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Wegener's Granulomatosis

  1. kissayer profile image85
    kissayerposted 5 years ago

    Hi everyone!
    My younger sister was recently diagnosed with a rare blood disorder, Wegener's Granulomatosis (find out more here: http://kissayer.hubpages.com/hub/What-i … ulomatosis) and I wanted to see if there might be any members here that might have Wegener's or have a family member with Wegener's that might want to chat!

    As it's such a rare disease, we know no one going through a similar experience and it'd be lovely to chat with someone in the same boat - so to speak.

  2. paradigmsearch profile image89
    paradigmsearchposted 5 years ago

    This google search:

    Granulomatosis help group,

    and this google search:

    Granulomatosis help forum,

    looked like decent results to my inexperienced eye. smile

    1. kissayer profile image85
      kissayerposted 5 years ago in reply to this

      Yeah, I just wanted to see if maybe some Hub pages members were smile

      1. paradigmsearch profile image89
        paradigmsearchposted 5 years ago in reply to this
        1. paradigmsearch profile image89
          paradigmsearchposted 5 years ago in reply to this

          They're probably not forum-active. So you'll have to poke them with a stick via hub comments or fan mail, etc. smile

          1. kissayer profile image85
            kissayerposted 5 years ago in reply to this

            True, thanks for your help! smile

 
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