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Asperger's and Sensory Integration

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By shashigai

Sensory Integration involves three systems of sensory input and response or interpretation: the vestibular system, which is connected with things like balance, the tactile system which is related to touch, and proprioception, which is one's sense of where one's body and its parts are located in space. People with Asperger's respond differently to sensory input.

Below I discuss these systems and what happens when a person with Asperger's receives stimulation to each one.


VESTIBULAR STIMULATION

The vestibular system coordinates input from a lot of senses. For many with Asperger's, there is a difference in how the input is experienced. Individuals may be hypersensitive to movement. At the other extreme are individuals who have a hypo or under-reactive response to vestibular stimulation; these are the ones who rock, jump, whirl, or, like me, ride roller coasters. Of course, there are also people who have symptoms of both - they struggle with oversensitivity to some types of vestibular input and at the same time seek out intense vestibular stimulation.

In the AS community those who seek out intense stimulation are said to "be stimming." There is a lot of controversy over what behaviors constitute stimming, for example some say that people who twirl their hair are engaging in a mild form of stimming, while others maintain that intensity is a requisite for the behavior.

Here is a very good article on the vestibular system that includes activities for children who have a hypo-active response to vestibular input. The idea is to train the child to accurately interpret and respond to "normal" vestibular stimulation.

I am one of those people who falls into both categories. I used to get extremely carsick and could not use a swing, but I love roller coasters. I am not sure how to explain that as it seems similar to me - most roller coasters (at least the ones I ride) have speeds in excess of 75 miles per hour! When I lived in a big city, I sometimes had a hard time tolerating riding on the train, not because of the forward movement, but because the train car would rock back and forth as it moved.

Besides riding roller coasters, I "stim" by rocking, and by doing kind of a dance step where I step from side to side, kicking my feet against my heels as I do.

Here is a good article on the vestibular system

TACTILE STIMULATION

This has to do with one's sense of touch. Individuals with AS often have issues with texture and touch. Symptoms fall along a continuum that goes from insensitivity to hypersensitivty - to cold, hot or pain, for example. I have extremely high pain tolerance - I have broke a rib and two vertebrae in my back and thought I had strained muscles. On the other hand, I am very sensitive to texture. Fabrics made from synthetics feel like oily plastic to me. I have intolerance of light touch on certain parts of my body. If you ever have bitten a piece of foil by accident, or hit the "funny bone" in your elbow, you will have some sense of what happens to me when someone touches my shoulder. On the other hand, firm touch, as well s deep pressure, feels comforting and good to me.

I tried to educate my work colleagues about my sensory issues because in the crisis and medical fields, people seem to touch each other a lot - for support, to get someone's attention in a noisy environment, and for other reasons I haven't quite been able to fathom. It was hard to get people to believe that I had these sensations. For a while I wore a heavy coat or sweater to mitigate the sensation I had when people touched me. One employee didn't believe me, and one day made literally dozens of excuses to come over to me, and each time he did he touched my shoulder. I asked him not to do it and he kept saying (while grinning) that he forgot. I told my supervisor, who intervened, but before that I tried and tried to tolerate it and ended up near to what we in the AS community call a "meltdown." (see below)

PROPRIOCEPTION

This mouthful has to do with body position. Individuals with proprioception issues may have difficulty locating their own body in space. They may seem clumsy and/or have problems with fine motor skills. Writing, eating or manipulating small objects like buttons may be difficult. It may also be difficult to type, or pick things up. I still have the problem of reaching for something, for example a book on a shelf – and picking up the item next to it.

When I was a child I received extremely poor marks in penmanship; I print better than I write script. When I walk down a hall, for some reason I usually end up against the left wall. I solved this problem by reaching out with my right hand and lightly touching the wall as I walk. This keeps me on the right side of the hall and I don't bump into anything. I generally hold onto bannisters as I walk down stairs as I sometimes don't get how far down to step.

MELTDOWNS

Many "meltdowns" are caused by an overstimulating environment. The stimulation can come from a variety of sources, but the overall effect for someone who is hypersensitive to sensory input is extremely overwhelming. People with AS struggle with social cues and with what is socially appropriate behavior, so someone's response to over stimulation, whether it is to withdraw or engage in vestibular stimulation may be seen as inappropriate.

One of my worst meltdowns came when I was grocery shopping - I was already overwhelmed by too many products in too many aisles as well as loud music where the songs were cut off in the middle for inane announcements from the store's automated commercial ad system. I use the self serve checkout because it's more comfortable than interacting with the store clerks. However this time a well-meaning clerk approached me, and as I was moving slowly, asked me several times if I wanted help. He even tried to take some of the items away from me to help me check out faster. I'm afraid that after the fourth or fifth time that he asked (each time I responded with "No, thank you."), I began yelling "Please leave me alone! Would you just leave me alone!" When I got home I was still shaking and curled up on my couch and rocked until I felt better.

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Pam Roberson profile image

Pam Roberson  says:
12 months ago

Very nice! You've explained a lot to me that I suspected but wasn't sure of. And I'm beginning to believe that what some doctors suspected might be an inner ear problem with my son is actually more of an issue with how AS affects his vestibular system.

He is hypersensitive to movement, but it's more about seeing the movement of people and things around him that can sometimes cause him to feel off balance and very anxious. It's interesting to me how this can vary from one person to the next.

Thank you so much. :) What I appreciate most about your efforts here is how it might help parents recognize early signs of this in their children. I think many children get misdiagnosed, and if parents know what to look for, then they can seek out the right help. For example, a meltdown can look a lot like a temper tantrum in a young child, but they are two totally different things.

Ardie profile image

Ardie  says:
12 months ago

Hello again shashigai

Thank you for the great information. I wonder if my youngest has a mild form of AS. So many of the things you mention fit her behaviors, but they arent disruptive to her daily functions and she is very sociable - loves to be touched and loves to play with kids her own age.

Since you seem to have so much knowledge about the topic, I hope you dont mind all my questions :) Is it possible to have some of these symptoms and not have AS?

On another note, I now understand my niece a lot better. Her behaviors were so frustrating before. She can be aggressive to other kids (mine included) and I couldnt get close to her, hug her, talk to her, or approach her before. Now I think I understand why and I love her all the more for it.

Pam Roberson profile image

Pam Roberson  says:
12 months ago

Ardie, I think the most difficult thing about this very high functioning end of the autisim spectrum is that the symptoms can affect children differently. For example, my son was never aggressive towards other kids, and he always enjoyed playing with other kids when he was young. Although he did have trouble maintaining long-term friendships. The things that have been disruptive to his ability to function are mostly the sensory issues, panic attacks, and anxiety.

I could go on, but I won't and shouldn't because I'm only able to see things from a mom's perspective. I think Shashigai is much better equiped to give details. ;)

Ardie profile image

Ardie  says:
12 months ago

Thank you for your perspective. I can understand how a parent or someone with AS can get easily frustrated. It is such a confusing diagnosis for anyone not very close to it.

shashigai profile image

shashigai  says:
12 months ago

It is possible to have a mild form of AS, but if the issues are only in the area of sensory integration, then it may be a sensory integration disorder rather than AS. I am putting together an extensive, more scientific article for another site that will have some resources; and of course I will share the resources here. There are many treatments for sensory integration - you should not have to do it on your own and the diagnosis is less stigmatic than aspergers.

I should do a hub on aggression and AS, because the sources of the aggression are not what you think. Not sure whether I should add it somewhere though because it might not be enough for a full hub. I was not aggressive as a child; I was very withdrawn and shy.

Ardie profile image

Ardie  says:
12 months ago

Thank you for the information. She does seem to only have sensory issues. I never even knew there was such a thing as a sensory integration disorder, I will look into it more. I just thought she had somehow inherited my obsessive gene:) You can surely do a hub on AS and aggression. Even if it isnt a lot of info, you can group it with other assumed traits of AS that arent always accurate to make it a longer hub.

Pam Roberson profile image

Pam Roberson  says:
12 months ago

Shashigai, you could probably write a book about this. :)

Ardie, there's a great deal that I'm not sharing because I'm trying to respect my son's privacy. But other things to look for would include having difficulty understanding humor and being able to understand body language and facial expressions. I can remember many times when I'd be watching tv with my son and he'd ask me why the people were laughing and why a particular action or statement was funny. He still does sometimes.

I should be upfront in saying that while he wasn't aggressive towards other children, he was aggressive towards his sister, and he often became aggressive during a meltdown.

Ardie profile image

Ardie  says:
12 months ago

Thank you Pam. I understand respecting your son's privacy. Those things dont sound like my daughter, so I should indeed look into the sensory integration disorder. I appreciate the info from both of you so much.

Make  Money profile image

Make Money  says:
12 months ago

God bless you.

shashigai profile image

shashigai  says:
12 months ago

thank you

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