Struggling with ADHD: Getting an Objective Diagnosis

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In Kindergarten, she wrote most of her numbers and letters backwards. When I voiced my concern, her teacher replied with, “Don’t worry, that’s normal at this age.”

In First Grade, she still wrote many of her numbers and letters backwards and had difficulty reading. When I voiced my concern, her teacher replied with, “Don’t worry, she’s average for first grade.”

In Second Grade, she still had difficulty with letters, numbers and reading and started getting in trouble at school. When I voiced my concern, her teacher replied with, “Don’t worry, that’s typical girl behavior in second grade.”

In Third Grade, all of her problems followed her. When I walked into the parent/teacher conference her teacher started with, “We have a problem.”

Finally! A teacher who saw something that I thought I saw all along.

I know that most people don’t want to hear that something is wrong with their child, but to me it was a relief. I saw the struggle my daughter was having. I comforted her as she cried when she couldn’t figure out a math problem. I watched her frustration when she forgot something she had just read. I saw the rage in her eyes when I corrected her for writing a b instead of a d. I always felt that something was wrong, but since she is my oldest, I had nothing on which to base my suspicions. I had to take what her teachers were telling me at face value….she was average.

Homework was a daily struggle. Some nights we would work on it from the time she got home until she went to bed with only a brief break for supper. I knew she didn’t understand what she was reading, but I couldn’t find a way to help her comprehend it. My friends would suggest that I give it time, eventually everything will click in her head. I tried to be patient. It was hard…for her, for me, for our whole family. So, even though I didn’t want to know that something was wrong with her, I felt a sense of relief in identifying that there was a problem.

Its been six months since that parent/teacher conference, and my daughter has finally got a diagnosis of ADHD from a qualified psychiatrist. Yes, it took that long to isolate the issue. Her teacher has been wonderful through it all. He’s made every available resource her school offers available to her…tutors, special reading groups, and before school programs. All of those things weren’t enough, she was improving minimally and her behavior was getting worse.

When did you consider that your child might have ADHD?

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It was during a meeting for the council members of one of her special groups that a school psychologist suggested that she be tested for “attention issues,” even then, no one even wanted to say the dreaded word ADHD. At the time, I wasn’t even sure if they were talking about ADHD, but I signed the papers agreeing to let the school test her for “attention issues.” I would do whatever it took to get answers.

I have to admit, when I saw that one of the tests was based on my observations, I was skeptical. To me, it didn’t make any sense that I would be the one judging my daughters actions. I thought she was just a lively active kid. To use my opinion seemed entirely to subjective to me. I still went along with the tests, but was hesitant, I knew wanted an objective opinion.

The day the school called to tell me that they had the results of her testing and wanted to have a meeting to discuss it with me, I called and made an appointment with a psychiatrist. My assumption was that if their findings warranted an appointment at the school, the results would not be favorable.

I was glad I made that doctor’s appointment after that meeting at the school. I felt like I was being steamrolled into medicating my child. Everything they showed me was subjective. A social worker sitting in the room watching her and comparing her to other students? Really?!? I wasn’t trying to refute their findings, it just seemed to me that there had to be a better way to identify that she might have a problem with ADHD.

Thankfully, the next week was my appointment at the psychiatrist. Unsure of what to expect, I decided to go alone to that first appointment. I wanted to find out what the doctor could do in the way of evaluation and testing before brining my daughter in to the office. The doctor and I went over the common symptoms of ADHD first.

ADHD Symptoms

Inattentive

  • Difficulty paying attention to detail
  • Unorganized
  • Frequently loses items
  • Trouble completing tasks
  • Poor listening skills

Impulsive

  • Frequently interrupts or speaks out of turn
  • Impatient
  • Trouble taking turns

Hyperactive

  • Trouble sitting still
  • Restlessness
  • Runs and climbs on things
  • Excessive talking

When he asked me if my daughter showed any of these symptoms, my answer was simple. “Of course she does, she’s a kid.” My reply made him laugh, and then he explained to me that this was the reason ADHD was so difficult to diagnose. The symptoms are similar to normal childhood behaviors, and no matter if it was a teacher, a school social worker, or a parent the observations would still be subjective.

The Quotient ADHD system looks something like a desk and computer all molded into one. Reflectors were attached to her head and legs during the testing to monitor her movement as geometric patterns were flashed on the computer’s monitor. When certain pattern were flashed, she was instructed to hit the space bar. When a four pointed star was flashed she was to do nothing. After she completed the test the information was uploaded to a database of similar age and gender groups, and viola the results were printed out for the doctor to review.

Not more than five minutes after she completed the test, the doctor called us back into his office and handed me a 7 page report. He reviewed it all with me. Each page had different analyses on it. One page in particular was of interest to the doctor. The page with the ADHD system index. He explained that it was one of the great things about the Quotient ADHD system. It assigns a number that summarizes the degree of agreement between her test results and patients who have already been diagnosed with ADHD. A system scaled score they call it. The score consists of three things:

Motion Scaled Score: How the patient’s motion correlates to a community sample

Attention Scaled Score: How the patient’s attention correlates to a community sample

Global Scaled Score: Indicates the combination of the two scores as compared to the community sample

Of the possible 10 points. My daughter’s score for inattention was 9.59, for motion was 5.91, and her global score was 7.75. Even I could figure out that the problem was attention by reviewing the results. I felt comfortable with an ADHD diagnosis since it was not only based on the subjective testing done in her school, but also, based on an objective diagnostic tool partnered with a comprehensive evaluation done by a qualified psychiatrist.

In discussing treatment options with the doctor, we decided that medication along with therapy was the best course for her. Did I want her to be on medication? No. But my husband and I were desperate, something needed to happen. She was failing all of her core subjects except math. The doctor’s evaluation in conjunction with the Quotient test made me feel confident enough to say, yes, she has ADHD and medication was an option. Is her treatment working? As of yet, I don’t know. One thing I do know though is that we are headed in the right direction.

20 - 30 percent of children with ADHD also have learning disorders, that number is disheartening to me. But, that’s a bridge we will cross if the ADHD treatments aren’t affective enough for her to improve significantly in school.

My daughter will take the Quotient test again soon to see if the medication is helping her with attention. I’ll be keeping my fingers crossed. She will have an uphill battle, but identifying what is wrong with her hopefully will give her a fighting chance at succeeding in school and in life.

Do you disagree with the way young students are tested for ADHD?

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He had an option for me though. A relatively new test, the Quotient ADHD system, would be able to objectively measure her motion and shifts in attention to give an objective view of the 3 common symptom areas for ADHD: Inattention, Impulsiveness, and Hyperactivity . The test only would take 15 minutes, could be conducted in his office, and the results interpreted almost immediately. This test is the only test approved by the FDA to diagnose ADHD, and was over 88% accurate in diagnosing ADHD.

I was sold.

He sent me on my way with a handful of brochures and an appointment to have my daughter come in for an evaluation and be tested in two weeks.

When we returned, the doctor first did a clinical evaluation on my daughter. He asked both of us many questions about her behavior and study habits. He then reviewed the information the school had given me on their findings. After that, she was brought into a separate room to take the test.

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Comments 18 comments

ripplemaker profile image

ripplemaker 5 years ago from Cebu, Philippines

A right diagnosis is the most important thing through all the struggles then the parent, the school and other supporting individuals can all join forces to help the child. I value your sharing very much. Thanks for this. Congratulations also on your Hubnuggets nomination.

To read and vote in the 1001 Arabian Hubnuggets: http://hubpages.com/hubnuggets6/hub/1001-Arabian-

To participate in the Hubnuggets forum: http://hubpages.com/forum/topic/74795


Krysanthe profile image

Krysanthe 5 years ago from Bloomington, Illinois Author

I agree ripplemaker, feeling confident that I had an accuate diagnosis made it easier for me to decide that my child needed medication. And now that we know, we can do everything we can for her.

Thanks. :)


Linda French 5 years ago

I have heard about it, thought "I" saw it in other children. I am glad that Krysanthe explained in a way I could understand it better. Many of us may be thru the parenting, but there are the "grand children," the neices & nephews, and your best friends kids. This is a valuable article in many ways. I was disappointed that the school had taken this long with a determination and I see a need for them to be more engaged early on.


Krysanthe profile image

Krysanthe 5 years ago from Bloomington, Illinois Author

Thanks Linda! I'm glad we finally got her diagnosed. I think its really hard to diagnose it with traditional methods that's one reason I was so thankful to know there was an objective test out there.


Deadsearose profile image

Deadsearose 5 years ago

Nice Hub! I also have a child with ADHD, he was just diagnosed last year after three years of tests and evaluations. It is definitely nice to have a diagnosis and be able to start the process of helping him.


Krysanthe profile image

Krysanthe 5 years ago from Bloomington, Illinois Author

Thanks Deadsearose. I agree. Getting a diagnosis was huge for us, we were just flailing before with no direction. Now at least know what we are dealing with and how to help her.


LadyFae profile image

LadyFae 5 years ago from Under the Stars

Dear Krysanthe and all the others, first of all, my heart goes out to all of you who have children diagnosed with ADHD...I am a mother of 2 boys so as a mother I can understand the frustration...as for the treatment, throw your television set away and give yoga a try....that way you won't have to drug your children...may all of your little ones soon be healed...


anidae 5 years ago

I voted up and awesome on your hub. You were wise to get professional help and professional testing. Sometimes medicines and therapy are the only way.I commend you for getting her help.


Krysanthe profile image

Krysanthe 5 years ago from Bloomington, Illinois Author

@LadyFae it is frustrating. Suprisingly my daughter doesn't really watch much tv, she's a creative soul who would rather spend her time drawing. Yoga really isn't a bad idea though, I've read where exersise has been an affective for children with ADHD.

@anidae thanks. I think as parents we do what we have to do for our kids. She needed help and she needs medication.


Phillip Ball profile image

Phillip Ball 5 years ago from Modesto, California, U.S.A.

I believe I have an adult form of adhd, but remain undiagnosed. Not sure where to go to get a diagnosis, but feel if I had one I could get meds to stop the thoughts from spinning around in my head, and I could actually sort them out and not sound like a stammering fool whenever I speak.


Phillip Ball profile image

Phillip Ball 5 years ago from Modesto, California, U.S.A.

I also believe that a lot of meds that psychiatrists prescribe children are too strong. Meds aren't the answer to every problem, you should exhaust all other resources first.


Krysanthe profile image

Krysanthe 5 years ago from Bloomington, Illinois Author

You know Phillip, when I wrote this article a friend of mine was telling me his story with adult ADHD. It actually eventually caused him to lose his job. So, I would definitely recommend getting some help. I'd start with a psychiatrist if you could find one in your area that has the Quotient test, even better. It really does give a clear picture of how affected you are by ADHD.

It's a tough decision to decide to medicate your child, but when you've exhausted every resource and feel desperate, trust me, you'll try anything. I will admit that is another thing I do like about the Quotient test, it can also be used as a tool to help adjust the dosage to assure that the dosage is correct for the individual.


Chatkath profile image

Chatkath 5 years ago from California

Great Hub Krysanthe-A topic I know all to well. My son is grown and gone now, but he also suffered from "learning disabilities" which was the broader term they used back then but he was eventually diagnosed with both ADHD and ODD. Hubber Enelle Lamb who has a son with ADHD started a Blog for parents with learning disabled kids, sort of a support network. Check it out if you get a chance! http://livingwithadhdodd.blogspot.com/

Great Hub by the way!!!! Congrats on your nomination!

Kathy


Krysanthe profile image

Krysanthe 5 years ago from Bloomington, Illinois Author

Thanks very much Kathy!

I will definitely go and check out Enelle Lamb's blog. One thing I have found out since I wrote this hub is that having a support group is helpful. Friends starting coming out of the wood work giving me their stories. I myself will actually be doing a bit of blogging on ADHD for Biobdx in the near future. Biobdx is the company that makes the Quotient System. They are hoping to accomplish the same thing...form a support for parents.


Sun-Girl profile image

Sun-Girl 5 years ago from Nigeria

Interesting article which is well shared and properly written, am rating this particular one up,thanks dear.


Krysanthe profile image

Krysanthe 5 years ago from Bloomington, Illinois Author

Thanks Sun-Girl! Its a topic that hits close to home for me.


whoisbid profile image

whoisbid 5 years ago

Thanks for being honest about your struggles. Maybe I need to create another character to be more effective in these discussions. Thanks for commenting on my channel and enjoy your Avatars


pattylouwho99 4 years ago

I received a diagnosis for my 5 yr old son. The doctor met with him for less than an hour and never once communicated with his school. I left the office frustrated and confused...and with a list of meds to choose from. Some of these meds cause

heart damage and

has been known to cause heart attacks in children with underlying, undiagnosed heart issues. Some drugs aren't even FDA approved for his age. The one thing she said that stood out the most is "You won't have to medicate him ALL the time-only when going out in public and you need him to behave." So essentially, why waste all that time disciplining my son, when I can just have him pop a pill and behave? Seriously? I refused the meds. I have decided to get a second, third and fourth opinion if necessary. We don't have a t.v. and we don't own a video system contrary to popular assumption. Meanwhile, through this crazy process in finding a constructive, healthy way to deal with my son's behavior, I will continue to love that crazy, impulsive boy just the way he is. As a mother of 4, I've realized how different each child is. Thank you for opening up your heart and sharing this!

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