jump to last post 1-7 of 7 discussions (13 posts)

Living with Rheumatoid Arthritis.

  1. Aiden Roberts profile image87
    Aiden Robertsposted 6 years ago

    Hi
    I am writing a rather long hub about living with RA, in my case I am the husband of a sufferer rather than a sufferer. It has become apparent that this new hub will be far too long to read or write in one sitting so I was wondering.

    Would people find it interesting to read about the experience of a sufferer over a 14 year period and would would you follow a series if I break it up into say 5 year periods. What I can say is that our experience of RA is an unfolding roller coaster of a ride as it has yet to be brought under control, some people may find it helful to hear our experiece of symptoms, diagnosis, healthcare, medications, operations, independent living, effect on life, effect on family and the future.

    Any comments most welcome.

    1. pinkboxer profile image60
      pinkboxerposted 6 years ago in reply to this

      I would like to read about your experiences as a spouse responding to the challenges of RA in your family. Chronic illness changes everything. Please write about your " rollercoaster ride ".

      1. Aiden Roberts profile image87
        Aiden Robertsposted 6 years ago in reply to this

        Thank you pinkboxer.
        It is has been a life changing experience for all of us and doesn't seem to be over yet. I am about 2500 words in at the moment and think on reflection it makes sense to break it up.
        Thanks again

  2. profile image0
    Precious Williamsposted 6 years ago

    I too would like to read your experiences because I was wrongly diagnosed with RA for sixteen years(I have fybro myalgia).  However, I know you will have a lot to say and if I was you I would break it up. I still think you could write lots of quite long hubs.  I'm doing a similar thing on mental health.  If I just told my story in one hub I'd be writing forever. 

    But you can ignore this - do what feels right for you.

    1. Aiden Roberts profile image87
      Aiden Robertsposted 6 years ago in reply to this

      I am sorry too hear that.
      Sometimes life becomes very dark all because of an illness that is beyond our control, I really hope that by getting our story out there it might just brighten someones day; even if that is only for a short time.
      Thank you for your support.

  3. Aiden Roberts profile image87
    Aiden Robertsposted 6 years ago

    OK, here is the first instalement of Living with Rheumatoid Arthritis, hope you like it.

    http://hubpages.com/hub/Living-with-Rhe … -Arthritis

  4. westdrug profile image61
    westdrugposted 6 years ago

    I am really pained by what I read in your hub. However, many of my friends have had considerable relief (temporary, but it still feels good, even if for some time) from topical medications!

    You can also check out some info available online for cases like yours. And I also feel that diseases like these need more attention from mainstream medication industries and the media alike.

    Don't you think so?

    Phil.

    1. Aiden Roberts profile image87
      Aiden Robertsposted 6 years ago in reply to this

      Thanks for your support.

      1. westdrug profile image61
        westdrugposted 6 years ago in reply to this

        You are most welcome buddy! Dare I suggest my pharmacy to you, provided you can arrange for a visit/consultation in any of the centres in Orange County? Read more here - http://bit.ly/dB29eF

        It's only a suggestion..hope you do get well, even if it's not with my help! smile

        Take care,
        Phil.

  5. megs78 profile image61
    megs78posted 6 years ago

    I too would love to hear about this. I am as yet undiagnosed, but suffer horribly from knee joint pain and am still waiting for my appt with a rheumatologist.  I am hoping it is not RA, but most symptoms point to it.  I will look forward to following your story,

    Thanks, Megs

    1. Aiden Roberts profile image87
      Aiden Robertsposted 6 years ago in reply to this

      Thanks Megs
      I hope it all works out for you, RA can be controlled and the new biological treatments are so much more effective when given early enough. Our story spans 14 years of uncontrolled disease activity so it's quite horrific in parts and upsetting in others but what I can say; you do learn to live with it and recognise that other people are so much worse off, so once you accept it you can move forward.
      Good luck and health for the future.

  6. Aiden Roberts profile image87
    Aiden Robertsposted 6 years ago

    Living with Rheumatoid Arthritis part 2 now published, hope you like it.

    http://hubpages.com/hub/Living-with-Rhe … tis-part-2

  7. Aiden Roberts profile image87
    Aiden Robertsposted 6 years ago

    Arthritis and Sex, published. Touchy subject but needed publishing. Any comments welcome.

 
working