrong. Vaxxed is actually a Movie about a Whistleblower called Dr. William Thompson. He led a team of scientists at the Centre for Disease Control in the US who were asked to investigate whether there was any link between the MMR Vaccine and autism. In summary they found that there was a link but then they were coerced and persuaded to lie and cover the truth up. Until Dr William Thompson’s conscience got the better of him because he felt great shame for all these children and families who have had their lives destroyed by this deceit. So for over two years now there have been more than 10,000 scientific documents before American Congress. While Dr William Thompson is still waiting to be subpoenaed to give evidence about this and the hope now is that 2017 will be the year that this may happen. So that’s what Vaxxed is actually really all about.
So Santa many, many children could be helped or even possibly their lives saved, by this story being told here in Ireland. Is there any chance you could send me a viewing of Vaxxed for 2017? As I wish so very much that I had seen this movie nine years ago when Adam was born. Then maybe now Adam would be out playing football with his friends instead of spending hours twirling a piece of string over and over, all by himself. How I would love to finish this letter Santa by saying that Adam is looking forward to you or how I wish he could write this letter to you himself, but unfortunately for Adam it is just not to be. So I’ll leave it with you anyway Santa and I know you will do all you can for Adam and every child this Christmas.
All the Best Santa and have a safe and peaceful journey this Christmas Eve.
Mary, Brian, Sasha and Adam.
Merry Christmas to all those involved in the Vaxxed Movement. Its been an amazing year for the truth.
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