I have Chiari I Malformation. I'm still in pain but not as bad, like b4 surgery. I'd like to hear from ppl that have had the samething. I've never spoke to anyone that has dealt with this :( Would be nice to hear from others, share our stories about what we went thur. Also help each other.Please share your story. I was 25 yrs. It took many Dr's n over 8 months plus 3 MRI's until foun. Dr also thinkin I just wanted drugs. I was in so much pain n I still have pain. I just don't know how I got thur it with a 2, 4, 6 yr old kids. It all seems like a dream now looking back. I hope ppl share w/ me!