Do you have any experience with Pyroluria?

  1. Devanni profile image61
    Devanniposted 6 years ago

    Hello there.
    I was recently diagnosed with severe Pyroluria and am on day three of treatment.  I was just wondering if there was anyone out there who has any experience with this, whether you have it yourself, or know someone who does.  I'd be greatful for anything you'd be willing to share about your dealings with it.