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Bad Doctors Appointment With My Son... Very Worried

  1. 0
    wordscribe41posted 6 years ago

    Quick bit**.  Not only have I been sicker than a dog with a respiratory mabbober for 4 days, but I was up all night with my daughter who had the stomach flu.  One hour of sleep into the day, we take our 8 year old in for an eye doctor's appt. b/c we and the school have noticed he's had trouble seeing.  The doctor quickly finds something "odd" and says he has to dilate the eyes to see better.  Long story short, he says:  "Well, I've never seen anything like this in a child.  This is a first for me."  He sends my son out of the room for a chat.  He goes on to explain my son has "a mass/pathology in the macular region of his right eye."  What does that mean, we ask?  Well, he can't tell us for sure what it is, but it is abnormal and it shouldn't be there.  He goes on to say he needs to see a specialist as soon as possible, preferably tomorrow.  He will be calling me with more information on doctors in the morning.  Anyone ever experienced something like this with a child?  Of course, I'm quite worried.  Anytime you hear "mass" or "pathology" it is scary.  The worst part is his inability or unwillingness to theorize what it is...  Good grief, I'm not sure I'm up for this.

    1. lorlie6 profile image84
      lorlie6posted 6 years ago in reply to this

      I know you can handle whatever it turns out to be, WS.  I've read your lovely words-you have powerful inner strength.  Doctors cover their asses with all sorts of BS, but don't think of the implications of their words, leaving loved ones frozen. 
      Hang on to those you love and let us support you as much as we can.

    2. wyanjen profile image88
      wyanjenposted 6 years ago in reply to this

      so sorry I can't stay to talk with you about this tonight..

      I just wanted to say - His vagueness here is not unwillingness. Please don't read anything into it.  I've got a little bit of experience with the scary mystery diagnosis, and I can say that the doctor could not theorize about it with you even if he wanted to. When a Dr refers to a specialist, he or she cannot speculate to you about what the diagnosis may be.
      It's frustrating. But don't worry about this detail, the Dr was not trying to be cagey.

      I'll check back with you tomorrow! Try not to worry.

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        wordscribe41posted 6 years ago in reply to this

        "Unwillingness" was the wrong word.  I don't blame him for not throwing out hypotheses.  I meant unwillingless, like it isn't the right thing to do.

    3. richardheft profile image61
      richardheftposted 6 years ago in reply to this

      My name is Richard Heft. I was an Acupuncture Physician (FL 1992- 2002). I've questioned and counseled thousands, including children. Find out what the diagnosis is. Everything, in the body, including masses in the eye. builds up and breaks down via diet. Tell me your child's diet, last two days and maybe I can pick something out. In the meantime you may wnat to I eliminate all soft dairy (milk, yogurt), sugar, candy, cookies, sodas and caffeine. Feed him vegetable soup (carrots, broccoli, kale, celery, cabbage, etc.) with some spice (fennel, cumin, coriander, turmeric, etc.) and or steamed, boiled  vegetables, cracked grains (white rice), chicken, turkey (free range, no hormones) and or hard cheese.  These are just general suggestions.

    4. prettydarkhorse profile image66
      prettydarkhorseposted 6 years ago in reply to this

      word good morning, I just read this one, I hope everything is fine with your son, HUGS and know that I am praying for your SON and for your family, HUGS!

    5. 0
      Poppa Bluesposted 6 years ago in reply to this

      My thoughts and prayers are with you and your son.

  2. 0
    Crazdwriterposted 6 years ago


    Oh my sweet wordscribe we'll get through this together!

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      wordscribe41posted 6 years ago in reply to this

      I know, I thought of YOU today in the appointment.  I really did.  Hugs back.

      1. 0
        Crazdwriterposted 6 years ago in reply to this

        hehehe stupid doctors...

        have you looked online yet to see if someone could explain it better than your dumb dumb..i mean doctor.. big_smile

  3. rebekahELLE profile image91
    rebekahELLEposted 6 years ago

    I've never heard of it, I wish he wouldn't have said that in front of your child, that would be scary for a child to hear.
    it's good the school also let you know he was having trouble.

    the doctor probably doesn't want to theorize so he's waiting to see what it is for certain. until you know for sure, don't make yourself crazy trying to figure it out. maybe best tonight for you to try and get some needed rest. hope you feel better. {{hugs}}

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      LegendaryHeroposted 6 years ago in reply to this

      He did send him out of the room.

      "He sends my son out of the room for a chat."

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        wordscribe41posted 6 years ago in reply to this

        Yes, he sent him out before he said anything.  I think I might have been typing a little hastily, so it got confusing.  My son heard nothing, except from us.  He didn't say:  I've never seen anything like this..." until he left the room.  Disorganized writing...

  4. Rochelle Frank profile image89
    Rochelle Frankposted 6 years ago

    Yes, those are scary words for anyone-- more scary when it is your child.
    As much as you would like answers NOW, the doctor was wiser to give a quick referral, rather than to speculate beyond his expertise.  Keep positive thoughts and be persistent. Children heal quickly.

    Good thoughts are headed to you. I know this is very frightening, but there have been many amazing medical advances recently. Insist on the best.

    1. 0
      wordscribe41posted 6 years ago in reply to this

      Yes, Rochelle, we have the infamous Oregon Health Sciences University here with a great eye clinic.  I don't care if it's not "in my network", I'll pay the extra.

      Fortunately, my cousin is an opthamologist, so I shot him off an email.

      CW, I hate looking for medical info online.  I'll end up convincing myself he has some rare form of retinal cancer that way...  roll

  5. 0
    wordscribe41posted 6 years ago

    Rebekah and Lorlie, thanks.  My son is fine about it, we explained it to him in the car "Barney style".  He's just all excited to get glasses, so he was disappointed.

    Lorlie, yes I know they do lots of c.y.a.  I'm trying to just mellow out until we have more information.  It's hard, though.

    Rebekah, yes I knew that's why he wouldn't theorize, but I just HATE having no information.  It's so frustrating.  Ugh.

  6. 0
    Crazdwriterposted 6 years ago

    ooo yea that is true...so yea don't do that lol

    Oh I have some good news WS if ya wanna hear it smile

    1. 0
      wordscribe41posted 6 years ago in reply to this

      Bring it!

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        Crazdwriterposted 6 years ago in reply to this

        The doctor hasn't called to confirm it but my mom has since she has had an Ectopic pregnancy she knows....she asked if I started my period and I said yes so she said that then it can't be an Ectopic pregnancy big_smile

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          wordscribe41posted 6 years ago in reply to this

          That is good, CW.  I'm also awaiting your medical news...  I HATE WAITING, don't you?

          1. 0
            Crazdwriterposted 6 years ago in reply to this

            I am ready to dig whatever it is in me out lol

  7. h.a.borcich profile image60
    h.a.borcichposted 6 years ago

    It is so hard to not let thoughts go crazy when something may be off with kids. Just take a deep breath, and know you will get him and you through it. I would caution you about googling until you have met with the specialist - the net can have so much misinformation and cause you more stress than help.
    I have a great network of friends in medical fields who are willing do sound research for anyone who asks. Keep the faith, I'll keepyou in extra prayers, too. Holly

  8. 0
    wordscribe41posted 6 years ago

    Oh, Holly.  Thanks so much.  You are such a kind person, it just readily shows.

  9. 0
    Crazdwriterposted 6 years ago

    Keep your head up, and tell us what your cousin says big_smile I gotta run ttyl chica

  10. earnestshub profile image87
    earnestshubposted 6 years ago

    Wordscribe dear one. Sorry to see the thread. All my love and best wishes, I hope it is the usual nothing too bad diag. All my love, Earnest. smile smile smile

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      wordscribe41posted 6 years ago in reply to this

      Love back to you, Earnest.  I miss you these days.  Hugs.  smile  I'll keep you posted.  I am trying not to borrow trouble here...  thanks for the kind words.

  11. 0
    cosetteposted 6 years ago

    i'm with Lorlie on this one - doctors say and do a lot of things to cover their asses, and forget how it comes across to their patients. stay calm dear, and don't fret until you find out more.

    i know...i know all too well how hard that is, being a parent myself. but don't stress. it could be absolutely nothing. i had this one physician's assistant one time who really pissed me off. i was sick as a dog...i could barely breathe, my lungs were so congested from Valley Fever and she was tossing out all kinds of crap like "have you been tested for TB" and "you could have pneumonia or SARS or blah blah blah" and i was freaking out because i had never been anywhere or done anything where i could be exposed to things like that, and then instead of answering my questions she proceeded to talk into her little voice recorder going "patient XYZ presented with pneumo whatsis etc etc" and i was too sick to argue with her, trying to get dressed while she sat and ignored me in her crisp efficiency.

    so it turned out i had Valley Fever and when i got well i gave her a piece of my mind, let me tell you.

    these doctors aren't gods. they are just people and they all have to protect their interests and will order all kinds of tests and stuff just to rule out any possible thing for their own insurance and malpractice avoidance purposes.

    don't start Google-ing, please....i did that when my son was sick with mono and thought he was going to get menningitis. just breathe and wait and stay positive. a lot of people are here for you, you know. ((hugs))

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      wordscribe41posted 6 years ago in reply to this

      No googling for me, no worries.

      They're not Gods, that's for sure.  That sounds like a fun little experience at the doctor's office for you.  Ugh.

  12. Lisa HW profile image82
    Lisa HWposted 6 years ago

    wordscribe41, I know how worried you must be.  With my son I didn't hear "mass", so this may not be what you're looking for.  When my son was little I brought him opthamologist, because he had vision problems. The doctor saw "a lot of scar tissue on the retina".  I was told my little son was legally blind.  I asked where the scar tissue may have come from, and I was told it "was probably something that happened before birth".  He's adopted, so I had no idea what kind of infections, drugs, or diet the woman had when she was expecting him.

    He was given a prescription for glasses (and he's worn them since), and I came home not being able to do anything but hear the words, "legally blind", in my head.  He hadn't seemed to have all that much of a vision problem, but I assumed the doctor knew what he was saying.  He said the scar tissue wouldn't likely get worse, so that helped.  Still, I was pretty much sick to my stomach to think his vision was that bad (and not to know what causes the scar tissue).

    My husband and I kept saying our son didn't really seem all that "legally blind"; and a few years later when he was catching fly balls in baseball (without his glasses) we kept thinking, "He can't be all that 'blind'".  He's grown up now and wears his glasses for reading and driving, but he's pretty much like anyone else who wears glasses.

    So, I guess one thing your question made me think of is whether "scar tissue" and "mass" might be the same thing.  I've since learned that people who are "short-sighted" are more likely to have retinas start to become detached, and if a detached retina occurs scar tissue may form.  (It happens that my son had had a skull fracture in early infancy, before I adopted him, and I guess that could caused something too.)

    I guess my other point is that it's easy to get really scared over hearing something at first, and then, at least in a case like my son's, it can turn out to either be wrong or "close to nothing" once they look more into it.  Also, I was told that seeing some things in young kid's eyes can be difficult, so it's easy to see something and later discover it's not what it looked like.

    Again, I know none of this may be at all the kind of experience you're looking for, but I guess I thought it may help to think there's the chance that "mass" and "scar tissue" might be the same thing; but also to keep in mind that some frightening things turn out to be pretty much nothing.

    Try to relax and assume it's most likely nothing, or at least nothing to panic about.  (I went through the whole thing of trying to adjust to knowing my son is "legally blind" - and, really, I don't know where that came from (and got put in his files/records), because since he's been older that's no what eye doctors have told him.  Let us know how it works out. 

    (One other thing:  The premie I did have myself has strabismus.  At first I couldn't get any doctors to see it at all.   When he was toddler/preschooler I was told he'd have no sight in the one eye at all.  He's another one who turned out to be able to see.  He's got some minor vision loss, but he can see and read with the eye.  Again, it kind of goes back to that they can't always easily identify what they're seeing or not seeing in children's eyes. )

  13. 0
    cosetteposted 6 years ago

    good girl!

    i emailed you.

    1. 0
      wordscribe41posted 6 years ago in reply to this

      Emailed back.  smile

  14. 0
    wordscribe41posted 6 years ago

    Thanks so much, Lisa.  That's exactly the kind of experience I was looking for.  It helps, trust me.

    He told us our son couldn't play baseball tonight because his eyes were dilated.  He THEN went on to state that he might be fine catching the balls now, but it could become a problem when he is a little older and they start coming faster.  As if to imply, his condition will worsen.  That's what's really haunting me.

    His twin sister has mild strabismus, which she's mostly grown out of now.  Eye patch was a lot of fun with a toddler!

    1. Lisa HW profile image82
      Lisa HWposted 6 years ago in reply to this

      My premie is now 28, and just a few weeks ago I asked him (again) about his vision.  I saw his eye turn when he was a little over a year old.   The pediatrician kept saying it was "the bridge of his nose".  He "assured" me a lot of mothers mistake eye turns because some babies have a certain kind of nose bridge.  I knew what I was seeing, and I knew it showed up when he was tired.   It took until he was eighteen months before any doctor (including ophthalmologists) even saw it, and even then it wouldn't really show up.  In the meantime, it was getting worse.  Finally, they saw it.  I was told it wasn't bad enough to do anything about.  Then, when he was about five a doctor gave me the whole patching plan, with warnings that it could "backfire" and make the other eye go bad.  Eventually, the whole plan turned into, "Leave it for now.  It isn't bad enough for surgery.  Keep having his vision checked."   Then, of course, there was the thing that it was "likely" he'd have no vision in the eye. 

      With the son said to be "legally blind" I was just numb when I came home that day.  I knew that "legally blind" doesn't mean "out-and-out-darkness" blind, but it still seemed pretty bleak to me, especially with such a little kid.

      Of course, this was the son who was said to have flat feet at four and who grew out of them.  He was also the kid who hit his baby tooth, had it turn gray, and had the dentist tell me it would remain gray until it fell out - only to have the gray tooth turn white again.  He's my "against-the-odds" kid.  smile  He also went through a serious health scare a few ago, and all turned out ok.

      My daughter, too, was schedule for ultrasounds because she had a bunch of swollen lymph nodes.  That was one of those numbing situations too.

      With my younger son, who in high school would eat cheese with his buddy every afternoon after school, he got his cholesterol up.  The doctor said there was a chance he had a condition that meant he "just had" high cholesterol and could have a heart attack young.  He and his pal would eat - like - a half block of cheddar cheese as a snack each day.  When he stopped eating that his cholesterol went down (needless to say).  smile

      Then there was the cancer scare we had with my husband, when I was expecting my daughter, one child was three, and the other was eight.  Thankfully, and contrary to what he was told by the doctor, it was not cancer.

      Finally, there was the twice-fractured knee I had and was told by the doctor it would get worse and worse until the pain got so bad I'd need knee replacement, maybe, at 35.  35 came and went a long time ago, and the only thing time did to that knee was return it to almost as good as new.

      I think doctors have to go with the worst-case scenario first, just to cover all the bases - or maybe they just have to take a "pessimist test" before getting into medical school?  smile

    2. 0
      cosetteposted 6 years ago in reply to this

      when i was 8, an eye doctor told my mom i would be blind by the time i was 21.

      so all my life i thought i was going to be blind by the time i was 21. i even developed a phobia about going blind. i thought i would wake up one day and be blind.

      obviously i am not blind and have correcetd vision (20/20) with contacts.

      what a dill that doctor was.

      hey, can you call that doctor and ask what's going on?

  15. TheGlassSpider profile image80
    TheGlassSpiderposted 6 years ago


    I'll never forget when I was waiting for the docs tell us whether my little brother (who was and still is like a son to me) had spinal meningitis or not. I thought I would go crazy with the waiting and the fear.

    I can only imagine that it's similar to what you're going through, and I am so sorry.

    Please know that you and your family are in my thoughts and prayers. Here's sending you warm, positive thoughts and deepest wishes for blessings your way.

    Take care and do your best to relax. {{{{{HUGS}}}}}

    1. 0
      wordscribe41posted 6 years ago in reply to this

      You are so sweet, thank you so much.  I am the WORST waiter in the world.  Want the information, want it now.  Many people who have children dear to them can understand.  I am a mess when it comes to my precious children. 

      Did he have spinal meningitis?

      1. TheGlassSpider profile image80
        TheGlassSpiderposted 6 years ago in reply to this

        *slaps forehead* Duh! Talk about a bad story teller!

        No, thank God, he didn't have spinal meningitis. Turned out he had an infection in one of his lymph nodes from the scratch of an indoor/outdoor cat. Cat scratch fever, literally. But it caused a huge cyst on his neck (temporary), very high fever, and apparently a lot of pain (since he wouldn't move his neck, i.e., the reason they thought meningitis)...but he was so young, he couldn't talk and tell the docs what hurt or anything. He was just a little baby.

        But he was Okay!! Some antibiotics, lots of fluids...and he's an almost-grown little booger now. Getting ready to start his first year of college. And I'm sure your baby will be too; all too quickly this will be a distant a memory. smile

    2. Lisa HW profile image82
      Lisa HWposted 6 years ago in reply to this

      The spinal meningitis scare reminds me:  We went through that one with my nephew.  Also, when my daughter was six weeks old, and I couldn't wake her up, she was hospitalized and tested for septicemia, because she was "borderline newborn".  It took two days of waiting, with her on antibiotics, to learn it was apparently just a "regular" infection.

      I'll leave this thread because I have three kids and more than 20 years each for all those scares.  If I stay I'll be thinking up more of them.  lol

  16. 0
    wordscribe41posted 6 years ago

    Having sick kids is the worst, no matter what. My daughter's stomach flu practically brought me to tears last night, poor miserable little girl.

    That's the first real case of cat scratch fever I've heard.  *runs off singing the song*  smile

  17. 0
    wordscribe41posted 6 years ago

    Thanks again, Lisa.  It does help to know others have had scares that turned out to be nothing.  Now if only that eye doctor would call like he said he would this morning.  GRRRR.

  18. 0
    wordscribe41posted 6 years ago

    I'm thinking about it.  I'm giving his a little break because I know he was contacting my son's last eye doctor to compare notes.  I figure it's taking some time to hear back from her.  But, I have a 1:00 deadline in my head, about an hour before I call to check in.  I hate that this will linger over the weekend.  I sent you an email, btw...

    1. 0
      cosetteposted 6 years ago in reply to this

      good thinking. the more people involved, the more layers...but you're smart not letting this go all weekend. i would be a basket case wink

      keepin' fingers crossed for you, and good thoughts for your son smile

      (and you have mail also.) well i must be off...it is very fine out so my son and i are going to hang out today, yay...

      1. 0
        wordscribe41posted 6 years ago in reply to this

        YAY!!!  Have a great time.  Hopefully you have the same nice weather we do.  Very rare here, by the way.  Enjoy!

  19. west40 profile image59
    west40posted 6 years ago

    I will be thinking about you and your son - have been through many of scares and it is so stressful.  Keep us informed.

    1. 0
      wordscribe41posted 6 years ago in reply to this

      Hey, thanks a lot, West.  I'll keep you posted.  Sigh.

  20. 0
    Lecieposted 6 years ago

    i had an eye exam once where the doc. took an hour looking at my left eye through many degrees of magnification. then she said i had an abnormality in it and wanted to see me back in one month.
    when i went back she spent less than 5 minutes looking at it just to say oh it's fine. it was just an abnormal blood vessel. after having me worried for a whole month it turned out to be nothing. i hope your son's turns out to be nothing too.

  21. 0
    wordscribe41posted 6 years ago

    Hey, thanks for that, Lecie.  I really hope it turns out to be something like that.  This thread has helped me a lot, so many people sharing their "it turned out to be nothing" stories.  Thanks for adding to my relief.  smile

  22. Sage Williams profile image88
    Sage Williamsposted 6 years ago

    Sending you white light and lots of hugs.  Hope all goes well.  You are in my thoughts and prayers. Stay strong!

    Hugs to you and your son,


  23. 0
    Lecieposted 6 years ago

    you're very welcome and i wish you and your family the best.

  24. 0
    wordscribe41posted 6 years ago

    Awww, thanks, Sage.  I love how you said that, I'm all tingly inside now.  smile

    Thanks again, Lecie! 

    All of this support has really been wonderful!

  25. ThoughtfulSpot profile image83
    ThoughtfulSpotposted 6 years ago

    God its so awful worrying about the kids.  I'm an answer person too... it drives me crazy to wait.  I'll be thinking of you and your son and hopefully this worry all turns out to be for naught and we can laugh about how silly all us moms are! smile

  26. h.a.borcich profile image60
    h.a.borcichposted 6 years ago

    Just popping in to let you know I am still sending prayers that this will be resolved and fine. Thought of you often this weekend, Holly smile

  27. 0
    wordscribe41posted 6 years ago

    Hi everyone.  Thanks for all the support.  My son will be going up to Oregon Health Sciences University today to see a specialist.  I will update all on the findings.  Again, the support has made a world of difference!

  28. 0
    Crazdwriterposted 6 years ago

    Hey Wordscribe...let us know how it goes most definietly. and tell you little man that we are rooting for good haelth for him and nothing serious smile

  29. Rafini profile image85
    Rafiniposted 6 years ago

    I hope all goes well  ((((HUGS))))

  30. Daniel Carter profile image91
    Daniel Carterposted 6 years ago

    Wordscribe, see how many friends you have here. I know that's not much for making things right for your son, but we're pulling for you.

    I say this from having LOTS of catastrophic loss in my life.

    Kill the fear. Kill it. Stomp on it. Get pissed at it. Don't cry over it. Kill it.

    It's the only way to face what's going on and to help your son help himself through this. Whatever it is, it's manageable.

    You're a rockin' mom.
    No one disagrees.


  31. 0
    wordscribe41posted 6 years ago

    You guys are all so great.  Daniel, it's true I do have so many great friends here.  I wish I could just meet each and every one of them in person!!!

    I'm feeling very strong, I've STOMPED on the fear, Daniel.  I will take it as it comes with the knowledge that he was born in a time of miraculous medical technology.  We will manage it one step at a time. 

    Poppa Blues, Daniel, Rafini, Pretty Dark Horse, Holly, Crazdwriter, Thoughtful Spot... sincerest thanks.  He goes in today at 2:45, then I promised the girls we'd go shoe shopping, I will report back then.  Poor guy has to have his eyes dilated AGAIN.  Oh well, he always gets cool sunglasses out of the deal...  cool

    1. 0
      Crazdwriterposted 6 years ago in reply to this

      Shoe shopping? ugh! lol have fun chica you deserve a break

  32. TheGlassSpider profile image80
    TheGlassSpiderposted 6 years ago

    You and yours are in my thoughts and prayers, wordscribe! I'll be sending good vibes your way!

    1. 0
      wordscribe41posted 6 years ago in reply to this

      Thanks, Glass Spider!  Good vibes are always appreciated.

  33. thisisoli profile image64
    thisisoliposted 6 years ago

    Hope it all works out for you, I have only just seen this thread!

    Try not to worry too much,and best of luck!

  34. Amber Allen profile image81
    Amber Allenposted 6 years ago

    It is so difficult when your children are poorly you want to take the illness from them and have it yourself instead.  I hope everything goes well.

  35. Faybe Bay profile image81
    Faybe Bayposted 6 years ago

    I hope all goes well, good thoughts and prayers your way.

  36. 0
    wordscribe41posted 6 years ago

    Oli, Amber and Faybe, thanks so much.  I've gotta go get ready now.  Sure wish it wasn't Spring Break and all 3 kids didn't have to come.  I foresee some serious complainin' from the girls.  Sigh.

  37. Jane@CM profile image60
    Jane@CMposted 6 years ago

    I hope all goes well for your son.  Lotsa hugs.

  38. 0
    wordscribe41posted 6 years ago

    Thanks, Jane.

    Okay, it took over 3 hours there.  Anyway, it seems we've discovered what the problem is.  He has Retinal Pigmentation Dystrophy and fluid that's accumulated in his macula.  The specialist said he was probably born with "leaky" blood vessels in that eye that have caused this fluid build-up and the dystrophy in the pigmentation.

    Bottom line:  he has fluid in his macula that's causing acuity problems.  He has cell death in that eye that's irreversible.  If we do nothing, he would eventually go blind in his right eye.

    So, he will need to have lazer surgery to zap the leaky vessels.  Right now since not enough light can get in his eye, there's nothing they can do to correct it with lenses.  The good news is that this will probably (no guarantee) help his sight.  The bad news is there's been permanent damage.  The other "bad news" is he may have a propensity for these leaky blood vessels and it can happen over and over again.

    So, all in all I'm relieved it's not some ominous disease process.  He says he was either born with it or developed it very young.  For some reason my husband is not taking it well.  I'm not thrilled by any means, but I think we can deal with this as it comes.

    1. wyanjen profile image88
      wyanjenposted 6 years ago in reply to this

      aww, poor little guy sad

      I was expecting "worse" news than this, so although there is a big problem for him, I'm relieved. If that makes sense.

      I'm sending out my best good thoughts for you guys.

    2. Lisa HW profile image82
      Lisa HWposted 6 years ago in reply to this

      wordscribe41, glad to see it isn't something that can't be dealt with and watched.    As you said, it isn't great - but it could have been something a lot more frightening.

      Chances are your husband just need to do his own processing of the whole thing. 

      It's crummy your little guy has to go through anything like this at all, of course.  (More than once I've heard, "Maybe s/he was just born with a propensity...."  - only to later discover something the problem that was corrected (or had improved) didn't show up again.,)

  39. 0
    wordscribe41posted 6 years ago

    I agree, THIS I can deal with.  No, it's not perfect, but I can think of a lot worse.  A LOT WORSE.  Thanks, Jen.

    1. prettydarkhorse profile image66
      prettydarkhorseposted 6 years ago in reply to this

      it will be just fine Ms Laura, it must have been tough today for you, but at least this time it is better because you know whats wrong already!

      Congrats dear, you are again one of the top nominees -- HUB contest, smile and HUGS!

      1. 0
        wordscribe41posted 6 years ago in reply to this

        You are so sweet.  I agree, knowing what's wrong is key here. 

        Yes, I just noticed that about the nomination.  Thanks.

        1. prettydarkhorse profile image66
          prettydarkhorseposted 6 years ago in reply to this

          night, I will sleep now, hope you sleep tight, you must be tired!

  40. earnestshub profile image87
    earnestshubposted 6 years ago

    Well done wordscribe. You are a gutsy mom!
    All my love to your family, medical science moves ever forward, so I am hoping for a good long term outcome. In the mean time, Good luck and best wishes.

  41. 0
    wordscribe41posted 6 years ago

    Thanks so much Earnest.  Poor little guy has to miss baseball practice AGAIN because his eyes are dilated.  He lives for baseball, that's one of the reasons this struck me as so sad. But, we're moving forward and he'll be just fine.

  42. 0
    cosetteposted 6 years ago

    hey there!

    i'm so glad it wasn't worse news, and that it is something that can be treated. hooray! smilesmile

    now you can take a deep breath.

    the little sweetheart.

  43. 0
    wordscribe41posted 6 years ago

    Hi cosette, yes it seems LIKELY it can be treated, we've not been given a guarantee.  AND, it might return even after it's fixed.  But, I refuse to "borrow trouble" and am optimistic we will get it solved.  I do feel better all in all.  I'm not looking forward to him being anesthetised, the doctor requires it in kids his age.  He's convinced they will be using a lazer that it like the ones used in Star Wars.  lol

  44. 0
    cosetteposted 6 years ago

    hee hee... i love how children think. that's so cute.

    1. 0
      wordscribe41posted 6 years ago in reply to this

      Me, too.  They are so funny.  A friend of mine was telling me a story about her 4 year old son the other day who was in "the dog house".  My friend said to him:  "Well, are you ready to discuss with me how you broke the rules?"  He said:  "Well, are you ready to discuss with me how you broke my heart?"  lol

      1. wyanjen profile image88
        wyanjenposted 6 years ago in reply to this

        lol GET OUT OF HERE lol

        I will be laughing at this for weeks to come.

        1. 0
          wordscribe41posted 6 years ago in reply to this

          I know, I'm still laughing about it, Jen.  Plus, if you know the little guy it's even funnier.  He's ADORABLE, just a character through and through (like him mom, which is why I love her so much). 

          Off to hang with the kids up at the school for a few.  It's a beautiful day and they want to hang with old mom...

          Talk soon!

  45. goldenpath profile image81
    goldenpathposted 6 years ago

    Is there nothing that can increase the strength of the blood vessels to prevent leaking?  I'm no doctor, by any means, but I would think certain vitamins or minerals or even Elmer's glue would help these vessels.  OK, the glue thing was over the top! smile My thoughts and hopes to him.

    1. 0
      wordscribe41posted 6 years ago in reply to this

      Thanks, goldenpath.  We asked about that, and after the vessels leak there's nothing they can do medicinally.  They have to be sealed off mechanically.  Thanks for your kind words!  I hope you're well!!!

  46. wyanjen profile image88
    wyanjenposted 6 years ago

    You might not be too far off the mark there, goldenpath
    Elmer's glue is non-toxic, isn't it?
    Elmer's Eye Glue. It has a nice ring.

    If only it was that easy though...

    Take care & have fun Laura

    1. goldenpath profile image81
      goldenpathposted 6 years ago in reply to this

      It does have a nice ring to it.  How 'bout we go in together on it and make a couple million in patents?  Wordscribe's child will be our "poster child", for the campaign.  We can even use wordscribe's avatar as a logo, however, that one might do better on a Maxwell House or Folger's commercial.  I love the picture though! smile  Of course, I like it because I am envisioning hot and frothy cocoa in that mug. smile smile smile

  47. Faybe Bay profile image81
    Faybe Bayposted 6 years ago

    I guess you're gone Wordscribe but I just wanted to say I am so glad it wasn't worse and that it is something that can be dealt with.I am sorry your little guy has problems but as you said at least it is something that can be taken care of.

    I hope it all goes perfectly and never needs to be done again. It is a shame that there is already damage, but imagine if it had not been caught! Thank goodness it was! Take care and best of wishes for a speedy resolve!

  48. 0
    wordscribe41posted 6 years ago

    Thanks, Faybe!!!  You guys are so funny, Elmer's Eye Glue.  He he he:  bonds even the toughest leaky blood vessels (As Seen on TV) lol

  49. 0
    wordscribe41posted 6 years ago

    Yes, Lisa I think it's just going to take some time for him.  I totally get that. 

    My gut feeling (call me Poly Anna) is that it will be fixed and we won't see it reemerge.  Don't know why I think that, but I just do.  I think they always have to give you ALL the possibilities, of course, and that includes the worst case scenarios. 

    Thanks again for all your support, Lisa.  I hope all is well with you!

  50. 0
    Crazdwriterposted 6 years ago

    oooo I just read what you wrote about your son wordscribe. I hope they can fix that quickly, safely, and it doesn't come back again smile