Psoriasis And Arthritis. How Terrible Can It Get? Does Chemo Work?

The Heart Break of Psoriasis.
The Heart Break of Psoriasis. | Source
Thd Heart Break of Psoriasis.
Thd Heart Break of Psoriasis. | Source

True Story of The Heart Break of Psoriasis

No one knows what psoriasis is like except for the people who have this awful disease. My husband lives with psoriasis every day. His psoriasis is not easy to manage. How terrible can it get? It can get very bad. This is his story. He has never found a medication which will take it away completely. It is in every place on his body. It itches; it looks awful he feels embarrassed when people are looking at it. People don't want to touch his hands. Right now he's on a medication they give to heart transplant patients and still he has psoriasis. I believe I have seen his health go downhill since he has had it. He goes every few months to see a dermatologist. We have changed dermatologist looking for the doctor who can help. Nothing changes and nothing gets better. What is the medication he's on doing to his body? We just don't know.

Mayo clinic says psoriasis runs in the family, so true. It runs in my husband's family, his Mom had it and two of his brothers and one sister has it. I can remember them putting his Mom on prednisone because it got so bad she was in stress with it. Every night his sister had to cream herself down and wrap her arms in Saran Wrap.

Psoriasis affects the life cycle of skin cells. Psoriasis causes cells to build up rapidly on the surface of the skin, forming thick silvery scales and itchy, dry, red patches are at times painful.

Psoriasis is a long-lasting (chronic) disease. There may be times when your psoriasis symptoms improve or go into remission and other times your psoriasis worsens.

It's disabling when associated with arthritis. My husband’s arthritis has gotten worse. His hands are in such bad shape from arthritis and they figure it comes from psoriasis. One in ten people will come down with arthritis. My husband didn't get arthritis (psoriatic arthritis) until years after he first got psoriasis.

There's no cure for psoriasis and it can cause complications with heart, blood pressure, easier to get cancer, bowel troubles, and high sugar levels. The only time my husband saw improvement with his psoriasis was when he was able to go in the ocean. It could have been the combination of the sun and ocean helped. We live in a very cold state so it doesn't help. When we got home from vacation he tried sea salt baths but it didn't work. We have no idea why the ocean helped.

I worry about the medication he is on, what is it doing to his body.

Symptoms

  • Red patches of skin covered with silvery scales
  • Small scaling spots (commonly seen in children)
  • Dry, cracked skin may bleed
  • Itching, burning or soreness
  • Thickened, pitted or ridged nails
  • Swollen and stiff joints


Psoriasis in the hair and ear.

The Heart Break of Psoriasis.
The Heart Break of Psoriasis. | Source

Places Psoriasis can go on the body.

.Psoriasis can be everywhere on the body and I do mean everywhere. It started in my husband's hair right away. When he first got it he started getting staph infections on the spots where the psoriasis was. The doctors said psoriasis didn't cause staph, but we thought it did. Psoriasis can be an open sore and easy for staph to get in. Our family doctor told him to start using only anti-bacterial shower soap. He did and it has helped. He's very faithful about taking a shower every night, putting on the creams the doctor has prescribed and taking his medication.

Body Covered in Psoriasis,

The Heart Break of Psoriasis.
The Heart Break of Psoriasis. | Source

White Scales

The white scales from psoriasis fall off all over the place.

Now, our daughter has it, so far just small spots but she is worried about it. Has started to go to tanning beds to try to help it. She has been seeing a doctor. She started out with small spots on her legs and so far that is all she has.

I have read where Kim Kardashian has it. She has very good reason to be worried about it. It very well could really change her life. It can break out on a person's face.

It's an awful disease and don't let anyone ever tell you it isn't. Our family has had to deal with it for years. Your life changes when you get it just like it does with any kind of disease.

People with psoriasis can come down with psoriatic arthritis which my husband has.

There are lots of people out there who like to believe it is nothing. I don't think they would feel this way if they had it.

Obeseity, Smokers and Psoriasis.

According to the Mayo clinic and what my husband has heard from his own doctors. People who are obese are more likely to get psoriasis. My husband is not obese. Believe me, many people who are not obese get this. I think the family connection can be one of strongest reasons people come down with psoriasis. Smokers are also more likely to get this disease. He is a smoker so were the relatives who had psoriasis.

It's a terrible, terrible disease and I feel bad for anyone who has it or gets it in the future. It can isolate people too ashamed of going out in public. I hate to say this and upset people who may be coming down with it. If you are getting patches of it get to a doctor right away and try to get it under control as fast as you can.

He takes a shower every night and it takes time after his shower just to put the creams on he needs to rub into the psoriasis he has. The disease takes constant care. If it wasn't the way he has taken care of it would be so much worse. He takes time away from your life.

Our experience, it is not easily treated. If you do not have psoriasis then you don't know how awful it can get.

I'm not a doctor or nurse. I'm just telling you our story. I have seen many hubs with lots of bad medical information. I'm not trying to give medical advice I'm just explaining what we have been through.

Please be sure to check doctor sites on information about this disease. This is just our experience with it.

My Husband's Experience with Chemo and His Psoriasis.

My husband was diagnosed with lung cancer a few days after Christmas. The surprise we got from his first chemo was his psoriasis was gone. The chemo they used was methotrexate and cyclosporine. The doctor said this wasn’t unusual it often happened with cancer patients. He did say psoriasis may come back after chemo and it may never come back.

For the first time in many years, he is free from psoriasis. He has always hated having psoriasis but is now facing another terrible disease so much worse in my opinion.

Hubby and Grandbaby On The Lake
Hubby and Grandbaby On The Lake

Gone But Not Forgotten

My husband has since passed away and we miss him every day. Spring is coming in our neck of the woods and it is hard to believe he won't be here to enjoy it.

Do Not Copy
Do Not Copy | Source

Copyright © 2015 moonlake

True Story of The Heart Break of Psoriasis. How Terrible Can It Get?

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Comments 36 comments

moonlake profile image

moonlake 3 years ago from America Author

FlourishAnyway, Thank you for stopping by I appreciate it.


moonlake profile image

moonlake 3 years ago from America Author

Peggy W, Thanks for sharing and the tweet. My hubby is doing great with his psoriasis. We're sure hoping it stays that way.


FlourishAnyway profile image

FlourishAnyway 3 years ago from USA

Wow, this hurts just looking at it. My uncle and grandmother have it. So sorry about your husband and daughter. Thanks for sharing about the condition.


Peggy W profile image

Peggy W 3 years ago from Houston, Texas

Going to share this hub again & will also give it a tweet. Hope your husband is still feeling OK.


moonlake profile image

moonlake 3 years ago from America Author

Paul Kuehn, Thank you, we are really glad that his psoriasis is clearing up. He has had it for so long. Thanks so much for stoppin by and for the vote, share and tweet.


Paul Kuehn profile image

Paul Kuehn 3 years ago from Udorn City, Thailand

moonlake,

I think this is a really interesting and useful hub for anyone who is suffering from psoriasis. I'm sorry to hear that your husband has been suffering from this condition for such a long time, and I hope the medication he is taking now continues to control the psoriasis. Voted up and sharing with followers. Also tweeting.


moonlake profile image

moonlake 3 years ago from America Author

Peggy W, The Soriatane must have done it but he has been on it for years. We will see what happens as he tries to go off it.Thanks for the pin. Will stop by your hubs tomorrow when I'm not so tired.


Peggy W profile image

Peggy W 3 years ago from Houston, Texas

I am happy to hear that your husband's psoriasis is almost completely gone. That Soriatane medication obviously works. Just too bad that it is so expensive! Going to pin this to my health board.


moonlake profile image

moonlake 3 years ago from America Author

Deborah-Diane, My husband's psoriasis has almost completely gone away. He has a small spot on his back so now he is trying to cut back on the medication he is taking. He is so happy about it.

Thanks for stopping by and for the vote.


Deborah-Diane profile image

Deborah-Diane 3 years ago from Orange County, California

Oh my goodness, this really is a heartbreaking disease. I'm so sorry that your husband has to suffer with it. It sounds terrible, and I hope your daughter can keep hers under control.

Thanks for this article. I am sure it will help many people. Voted up!


moonlake profile image

moonlake 3 years ago from America Author

rajan jolly, Your right that the sun helps and it does get better in the summer. Winter is the worst time for him. Thank you so much for stopping by.


rajan jolly profile image

rajan jolly 3 years ago from From Mumbai, presently in Jalandhar,INDIA.

I'm sorry to learn your husband has it. It does run in the family. A few natural remedies could be tried though. Baking soda solution will reduce itching when it is applied externally as a compress.. Also, exposure to the morning sun for some minutes will help in reducing the inflammation and scaling.


moonlake profile image

moonlake 3 years ago from America Author

cloverleaffarm, Thank you for stopping by. I think because of the family connection he will never get rid of it but we do keep hoping.


moonlake profile image

moonlake 3 years ago from America Author

CASE1WORKER, Never thought of that will have to mention it to him, thank you.

Thanks so much for stopping by and leaving a comment.


moonlake profile image

moonlake 3 years ago from America Author

Peggy W, That's is what we thought it had to be more than just the salt in the water that helped his psoriasis, maybe all the fishy stuff! Thanks so much for your concern and for stopping by and sharing.


cloverleaffarm profile image

cloverleaffarm 3 years ago from The Hamlet of Effingham

Sorry to hear that your husband has such troubles with it. Psoriasis, like eczema is an auto immune issue. It will never truly go away, but can be controlled. It is sometimes best to treat from the inside out, and not just topically. I have treated, successfully, many patients with the eczema/psoriasis ointment I developed for myself years ago. Be well.


CASE1WORKER profile image

CASE1WORKER 3 years ago from UNITED KINGDOM

Just a thought- has he tried a gluten free diet- I do know of some celiac disease sufferers whose symptoms are a skin disease like psoriasis- it might be worth a try? I do hope that something works


Peggy W profile image

Peggy W 3 years ago from Houston, Texas

I am so sorry to hear that your husband has psoriasis and that your daughter also has some of it as well. Perhaps someday they will come up with better treatments for it. That is interesting that the ocean waters seemed to help him. It must have been more than just the salt in the water since he tried that at home with not the same results. Will share this hub. Perhaps someone who has it will be able to offer some good advice?


moonlake profile image

moonlake 3 years ago from America Author

My husband does take Soriatane. It has helped him so much but the psoriasis is still there and sometimes flares up. We have drug insurance. On the slip with the drug name they tell us what we paid and what it would cost us without the insurance. This drug would cost us $5,185.00, crazy! If we didn't have insurance we would not be able to buy it. Thanks so much for stopping by and leaving a comment.


Monika 3 years ago

I am a 54 year old woman and I am a patient of psoriasis for the past 15 years. I used Soriatane on the advice of my dermatologist. My lesions reduced by almost 80% within 4 – 5 months of starting treatment with it. I recommend this medicine to all patients of psoriasis. I order this from www.Easterndrugs.com they are cheap and fast deliver. Thanks


moonlake profile image

moonlake 5 years ago from America Author

Alaster Packer, Thank you for stopping by and leaving comment. The ocean helped his psoriasis. Sorry I had it worded wrong and made it sound like the ocean helped his arthritis. At the time we were at the ocean his arthritis wasn't so bad but his psoriasis was out of control and the ocean really helped. Now his psoriasis is a little better from meds but his arthritis is causing him lots of pain.


Alastar Packer profile image

Alastar Packer 5 years ago from North Carolina

Moonlake I'm glad your husband's psoriasis is better. A 15 yr. old niece was diagnosed with it recently and the MDs are having a time getting it under control. Also I can empathize with your husband on the arthritis. It settled into my spine after surgery for a wound. I hope at least the awful pain is under control for him. Could the ocean have been because of movement in the water. Doing bending exercises in water help here. Wishing relief for him. It can happen.:)


moonlake profile image

moonlake 5 years ago from America Author

Thank You, AliciaC for stopping by and checking out my hub. Psoriasis sure can be horrible and the meds my husband has to take to keep it uncontrol are not good either.


AliciaC profile image

AliciaC 5 years ago from British Columbia, Canada

Thank you for the interesting information about psoriasis, moonlake. I hope that your husband and daughter find a solution to the problem. It sounds like a horrible condition.


moonlake profile image

moonlake 5 years ago from America Author

Thank you Dexter Yarbrough for stopping by and leaving comment. We are also hoping that it will at least go into remission.


Dexter Yarbrough profile image

Dexter Yarbrough 5 years ago from United States

I had psoriasis for a while as a teenager. It went away after awhile. I hope it gets better for your family and I know this hub will help others.


moonlake profile image

moonlake 5 years ago from America Author

Cloverleaf, thanks for stopping by. I think your right sometimes different climates may make a difference.


moonlake profile image

moonlake 5 years ago from America Author

writer20, we have heard that also. He was under lots of stress at the time but it does also run in his family.


moonlake profile image

moonlake 5 years ago from America Author

Cardisa thanks for stopping by and leaving a comment. I just talked to my daughter today. She said she was talking with some friends and they were talking about psoriasis. A woman she barely knows said " Oh don't you hate seeing those people with the big white spots they are so gross if they would just take care themselves they wouldn't have the spots." My daughter was mad at the woman and so where the other people sitting there. My daugther just told her she had no idea what she was talking about.


Cloverleaf profile image

Cloverleaf 5 years ago from Calgary, AB, Canada

Moonlake, I know someone who suffered with psoriasis for many years and tried every treatment under the sun; he moved to a different (less humid) climate and within a few months it was gone. We couldn't believe it, he had suffered for such a long time.


writer20 profile image

writer20 5 years ago from Southern Nevada

My Dr. told this happens when our bodies are stressed out. At the time I had it we had a small hotel and had difficult getting housekeepers, that mean't little ole me had to get cleaning the rooms. Okay, that's not a bad thing until you have 12 with kitchens to clean,grr.


Cardisa profile image

Cardisa 5 years ago from Jamaica

This is really heart breaking. It keeps you from doing stuff you would normally do. People who have this are always self-conscious and I understand it can be quite uncomfortable. I hope your daughter gets help before it gets worse.


moonlake profile image

moonlake 5 years ago from America Author

writer20 so glad you have gotten rid of your spots. My husbands spot aren't as big as they use to be. It takes him forever after he takes a shower just getting all the creams on all the spots. Their smaller then they were. Most of them had once looked like the second picture in the hub.


moonlake profile image

moonlake 5 years ago from America Author

PegCole17 Thanks for stopping by and leaving comment. My husband is much better then he use to be but it is still not gone.


writer20 profile image

writer20 5 years ago from Southern Nevada

I had this is the crook of my arms. I had to make arms bands to wear at bedtime as there was a live cell in the little bumps. My Dr. almost flipped when he saw the live cell. I used a steriod cream and he warned me to use a tiny amount each time and it did get rid of it eventually.


PegCole17 profile image

PegCole17 5 years ago from Dallas, Texas

I first ran across this condition when I was in beauty school. People were really embarassed by it and of course, we had to ask before giving cosmetology services. It looks really painful. So sorry you're having to deal with it. Hope things get much better.

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