The Journey Begins...Six Year Old Grandson's Fight to Survive

More "Pennies" Came from a Hubber

How humbling it is to receive pennies from across the nation and especially from precious writers here on HubPages. On Thursday I opened a card from yet another hubber...send good wishes and monetary help for our baby boy.

Tomorrow he has a procedure....involving his tummy so please send some extra prayers and positive energy his way.

And please keep sharing this and please send pennies if you can. And know that many Angels are on the way to you

A Writer here on HubPages Sent Two Special Pennies

She had told me that prayers came along with them!!! And how blessed we are to receive them.
She had told me that prayers came along with them!!! And how blessed we are to receive them. | Source

Update: a second gift from a Hubber here on HubPages

Today I received a special gift of two pennies of another writer here on HubPages.

I had been told to look carefully at them as they were covered in prayers.

And I found those prayers and we will treasure the blessings that come with them.

Update: A Gift Arrived from a HubPages Writer Today

This morning when I checked my mail, there was gift of 'pennies' in the form of a check for Heston Wayne's medical care. Out of respect for the person, I will not reveal who the donor was but it is a Hubber.

That is right. A lovely individual from here on HubPages sent us monies to help our sick little man.

We are so very greatful. Thank you does not seem enough to say but it is the way to try to show appreciation. A great big hug is on the way too.

Update...pennies are arriving

Update #1 June 15th

Today Heston Wayne and his Momma head back to Florida.

The MRI showed no tumor on his pituitary gland but he is leaking fluid from the gland or in that area so fluid has been sent to pathology and results are due to be back in 3 weeks.

According to the doctors, we are not out of the woods for cancer in that area at this time.

Next week, Heston goes in to have a naso gastric tube placed as he is losing weight continuously and eating solid foods causes his tummy to hurt.

So that is where we are.

Once again, I ask you to please ask those you know to view the video on youtube shared in this hub ...we are asking for one penny from anyone who can donate. Tape it to a piece of paper and mail to: Patricia Scott POB 554 Hawthorne Fl 32640 Thank you once again.

Sleeping at the Ronald McDonald House in Boston

This is the photo from the video   little sweet pea...
This is the photo from the video little sweet pea...

My grandson is very ill...I have written about him in an earlier hub---the link to it is provided in this hub as well. He has a condition that is broadly known as Shwachman Diamond Syndrome but like with many diseases he has anomalies which cause it to be difficult to really classify, if that makes sense. He is in bone marrow failure.

He and his Momma are in Boston and are being treated by doctors that through Dana Farber Hospital.

We are so very thankful that the doctors here in Florida recognized the need for them to be seen in Boston as quickly as possible. In a matter of week after identifying the need he was referred and they are there as i mentioned.

We have no definitive plan yet as all of the testing is not complete. Tomorrow he has a major test and then we will see from there. This will not be a quick fix. And my daughter has been told that it is most likely that Heston Wayne will need a bone marrow transplant before all is said and done.

So...that is simply where we are right now.

Heston Wayne, travelling to Boston---His First Airplane Ride

Source

Courage is being scared to death, but saddling up anyway.

— John Wayne

...Just Perfect


This is the perfect quote for a hub about Heston Wayne. Because you see, he is named after Charlton Heston and John Wayne!!!

Trying to Feed Heston

When they return to Florida, Heston Wayne will go to his "Florida" hospital to have a naso gastric tube placed (he does not eat as it makes his tummy hurt)....His body also does not absorb nutrients so he has continually lost weight. And when I say he does not eat, he does not eat, anything, sometimes for days. He simply has no interest in food.

If the NG tube works after several months, a permanent tube will be placed in his tummy.

At least three more trips are scheduled back to Boston, so once again the need for funds to make this possible.

We are hopeful...as I say...HOPE REiGNS in this family!!!!

Give a Penny.....Help Heston Wayne....

Your Help is Needed

As I state in the video, we need help with medical bills. I know we all are asked so often for donations for this and that...I am also asked.

In this case, I am asking for one penny from each of you and I am asking that you share this hub with your friends....

If everyone sends a penny, and there friends send a penny, we may be able to save enough pennies to pay the mounting bills.



Heston's Heroes

Heston's Momma found an organization that would help us raise money via the purchase of t-shirts. And so Heston's Heroes was born. A lot of money was not raised through this endeavor but every dollar counts.


Wind Beneath Each Other's Wings

Lifting Each Other...

A day or two ago I told my daughter that I trying to be the wind beneath their wings but the truth is, they are the wind beneath my wings.

My daughter who is fighting for her life as well walks each day with precious Heston Wayne as if nothing at all is wrong with her. Her goal is to lift him up and help him to find answers so that his body can be healed. And alas, that is it after all isn't it?

We are here to be the wind beneath the wings of EACH other as we walk this walk. So thank you for being so for us....


Nini...wearing my Heston's Heroes Shirt

The Three of Us Wearing our Heston's Heroes Shirts---from right to left Stephanie, Tracy, Nini

Source

Brave Lil' Man

As I mentioned in the video, Heston has heard that Superman had written a letter to a sick boy and told him how brave he was. And Hess said, "Mom, I want to hear from Superman...I am brave." (And brave he is with all of the tests and pain that he endures.)

So as I mentioned in the video, he has received wishes from Superman and even memorabilia. It makes him feel reassured that he really is brave!!!


Grandchildren are a Wonderful Gift

Both of my grandchildren make my hear overflow each day. I have written about Heston's brother as he is sick too. Doctors said Jay, Hess's brother, would never be sick....and praise God, he just turned 21....

So we do remain every HOPEFUL and full of faith and know that somehow this will work out well.

Please help us by sharing this on all of your sites. And thank you....thank you...thank you.

More information on his illness

http://hubpages.com/health/Hope-ReignsPart-II-Schwachman-Diamond-Syndrome-and-My-Five-Year-Old-Grandson

This hub gives you the background knowledge you need to begin to understand Heston's condition. We had no idea something such as this had found its way into our lives, into his body.

My address

Please send pennies to:

Patricia Scott

POB 554

Hawthorne Fl 32640

Please share this message and thank you so very much. I will keep you updated as things progress.

More by this Author


Comments 54 comments

word55 profile image

word55 4 months ago from Chicago

Jesus should be Heston's main hero. He should know of the miracles that Jesus performed for many people throughout the Bible. Jesus is a natural healer for those that believe in Him. I pray that the Spirit of God in Christ will heal Heston for Heston's belief in Him as his main hero. Amen.


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

Thanks, Flourish, for stopping once again. Our little man is a trooper. He has a big day today as I mentioned in an earlier comment to you. We have filled the hospital room with Angels and positive energy so we remain ever hopeful.

Angels once again are finding their way to you ps


FlourishAnyway profile image

FlourishAnyway 5 months ago from USA

Please do keep us all updated. Hoping for the best.


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

More lovely pennies arrived today from a precious writer here on HubPages...we are so blessed. Tomorrow is a big day for the baby....I will update in a few days.


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

Thank you, Catherine. We are so very blessed to have so many who are reaching out sending words of encouragement. It truly means so much.

Angels are on the way to you ps


CatherineGiordano profile image

CatherineGiordano 5 months ago from Orlando Florida

I am so sorry for your family. My heart goes out to you. I have shared on facebook. I hope you will soon have some good news for us. May your angels be with you.


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

Thank you so much, Peggy. We are so blessed to have the support and well wishes of so many around this great country.

Know please that you and your family have Angels on the way. ps


Peggy W profile image

Peggy W 5 months ago from Houston, Texas

So very sorry to hear this Patricia. Will definitely share this and keep you and your family in my prayers.


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

Thanks. We do have a GoFundMe site. The link is in this hub. I think.


aviannovice profile image

aviannovice 5 months ago from Stillwater, OK

Thought of something else, too. Try gofundme.com, as you can get it out into the world that you need funds. Others have appealed to strangers and they have helped with what they can afford.


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

O Deb...seven days a week...bless you....tears are streaming down my cheek at the thought that you will send some of your pennies when you are working non-stop to make enough to meet your own needs. Know that many Angels are headed to you to bless you for your kindness. ps


aviannovice profile image

aviannovice 5 months ago from Stillwater, OK

This is truly a heartfelt story. I'm working seven days a week now, as I can't get enough hours in five days a week. Will send your pennies out on Saturday. Your family is in my thoughts, and best wishes to all. Will be sharing this with all.


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

Thank you Ms. Dora. We are hopeful that pennies will continue to arrive. Today we received pennies in the form of a check ~~~it was from a fellow hubber..I am deeply touched.

Know that Angels are on the way to you ps


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

Thank you Catherine....we are so thankful for each one of you who sends could thoughts our way.

Tomorrow is a big day...we are hoping it goes well.

Once again Angels are on the way to you ps


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

Thank you so much, Stella. We are surrounded by so many earthly Angels and by God's power and love so we feel so very hopeful.

Thank you so very much for stopping to let us know you are lifting him up.

Angels are on the way to you this morning ps


ladyguitarpicker profile image

ladyguitarpicker 5 months ago from 3460NW 50 St Bell, Fl32619

God Bless you and your family. Will keep good thoughts and pray for you and your family. Your grandson will have the angels help him. Love, healing. and best wishes! Stella


MsDora profile image

MsDora 5 months ago from The Caribbean

Patricia, please be encouraged--you, Heston, his Mom and all the family by the prayers and the pennies coming in. God cares. So do many of your readers, including me. Thanks for the opportunity to bond in faith on behalf of this precious child.


CatherineGiordano profile image

CatherineGiordano 5 months ago from Orlando Florida

My heart goes out to you and your family and especially to your young grandson. I am hoping with you for a complete recovery.


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

Thank you, Paula....we are hopeful and do not despair. We feel your good vibes.

Angels are once again on the way ps


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

Shyron...You are a doll...thank you so much...I know...about the tears...but we are crying an abundance of tears of thankful and hope!!!!

Please know that Angels are on the way to you this very moment. ps


fpherj48 profile image

fpherj48 5 months ago from Beautiful Upstate New York

Oh Pat......My heart is filled with "hope" as it also breaks for this precious, brave child. God Bless all of you! My thoughts & prayers. Paula


Shyron E Shenko profile image

Shyron E Shenko 5 months ago

Patricia, it is hard to type with tears in my eyes. Your grandson is very brave and Blessed to have you for a grandma.

I sent two pennies, please check them closely, each one has a special prayer attached.

Blessings and hugs.


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

Yes it was long. They wanted to get a really good look. I will be posting an update on the hub. I will leave you a message on your site, Rachel. thank you so much for sharing and for your concern...it means so much more than you know. Angels are once again to you, my friend. ps


Rachel L Alba profile image

Rachel L Alba 5 months ago from Every Day Cooking and Baking

Hi Again Pat, Oh Good Lord, I hope they made him drowsy for that MRI. I never heard of an MRI that long. Have you heard anything yet? I am sharing this on FB, maybe someone will respond. God bless you all.


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

Thank you, MizB, and thank you for the promise of a musical interlude.

We are so hopeful that we can find answers to help this little doll to be on the road to recovery.

Angels are once again winging their way to you. ps


MizBejabbers profile image

MizBejabbers 5 months ago

Patricia, you are an amazing family. You are all so brave! You have touched my heart with you story. I send love and healing light to you all, and I will ask my husband and his friends to play their healing flutes for Heston Wayne. May the angels you send to us be as a boomerang and return to you. Be blessed. Miz B.


Frank Atanacio profile image

Frank Atanacio 5 months ago from Shelton

god bless you guys.. really


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

Good morning Rachel...I won't pretend these last few weeks have not been stressful. Yesterday was especially difficult as he had a two and one half hour MRI with contrast and a biopsy of his pituitary gland as a CT scan had shown a shadow in that area of his brain. So we are, this morning, awaiting some news.

Thank you for your kind words and for caring. We are so thankful for all of the good wishes we receive from near and far.

I do hope that all is good with you and yours, Rachel.

Please know that I am sending many Angels your way ps


MarieLB profile image

MarieLB 5 months ago from Yamba

Dear Patricia, we have not yet met, but please allow me to call you that. I feel that I am in a big extended family and that I have known you all my life, and that we are all hurting, yet wanting to help each other not to. Yet our eyes and our love is all directed at Heston, and healing vibes are dancing radiantly around him. I have to shake myself to remind myself that I am reading a hub on hubpages, not a letter from home. It is completely different than reading a hub from a fellow writer on hubpages. So much warmth, so much love, even amongst the anguish. Dear Patricia, I found this out through Venkat Chari who sent me a link that asked to pray for Heston, and of course I did, and I do. I will spread it as far and wide as I can and let us hope that the beautiful prayers will bring blessing on Heston and all of you too. Thank you for letting us into your life. Please keep us posted.


Rachel L Alba profile image

Rachel L Alba 5 months ago from Every Day Cooking and Baking

Hello My Friend, I can't imagine what you are going through right now. I know how much I love my grandchildren and I don't know what I would do if any were in that condition. Please know that I am praying for him and your daughter and you and your family too actually. He is a precious little boy and looks so brave. I can just see our Savior's Hand right over him. God be with you all.


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

Thank you, moonlake, for the prayers and good wishes. He is getting reading to go in for a major procedure so we are surrounding ourselves with all of the positive energy, Angels, and prayers we can.

Hoping all is good with you...Angels are on the way to you and yours ps


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

Your thoughtful words mean so much, Eric. This afternoon the baby is getting ready to go into a very serious procedure so we wrap ourselves in all of the love that is coming our way from HubPages and from all of the other social outlets we have shared on.

Once again Angels are on the way to you ps


moonlake profile image

moonlake 5 months ago from America

I'm so very sorry about your grandson. Prayers for him and your family.


Ericdierker profile image

Ericdierker 5 months ago from Spring Valley, CA. U.S.A.

In my home we will pray for you and do as you have asked. I firmly believe in the great power of massive love and prayer. You getting this out there will touch many and many of that many will pray for your family.


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

O thank you, Vencatachari, for taking time to stop and comment. Each good thought helps to lift up our Heston Wayne.

Know that Angels are headed your way this morning ps


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

Thank you for your kind words, Karen. We are so hopeful they can find the answers we need to repair his tiny body.

Angels are once again on the way to you ps


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

Yes...St. Jude's does cover everything but Heston Wayne's case is special...he is broadly categorized in Shwachman Diamond but has many anomalies. The doctor who is one of the most well versed and knowledgeable about his disease is in Boston and a second in Seattle. We would have gone to St. Jude's otherwise.

His condition is not good at this moment...today he has a long procedure which hopefully will prove that he does NOT have yet one more thing wrong with him.

He is an amazing child as we all say about our grandchildren :D..I am so appreciative of your deep concern and kind words and do know of God's miraculous power as he has kept my Stef and Jay on the planet for many many years longer than any doctors had predicted. Sending many blessings, much love, and Angels to you and your family ps


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

O bill....I am sooo sorry...I can't explain it either...wish I could. Why does stuff happen????? I guess it makes us stronger??? Whatever...I am not feeling so strong right now...I know there are so many who care about him and us and that God is our strength but I am human and wish that I have the answers.....Thank you thank you for caring....know that many Angels are on the way to you and comforting Angels are on the way to your friends. Love and hugs ps


Venkatachari M profile image

Venkatachari M 5 months ago from Hyderabad, India

Very sorry to hear about the symptoms of this sickness. I pray God for his cure and getting well soon. I am sharing this on facebook and twitter immediately.


Karen Hellier profile image

Karen Hellier 5 months ago from Georgia

I am so sorry Heston Wayne is going through this. I will pray for him, his mom and you. Thanks for sharing this personal struggle your family is going through.


Faith Reaper profile image

Faith Reaper 5 months ago from southern USA

Oh, Dearest Patricia,

Life is terribly difficult at times, and I can't even imagine all that your family and your precious grandson is having to endure. I do know without a doubt God is still in the miracle business and I know He heals and I trust He will provide for your family.

I do know that St. Jude's Children's Hospital will cover everything and provide for the family to stay too. Maybe it would be worth contacting St. Jude's? I will keep Heston covered in prayers and you and your family too.

I am sharing this everywhere.

I agree with Clive that all the Angels you have sent out are encamped all around him.

(((Hugs))) and much love to all,

Theresa


billybuc profile image

billybuc 5 months ago from Olympia, WA

I'm literally dead tired of bad things happening to good people. Two of my best friends are dying and I'm trying to find the sense in it all....and I can't. All I can do is send you hugs and blessings for that little guy.


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

Thank you so very much, always exploring. Tomorrow is a very difficult day for him as I mentioned to DDE. Please keep him in your thoughts and continue to share.

Angels are on the way to you ps


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

Thank you so much, DDE....tomorrow is a difficult day for him so the good wishes are more than appreciated. We are so thankful for your care and concern and so appreciative of the share.

Angels are once again on the way to you ps


always exploring profile image

always exploring 5 months ago from Southern Illinois

It is so sad when a child is sick. God bless you and family. I will share all over...


DDE profile image

DDE 5 months ago from Dubrovnik, Croatia

I shared on TWITTER and I wish your grandson lots of hope and courage in this time and always. You are so brave to share your story.


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

O I am weeping as I read your precious comment, Clive...how humbled I feel...please know Angels are blessing YOU!!!


clivewilliams profile image

clivewilliams 5 months ago from Nibiru

All the angels you sent out will come back to help him. God Bless


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

You are sooo right,Kaili. O if that could be!!! Maybe soon...he has been as we have Disneyworldhere in Floridda but you are100%correct..this should have been a fun trip. We are so blessed to have so many who reach out to us...we are full of hop. Please know that Angels and good wishes are on the way to you!!!


Kaili Bisson profile image

Kaili Bisson 5 months ago from Canada

A little boy's first plane ride should be to someplace magical like Disney, not to a far away city for a medical procedure. Please keep us informed...thoughts and prayers are with you and your family. Sharing this hub too.


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

Thank you, Randi. We do remain hopeful and pray that answers can be found. Your kind words mean so very much..Angels are in the way...ps


pstraubie48 profile image

pstraubie48 5 months ago from sunny Florida Author

I will watch the video. And wish you speedy recovery from your surgery. We are in this together and together we draw strength .God is walkng with us every step of the way. Know that Angels are surrounding you at this ps.


btrbell profile image

btrbell 5 months ago from Mesa, AZ

Oh, Patricia! I am so sorry to hearehat a rough time you all are having. I have not really been on here recently. I have no idea what drew me to hubpages today. I can only imagine it's some of those angels you always so generously send. This will be shared and heading over to your go fund me now. Sending lots of love and healing thoughts.

Randi


Jackie Lynnley profile image

Jackie Lynnley 5 months ago from The Beautiful South

I hope you are getting your video on Facebook and twitter to reach many more. I will share your video now and daily and I hope everyone will. My heart and prayers are with you. Please look at my new miracle video to encourage you. So many of them just let you know miracles do happen and one is a video of a truck running right through a cycle with both drivers being so shocked knowing what they have lived. I am just out of surgery and it just has helped me so much is why I mention it.

I will gladly help too but I pray you feel God's Hand on both your loved ones most of all. I love you and God does I know!

I will start sharing right now and come back to share again and again and hope all your friends will here.

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