You Are Not The Only One Concerned About Taking Thyroid Medication

Take your thyroid medication as directed...
Take your thyroid medication as directed...

Medication? Yes or No?

What are some of the most common reasons for not taking my thyroid medication, you may ask? Some of the reasons why I don't want to take medication, may be the same reasons you don't want to take your thyroid medication either. I have hypothyroidism and I go through stages when I feel like taking the medication is useless and non-productive. I base this hub on my own experiences with hypothroidism, medications, doctors and general maintainence of medication compliance. Not to be used as a guide or medical opinion of any kind.

First, hypothyroidism means your thyroid is not making enough thyroid hormone. The thyroid is a butterfly-shaped gland in the front of your neck. It makes hormones that control the way your body uses energy. It is not uncommon for hypothyroidism to be present for a number of years before it is recognized and treated.

If you have hypothyroidism and are not taking your thyroid hormone replacement medication, which might include-Synthroid, Levoxyl, Levothroid, Thyrolar, and Armour Thyroid. Hypothyroidism can cause a huge number health problems for you. Seeing a doctor is better than guessing or diagnosing yourself.

Some symptoms of Hypothyroidism you might experience can include:

  • Depression
  • Tiredness
  • Low body temperature
  • Intolerance to cold
  • Up and down blood pressure
  • Problems with remembering things
  • Weight gain or loss
  • Severe changes in your menstrual cycle
  • Hair loss
  • Increased goiter

Hypothyroidism can often be diagnosed with a simple blood test. If you have a low level of thyroxine and high levels of TSH this can indicate an under active thyroid. That's because your pituitary produce more TSH in an effort to stimulate your thyroid gland into producing more thyroid hormone. The TSH test is one of the best screening tools, your doctor will likely check TSH first and follow with a thyroid hormone test if needed.

Now onto the reasons why I sometimes prefer not to take my thyroid medication. This thyroid disease has touched me and, my 4 siblings, and mother and father. My sister has come close to dying on several occasions after stopping her medications. She has a more serious thyroid condition than I do. She has taken anywhere from 50 mcg of Synthroid to 400 mcg since she was 10 years old.

Her doctor says this dosage is very rarely prescribed. I am in no way recommending you stop taking your medication. This article is written solely from my perspective and is not a recommendation for you to stop or tweak your thyroid medication. Every person is diagnosed and medicated to their own special needs. I am writing from what I have experienced with my thyroid condition and my prescribed medications.

Life is good, better when I take my meds.
Life is good, better when I take my meds.
Sometimes I feel like this when I don't take medication.
Sometimes I feel like this when I don't take medication.
Taking medication is often frustrating.
Taking medication is often frustrating.
I think I am a happier 'cat ' when I take my meds. Life is brighter.
I think I am a happier 'cat ' when I take my meds. Life is brighter.

Some Reasons I Stop Taking Thyroid Medications

  • I don't feel any different or any better, so what is the point I ask myself?
  • I don't like taking any more medications than I have to. Believe me a handful or more is quite enough. And yes one more pill is always one to many for me.
  • I have side effects I don't like when I take the thyroid medication. They can be rather bothersome depending on the dosage I am taking.
  • I can't remember to take it every day. When taking multiple meds it can sometimes be a problem.
  • It cost to much. Sometimes finding money for an expensive medication can be difficult.
  • I can't keep track of all my medications, yes this can be confusing if you take medications for various things.

Let me play explain a bit...

I don't always like taking the Synthroid because I do not always see the difference when I take it. Which doesn't always mean that I don't need it. Because I do need it. But by not taking it, am I causing damage to myself? Because I need the proper amount of hormone in my body to function properly. I think this is the biggest reason I don't want to take the thyroid medicine. I don't see a difference either way, I don't feel any worse or any better, so I question whether to take it.

My brother and sisters take it and lose weight, and feel better right off the bat. Me? Nothing happens. It doesn't make me feel better mentally either. So I am led to believe that I am not better off either way. So my research begins. I do take it when I feel I need to. I do however keep up on my blood work and monitor myself. If I am out of whack then taking the medication is probably the better choice than not.

I take medication for bipolar disorder and adding another medication only aggravates my situation. Now to clarify, I was diagnosed with bipolar disorder long before I was diagnosed with a thyroid condition. So the two are very separate conditions. I hear people say "what's one more medication?" Well that adds up doesn't it? It is easier to take 7 medications than 17. I worry a lot about what all these medications are doing to the inside of my body. My liver, my kidneys and so on. How good are these thyroid medications? Do the research, on all your meds.

I suppose this might be a lazy way out of having to not take it. In a logically sound argument what is one more little tiny pill? And Synthroid is really just a tiny pill. When I look at it in realistic terms, one more small pill is not entirely a really good excuse. IF it is really going to make a difference in how I feel. IF my readings are low, and I take the medication, and it doesn't make me feel better, but my readings are normal, what do I do? Take the medication? More than likely yes.

I worry about the side effects. So far there aren't any that I can actually pinpoint, as I mentioned I take medications for bipolar and I have side effects from those. So that is really not an excuse for me to stop taking the thyroid medication. I already have side effects so not taking it is not a workable excuse for the most part. If for some reason you have a serious enough side effect tell your doctor, he may be able to try another form of thyroid that may be better for you.

As far as forgetting to take it, well that doesn't really work all that well for me either. I have all my medications set up in a pill container that I take at a scheduled time. So one more should not be a problem as far as remembering. There are many ways to remember to take your prescribed thyroid medication.

An alarm clock, a schedule on the fridge, a pillbox, an alarm on your watch or cell phone will do the trick very well. Taking the pill at the same time each day will also help you to remember to take it. Make it a habit. Believe it or not I do forget to take my medications on an occasion. Not often, but there are days when I am rushing to get out the door and forget to grab the pill container. But otherwise I am on a very strict medication schedule. For some people, it can be an ongoing uphill battle keeping track of everything.

So the above reasons are not really good excuses for me. I actually have no reason to not take the thyroid medication. I have a bunch of illegitimate reasons to avoid taking another medication. A medication that I know I need. So my dilemma is, do I or don't I take my thyroid medication? For now I don't see why I should take it, because I don't see or feel a difference.

I feel good, my levels are coming back a tad low. The doctor says as long as I feel okay and levels remain steady, I can stop taking the thyroid medicine for now. I am not advocating anyone else NOT take their prescribed medication. Because everyone has a different diagnosis. So please follow your doctor's instructions. You and your doctor are the ones who need to decide what is best for you. It is not something you decide to do on a whim.

As far as cost goes, I have an insurance plan with a low co-pay, so that really isn't much of a problem for me right now. However it is a problem for some people. Thyroid medication is not all that expensive. But if you are on a limited budget it can still be unafforable for you. There are programs for you, if you need them. Contact your prescription label company for discounts, NeedyMeds, or search Patient Assistance Programs for further help with your medications.

I take medications for bipolar as well, and sometimes it gets overwhelming trying to keep them all this in order. By adding something else just adds to my anxiety about taking medications. But like I said previously, organizing them into a pill container can help with that. You can do it weekly or monthly. This is a very good way to make sure you are taking all of the meds you should be taking without missing an important dose. Keeping a list also helps keep the medications in proper order.

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Comments 165 comments

crazybeanrider profile image

crazybeanrider 2 years ago from Washington MI Author

Thank you for taking the time to read my hub on thyroid medication. it is such a complex issue to say the least. I am finding there are many opinions on taking or not taking medications. Thank you for your sincere comments. they are greatly appreciated.


guAmpcemwerce 2 years ago

A lot of thanks for your entire labor on this blog. Ellie really loves going through internet research and it's really easy to see why. We learn all of the dynamic tactic you present both useful and interesting items through this blog and improve response from people on the point then our favorite princess is certainly discovering a lot. Have fun with the rest of the new year. You're performing a really good job.

SyncOppodybob


crazybeanrider profile image

crazybeanrider 3 years ago from Washington MI Author

I would find another doctor that possibly understands thyroid issues better. This doctor is way off base. He is not recognizing you have options and choices for your medical care. He should be looking into why you feel lie you do. For a doctor to tell you your're fine when you know you are not is not acceptable. Please consider finding a doctor that will work with your value's and help you find a proper dosage of medicine. You deserve to feel healthy and a doctor should be helping you, not ignoring you when you have concerns.


SwooshVolley 3 years ago

What I am having problems with is my lab values are all over the place, but yet within normal limits. I talked to my primary care doctor and he said he cannot step on my other doctor's toes. Let me back track, I had thyroid cancer and they took my entire thyroid out. When I had a thyroid, I was fit and motivated. After the full thyroid lobectomy, I am unmotivated, depressed, and have gained a great amount of weight. It weighs heavily on my mind.

I have discussed this issue with my doctor. I want to go holistic because I don't feel "right" with my levothyroxine. I have verbalized this more than once. However I met with,"you're fine. Your lab values are within normal limits." The normal limit scale is .1-5. My lab values differ from month to month. It is not within MY normal limit. I am fed up playing these reindeer games with my doctor. I just want to feel "normal" again.

Advice? Thoughts?


crazybeanrider profile image

crazybeanrider 3 years ago from Washington MI Author

Well thank you Stellar Phoenix, your review most appreciated.


Stellar Phoenix Review 3 years ago

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aricabutto 4 years ago

Hi!

I'm diagnosed with Hashimoto's Disease. I take Levothyroxine.

I can tell you what is happening: you're taking overdose of medication. Even if your doctor prescribed. Let me explain something:

There will be times when the medication dosage will need to be adjusted up or down. You HAVE to go to your doctor and tell him/her. The doctor will adjust the dosage. This panic attacks and palpitations are symptom of over dosage (too much levothyroxine).

Then, when you talked about why you stop taking your medication, you sound depressed. If you stopped taking your pills, you will be.

If you are a thyroid patient, you will be, more likely, for life. Forever. Get use to it. Is not a dead sentence, is only a condition and you can live very well with.

Now, your doctor must tell you, but you'll need the blood test every four-six months to check how your hormone levels are. Then, you MUST check closely your overall diary of "how do I feel today?". This things can help your doctor to adjust dosages of levothyroxine. Also, the dosage is not "the one": you will be needing adjustments every now and then.

I urge you not to treat badly your body. If your organism needs the hormone to work properly, do not play with it. You can damage even your brain, your heart... Be careful and take care of your health. Good luck!


crazybeanrider profile image

crazybeanrider 4 years ago from Washington MI Author

I don't think he would be angry. Just tell him why you stopped and I am sure he will order some blood work and set you back up with the proper dose. If your panic attack went away after stopping the med, that is something he needs to know, so he can perhaps try something that works better.


crazybeanrider profile image

crazybeanrider 4 years ago from Washington MI Author

Hi Ann, Any new med can cause a great deal of side effects, I would definitely get with your doctor.


Taylor 4 years ago

I got diagnosed with Hypothyroidism when I was thirteen. I took the medication for a while, but it started to give me panic attacks. I hated it. I stopped taking it for almost a full year, and now I'm worried that I should be taking it, because when I did get diagnosed, it was very severe.

I tried to re-order my meds, but it is expired and I am in panic mode that the doctor won't put me back on because he'll be angry. Could he do that, or will he put me back on? I'm freaking out. :*(


my name is ann 4 years ago

hey i been taking my new medication could it make u spot for two days and stop or could it be i meant be pregnant could any one help me tell me what it could be


Jan 4 years ago

I have Graves Disease which is hypo with auto antibodies and kicked off about 12 years ago with full blown thyroid eye disease. I take 100mg a day now since my TSH levels shot up to 17 and I felt like death though now a bit better. I've thought a few times about 'what's the point' of taking thyroxine but realise with my problems I'd be a lot worse off without them plus I'd put on weight without them. My advice to anyone with thyroid problems - take each day as it comes, keep on keeping on and always remember there's someone out there a lot worse off than you - hopefully.


Mrs. B 4 years ago

I stopped taking thyroid meds called "Thyroid" because I got this irregular heartbeat. All thyroid meds have this side effect. I have tried them all. Now I am taking Thytrophin PMG and one drop of supplemental iodine each day. My irregular beat has not completely gone away but it is just worse in the early morning. I realize I have to go back on the meds eventually but would like to give th Thytrophin a chance. I have to find a better doctor. He is not helping me with my main issues. Will keep you posted on the Thytrophin PMG.


Mandy 4 years ago

Ok at 14 i was diagnosed with bipolar type 2 and hypothyroidism while in a psychiatric hospital for depression(having to do with many family problems in my childhood), at 16 i got pregnant and stopped taking my bipolar meds (Abilify) and in all honesty really have been fine since, I'm 19 now if that gives you any indication of how fine i've been since then, seriously no mania or extreme depression. As for my hypothyroidism i stopped taking my levothyroxine 0.125 mcg once daily and half on weekends? like my doctor had told me to over 2 months ago. I feel the same as i did while on it and i haven't had a blood test since last spring. I maintain normal weight i don't eat overly healthy, i don't really exercise too much more than chasing my daughter around and playing at the park every couple days. I'm just not seeing the point of taking it or getting blood tests and what not if i'm feeling the exact same. I have lost all baby weight and i'm back to my normal weight of 125 and i stay pretty close to that again i don't diet. my hands are usually cold but it's winter, i smoke, and i don't put the heat higher than 60 in most rooms of the house. I have chipped nails and i can peel off pieces of them at times but i work with machinery and high water pressure sinks at my job which i would assume breaks anyones nails. If i see things getting out of whack i will go back to my doctor but until then...i am good as ever i guess. I don't think it's gone or anything just wondering, how could not taking levo. affect me in the long run if taking it hasn't helped either?


Jaime 4 years ago

Ive been on meds since June. My levels were 65. They started me out at .25. I'm up to 125 and it's still not at the right level. I'm so frustrated. They move my meds so slow. If the doctor felt how I felt they wouldn't just drag their butts! I sleep during the night. I can't function without a 3 hour nap during the day. I never have any energy, mood swings, foggy memory, bowel trouble, extreme weight gain. I'm so tired! I'm beginning to think my dr doesn't know what they are doing! I feel worse than when I first started meds!


octapussyprime 4 years ago

im only freaking 12 and i have active thyroids and ADHD and i give alot of people a hard time because they force me to do things that help me and hurt me and my family at the same time.


crazybeanrider profile image

crazybeanrider 4 years ago from Washington MI Author

Taking a thyroid medication doesn't always mean you will lose weight. Check out hypothyroidism at the Mayo Clinic website. excellent source of information.You may get lucky with the Vitamin D and have good results on your next blood draw. A low dose of medication may do the trick for you with weight loss. My advice is good communication with your doctor, know your results and what you are taking. Hope this helps some.


Eric_7 4 years ago

I am on a low dose of synthroid for subclinical hypothyroidism. The only time I don't take it is when I want to go out drinking. I skip it for a day or two and avoid the awful hangover that synthroid seems to cause. If I don't skip it, then I get bad hangovers even with very little alcohol consumption (e.g. 2 glasses of wine).


nikkimiller 4 years ago

I'm a 24 year old female who was just diagnosed with borderline hypothyroidism. About 5 years ago I came off of Yaz birth control and since then my hair has continually fallen out to the point where I've lost about 80% of my once thick, beautiful hair. I believe the birth control pills may have contributed to the change in my thyroid. Last week I just had blood work done and came to find out that I am extremely deficient in Vitamin D (14 out of 60) and my doctor believes this may be the reason I am showing a TSH level of 6.35 instead of the normal range of 2. My doctor has me prescribed to 50,000 units of Vitamin D 1x per week for 3 months and then wants to do another blood test to check both my Vitamin D and thyroid levels. If my thyroid is still too low then she says she will want to put me on a low dose of a thyroid medication, but I'm not sure which one yet. One of my concerns is that I am only 100lbs. @ 5'4" and cannot gain weight, but the thyroid medications may cause me to lose more weight which I cannot afford to lose. Is this a possibility? I'm very much unfamiliar with the way hypothyroidism works, and hopefully someone can help fill me in with some information. Thanks so much in advance.

-Nikki


Lisa 4 years ago

I too take levrothyroxine for hyprothryoid (Hashimotos), however on the weekend, I use Mode 3 on my Q1000 low level laser on my thyroid in lieu of taking my thyroid medication and I feel great. There are many success stories with use of a low level laser. See:

www.qlaserspma.com


crazybeanrider profile image

crazybeanrider 4 years ago from Washington MI Author

scribblecoach-Thank you so much for sharing your trials with thyroid disease. I know it doesn't help when you have bipolar and thyroid condition. I am very concerned about meds, it is important to keep healthy, which I try to do with healthy food and exercise. I am happy that you are on the right path. I am so glad you posted, I feel less alone :)

levothyroxin-The moral of your story hits it right on. As I've mentioned before, finding the right doctor as well is so important. And vigilance is a good thing. Thank you for sharing, it does help others.


levothyroxine 4 years ago

got diagnosed 20 years ago after Losing my voice and sore throughts for a few years. I was a dancer so everyone thought that i was not eating. my behaviour got very high and had nurses that i taught their children think i was taking illegal drugs. I started to hum and rock all the time. then when driving to a workplace that was an hour away became unable to keep alert to drive. the littlest thing made me exhausted the goiter started to grow - i started teaching dance by sitting on the floor.... lost all work and many friends. Had my thyroid radiated took a liquid and had radiation treatments done. I then lost most of my hair and eylashes. felt crazy with anxiety and angry that i lost what i loved to do.

became very depressed and then started gaining wieght; skin issues - large pox all over body and all kinds of other rashes for a few years. very ugly and total opposite from what i had looked like before. Family now thought i was a drug attic and bi-polar....lost touch with them.

kept away and tried to get back to normal - was put on every anti-depressant around but they didn't work almost felt like i stared at the wall for seven years. took a while till i got leveled out with the right dose then was able to work out and slowly my brain started to function again. i went back to school and then was out there working. had to have some lazer treatment to contact the acne scars but now that they are faded look more like my old self. felt great normal weight but can never workout to the extreme or do anything to extreme- eating - only can have a drink- need to watch what i eat and have to sleep. when there is stress and i dont eat -it all starts over again and i have to get back on track. now in CBT to deal with all the garbage of misconception from family and friends and my tainted self esteem. But dose was too high this last year for one year and didn't sleep for three days in a row till slept, paranoida and anxiety took a while till released my dose was off.

moral to my story. have to really work at getting the right dose and then stick to a very balanced life with the right amount of exercise and the right food. Just have to care about keeping your self on the right track AND now ive realized that i need help from others to keep me so that i will follow a regiment. hope this helps others.


scribblecoach123 4 years ago

i never post to anyones forum. but i can relate to you, i also am bipolar, and have a generalized anxiety disorder.one has nothing to do with the other, maybe like you i had it when i was a child. one month i spent in bed and wasn't able to be with my grandbabies because i had no energy and was very weak. at first i thought maybe i was depressed, but i felt like all the energy was sucked out of me. i waited like this until mothers day of this year. after my son took me to see my mom up by philly, i said to him on the way back home drop me off at the emergency room. It was there that i learn that i had a very low thyroid. so i follow up with the Dr. n they did more bloodtest and then put me on the synthroid. i too, dont see any difference and its been like 6 months already. he says in 3 more months after blood test he might increase it. just like u i already take all these other meds for the bipolar n GAD. and i hate taken pills. even for headaches, but i also see myself laying around letting life pass me by and cant do anything about it because of lack of energy due to the thyroid. but i raised 4 gorgeous boys, and have 5 beautiful g.babies that are like my own.i am still young i shouldn"t be feeling like this. That is what makes me take that extra pill. what else can i loose. not taking care of your thyroid can be dangerous, not to mention the ugliest part, The Goiter. I just had to send u my comment cause when i read it, i could swear u were me. good luck to you


crazybeanrider profile image

crazybeanrider 4 years ago from Washington MI Author

Hi Martina- I know it is frustrating when your doctor blows you off. I went through a few before I found someone who actually listens and explains my thyroid numbers to me and adjusts accordingly. Sometimes if you take to much you will feel like crap and if not enough you get the same result. That is why it important to find someone who will listen and TRY to find answers for you. It sounds like a different doctor might help, as yours doesn't seem to be listening.


Martina 4 years ago

One more thing, I also used to have problems with heavy bleedig like a month long and have a polyp, they put in coil which helped a bit, now it's out as I want to get pregnant.

Anyway, I am also aneamic, and taking iron is just taking another pill, which I hate as iron causes stomach cramps but it helps when taken with orange juice. I find it hard to stick to iron for some reason. The doc says it's my fault I feel tired as she attributes it to lack of iron. Again, the doctors are not helpful and I am feeling awful. I don't know what to do.


Martina 4 years ago

I've been on Levothyroxin for 3+ years and like others saying it doesn't make difference. I still feel tired with or without, only now when I don't take it I feel worse within a few days. I usually take it regularly unless I run out and have to wait several days to have my prescription filled. The tiredness, fog, loss of memory etc. is really awful. No weight loss either. Have gained a few pounds but nothing dramatic. I went back to doctors but they just do a test and say the result was ok, and that's where it ends. However I do feel tired and lightheaded, can't concentrate, and remember. I got me a pill box because I also take warfarin and take meds every morning. I wonder if there is a light in the end of the tunnel. Also understand co-workers etc, don't see broken arm therefore they think you are fine. It's not fair they make you feel worse just for going to doctors.


crazybeanrider profile image

crazybeanrider 4 years ago from Washington MI Author

Hi Patricia- Thank you for sharing your thyroid experience. I find it does help others possibly understand their thyroid condition just a little bit more. Thanks for the links, and I wish you the best success with your testing. It is always a good idea I believe to research all methods of treatment.


Patricia 4 years ago

I want to first say Thank You to all of you for educating me by telling your stories. I was just recently diagnosed for possible/positive Hurthle Cell blah blah from the FNA biopsy and I spent days visiting sites that will tell me I don't need to completely remove my thyroid. Well, after meeting with the endocrinologist this past Monday, he strong suggests I have the surgery immediately because the nodule is 3/7 ct and I only just discovered it in Sept. Blood work negative. So, I found information about a clinic in SanFrancisco that will do an extensive molecular Gene Expression (dna testing) to accurately diagnose if cancer or not (or at least 95% accurately). The company is Veracyte and test is Afirma Thyroid FNA Analysis. I know that a lot of you no longer have your thyroid and the problems to live without it. I truly searched for an alternative and found www.ncrf.org and watched the video from Fred Eichhorn. It is not just for cancer patients. I also went to www.celect.org and ordered the supplements. I don't want to be afraid of having this removed or living without my thyroid and thanks again for your honesty and stories. You helped me.


crazybeanrider profile image

crazybeanrider 4 years ago from Washington MI Author

Thank you Kalina for your input about bipolar and thyroid disease. Yes I agree doctors throw a prescription around like candy and it is annoying to say the least.


Kalina 4 years ago

I once was diagnosed bipolar, then I found out they were feeding me all these medications and I wasn't even bipolar (I had celiac disease). I think doctors diagnose people bipolar automatically without truly attempting to find the real problem. I also have thyroid disease, I would suggest taking an organic thyroid medication because synthroid doesn't work for me either.


frommumbai 4 years ago

For treating the symptoms, I have found that accupuncture based on SUJOK KI therapy is the best as it reduces the symptoms one by one.Not many are aware about the efficacy of SUJOK KI treatment on various ailments for which we regularly pop antacids/nsaid unknowingly.


frommumbai 4 years ago

This thing about the effectiveness of thyroid medications ALLOPATHIC/HERBALis all made up by the pharma companies.


crazybeanrider profile image

crazybeanrider 4 years ago from Washington MI Author

Hi Steph, Thank you for your input. I see a GP, never been to an endo as of yet. But I would imagine some people need more than just a GP. But your input is appreciated.


Steph 4 years ago

Why don't y'all just go to a regular GP doc than messing with endocrinologists? I've never been to one myself in the 12 years I've been dx'd hypo. I just make sure to find one that will prescribe Armour thyroid and look at how you feel and not just lab numbers(you can search thyroid top docs and find a list). Once you're on it most other doctors won't take you off of it. (I've had to "shop around" and fire a few uncooperative doctors lol).

I can call my GP and more than likely get into to see her that day or the next.

Maybe I'm just biased against endocrinologists? *shrugs* I've never really heard that must good about them. From what I heard most only prescribe Synthroid/Levoxyl and are very attached to labs. I guess I just don't see the point.


crazybeanrider profile image

crazybeanrider 4 years ago from Washington MI Author

nen some people take mere handfuls of pills, so taking another that may or may not work is a tad overwhelming for some.

Ms V. My sister was diagnosed at 10 with a thyroid disorder and she has not had surgery. She takes synthroid for her condition and it helps her very well. She is now 40 and does well. She takes one small pill for her thyroid. But if you have something more serious than just thyroid disease your doctor should be able to answer every question you have. Please be forthright with him and do not be afraid to ask questions.

JRJFon-doctors I believe have a nice way of blaming everything on anxiety and depression. Do not give in, keep going to your doctor until you get the answers you need. Your dose may be to high for you causing you anxiety, but ask them to be sure. Insist or change doctors if they will not listen. You should not have to suffer with anxiety, and if it isn't the meds talk to someone about relieving your anxiety, a therapist perhaps may be able to help in that department. I wish you lots of luck. be persistent.


JRJFon 4 years ago

I have been taking levothyroxine for about 2 yrs now. I am wondering if it is causing my anxiety. It first happened a few months ago. I started feeling foggy & weird/tired lazy. Went to bunch of Dr and they said depression/anxiety. Turns out my thyriod levels were low. Upped my dose & was feeling better til last week. All those feeling came back its been about 4 mos. Going to get lab work done this week. I hate feeling this way. Makes me feel so strange, hard to funtction, ut I try to ignore it. I dont want to be on these meds


Ms.V 4 years ago

I might be diagnosed witht thyroid disorder and im only 12 im bloody scared How many pills do u take everyday?

Will i need surgery?

If i do how ling will it be?

will i have to stay over at the hostipal without my family?

These are the questions i have!!!!!!!!!

please awnser make me feel better Please


nen 4 years ago

this person is crazy. thyroid meds keep your heart, digestive system, brain, breathing and so much more working. one little pill. overwhelming? now i

ve heard it all..


crazybeanrider profile image

crazybeanrider 4 years ago from Washington MI Author

Heather that is fabulous news. Hopefully this new set of doctors are going to get you on the right track, I wish nothing but the best for you. I would love to hear how you are doing in a month.

Sandy you have excellent points. I thought I might have a gluten intolerance, and gave up gluten on my own. Lost 37 pounds in three months. Along with an increase of synthroid. Felt much better. But it is always a good idea to be proactive with your doctors instead of just taking that prescription. I am in total agreement with you Sandy, do your research, and find answers that will make you feel better.


Sandy 4 years ago

I have read so many of these comments. Refer people to the resources that are out there already, the only common link that you are not seeing in still feeling miserable is could your common thyroid issue actually be a whole other disease itself. Go out and research celiac disease. It has been known to have a causal link to thyroid issues, depression, weight gain vitamin deficiencies and a host of other nasty side effects that the average person just brushes under the carpet. Not to say that every thyroid patient has it but those people that have one auto immune disease over time actually have more than one. Before being diagnosed with hypo thyroid issues I had no idea by vitamin levels were off y cortisol was through the roar and the depression that I struggled with could all be linked until I took my health into my hands and was honest about writing down all of my symptoms and looked at everything together. I was diagnosed with celiac disease a year ago and have been gluten free I will tell you. No more depression, losing over 50 lbs and finally have enough energy to chase my kids around. I am not saying this is what everyone struggles with just push back on your doctor instead of just letting them write you script for more medicine. The diagnosis is a blood test to see if you carry the gene and one to see if you have gluten in your blood. Then they do a colonoscopy but that is only if you want a definitive diagnosis. The gluten in your blood ISA good sign since normal people will not have this. Then you remove gluten and that is not and easy task. You have no idea how many things have it in them and you start living happy and healthy


Heather 4 years ago

Well I had my appointment with the new Dr. She checked my blood results back to 2008 and then asked me why I was on the Thyroid medicine? She said my numbers looked fine back then and now were quite low 1.25. She is a resident and hadn't heard of the medicine I was given so she asked the main Dr. They figured out it was a more natural thyroid medicine then synthetic one. She did another blood test, took me off the medicine and wants to do another test in a month to see what my numbers are. It has been about a week and already my hands don't hurt as much.


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crazybeanrider 4 years ago from Washington MI Author

Leah- My mom can't take any generic of synthroid or she gets so tired she can barely move. So you're right about everybody being different. GOOD communication with your DR is essential as well.


Leah 4 years ago

Whoops, I'd just like to add that for me the problem was Synthroid medication. Didn't work well for me, too many side-effects. Things got much better when I changed my dosage and switched to armour thyroid. Everyone's body is different, and using just one drug to try to treat all hypothyroidism patients is foolish.


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crazybeanrider 4 years ago from Washington MI Author

Thanks Meganl for your comments, they are always good to hear, it sounds like you are doing good.

Hi acuriousmind365-Wow you have a unique problem. I would try taking the thyroid med on it's own with water only, wait an hour and go from there. I always take my thyroid med an hour before anything else. Some say it makes a huge difference, others say not so much. But my doctor did advise me to do it this way, It wouldn't hurt to get some info from your doctor or pharmacist, as they usually recommend an hour between thyroid meds. Perhaps there is something in the toothpaste that is making you sick, so I would wait and see what happens, and talk with my doctor, it can't hurt to get as much information as you can from those that are willing to educate you more on your thyroid med. I hope you find the right answers soon. Do let us know how it goes for you.


acuriousmind365 4 years ago

Hello crazybeanrider and others. I am new to writing on a Hub or even a post but I found your comments very helpful and interesting so I wanted to add a few comments of my own and ask for your help.I am taking Armour Thyroid 60 mg. I also have a soy and peanut intolerance verified through a skin test. Soy allergies cause tiredness and head fogginess along with many, many other symptoms. A good resource about soy products and allergies is the book "The Whole Soy Story." Within 20 to 30 minutes I end up having to take a 3 hour nap if I eat the wrong type of soy--usually soybean oil. Toothpastes are often made with soy products. I take my thyroid pill at 5:45 am. I have been getting really dizzy and sometimes I have to "lose" my breakfast before I feel better and my head clears and my dizziness goes away. I am beginning to think if I brush my teeth just before I take the thyroid pill that it causes me to become dizzy and just not feel well for about 7 hours or more. In reading over your posts, you mentioned to only drink water when you take the pill so I am thinking I should wait to brush my teeth for at least an hour. So between the pill and the soy in the toothpaste - I'm not sure that's the cause of my dizziness or not. Any info you have would be appreciated. p.s. Soy products cause me to have throat and neck issues - so the lady with that problem might consider a soy intolerance.


meganl 4 years ago

Hi Im taking 100 mg of levo, & I guess I dont feel any difference, I weigh 125lbs..... My hypo has came and gone.... weird.


Heather 5 years ago

I went to the pharmacist and asked about other throid medicine they carry and they said it was the only one. I am in Toronto and when to Shoppers Drug Mart. Anyone else have this experience with them? I had heard that different ones react differently. Walmart says they have to order it???? it is a comman medicine why would they have to order it?


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crazybeanrider 5 years ago from Washington MI Author

Hypo-Sandy-Thanks for sharing, I so agree searching for alternative methods to fix your thyroid. I am in the process of looking for no prescription options for my bipolar. I am worried about my kidneys. As far as your question I would ask your doctor or even a pharmacist might be able to help. Looking forward to any updates....

Leah- Don't give up. Keep looking for a doctor who understands your symptoms. If it is depression there are meds that can help. I started walking everyday during one of the worst depressions of my life. I cried while I walked, but kept telling myself it was my way out of depression. I wanted more than just a pill. If you can get your depression under control, perhaps you can get the right dose of meds for your thyroid. I take my synthroid and notice very little either way, but after trying to lose weight I lost 37 pounds in less than 3 months. So hang in there and communicate your feelings to your doctor.


Leah 5 years ago

I'm the same, I always forget to but even when I don't, it doesn't make any difference. I also have all the symptoms for it, but I an beginning to think my depression is more about the fact that I am always tired and can't lose any weight when I want to. Wish there was something that worked better but oh well :(


Hypo-Sandy 5 years ago

interesting to read all of these entries. I do not know much about an underactive thyroid, but i have one. I'm on 25MCG of Synthroid since end of February. After about 1 month I could feel the difference of more energy. Before, i had to have a bottle of 5 hr energy beside my bed in order to get out of bed! no, i have not lost weight either but i can get out of bed and function all day. i am on the far side of menopause and some symptoms of menopause are similar to low thyroid.....low energy, weight gain, brain fog and so on. Other than that, I only take a prescription vitamin D since I was very low in that. I take vitamins (natural/raw), probiotics, fish oil and that helps with energy most definitely. I don't like to take prescription meds, so I'm searching for a safe acting alternative. I found something called Thyroid Assist on Native Remedies website that I think I will try. My question is, is it ok to take both until I wean myself off the prescription? I am due to go back to Dr and will ask him that and hope he gives me an honest answer. Will update when I know more..........


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crazybeanrider 5 years ago from Washington MI Author

Hi Heather, I am sorry you are having such a hard time of it. Perhaps a different medication or dosage will help. Your new doctor may be able to get things straightened around for you. That is the worst part about meds, they are supposed to make you feel better, but often times they make you feel worse, so you either give up or keep trying to find answers. I hope you find answers.


Heather 5 years ago

I have an appointment with another Dr. at my old Drs office. Another symtom I am having is joint pain. If I take more medication I get headaches. What is the point of taking it if you feel worse then when you don't take it.


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crazybeanrider 5 years ago from Washington MI Author

It is all very frustrating to say the least. I went for so long taking then not taking my synthroid because of weight gain or other exhausting side effects, but eventually found a doctor that gave a damn about my condition and began to monitor it. I had to go through a few doctors to find one that would listen to my complaints and actually do something about them.

As far as taking it for the rest of your life that would be up to you and your doctor. I imagine it is a lifetime regimen. Wow 4,000 dollars to get well, that is so unfair. Only the rich get to feel good. What crap. I would continue to look around for a doctor that concentrates on the thyroid, ask around, ask your doctors office for a referral.

Keep at it and don't give up until you find someone who can help you. Someone YOU feel comfortable with and trust with your condition.


Frustrated 5 years ago

I no longer have a thyroid. I have been taking levoxyl for 10 years. My Dr. lowered my dosage a month ago because my T3 and T4 were normal, but my TSH was low. I have gained pound everyday this week. It's ridiculous. I feel exhausted all the time, my libido is completely gone, I am depressed when I wake up everyday, I have a difficult time remembering things, etc. I told my Dr. She said it is from my lack of sleep. ARE YOU KIDDING ME??? I have been sleeping 7 hours a night and gaining weight like crazy!!!!!!!! I am angry, frustrated, did I say angry? I feel hopeless. The Hotze Center seems like a great place to go because they treat symptoms, but wait...THEY DON'T TAKE INSURANCE! Yep, that's right folks! You will pay at least $4,000 just to be seen and assessed. What do you do?


Alice 5 years ago

I had my thyroid removed 3 yrs ago, I am taking throid meds lovozyl. do I have to taked this meds for the rest of my life? I was told i have too. I can't seem to lose weight.what can do anything natural?

Thank you


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crazybeanrider 5 years ago from Washington MI Author

kk92- I have had nothing like that happen to me, which doesn't mean it can't. I would most definitely look into it deeper. Because it sounds like the med is causing the problem. There must be something your doctor can give you that will not cause this thickness in your throat. I wish you much wellness. let us know how it turns out. Keep at it.

KT-Thanks for the information kt. Research is the best policy, if one med doesn't work let your doctors know, so they can try something else. Communicate to them. Be very forceful about your wellness.

Hi Sara- Sometimes it takes time for the med to work, and it causes a side effect, it may pass, but as I have mentioned many times, the dose may be wrong, so please keep your doctor informed, so they can adjust as needed. Don't be passive about how you feel. They need to know.


sara 5 years ago

I am 18 have hypothyroid and take 75MCG of Levothyroxine. To be honest, I feel so deppressed and I don't feel like studying, talking to my friends, or going out. I just isolate myself...man i seriously have no life :(


Kt 5 years ago

Wow, that's really too bad. I have a friend who can't get hers regulated either :( I guess I take for granted the diagnosis and treatment! I was diagnosed with hypothyroidism about 3 years ago. My TSH levels were at 75! 75! Can you believe that!? And I had no idea! I wasn't tired, but boy, in the last few years I had packed on the pounds and couldn't seem to shed them. But they put me on levothyroxine and my TSH immediately dropped to about 9 which they still said was high so upped my dose to 125 mcg and now I'm at a level of about 2 for my TSH! I also started eating better and lost 70 pounds. Here is the problem- once you go on a drug for your thyroid- if you actually DIDN'T need it- it would kill your pituitary gland which creates your hormones so no matter what you need to take that drug, because either you need it- or you didn't need it and now you do because it killed you hormone producing gland, so you need to create false hormone stimulators with the drug- either way- if you've ever taken it you will need it lifelong now!!!


kk92 5 years ago

hello. my question is to find out if anyone has had any kind of side affects other than what is shown on the medication pamphlet. I took Levothroid for a few years and quit. I too got tired of taking so much medication (for other issues) and thought this was one I could do without, especially since I felt no different either way. Plus, I had developed a cough and choking/tickling in my throat. Sometimes I felt like I was going to choke to death. My GP even sent me to a ENT to check things out. He said I had a throat muscle that was prominently enlarged. He then sent me to a specialist who wanted to stretch my esophagus. I didn't do it. These "side affects" subsided after a few months but happened so gradually I didn't even notice until, I had to admit to my GP that I had quit taking the Levothroid and she ran a full blood test to find out what my T3 &4 was (they were both a .25 off from what is considered normal - one lower and 1 higher)and said I had to go back on the med. Guess what, after almost 2 months of taking them again, my cough is back as well as the tickling/choking/thick feeling in my throat. I see her again next month but think I'll be laughed out of her office if I tell her because none of the side affects mention anything like this. Anyone had anything like this happen?


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crazybeanrider 5 years ago from Washington MI Author

smash,Jaybird02,Meganolia,franciscondine,Heather- Thank you all for your comments and sharing your struggles with your thyroid medications. I have learned having open and honest communication with your doctor is extremely important. They need to know exactly what you are feeling or NOT feeling.

My dose was recently increased to a 100mcg and I lost 37 pounds in 3 months. I was shocked. I mainly just lost my appetite and haven't felt like eating much. So I have to make sure I eat right.

But franciscondine has good information to pass on. It is hard to tell how long a med will take to work, it is different for everybody, as you can see from all the comments. Synthroid works different for everybody as this list of comments attests to.

Please just speak with your doctor and let him/her know what you feel. You may need an adjustment, if just a small one. Again I thank you all for sharing, and opening your stories for everyone to read, as it helps each person with the information you have. You all deserve to be well so stick with your doctors, find new ones if you don't like them. Get the treatment you need and find wellness.


Heather 5 years ago

I have gained weigh since going on my throid medicine. I was losing weight before. For a while it helped me sleep now I can't sleep again, my right eye twitches and I feel like I did before I was on it. I have tried naturalpath and that did the same thing. It worked for 2 months then stopped. I ca't afford all the ntaural stuff. The presriction is covered by my drug plan at least but if it isn't going to work what is the point. If I am going to have all these same symptoms and gain weigh on top of it all what is the point of taking it. My Dr. just got laid off as well so now I have to hope she didn't put my file in storage and the Dr.s still there will see me.


franciscondine 5 years ago

@Meganolia - do you check in with your doctor or endocrinologist often? It sounds serious! In my experience, it took several months to get the exact dosage down, and many, many trips to the endocrinologist, and many, many blood tests. Unfortunately, the body needs time to adjust to each dose that is tried out until it finds the right one.

Thank you for this article, crazybeanrider.

I've been taking synthroid, or a generic equivalent, since I was 12. Now I'm 25.

At first, I would skip doses here and there, but since I was still at home then, my mom would always come remind me. Nothing too bad happened. However, when I went off to college, I began lapsing on getting refills or checking into the doctor's office for updated prescriptions. After forgetting to get a prescription after my last refill ran out, I went about a three weeks without taking my meds, and that was a huge mistake. My hair began getting brittle and dried out, I began eating very infrequently (only once ore twice a day, and fairly small amounts), but still felt full all the time. I slept too much, felt hazy much of the time, and had very spaced out bowel movements (about once every 2-3 days!). It took a few days to rectify these feelings once I began taking them again

Now I take it every day. I bring along extra "just in case" pills when I go away from home to make sure I have enough for every contingency. It's made a huge difference in my life, and I'm glad that taking a little pill gives me the regularity that I need to live my life. I feel that it's a small price to pay--but maybe that's because I've spent over half of my life taking levothyroxine.

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH000068...

Again, thank you so much for sharing your experiences and your thoughts, crazybeanrider! This thread has been very emotional to read, because so many of us have had to deal with the ups & down & uncertainties of having various thyroid disorders. It was tough having to accept this lifelong illness as a child--but now that I'm an adult, I realize that you can take charge of your own life, while still taking daily medicine.


Meganolia 5 years ago

I found out recently I had Graves Disease. After trying the radioactive iodine, I went into severe pain in my body being without the PTU, which suppressed my overactive thyroid. I had surgery for the removal on July 29, 2011. It is Sept 8, 2011 and I do not feel any different. I am still tired, depressed and inactive. I have insomnia and I do not go anywhere if I can help it. How long does it take for the Synthroid to work? I am so tired of being tired. I was told I would feel wonderful after the surgery. any comments would be appreciated.


Jaybird02 5 years ago

Hi all,

Part of my thyroid was killed off from radioactive iodine back in january. My ex finally was able to convince me to take this step. Before that I was on a hyperthyroidism suppression medication, and if I don't take it my body basically paralyzes due to my thyroid over consuming magnesium and potassium. Now that part of my thyroid is killed off I went in to hypo and started taking synthroid. As much as I hate it I take it because I feel better. I can function and have the energy to do what I want to do. I know some of you refuses to take synthroid. But you are playing a very dangerous game on your own body. I suggest those of you who refuse to take the meds to seriously consider taking it. I take it first thing in the morning when I wake up, and wait half hour before I eat or drink anything. I'm only 28, and it definitely changed the way I would like to live my life. But guess what, it's not the end of the world. Life goes on and just keep doing what you're doing. When life gives you lemons make lemonade out of it. Taking care of yourself should be a priority.


Smash 5 years ago

I am 25 had thyroid removed at 17 and now on 150mcg replacement. I do know, that I traveled once and forgot my meds and thought I would be fine. I am a fairly healthy, fit 25 year old. I was out of meds for 10 days, in another country so I couldn't just have my doc call in a script. I thought I would be ok... First day no meds... fine, 2nd day, ok starting to get sleepier in the evening by the 3rd nd 4th day, I was tired, I was cold and very very cranky. 5th day I slept. by day 6 I am overdosing on caffeine just so I can hang out with my family, and then came the nausea, and dizziness and cold chills. I was able to enjoy some of the trip, I wasn't bedridden just ingested a lot of caffeine to be ok. That is my personal experience without taking my meds. I take them every morning 9am on the dot. FYI if you have thyroid issues and you are pregnant, you MUST take your medication. It is so dangerous not too. I suggest just taking it, whether you feel your body being healthier or not, it most likely is. The meds regulate your hormones metabolism, and all that fun stuff, I cant say I "feel" it working, but I have felt life without it, and wasn't a big fan of that. Give it a shot, ,your body will thank you


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crazybeanrider 5 years ago from Washington MI Author

vicvic12, hi thank you for writing, I would let your doctor know you stopped taking your meds. It may have been the wrong dose or wrong med. With new results he may be able to make adjustments.

I was on 75 mgs synthroid and recently went up to 100mgs, and within 2 months dropped over 25 pounds. Lost my appetite completely. I must say though i don't feel all that healthy. But am hoping that changes.

Healthynow76 I would like to hear more from how you are doing, as I have been sick off and on and have been doing some research as well. please e-mail me at caspersme769 at yahoo.com if you will. I also will look into your links. Thanks so much.


Healthynow76 5 years ago

Hi Crazybeanrider,

Thank You for sharing your story. I was taking synthroid for five years until I developed a sickness last year as a result of taking it. I found out that it only contains one hormone Thyroxine. This is interesting because the thyroid makes T3, T4 and Free T3(stored T3) Synthroid does not support the thyroid and eventually, the thyroid will cease to work at all because of the existence of the one harmone in the system. I also found out from research that synthroid is made up of sodium, which is why they ask you to watch your salt intake. You can replace synthroid by simply taking an iodine supplement since the thyroid hormones are made up of iodine. Which causes me to wonder why the pharm industry would create something that would only partially help you. I think the answer is because they want to keep you coming back for the rest of your life. The doctor's told me that I would have to take synthroid and other hormones for the rest of my life. This is true because they know that drugs cannot cure diseases, they only help you to manage diseases. I knew that there was a better way to help my situation other than taking harmful perscription drugs. So i did plenty of research and found out how to cure the thyroid without taking drugs. Since the thyroid hormone is made up of iodine, finding a pure and healthy form of iodine would help to get the thyroid kicked up and working again. I found out about Kelp and Dulse which are sea vegetables found in the Atlantic Sea. It is healthy and contains trace minerals that the thyroid needs in order to work properly. It is also a great way to lose weight. I've been taking Kelp now for seven months and no longer need synthroid. I have more energy and feel GREAT! Another natural food that helps nourish the thyroid is the coconut. Particularly Coconut Oil helps the thyroid and is an all natural weight-loss treatment that helps the body to shed unwanted pounds. I believe that hypothyroid is simply a condition of mineral deficiency. Another note, Perscription drugs suppress your immune system making a sick person sicker! I'm speaking from personal experience.

References:

http://www.kelpbenefits.net/

http://len7288.hubpages.com/hub/Health_Benefits_of...

http://www.thevirgincoconutoil.com/articleitem.php...


vicvic12 5 years ago

I am really totally confused....for the last few years i have been taking thyroxine ....colestral 40 and now been told i have diabetis and must take 2 tabs a day.....i have stopped taking them all this last three weeks and at the moment feel absolutely no different..too soon... maybe...told just a few and have blood tests lined up again in one month...do i tell the doctors or see first what results come in....someone realistically tell me what i should do?


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crazybeanrider 5 years ago from Washington MI Author

Hi Izzy-I know what you mean exactly. You have to take the med or it will make you sicker, but at the same time the side effects are horrible. Is there a different brand or perhaps a different dose he can give you? My doctor started giving me B-12 shots I was so tired and that has helped some. I started walking even if I have to drag myself and that helps some as well. Maybe talk to your doctor about B-12 shots for a boost in energy.


IZZY 5 years ago

had my thyroid taken out 5yrs ago,they left a very small piece in there,mine was cancerous. Ive been on 6 different meds,been to a dr who deals with thyroid problems,nothing helps,Im always so tired,feel like m IM IN A FOG CANT REMEMBER THINGS,ihate this,If Idont take the meds for a few days I feel great,like my old self.my Dr. said if Idont take it my heart,brain,liver will swell Illgo into a coma and die,Ihate how Ifeel on the meds,the Dr said it would take along time for these other thing to happen,Ifeel like taking my changes,Ihate living the way I feel on the meds ,Ive tried everything Im just to tired all the time I HATEIT,FEEL MUCH BETTER WHEN iSTOP TAKING IT,DONT NO WHAT TO DO


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crazybeanrider 5 years ago from Washington MI Author

I recently had to go up to 100mg because I somehow am anemic now. Also getting B-12 shots. My thyroid levels were low. I felt drained but chucked it off to my bipolar meds. I am finding I can do with either. Trying to do so only messes with my rhythms. I hope you guys get back on track very soon.


SoNaughty 5 years ago

Oh yes also my muscle has been effected as has memory etc and I have had a full hysterectomy last year ! Apparently this due to me NOT taking my tablets !! So I need to do something ASAP !


SoNaughty 5 years ago

Hi everyone, well I have not been taking my med for awhile - mostly cos I always forget! But this morning I have read a few posts and websites and have to get my act together a take them !! I just got up and took 400mg and will Do this again tomorrow ! I too resemble a marshmallow ! Memory slow As is my voice hoarse, which I hate ! I can't cope with my family or the issues that they cause ! I am so BAD for not taking them ! I have now set my alarm on my phone so I can start another regime that will help me back on track! I should return to docs for a blood test but I know he will be FURIOUS that I have gone off them again!


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crazybeanrider 5 years ago from Washington MI Author

Thanks shady lover for your input...I had bipolar way before I had a thyroid condition. My thyroid was lithium induced. One thing I notice when my thyroid is off, I am extremely tired to the point of sleeping 18 hours a day. I know thyroid can mimic bipolar, but I from extensive experience and journaling I can tell the difference. Thanks for reading and your input,it is appreciated...


shadylover 5 years ago

I have an underactive thyroid and bi-polar as well and what I have learned is that your thyroid not being treated will make the bi-polar worse. I have been in and out of the hospital many times for the bi-polar but I didn't know that my thyroid not being regulated is what made everything worse. you should take your meds for your thyroid, it takes a while to start feeling different (even a few months) but you must stick it out if you want to feel better. If your thyroid is in really bad shape you may not have bi-polar at all, it may be the thyroid that is doing it to you. it controls way more than you might think


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crazybeanrider 5 years ago from Washington MI Author

Thank you for commenting.


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celeBritys4africA 5 years ago from Las Vegas, NV

I believe you should take the medication in order to prevent thyroid cancer.


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crazybeanrider 5 years ago from Washington MI Author

I am sorry to hear that. I hope she has a complete revovery.


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howcurecancer 5 years ago

My mom is fighting thyroid cancer....


hbenson 5 years ago

nothyroid states she had a total thyroid removal and doesn't take any replacement hormones? That is impossible. You would HAVE to take something to replace the thyroid function if you don't have a thyroid at all.


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crazybeanrider 5 years ago from Washington MI Author

HI Nothyroid, Thank you for your input. I am glad to hear you are now symptom free. I agree a healthy lifestyle is crucial.

I don't think the blood tests have much affect on exhaustion. It is easy to recover pretty quickly after after a blood draw. Now giving blood as a donor might cause some problems. I have never given blood so I can't really say.


Nothyroid 5 years ago

I had a total thyroidectomy about 9 years ago. My husband had a thyroidectomy about two years before. We don't take Thyroxine. We haven't had issue (weight gain, tiredness, depression etc) but its something we have to keep an eye out for. I think diet, exercise and lifestyle , rest etc is important.

If you are exhausted, isn't blood tests going to tire you more? I am curious about the benefits of regular blood tests.


Alicia 5 years ago

According to my pharmacist you should not take other medications, food or drink (except water) for at least a half an hour following taking thyroid medicine. That ensures the medicine can fully absorb.


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crazybeanrider 5 years ago from Washington MI Author

Hi Logic-I was diagnosed Bipolar long before I had a thyroid condition. Yes thyroid does mimic some of the bipolar symptoms, but to the full extent of which I have bipolar the two are very different for me. I will say bipolar is to easily diagnosed. The reason for second opinions and a battery of tests. Thank you for your input.

Hi Sharon- I cannot say for sure, but lithium may have been the cause of my thyroid condition. I go off the meds because I want to see if it really makes a difference. My main concern is keeping my bipolar in check, and not letting my thyroid levels go to low. Your approch sounds like you might be onto something. Thanks for sharing.


Sharon 5 years ago

If I can interject. I was also on bipolar meds - Lithium, and tum tum tum!!! Lithium lowers iodine levels which eventually dries out your thryoid completely, thus leaves you with an underactive thyroid forever.

I have been on thyroid meds for 12 years. Actually decided to stop taking it because despite taking it, I didn't have an improvement in my condition, HOWEVER, I am doing everything to see if I can kick start my thyroid again. Since mine was caused by shortage of iodine, I am now double clutching on iodine, L-thyrosine and hectic vitamins. It takes about 6 weeks to see if your thyroid starts producing again. I am hopeful. Already started losing weight on the high doses of Kelp (This will not work for someone who has a normal thyroid).

So yeah!! thats my story. (I'm not on the bipolar meds as well as I feel I was wrongly diagnosed. My mania was due to using of rave drugs, so it's more "substance induced psychotic disorder" and NOT bipolar - I caused it myself!! Ok, out..


Logic 5 years ago

I'd hate to be the bearer of bad news, but thyroid disease mimics bipolar disorder. If your thyroid disease is causing your bipolar symptoms you wan't to eliminate that first. Many people do not feel well on t4, you may need a t4/t3 combination or dessicated thyroid. I ended up in the psych ward once due to thyroid disease.


Tigermom 5 years ago

CrazyBeanRider, THANK YOU for your post! I am so fed up w/ my thyroid issues and it is nice to find a post that isn't 5yrs old and has people who are going through the same stuff. I had my thyroid completely removed 6months ago and I have been struggling to find the right dose of Synthroid. Every time I go for labs they tell me I am too high and they lower my dose. Started at 125mc, then 112mc, now 100. Every time they change the dose I feel crappy and I've gained almost 25lbs since all of this started. I've been reading about Cytomel and I'm going to ask my endo about it.

I had cancer when I was 23 and went through extensive radiation treatment (hence the thyroid problems). But I will tell you that what I am going through now is FAR WORSE than the cancer and treatment that I went through 14 yrs ago!!! Thanks for your post and thank you to everyone for your comments as well. It's nice to know that I am not alone. = )


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crazybeanrider 5 years ago from Washington MI Author

Hi Mary- No I am not aware of fluoride-thyroid link. But am curious so will do some research. Thank you for asking.


mary 5 years ago

Have you ever checked the fluoride-thyroid link?


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crazybeanrider 6 years ago from Washington MI Author

HI LuLu- I am going through all kinds of sinus trouble right now. It has been ongoing for years. I am going through all the allergy testing and all kinds of cat scans and stuff. I real feel bad for you, that there must be a solution for you. Doctors just don't seem to want to find the right solutions. I hope you can find the answers because ending your life is NOT the answer for you. Keep looking for answers Lulu. Thank you for sharing here, and feel free to come back or write me personally.


Lulu 6 years ago

The meds affect my sinuses, cause my eyes to go puffy and my skin to go a complete mess. I wake up and my eyes look like two huge marshmallows and my skin is puffy with water retention. I feel better on them, function with much better energy, clear thinking and the like, but I can't suffer with eyes/sinuses/water retention/migraines, I am so miserable I just want to die and think of ways I could do it without too much trouble. So I go off from thyroid med and at month three of being off I am then in bed most of the day and night struggling to think my way out of point a, the sofa to point b the bed.

I have no weight issues either on or off of them but that's probably because I don't eat much in the way of sad. I have a great healthy diet and exercise daily etc but when I am deep hypo then I can't move. I DON'T want to live with misery and pain in my head the rest of my life and look like the giant marshmallow man. it's a catch 22, i'm miserable either way but without them at least my sinuses and eyes don't bother me.


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crazybeanrider 6 years ago from Washington MI Author

Hi lirado, It sounds like you need a new set of doctors. If you are not getting the treatment you deserve I would definitely look elsewhere for treatment. I can understand your frustration because I had a doctor that just kept changing my diagnosis around, do this med, do that med, it went on and on until I was so sick I couldn't get out of bed. He was an a self centered ass. So I had to find a doctor that could fix what was wrong with me, or who cared to get me back in working order. And I did find someone who listens to my concerns, takes appropriate tests, prescribes the right meds, and works with me. So before you decide to forego your treatment, find someone who can help you. Hang in there and get well soon.


lirado1@yahoo.com 6 years ago

I just recent had to have my thyroid removed for a small tyroid tumor but also because I have a condition called Struna Ovarii (thyroid tumor in other parts of the body.) I say all this because one excuse you did not give was that the doctors are driving me crazy. The say one thing and then change it and none of them talk to each other and only are concerned with their part of the body. At this point, I am ready to tell them where to go. So I am also torn between taking medication and to say to H**l with it.


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crazybeanrider 6 years ago from Washington MI Author

Hi Samantha, Thanks for sharing your story. I know it is difficult when you have to take another medication. Having to worry about the side affects. But you could give it a try and see what happens. And if you do end up with side affects you aren't able to deal with then you can go from there. But if you are already comfortable takingherbal method, that is a good option as well. I have to go with what is cost effective for me. I am currently taking synthroid with no side affects. So I am lucky so far. Thank you for commenting, I hope you feel better soon :)


Samantha 6 years ago

Hello everyone... I just got told I have a sluggish, slightly so they say, thyroid.. I hate taking med's to do to so many side effect's from other med's I once had to take... My husband says the side effect one were narcotics not replacement med's.. Still hard to swallow, being I still have all the bad effect's stuck in my head.. I know I need the pill, My doctor worked with me and said If I want I can take a herbal med if I would like, but if in 3 months the tested don't change I need to go on the Syn thyroid.. The herbal med that I used once before when I thought I had a thyroid problem, never had a side effect, and my Aunt is using the same med for her sluggish thyroid... Now knowing that it never hurt me and worked I still am afraid to take them.. See that's were my Anxiety kicks in.. I am on adivan .05 when needed for panic attacks.. Still never tried that being I am afraid of what can happen on that.. So see there is more than one silly crazy person out there that feels the same about taking meds... I am glad after reading this that I am not alone... I will take either the herb or the prescription soon , I know I need it and I will step up... oh and the herb I took and still might take is called Thyroid activator and is found at Natures Sunshine.com I take a couple of herbs from there and there well known and accurate.. I hope this helps, sorry for being confusing and thanks for helping me :)))


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crazybeanrider 6 years ago from Washington MI Author

Hi Daily Rant,

Thanks for sharing your experience. I think it is possible to take the weight off, it just take a LOT of hard work. I have taken weight off, but I also have to watch everything I eat very carefully. I swim, ride my bike, walk and use a mini trampoline. It takes forever for the weight to come off but it is dropping. I think a person has to find what is right for them as far as exercise and eating habits. But not exercising, or moving the weight isn't going to come off. For those who are trying so hard, do not give up, keep trying.


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Daily rant 6 years ago from Chicago Suburbs

Sandy is right. The weight does not "fall off", it's a misconception, but it's a misconception even Doctors have, (read my post "It sucks to be me, well maybe not.") If it was tough losing weight before it will continue even with the meds. But exercise does help if you can fit it into your schedule. I think my thyroid went bad when I stopped exercising so obsessively due to job and family coming 1st. I used to work in retail on my feet all day and then went to the gym 15 hours a week. After I had kids, I had to quit the crazy hours and had no way to spend more than an hour a day a the gym. Now I sit all day long. Before I started taking synthroid I was really tired all the time even after 8 hours or more of sleep. I had my thyroid tested when the symptoms started (tired, hair falling out, no nail growth) and the Dr said I was good at a TSH of 3.5. Finally after the TSH tested 5.5 and they tested my T4 I got the meds after suffering for 3 years. I like taking synthroid because it really increased my energy. But the 50 lbs I put on those three years are still here. I take my synthroid every morning when I wake up and then go to the gym for 1 hour before I have to get my kids up for school and me and my husband off for work. You are supposed to take synthroid on an empty stomach and not eat for an hour.

I really feel a lot better than I did a year ago before I started taking synthroid. Take your synthroid, but forget about it doing anything for your weight.


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crazybeanrider 6 years ago from Washington MI Author

Sandy and Stepherz thank you for sharing your experience. It is important to know that exercise and diet is the main way to lose the weight. I think some people are led to believe that taking a thyroid medication is going to make them thin, or take the weight they gained off. Perhaps it does for some.

But working at it is the only way. It is going to be harder for some than others. Maybe impossible, but persistence is the key. Without it, we accomplish little.


Stepherz 6 years ago

Sandy, I totally agree with you. Being active is good for your thyroid no matter how much you lose you should at least be working out with this problem. I find though that even as active as I am it is still for sure a struggle.. I should not complain. I know there are far worse people with more of a problem the me. I just know that being treated properly should help shed some weight and water being retained more so then not being on a high enough dose. Best of luck to those fighting this, it is definatly on going...


Sandy 6 years ago

I just wanted to say for those people who have made comments about not losing weight while being treated...

Your thyroid medicine is meant to return the function of your thyroid to normal. It is not meant to fix the damage to your body caused by your under-active thyroid, so of course, just because you have received treatment does not mean that the weight you gained will just disappear!

I get really frustrated reading about people who just expected the 100lbs they gained beforehand to disappear because they are now being treated. I have even read people who will admit to over-eating and not exercising, but they still thought treatment would mean the weight would just fall off!

If you were not someone with a high metabolism, or who easily lost weight before your thyroid went wacky, then you are not just going to magically drop the weight after treatment without trying! Now I am not saying that everyone here hasn't actually tried to lose the weight, but a lot of people who complain about not losing weight after treatment don't even try.

All that treatment is going to do, again, is restore your thyroid function. It is still up to you to do the work to lose the weight. I *know* it's frustrating to diet and work hard to lose weight that you you gained through no fault of your own, believe me! but IF you are properly treated with the right thyroid replacement for you, and the proper dosage, then you should be able to do it. I did. I lost almost 100lbs, and kept it off for over 2 years. Then, after years of treatment at the same dosage, my thyroid decided it wanted to work even less. I was stuck in a new city, with no doctor, and could not find a doctor willing to accept new patients. I gained 50lbs back before I could a doctor to see me, get tested, and get my levels sorted back out. I'm back to successfully dieting and losing weight though, down 15lbs again! I've recently started blogging about thyroid issues, and my struggle with them to try and help others, especially with weight loss after a thyroid problem!


Stepherz 6 years ago

I should also mention I am 25 years old now ... lol ... ya my memory is crap ahhaa.


Stepherz 6 years ago

Oh also I am on Eltroxin as well and have been since 15 too .. I am wondering if being on that so long is a bad thing.. maybe should be switching to something else .. Man I just don't know anymore.


Stepherz 6 years ago

I have had hypothyroidism since I was 15 years old.. I had my 1st child 2 years ago.. after having him I was super tierd as usual but way worse.. then it changed after he was around 6 months.. I began to lose weight rapidly and without changing my dose or anything... I just velt anxious all the time. Now he is 2 and a half and I started to feel leveld out and then went low again.. I just went to the doc today for results and he says he needs to double my meds... I was taking 50mcg.. and now just got put on 100 mcg .. I hope I start to feel better. I am by all means still quite small from when I had the rapid weight loss but however do not want to be overweight again like I had been before since I just bought my wedding dress for NEXT summer.... if any of you know ways of keeping this weight off plz HELP.. do you think this pill wiil shed the bit of weight I gained back now that it is a higher dose ?? I just want to fit in my dress next yr lol .. Grr...


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crazybeanrider 6 years ago from Washington MI Author

Thanks Tony for sharing, I am glad you are doing well now. Thyroid conditions sure can be complicated.


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tonymac04 6 years ago from South Africa

I had a sub-total thyroidectomy about 12 years ago and have been on Eltroxin ever since. It has worked for me, thank goodness.

Your experience seems very difficult. I can only say I wish you strength.

Love and peace

Tony


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crazybeanrider 6 years ago from Washington MI Author

Hi Mary, Thank you for sharing, perhaps someone will share your experience. It sounds like you have been through hell.


Mary 6 years ago

I had my thyroid taken out 7 years ago because of thyroid cancer. I've been on synthroid since then and have gained about30 pounds and always feel tired. I have been seeing a chiropractor and he put me on Thytrophin pmg and I stopped taking my synthroid. I've only been on it for 2 weeks. I'm really tired, but I'm hoping once the new med kicks in I will feel better. Is there anyone out there in the same situation as me?


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crazybeanrider 6 years ago from Washington MI Author

Hi Zionsphere,

I am glad that is working for you. But if I went off my bipolar meds I can assure you I would be dead. Over the years I have played that game and it proved unsuccessful. I was diagnosed bipolar long before I was ever diagnosed with a thyroid condition. Yes they mimic each other, but there is a clear difference if you are truly diagnosed. There is no doubt I am bipolar, or that I have hypothyroidism, which I believe I acquired after taking lithium for a few years. Thank you for sharing your treatment option, and again I am happy that it works for you.


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zionsphere 6 years ago from Oregon

I was told by my doctor that if I were diagnose with bipolar and a hypothyroid (which I have been) that she was more concerned about treating the thyroid that the bipolar, because a hypothyroid can mimic the symptoms of bipolar, and often when the thyroid is fixed, the bipolar is fixed too.

I was given levothroid, which did nothing for me. A few months later I saw a doctor who didn't believe in sythetic hormones, and gave me beef thyroid hormones. Those made me have heart palpitations, and I quit taking them too.

honestly, I don't think doctors really know how to treat either condition. And if they do...just like with things such as high blood pressure, they will give you a pill to control it, that you have to take for the rest of your life, which will eventually cause different issues for you.

It's a vicious cycle, and I no longer wish to be a part of it. I take nothing now, and haven't for over 2 years. the best treatments for bipolar disorder, are ongoing cognitive therapy, (which you can do on your own), assertive communication training, (to avoid unnecessary stress in your life), introspective journaling, and a serving of fish a day or a fish oil supplement.

Thank you for sharing your struggles, and being part of the solution.


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crazybeanrider 6 years ago from Washington MI Author

Hi Leah,

Thank you for reading and your impressive comments. All the people who have commented on my hub have shared a lot of good information. People looking for answers, and finding some solutions from the people kind enough to share their experiences. Thank you.


Leah 6 years ago

I greatly appreciate the article. For you commentators, you may have medical issues, depression, imbalances.....but you are the most kindest, thoughtful, sweetest people online. You have so much to offer other people suffering with the same conditions; so keep posting and sharing because there are many people that suffer thru this and can't speak out about it! You are really being used to help others...stay encouraged!!!! Love and hugs. May God deliver you of this horrible condition. I believe.

I have hypothyroid based on lab results. I am taking Levothyroxine .025mg . I am guilty!!!! Lol. I don't take the meds like I should....and you have to take it in the morning, no food for one hour, no walnuts...etc etc....I am not a water drinker when I first wake up....but I am encouraged to do what I need to do now after reading every last comment that has been posted on here.

I also feel these things under my chin (nodules?) That are getting bigger....I have a weird itchy mole on the back of my arm..... So, as a 150lbs, 5"6 31 year old female.....I need to see a doctor....but just don't like the whole process. But.....I am encouraged to do what I have to do. I live in Ohio, about to move to Arizona in a month. Hopefully, the medical help is better there. I make excuses and say "oh, I will wait till I get there to see doctors"...

I want to encourage anyone reading this...anyone that "googled" the subject "should I take my thyroid meds"..... DO WHAT IS NECESSARY and go with yoiur instincts....see a doctor.....spend the co pay....believe in healing.....and don't give up...... It gets hard and I do not dismiss anyones theory or suggestions.... But do what's best before its too late.

Love and hugs. Sister.leah@yahoo.com


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crazybeanrider 6 years ago from Washington MI Author

Hey Phil,

Thank you. Taking the Synthroid is so confusing sometimes. I recently had an increase and find myself in a depression. Don't know if that is related or not. I am very food oriented. I stay away from sugar and gluten and most diary. It causes quite a bit of trouble for me. So I am always on the road for more healthful ways of living. I will most definitely check out your hubs!


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crazybeanrider 6 years ago from Washington MI Author

I definitely watch what I eat. I rarely eat gluten products at all. I feel much better eliminating it from my diet. As far as taking the meds, perhaps there is something else he can give you, or another dosage. It sounds like you need some serious blood work done to find out what is making you tired and sluggish, if it is the drug or something else.

I do agree food plays a large part in the way we feel, sugar, carbs and fats.I also exercise whether I want to or not. Alot of times I feel like I just am not in the mood, but I try to get fresh air, like a walk or a bike ride. Something to get things moving.

babycham I would find a good doctor and get some blood work done, there has to be some answers for you. You should not have to live like that.


babycham 6 years ago

I have been reading up about amalgam fillings (my mouth is full of mercury) and have found out that they can cause thyroid problems and anaemia (which I have as well). Does anybody know, or have had experience with this? I just know I cannot carry on taking these chemicals and still feel so exhausted all the time. Mary-Anne, thanks, but food does not affect me at all.


Mary-Anne 6 years ago

I have hypothyroidism and taking meds, I heard things like soy can interfere with your thyroid medication so I stay away from soy as well as vegetables like cabbage, brussel sprouts and broccoli. Also many people with hypothyroidism can be wheat/gluten intolerance and wheat can cause them to have brain fog and feel sluggish and tired. It's alright to eat it now and then but if you can stay away from it, it's better. Also eat less refine carbs and white base flour products because that really helps especially if you are struggling with weight problems.


babycham 6 years ago

This thyroid thing is a shambles! I HATE taking chemicals - especially as they seem to do little to help me. I am even more tired, listless and unhappy since taking LEVOTHYROXINE. I only carry on taking it because the doctor insists it is good for me, but the whole time my body is shouting out that it does not want it. Before, I was active, energetic - the first one to be out and about. Now, to be honest, I spend most days just lazing around and it is a huge effort even to walk to the corner cafe to buy milk. I don't know what to do...


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crazybeanrider 6 years ago from Washington MI Author

Hi Lisa, Thank you for sharing your experience here. What I have been finding out is lately I have been having really high cholesterol, which the doctor thinks is because I am not taking the synthyroid. That just because I don't necessarily feel completely better there are things that the medication corrects, like cholesterol, high blood pressure example. So I will begin taking it again to see if anything changes for the better.

I am sorry your family is not more supportive and understanding. You know your own body, and obviously the medication has an adverse effect on you. I hope you find the right balance, and dosage that works for you. Thank you for commenting, I appreciate it.


Lisa280565 6 years ago

Hi, i have Hashimoto disease. I ask my endo if other patients feel the same way as I do and she always replies "No". I am so glad to hear you cant remember to take the tablet. I cant remember when I last took a tablet, maybe a year ago or so. I know when I really need to go back on the thyroxine, when Im having a conversation and I can't remember the next word I was about to say. I didn't have the energy to take my daughter to representative netball carnivals so I talked her out of being in the team. i could not go to work, I would be too slow and forgetful. My heart beats faster when Im on thyroxine and I think and talk faster and I rush around doing as much as I can.. anyway thanks for your honesty in describing how you feel. if I was to mention this to my family they would say I was whining. Im australian, we only have thyroxine. I see my endo and go do bloods in about 45 mins and the endo rings me the next day with the amount of mg to take usually 100mg a day but I do pay to have the script filled about $30. I know my main reason for not taking my tablet is laziness.


chuckles 6 years ago

Roxanne,

You are lucky that a pill will help balance your level without having to distroy the Thyroid first. My sister is doing the same as you, but in my casse I found out after I was losing muscle mass and became so weak I could not walk without falling to my knees everyday and finally broke my foot. The Drs. were extremely worried about ny Thyroid condition that my foot remained broken and was not treated for 5 days after I was admitted. I thought I had M.S. and didn't want to know. All I knew was Jerry Lewis had telethons for years and there was no fix. After they totally distroyed my Thyroid, my moods were swinging in every direction because I had to totally reley on a pill to try to get me close to a correct level and my sister just needed small adjustments to hers and had no effect like I was going through. Now 10 years later I have some control over the swings but a lot of times I don't. My pill is now 275 MCG and my sisters has gone down to 005. I would rather be in your shoes while hoping you never have to try mine. Hope this helps.


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crazybeanrider 6 years ago from Washington MI Author

Hi Roxanne,

That's a tricky question only you can answer. For me I find not taking it causes a set of other problems. Like high cholesterol and high blood pressure. By taking the medication these two things seem to be more regulated. Whether you can feel the difference or not the low thyroid does affect these other things. So perhaps have those things checked and go from there.


Roxanne 6 years ago

I don't know if you guys can answer this, but you seem to know a lot, so I'll throw it out there. I've just been diagnosed with an under active thyroid, so I have to take a tiny pill everyday. Do I really need to? I mean, I've on the first 20 years of life without needing it, and I don't see a difference in taking it. Will I be hurting myself in the long run if I just tell the doctor, "No, I don't want to take a pill everyday, nor get my blood drawn every six months."?


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crazybeanrider 6 years ago from Washington MI Author

Hi ii3rittles, Thanks for reading and commenting. I do understand your frustrating with taking meds. It is a valid one for sure. Yep stress is the cause of many illnesses. I will do some research on the things you mentioned. I also think if a natural remedy was more readily available people might choose that option. But that option is not always affordable or available in remote areas. Even if it is a viable treatment plan.


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ii3rittles 6 years ago

I've been against taking so called "prescriptions" since i was 10 years old. It made no sense to me then, and it still don't now! I will very rarely even take over the counter drugs either! The FDA or FRAUD AND DEATH ADDMINISTRATION is full of BS and greed. I don't blame the doctors thow, they trully think they are helping us. Anyway, i see an all natural doctor known as a kinesiologist as she helps me in ways a normal medical doctor could not. My hormones are all out of wack from stress, well, prolonged stress since I was in my mother!! Stress is the number one cause of illness. Something to try taking for your thyroid is Thytrophin PMG. I am taking it now and it helps. Also for energy, most people say vitamin C, well try all natural vitmin E. You will feel the difference in only a few days.


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crazybeanrider 6 years ago from Washington MI Author

Hi Sherry,

Your so right. Communicate with your doctor is the best idea. I stay in close contact with mine. I have blood draws on a regular basis as well. The trick is finding a doctor that is willing to listen and work with you, not against you.


Sherry 6 years ago

Many years ago, I was precribed medication for a lack of iodine in my system - thyroid medication. I was showing the signs of a gorder. After taking the mdication for about a year, after the symptons cleared up, I no longer needed the medication. Many have told me you cannot do that, but it is true. Even my physician told me you can stop your thyroid medication in cases such as mine, but most will likely have to take it for the rest of their lives, but that is not always the case. Let your doctor decide.


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crazybeanrider 6 years ago from Washington MI Author

Thanks Sneaks and and Me Too for reading and sharing your experiences with me. I don't know what it is about doctor's not taking women seriously about thyroid disease. Now days they just want to pump us full of medications and call it a day. Forget about what we know. We aren't doctor's, we know our own bodies and what we feel. But they seem to ignore those facts. I hope you guys feel better soon.


Me Too 6 years ago

I completely relate to Stupid Person's postings about how difficult it is to seek treatment and have your co-workers/boss understand your need for so many appointments. I have been searching for a better endo for months and finally found one that is 4-hours roundtrip from my house - but seems to be worth the drive... maybe. The doctors just don't seem to understand how much their experimenting with our dosages affect us. Horribly, most of the time. My new endo said I was getting too much medicine (I disagree), but I trusted her advice because she was a specialist and I had driven so far to see her. A slight decrease in T4 drug and only a slight increase in T3 drug and I went waaaaaay hypo. After only 2 weeks, I called and begged to have the T4 increased, but they insist I have to wait 4-6 weeks to PROVE that my dosage is wrong. I don't need 4-6 weeks to know this... but have to put up with their CYA 4-6 wks BS so they will agree to change it after my labs come back showing I am worse than before. I had my thyroid removed 4 years ago and still cannot find the right endo or rx combination. If someone could figure out how to help us working women with this issue, they would make a fortune.


SNEAKS 6 years ago

I HAVE READ A LOT ABOUT YOUR PROBLEMS WITH THYROID MEDICATION. I AM ALSO HYPO, AND HAVE GAINED CONSIDERABLE WEIGHT SINCE BEING ON THIS MEDICATION. BEFORE BEING TREATED WITH LEVOTHYROXINE, I WASN'T HAVING MUCH PROBLEM. THE MEDICATION MADE ME WORSE. MY DOCTOR SAID I WAS FINE, BUT MY BODY WAS GOING DOWNHILL, ALONG WITH MY TEMPERATURE. BECAUSE MY DOCTOR WOULDN'T LISTEN TO ME, HE LOST A PATIENT. THIS PATIENT DOESN'T WISH TO END UP DEAD BECAUSE OF A DOCTOR THAT WILL NOT LISTEN. I AM CURRENTLY ON DESSICATED THYROID. THIS MEDICATION MAKES ME FEEL BETTER, BUT STILL NOT PERFECT. I HAVE BEEN LOOKING FOR A DOCTOR THAT WILL TREAT ME BY TREATING MY SYMPTOMS, A NATUROPATHIC DOCTOR. I BELIEVE I HAVE FOUND ONE THAT WILL TAKE CARE OF ME MORE SO THAN THE DRUG COMPANIES TAKING CARE OF MY PCP, OR ENDO. I NO LONGER TRUST DOCTORS THAT DON'T WORK WITH ME TO FIX THE PROBLEM. I DON'T KNOW IF ANYONE WOULD BE INTERESTED, BUT I AM NOW SETTING UP AN APPOINTMENT WITH A COMPANY CALLED, "BODY LOGIC MD". AFTER TALKING ABOUT MY PROBLEMS WITH THEM, I FEEL CONFIDENT THEY WILL FIND THE CAUSES, AND THE FIX I AM LOOKING FOR. THEY ARE LOCATED THROUGHOUT THE USA IF YOUR INTERESTED.

WISHING YOU ALL THE BEST OF LUCK WITH YOUR PROBLEMS.


Chuckles 6 years ago

You need to find a good Endocologist that knows what you need. I was very lucky when I found mine and they walked me through everything that I would feel and prepaired me for the good and bad days. How all the wieght I lost would be coming back, mood swings, depression. I had waited to long and I had massive muscle loss. It was mixed with Diabites so I was slipping in and out of colmas. I wanted no pills for the depression, did not want to get hooked on perscriptions drugs and that took about 3-4 years to beat. But you need to get busy, even though you don't want to. Time will be the enemy till you can learn to live life and not worry about all the stuff that will keep you down. I was able to learn to fix computers, learned to speak French, and to write left handed. Educate your self anyway you want to and when things finally come together you won't fill bad because you waisted 3,4,5,or 7 years feeling sorry for your self because you did a whole lot of nothing. Trust me, you will be a better, stronger, smarter and feel you can do anything after you get through it.


Fedupofthyroid 6 years ago

I have antibodies to the thyroid, all the symptoms of hypothyroidism but just can't seem to get on with any of the meds I've tried. Synthetic, T4+T3, Desiccated, T3 only. I get on best with T4 only, it gets rid of some symptoms but makes my dzziness and vertigo worse and I find it quite depressive.

I always feel much better when I come off of it initially then the worst of the hypo symptoms, such a muscle cramps, panic attacks and sleeping 10 hours at night and 4 hours in the day start creeping back in.

I've tried steroids, adrenal glandulars etc - nothing works and I only ever get side effects without benefits. I don't take any other medications.

When I was first diagnosed my bloods were in range but my T4 was right at the bottom and my antibodies were very high. I should have been a straight forward case of T4 replacement but nothing is working.

I'm stuck day-to-day in a brain-fogged, depressed mess. I have no short term memory and at 31 with no previous history of depression or any mental illness I feel very upset that this is happening to me.

I feel like giving up on the treatment for now.


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crazybeanrider 6 years ago from Washington MI Author

Thanks Heath for chiming in. I have to to some research on the Armour. I think I need to try something else. As I am not entirely satisfied with my treatment plan right now. Thank you Heath.


Heath  6 years ago

It sounds like a lot of folks are having trouble with the synthetic thyroid meds. My girlfriend and I have been on armour thyroid for years with no problems. She tried they synthetic at first and didn't like the side effects and switched to armour. It's in low supply right now as they are changing the formula, but it should be back on the market soon.


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crazybeanrider 6 years ago from Washington MI Author

Hello Nell,

Thanks for sharing your information here. It is good everyone is sharing their experiences because we need to know what works and what doesn't. Thanks :)


Nell Rose profile image

Nell Rose 6 years ago from England

Hi, I use thyroxine because I am now hypothyroid, but I was dangerously high thyroid, so I was given the nuclear tablet to lower it, and given Carbamazole which nearly killed me because of the side effects. I felt like I had been run over, my arms and legs and back suffered severe myalga pains and I felt as I would never get out of bed I had to tell the doctor that It was that medication that was doing it. he didn't know!!! so then I got propothouracil which was great. but then I got to low and now take thyroxine. So my point is, I know how you feel. Also someone above is right. Doctors diagnose Bipolar and give you meds, when really you are a thyroid problem instead. Because low thyroid is similar to bipolar. cheers nell


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crazybeanrider 6 years ago from Washington MI Author

Hi Yark,

I lost weight when I went off synthroid. And I have noticed when taking the synthroid I lose hunks of hair as well. My doctor doesn't seem to have an answer either way. But when I stopped taking it the hair loss stopped as well.

I get sluggish and tired when not taking it. But I take bipolar meds and it is hard to figure out which med does what. I very recently had blood work, and am on the low side. So I will see what treatment options I have. Then decide what I want to do.

Thank you for reading and stopping by.


yark 6 years ago

Let me just say that I can totally sympathize with everyone on here so far. I've been on Synthroid now for 7 years, and I've gained about 40 pounds in that time frame. I went off my meds not too long ago and lost about 10 pounds in the first 3 weeks. However, I felt sluggish and very tired. So, I'm kind of on again off again with my Synthroid. Recently I have lost a buck load of hair and it's "noticeable" to my family. I also lost most of my eyelashes. I dont' know if my Synthroid had anything to do with that, but I'm definitely going to see a doctor about it. I wish there were an alternative, but if y'all figure out something let me know!


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crazybeanrider 6 years ago from Washington MI Author

Hi Kris,

Yes Alexandra was a bit harsh, if only it was that easy for everyone. There would be no problems in the world. Wow it sounds like you have been through a lot. My sister has a really bad time getting her thyroid just right. She at times becomes very ill if she doesn't stay on top of it.

You have presented some wonderful tips I am going to try.My thyroid has been low, I have a few side effects from not taking it all the time. I am trying to get stable on bipolar meds right now. And see how that does , then perhaps I will start back on synthroid.

Your comment is very informative, you should write your own hubs on the topic. I think you have a lot to offer.

I definitely can understand your daughters not wanting to add another. It isn't about just another pill, it is about more side affects, and what that extra pill might do along with all the other pills. It can be very daunting to a teen, not to mention an adult.

I wish the best for you both. And thank you for all the great information. I appreciate it.


Kris 6 years ago

well, I'm glad I don't know Alexandra personally ! I think we would've come to blows promptly !

My daughter is bipolar, & she feels the same way you do, dear: she says he already takes [15?] pills a day & isn't about to take one more. One of her early providers prescribed WAY too much lithium & almost killed my daughter's thyroid. She had to me on synthroid for a couple years. She ran out once & didn't get it refilled & says she has been tested and "her levels are 'normal;' " (LOL, we all know THAT is garbage!) and she is okay with her energy levels, menses, skin , etc... so she is not interested in checking it at this time. I'm just gratefull she is alive & taking her bipolar & ADD meds.

me, on the other hand: I developed Hashimotos'. My poor thyroid was exhausted. I found ut how to care for it & am MUCH better, so much that now my endocrinologist (I waited a year to finally see him ! they are rare where I live!) wants to reduce my synthroid. Fine by me. but I did have to go onto t3 as well... synthroid (which is only T4) was a big help but not quite enough, & it kept making by blood pressure go up. Here are some of the things I did to reduce the autoimmune over-reaction, and strengthen my thyroid:

eliminated aluminum...cookware,deodorants, pop in cans.

eliminated fluoride: non-fluoride toothpaste, no more tap water, & I detox with borax (yes, the detergent!) each day, so get the accumulated fluoride out of my body.

I add in iodine... I spread it on my wrists, & I add it to my water.

I eliminated foods that suppress the thyroid: peanut butter (my favorite food!), broccoli, cabbage, etc.

I take my T4 & T3.

I take selenium; it helps the immune system be balanced, instead of out-of-control.

I really identified with the lady who said "...It's not as if they can see a broken arm" that would prove she is ill. I have lost customers & almost lost my career because I didn't have QUITE enough brain to function. When you get lost in familiar territory, that's bad! being late for appointments, being slow at work, forgetting things, etc... very bad. People just don't cut me any slack.

On the good side, since getting a handle on the dumb thyroid thing I have been able to reduce & then eliminate my antidepressants. After being on them for 7 years that is great. I still have down times but not anywhere near as bad!

Like several people here, I have also not been able to lose the d**n weight I gained while waiting to be diagnosed. i gained 30 pounds in 2 years & am VERY unhappy about it, and since I can't use the Armour thyroid extract from pigs & it is hard to find the bovine kind, I am stuck with this chemical approach. But I am suspecting my adrenals may be exhausted. in my reading I am finding a connection between the adrenals & difficulty losing weight: it's a chemical thing, it's not laziness or overeating. So I still have a bit to learn, but I hope this has been helpful to someone here.


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crazybeanrider 6 years ago from Washington MI Author

Well Alexandra I am so glad it is so freaking easy for you. If you had read the comments, not everybody has the luck you seem to have. You can know how the medication works all you want, doesn't mean it works the same for everybody. It isn't that easy. But I am glad for you it is. And it really sucks you feel the need to insult everybody here. The article speaks in generalities. Why people in general don't like taking medication.

All your snide remarks are not true for everybody.

So go find a better article that fits your needs, and leave your rude insulting comments elsewhere.


Alexandra 6 years ago

You're all so whiny. Just take your Goddamn thyroid medication - and do some research to find out exactly how it works and why it is vital that you fix the problem.

All this bitching and moaning about not losing weight when you take it? Thyroid medication is not a diet pill. If your body is meant to be fat, you'll be fat. If it isn't, and you move around enough, you won't be.

Fact: Metabolic rate increase is *NOT* directly caused by the medication. It is indirect. Your medication will give you the energy you need to get up and move around and be healthy and thus increase your metabolic rate.

And to the OP: "I take a bunch of medication already so I can't be bothered with one more tiny little pill"? Seriously? How old are you.. 16?

Here's a comparison: Everyone knows our body needs important vitamins like C and E, and other things like iron, and calcium, etc.. What do you do when you don't have enough? You ingest something that can supply it to you - a food, or a caplet, or whatever.

It's the same with our hypothyroid - although the other vitamins are not made inside of us like hormones - we're low on thyroid, so we help our gland out a bit by ingesting it. That's all there is to it.


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crazybeanrider 6 years ago from Washington MI Author

Hypothyroidism or low functioning thyroid can cause scalp and eyebrow hair loss. When you have hypothyroidism or low thyroid function, your hair may get more coarse and sparse. Changes in waviness of hair are not unusual either. Some degrees of hair color changes can appear.

I would see your endocrinologist. In some medical syndromes patients may suffer from several different hormonal imbalances that may contribute to the changes in their hair color.

Hopefully you can find some answers.I am going to do some research about how thyroidism affects your hair. And post to hubpages.


deena 6 years ago

My hair turned white< I think, sooner than it should have. Then my doctor prescribed synthroid and my white hair turned yellowish. I have read that throidism will cause pre-mature gray/white hair. I wonder if the synthroid is now putting color back into my hair. I however, prefer it to be white than yellowish. Has anyone else experienced this with their hair?


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crazybeanrider 6 years ago from Washington MI Author

Thanks for reading Mrs. Obvious. There are so many pros and cons about this subject. I just have not been able to get around to a follow-up. I will bookmark your article and read it. Because if there is something besides synthroid that might be an answer I am all for it.


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Mrs. Obvious 6 years ago from Northern California

Hey there guys, I just wanted to give you a heads up on an alternative form of natural therapy for hypothyroidism. I read this entire website and have bought their previous product which had Niacin in it and gave me the sunburn feeling. This is their second attempt and have removed the Niacin so I'm gonna order some more. http://www.1-thyroid.com/index.htm I have the problem where I have all the symptoms, including massive weight gain that I cant lose but I can't get the docs to treat me!! Check out my story if you like on my hub http://hubpages.com/health/Weary-of-Winter... I've put some suggestions on there to help deal with it. Thanks for a very real hub CrazyBeanRider.


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crazybeanrider 7 years ago from Washington MI Author

Thanks angela for commenting. I am sorry you are going through such a hard time. My sister has been takiing synthroid since she was ten. She has similar reactions when she doesn't take her medication.

Do you have a clinic in your area where you could go and get checked, so you can get your script? I hope you can find a way to get your medication.


angela 7 years ago

i stopped taking my thyroid medication about two months ago because i could not afford to see my doctor. i had been taking it regularly since i was nine years old. now, i cannot wake up before two pm, and can't get to sleep until six or seven in the morning. i can't think, i can't make decisions, i've lost weight- only because i have no appetite... i have become increasingly more depressed every day, and have a blood clot in my neck... my period hasn't come this month, which is adding more than a little stress, even though i have taken numerous pregnancy tests and am positive that i am not with child.., my skin is itchy and yellow, my eyes are bulging out of my skull. i live in the upper midwest and am cold during sixty degree weather (it's only september), my heartrate is rarely above fifty beats per minute, and i'm worried that i will die in my sleep every night. take your medicine if you can get it.


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crazybeanrider 7 years ago from Washington MI Author

Thanks Jamie for the comment.I will check out cytomel, I've not heard of it.


Jamie 7 years ago

If you are not losing any weight your body may not be converting the t4 (synthroid) into t3 like it is supposed to. Ask about adding cytomel I have had a huge increase in "awakness" since I have added it.


crazybeanrider profile image

crazybeanrider 7 years ago from Washington MI Author

janiece,

I would talk to your Doctor before you stop takig them so if you have a reaction he know what to do. You know he may be able to give a different dose or a different med. Perhaps you might want to try a different doctor before givig up.

I gained weight as well. I stopped taking sythroid and so far have lost 21 lbs. I am watching myself very carefully for signs of lethargy or other problems that might pop up from not taking the med. I also see the doctor every 3 months.

My doctor didn't agree with me about stopping. I asked him to change the med, that I was gaining weigh from something and it wasn't eating. I take bipolar meds as well. So it is hard to figure out things without creating a huge mess for myself. But I am communicating with a doctor.

So that is my suggestion to you. See someone else if you think the diagnosis is wrong.


janiece 7 years ago

I am thinking about not taking my meds due to the last 5 yrs the doctors cant get the dose right and I have gain 60 lbs from it. I feel no different then when I wasn't taking it and it hard to remember to take it. With everything I have been through I feel like i was misdiagnosis,


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crazybeanrider 7 years ago from Washington MI Author

Well I am very happy you have things sorted out. And what a mess your doctor is. It is a shame he has very little regard for his patients. Just appointments shedules. And the more the better. And to have absolutely no regard for your time at all is plain stupid. Thay can't call a script in to a drug store for you? That is beyond nuts.

The above things you just explained is reason enough to make a person say why bother. But I think if you can keep uip with your appointments and blood draws that is the the key. Keep track of your moods as well. Like my sister gets severely tired out of the blue. That is a sign for her to keep an eye on her thyroid. Start making appointments. Proactive instead of reactive. Stay one step ahead of them.

I understand your frustrations with doctor's. We live in an area with few choices as well. If we want a specific Doctor we have to travel out of our area.I am glad you are feeling better. Keep taking care of yourself.


stupid person 7 years ago

Just an update.

Just got out of the hospital and am doing "okay." Back on meds, and feeling better than "I'm dieing." Of course, will be weeks before I'm feeling full effects of meds.

I was in for five days (six bags of blood, gyn. surgery), and did a lot of reflecting on that post I made. I think I've narrowed down part of the problem. It is no excuse, but the "hassle" part of it all is something I want to address here in case an endocrinologist ever stumbles upon this in frustration to understand why us thyroid patients are so notorious for skipping meds and such "bad patients."

Consider this scenario and see how familiar it sounds to all of you.

You go through a complicated spell in life, be it a change of address, job, whatever. You find yourself out of a script and in need of a doctor. You call a doctor, and ask them to write you a lab slip for a TSH. You find that they won't do this without seeing you first. *sigh*

Of course, we all know that doctors are packed nowadays and can't see you on the spot unless you can point to a real medical emergency and "I'm fatigued and think my thyroid levels are out of whack" doesn't register as an emergency with the gatekeepers. So its weeks to months before you get in.

You go in. They see you and, yep, they agree and write you a lab slip and then want to see you back in a week once you have the blood drawn and the results are in. Of course, by that point in the day, the lab is closed and you now have to ask your boss to let you come in late or leave early for the second time in a week to get your bloodwork done.

Then your lab work comes back and its horrible, TSH in the thousands.(yes, that's my natural, off of med TSH). So the doc. wants to see you right away, at which point they give you a script and a well deserved finger wagging. This is probably the following week, so you've had to come in late, take a long lunch, or leave work early three days in two weeks. Boss and coworkers are none too happy. They don't see a broken arm or anything to justify this sickness. And most of them don't understand that specialists like endocrinologists don't have appointments in the wee hours or afterwork hours like their kids' pediatrician. They're highly in demand and keep banker's hours because, darn it, they worked hard to get through that demanding residency and deserve to have a regular work schedule.

So you finally have your script (note that getting it filled is probably an hour of your time that you have to rush to accomplish after work before the pharmacy closes.)

Another blood work lab slip for 2-6 wks, depending on your doctor, who then wants to see you after that and then wants to adjust your meds and see you again.

Assuming you can get bloodwork done without missing any work, you're still looking at seven or eight doctor's appointments just to get yourself back on track. Over the course of three months, that's a lot to ask of some employers. Some professions (I'm a teacher, e.g.) don't lend themselves easily to doctor's appointments between 9-3.

So, anyway, isn't there someway to make this "hassle" easier? This all seems mildly irritating but certainly reasonable to the average person, but realize that the person with severe hypothyroid is depressed, probably struggling with occasional mental fog, and very tired. Functioning as a regular human being is something they're barely doing.

I guess my hope is that someday an endocrinologist reads this and reflects on how what seems like very reasonable demands on a patient may be roadblocks to your typical severe hypothyroid patient, and they are the ones you don't want to fall off of the wagon in frustration because of the risk of m. coma.

Maybe find ways to make their lives a little easier, like being willing to okay lab work without first seeing a patient. Or consider being a little more flexible with your schedule.

I live in an area with ONE endocrinology practice. They have a policy of not seeing each other's patients. If you are Dr. Smith's patients, there's no seeing Dr. Jones unless its an emergency.

Now, after a few months of adjusting med levels, Dr. Smith wants to follow up with you in six months. You manage to get one of the nice early morning slots that mean you will only be a little late for work. Four months later, you get a letter sent to you telling you that Dr. Smith can no longer see you at that time because a.) Dr. Smith has changed his schedule or b.) Dr. Smith is taking a vacation that week. You call, like all of his other patients, and are back where you began, with having to either miss a larger chunk of work to see Dr. Smith, or having to wait even longer.

Of course, getting in touch with the office isn't that easy, because they'll need to put you on hold for fifteen minutes. Again, that's a personal call you're making at work or using up your lunch hour to make. When you mention that you'll need another script, the receptionist tells you she'll have to get back to you after she asks Dr. Smith and can you call back later? Another personal call at work. Not all of us have jobs where personal phone calls are possible or doable.

Of course, they won't call the script in (sorry, its our office policy), and you have to stop by their office during their open hours to pick it up. (Again, "Hey, boss, I need to take off work a few minutes early to swing by my doctor's office . . . ")

None of these complications make risking one's life okay. They are mild inconvienences for being relatively healthy and ALIVE. But when one is adjusting to hormone fluctuations, dealing with depression, adjusting medications, etc, etc, etc, it can be ever so discouraging.

So, please, silent endocrinologist reading this on the internet someday in the future, understand the plea of this "noncompliant patient". It is no one's fault but my own that I get frustrated and give up. I'm not blaming you for my stupidity.

I'm also not going to tell you how to run your practice. But, maybe, just maybe, seeing things through the eyes of a stupid, noncompliant patient, you can maybe make some small adjustments to avoid frustrating us so much. If you can make compliance a little less of a hassle, you'll lose fewer of us.


crazybeanrider profile image

crazybeanrider 7 years ago from Washington MI Author

I think you should go to the doctor as soon as possible if you are having the problems you are talking about. Maybe there is something going on along with your thyroid. I think you should reconsider and take your medication. Unless you are really against not taking them. But in all honestly I say you have to take a hard look at what you're doing to yourself, and decide what is the best decision for you.

I know what I had to do for myself. For my reasons. All the other medications I take and what works. And so on. But you seriously need to get to your doctor for yourself. For the depression too. You cannot let that get out of hand.

Drop me a line to let me know how you are doing...okay?


Stupid Person 7 years ago

I don't know what to do. I'm like your sister, I have very low levels and have already come close to dieing once. I got back on the medicine train and then fell off again. I'm supposed to be hyperintelligent and I'm a single mom of two, and here I am slowly killing myself for a reason I don't know. My family all knows I'm off my meds, and I deny it to them anyway because I don't want to deal with the hassle.

Why am I being so freaking stupid? Now I'm having heavy, month long periods that leave me anemic and weak, on top of the thyroid issues leaving me tired and weak. I need major help and yet here I sit, trying to find excuses not to take care of the problem.

I do NOT want to die. I am miserable when I'm sick. But yet the fear of being yelled at for forgetting to take my meds leads me to let my blood tests go, then my doctor's appts.go, and then I'm out of meds with no way to fix that without admitting what I did.

WTF is wrong with me that I do this to myself? Now I'm on the verge of death and all I want to do cry because the depression that goes with the thyroid levels being out of whack is unbearable.


Joanna 7 years ago

Mrs G's comments very useful. I have come off seroxat and was on two and a half grain armour thyroid for my underactive thyroid whnen on seroxat. Now I have gone hyperthyroid with too much T3. I suspected that the seroxat had some interplay with the armour. Now I'm not on armour for a bit to reduce my levels as hyper is as bad as hypo!


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crazybeanrider 7 years ago from Washington MI Author

I don't know, it is a double edge sword. It is different for everybody. I recently stopped taking the synthroid and immedietly lost 16lbs. I am not saying stop your thyroid meds. Talk to your doctor and see if he can tweek your medicine. Do you have routine blood draws? Do you keep track of the results? If it truly is not making a difference than you need to get with your doctor and tell him.

I know more than likely I will end up having to go back on the synthroid. I haven't done enough research about the weight gain on thyroid medication. I know while on it have gained weight as well. It can be very frustrating.

I am sorry Nancy you are going through so much crap with this drug.


Nancy 7 years ago

I have been on levothyroxine for 2 years and all I have done is gain more weight. I'm up to 300lbs. I never imagined this for me. It's sad when you want to hide yourself but are too big to hide. I understand why some people say what's the point in taking the meds when it hasn't helped! If this crap worked and evened your body out and got it back to normal....................why am I still not seeing results after 2 years?


Kathryn 7 years ago

Hey people I'm on thyroid medicine. What's the big deal about popping a tiny pill every morning? Thyroid medicine has NO SIDE EFFECTS. My sister refuses to take her medicine and she's going to end up killing herself. I'd rather take the pill everyday and be healthy.


crazybeanrider 7 years ago

mschianti64

I have tried not taking bipolar meds and it was catastrophic for me. I do know however the meds I take for bipolar affect metabolism. As far as homiopathic treatment, I have begun to do some research. I fear going off meds, because I have always had a negative effect. There is no underestimating that I am bipolar. I appreciate your comment and will look further into the treatment you mentioned.

Mrs. G

My four siblings also have hypothyroid condition. There meds seem to work for them. I didn't realize that synthroid might not work. I knew that bipolar meds might block the synthroid from working. I can't seem to get any of the doctors to help me. One says go off the BP meds, one says live with it. They don't really seem to care. But I am all messed up with the meds.

I will mention the Armour on my next visit to the doctor. I would like to ween off the bipolar meds to see if I can manage. I will look for the book at Amazon. I thank you for the information.


Mrs. G 7 years ago

Hypothyroidism (low thyroid) is often misdiagnosed as bipolar. Also medications for bipolar disorder can block the body from absorbing and using thyroid medication properly and that may be why it doesn't work well for you. Many people do better on Armour Thyroid than on Synthroid because it has T3 in it and Synthroid only has T4. The human body needs T3. The body is supposed to be able to convert T4 to T3 but some people's bodies can't (like mine) and then these people need to take a thyroid medication that has T3 in it like Armour Thyroid because Synthroid doesn't work for them. The problem with not taking thyroid medication is that eventually (many years down the road) you will die from not treating your thyroid problem. My mother was hypothyroid and refused to take her medication. Hypothyroidism is a slow progressing disease so you won't see the severe affects of it for a very long time. My mother slowly deteriorated. Her skin got so thin it would burst open and bleed. Her hair fell out. She was cold all the time. She had such severe brain fog that eventually she could no longer function. She could not remember who she was, who anyone was, she couldn't remember how to dress, use the toilet, eat, walk or anything and became bedridden and had to have a feeding tube. Her body's lack of thyroid hormones destroyed her heart, kidneys and liver and they all failed and she went into a coma and died. I do not recommend not taking your thyroid medication. I recommend you get a better thyroid doctor and change thyroid medications like to Armour Thyroid and perhaps going off your bipolar medication for a while sticking with Armour Thyroid and see how you do. If you do better, then you will know that your bipolar medication was blocking your body from using the thyroid medication and also many of your bipolar problems were caused because of low thyroid (the problem I have). Once a person who has extreme emotional ups and downs has their thyroid regulated many times the bipolar goes away. If it turns out you still need your bipolar medication along with Armour Thyroid, then you may need a much higher does than what is usual because of the bipolar medication blocking the body's ability to absorb the thyroid medication. I have many medical problems requiring I take all kinds of medications and I have to take a very high dose of Armour Thyroid in order for my body to absorb it. Your doctor should regularly do blood work to check and make sure your thyroid is working properly and by doing blood work your doctor can adjust your medication accordingly. The thyroid gland is a "master" gland and it doesn't just control your weight, it also controls everything in your body including your brain, your heart, your kidneys, your liver, etc. If you like to read, I highly recommend a book by Mary Shomon called, "Living Well with Hypothyroidism". This book is like my "bible" and has really helped me. This is not only a good book for people with hypothyroidism, but also for people with hyperthyroidism and people who have had their thyroid removed or killed off. Good luck and I hope you get well soon.


mschianti64 7 years ago

If there was a medicine that you ought to NOT be taking, it's your so called "Bipolar Disorder". My husband was diagnoised with Bipolar & was on meds for years which never helped, but made things worse. He has been off them for almost 10 years now & he feels, acts, and looks grea. There is NO clinical test to prove a "chemical imbalance"...what chemicals are not balanced. At any rate you should seek the help of a homiopathic doctore to help get you off the meds and on to natural supplements. As far as your thyroid medicine. I think that you should take them. It is really not a medication, but a hormone replacement that your body would naturally produce. There is a clinical test for hypothyroidism.


albi 7 years ago

its bloody annoying being on thyroid med- no spontaneity anymore- i cant just decide to skip town in two sec-screw everything but the med. If u do backpacking-- for a long time- u worry bout the meds disintegrating, Somebody design a non-refrigerating thyroid med pls- Its bloody annoying. was rushing.. now stuck in a foreign country without my meds. Awesome. Not. just feel like a rant.


tiecrew2005 7 years ago

well i haven't drank my synthroids for over 6 months.i am starting to feel the effects.tired,sleepy.no energy.and no sex drive.i hate taken them because i see other people lose weight when their on it.not me i gain weight and it makes me mad.i do feel better when i take them but i don't lose weight at all.my sister stays skinny because she is on thyroids medication .and if she doesn't drink her pills ,she blows up like a ballon.C ould it be i'm not getting the right dosage?


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crazybeanrider 8 years ago from Washington MI Author

Thank you for your comment akeejaho. I always love hearing from you. As well as reading anything you have to write.I know sometimes I go off on these rebellious 'I don't want to take med anymore" tangents. When I know full well that if I want to function in a manner acceptable to soceity and my own well being than I must take medication. period. Sometimes with the thyroid meds it is hard to tell if they are working or not. So I give them a little test now and again, and the test usually is keep taking the meds. :-)

It's all about staying well and finding ways to stay that way. Keep writing, and I'll keep reading.


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akeejaho 8 years ago from Somewhere in this beautiful world!

I hate taking Meds too Crazy, and I can totally sympathyze with you. However, when it comes to thyroid meds, there is something you have to think about.

Your health is important to maintain, for anyone. Even more so for a Bipolar. Because of the chemical imbalance, it is excruciatingly important to maintain a balanced and healthy diet to keep as level as possible. Maintaining ones health is just as important.

If your scrip at all helps with depression, then not taking the med for your thyroid can't do much for you if say the first symptom you sense is Depression. It's kind of a catch 22, Huh?

Well Crazy, I don't know what to tell you. Take each day as it comes, and just keep an eye on yourself. And thanks for your support as well. Always glad to read you.

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