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Bad Behavior or Sensory Integration Issues?

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By Cheeky Chick


photo from agoosa.com
photo from agoosa.com

Your Child Needs More Discipline!

I recorded every episode of Super Nanny, read countless parenting books, took Love and Logic parenting classes, sought the advice of friends, daycare staff, and family, and despite my efforts, I still had a very volatile, unpredictable child. Where was I going wrong? Others felt I needed to spank more; use more discipline, but nothing seemed to make a difference. Spanking always escalated and prolonged the meltdowns. I used consistent discipline and followed through on consequences, but my son’s behavior did not change.


The Signs

As I look back, my baby was fussier than most, had difficulty sleeping, wasn’t consoled easily, and developed allergies to nearly every type of formula. But developmentally, he was on track. He crawled at 8 months, walked at 11 months, and was talking at 18 months.

His defiance began around age 1, necessitating the introduction of the Time Out. By age 2, his favorite word was “NO”, he was a picky eater, and he had extreme meltdowns over things like the sun being in his eyes. If another child touched him or tried to hug him, he reacted in anger and would push the other child away. The transition from crib to big boy bed was a nightmare. We tried every technique in the book to get him to stay in his room, but to this day, we have only had partial success.

I felt like an absolute failure. The parenting techniques I read about were hit and miss.  It was difficult facing judgmental eyes, knowing I was trying everything I could to be a good mother.  I yearned for the public to see my son's good side, but felt many couldn't get past his behavior.  I'm sure he felt it as well.  He rarely seemed comfortable enough to open up and show his sweet loving side to those outside our family. 

By age 3, my little guy was very well spoken, imaginative and bright, however, many times, when spoken to, he refused to give eye contact or to respond in any way. This was especially noticeable when strangers tried to interact with my son. It also seemed as if he would not, or could not follow directions. Sometimes he really tried, but something like the light switch on the wall would distract him, and he would completely forget what he was supposed to be doing.

Potty training was another major challenge. Just prior to his 4th birthday, we were finally successful. The only way we were able to accomplish this feat was to take away all of his toys, the television, and the computer, and remain in the house for 10 days straight focusing on potty training with no distractions. He suffered from hard painful bowel movements, and would wait until the very last minute to get to the potty. He always said he didn’t feel like he had to go until it was literally coming out.

Although my child loved social interaction, he would often go off to a room by himself at the beginning of the play date. He would say he needed space, and would get angry if other children tried to follow him. During play, if my son accidentally got hurt, he would scream, “You’re not my friend anymore! I never want you to come to my house, ever again!” At the end of the play date, we would walk his friends out to their car. When it came time for a hug or a high-five to say goodbye, there would be another angry outburst. It was through this, I learned how forgiving children can be. They seemed to forgive and forget, despite the way my son treated them.

In preschool, he refused to do activities that meant putting his hands in paint, or anything messy. Field trips were a source of anxiety. My son would struggle to decide whether or not he could handle riding the bus with the other kids. He would become very upset, not knowing for sure what the day would be like. He was also very particular about his socks. If his socks didn’t feel right, he would become extremely agitated.

Finally, an Answer

At age 4, our son took up Tae Kwon Do. That’s when we discovered that he was different. When the instructor would yell out, “Everyone, sit down”, all the kids would react immediately to the command. My son, however, would still be standing, and it seemed as if he didn’t even notice that everyone else was sitting down. After every command, the children were to yell out, “Yes, sir!” My son would not. Was he being defiant? I thought so, at the time.

That was until another mom had the courage to say something to me. She said, “Can I recommend a book for you to read?”

I said, “Sure. What is it?”

She replied, “It’s called The Out-of-Sync Child, by Carol Kranowitz.”

“I’ve been trying to figure out why my son doesn’t behave the way other children do at times, and why he doesn’t respond to the parenting techniques I’ve read about. What’s your suspicion?”

She told me she suspected Sensory Processing Disorder (also known as Sensory Integration Dysfunction). She pointed out the way he walked on his tip toes, blinked very often and deliberately, chewed on his clothing, lost his focus, was unable to concentrate when there was too much noise and movement all around him, and the way he’d get lost in the mirror. I told her about his sleep problems. He had never been able to sleep through the night without getting up several times usually starting at around 1:00am. She said that this was another common problem for children with SPD.

I immediately bought the book and after pouring over its pages, I was certain that my child had SPD. I finally understood! Children with SPD are so sensitive to what they see, feel, taste, smell and hear, that they are unable to tune out the unimportant stimuli and focus in on the task at hand. This constant bombardment creates a hostile environment that they are barely able to withstand. They melt down easily because they are overwhelmed with what they are experiencing. An unexpected touch catapults their bodies into a fight or flight response. For these children, an inability to organize stimuli from their senses creates problems in nearly every aspect of their lives.

Finally understanding why my son behaved the way he did was a real turning point. It gave me the patience to deal with his melt downs calmly. It changed the way I parented. It was a weight lifted from my shoulders.

Recommended Reading on Sensory Processing Disorder

The Out-of-Sync Child: Recognizing and Coping with Sensory Processing Disorder, Revised Edition The Out-of-Sync Child: Recognizing and Coping with Sensory Processing Disorder, Revised Edition
The Out-of-Sync Child broke new ground by identifying Sensory Processing Disorder, a common but frequently misdiagnosed problem in which the central nervous system misinterprets messages from the senses. This newly revised edition features additional information from recent research on vision and hearing deficits, motor skill problems, nutrition and picky eaters, ADHA, autism, and other related disorders.
Price: $9.19
List Price: $15.95
The Out-of-Sync Child Has Fun, Revised Edition: Activities for Kids with Sensory Processing Disorder The Out-of-Sync Child Has Fun, Revised Edition: Activities for Kids with Sensory Processing Disorder
This revised edition of the companion volume to The Out-of-Sync Child includes new activities that parents of kids with Sensory Processing Disorder can do at home with their child, along with updated information on which activities are most appropriate for children with coexisting conditions such as Asperger's, autism, and more.
Price: $7.22
List Price: $15.95
Too Loud, Too Bright, Too Fast, Too Tight: What to Do If You Are Sensory Defensive in an Overstimulating World Too Loud, Too Bright, Too Fast, Too Tight: What to Do If You Are Sensory Defensive in an Overstimulating World
Heller, a developmental psychologist, knows firsthand how difficult life can be for people suffering from sensory defensiveness (SD). Symptoms include flinching from touch; overly acute senses of smell; fear of escalators; irritation at certain lights; and eating disorders. While these symptoms are often present from birth, for many other people they can be triggered by some traumatic event. Adding to the pain is the difficulty in diagnosing this ailment-some sufferers are told they have ADD or autism.
Price: $8.31
List Price: $13.99
Raising a Sensory Smart Child: The Definitive Handbook for Helping Your Child with Sensory Processing Issues Raising a Sensory Smart Child: The Definitive Handbook for Helping Your Child with Sensory Processing Issues
For children with sensory difficulties-those who struggle to process everyday sensations and exhibit unusual behaviors such as avoiding or seeking out touch, movement, sounds, and sights-this groundbreaking book is an invaluable resource. Sensory integration dysfunction, also known as sensory processing disorder, affects all kinds of children-from those with developmental delays, attention problems, or autism spectrum disorders, to those without any other issues.
Price: $8.95
List Price: $16.00

Getting Help

Getting help was a challenge, but it was well worth it. I quickly learned that SPD is not a well-known disorder. Our pediatrician didn’t know much about it, but she took my written list of SPD concerns and found a few resources that may be able to help my son. He was developmentally on track, so he didn’t qualify for Occupational Therapy through the school system. We were, however, able to get my son evaluated, diagnosed, and treated through the Easter Seals Children’s Therapy Center. After jumping through the required hoops, we were able to get our insurance company to approve 12 sessions of Occupational Therapy. We immediately began a once a week OT session, combined with a daily sensory regimen at home. During those 12 weeks, we saw amazing results. The most noticeable change happened just days after initiating the Wilbarger Protocol (A skin brushing technique along with joint compressions that provides deep pressure sensory input). For the first time in his life, my son started to hug people outside our immediate family. He was also able to adapt to new environments more readily and no longer needed to go off by himself at the beginning of a play date. The brushing calmed him and put him into a relaxed state. Therapy taught us that he needed a daily dose of rocking or swinging, deep pressure (skin brushing, joint compressions), heavy work activities (pushing, pulling, jumping, etc.), exposure to new foods, and messy play. All of these things helped to calm him, and allow him to organize the information coming in through his senses. He met all of his treatment goals in 12 sessions and was released from care.

Now, my son is 7 years old. He still has good days and bad days, struggles with sleeping through the night, and overreacts to touch at times, but he is functioning at school and doing well. He has taught me so much about compassion and patience. Now, when I encounter extreme resistance, I know it’s not bad behavior or intentional defiance. He is doing his best and he’s just not able to handle what I’m asking of him at that moment. By taking baby steps and accommodating his needs when I can, I have to say, things are going pretty well.

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myownworld profile image

myownworld  says:
2 months ago

What a deeply moving hub this was! Also, as a mother of two small children, stories like these just fascinate me. I cannot begin to imagine what a struggle it must have been for you as a parent and yet what a relief too to finally discover the real source of the problem; more, to come to terms with it and bravely face it with the kind of courage and patience you've done!

You're an inspiration for all parents, especially those with children with special needs. I hope and pray the very best for you and your son....it's experiences like these that sometimes make us the people we are today...and you I can tell, are one special human being! thank you for sharing this special hub....all my love xx

Cheeky Chick profile image

Cheeky Chick  says:
2 months ago

Myownworld, I can't tell you how much it means to me that you stop by, read my hubs, and take the time to comment. I admire you and your writing immensely and feel I have so much to learn from you.

To be honest, writing this hub was therapeutic for me. So many times I have felt that I've failed my son. But writing it down helps me remember how far we've come, and feel good about where we are today.

You're the best! Thanks again for stopping by.

XOXO

Cheeky

RedElf profile image

RedElf  says:
2 months ago

Thanks so much for sharing your struggles so honestly and openly. It is often so difficult to find the help you need for children with what seem to be behavioral issues. It is so often by chance that help is found - a chance remark or meeting.

Your story reminds me so much of another hubber, Enelle Lamb. Her son was (finally) diagnosed at age six with ADHD, and (again finally) they could begin to get the help they both needed, but it is still an uphill struggle some days.

You are both brave and determined women for hanging in and doing what you need to do to find help for your sons.

Cheeky Chick profile image

Cheeky Chick  says:
2 months ago

Thank you, RedElf, for your kind, encouraging words. Like Enelle, I too suspected ADHD, but dismissed it because it didn't seem to fit. When I read about sensory defensive characteristics, it was as if the books were written about my son.

I have found that kids with ADHD and Autism Spectrum disorders are prone to Sensory Issues as well. I will have to pop over to Enelle's hubs and maybe we can be support for each other.

Thanks again for stopping by.

Enelle Lamb profile image

Enelle Lamb  says:
2 months ago

I wouldn't doubt that my son has a few points of sensory issues as well. He is an extremely picky eater, texture plays a huge part in what he eats and doesn't eat, bright light also seems to affect him, as does loud noise (or louder than he likes lol) and of all things, he also walks on his toes! He is now twelve, and still walks on his tip toes at home, and sometimes when out. He also has problems with certain tags on his clothes, and lumps in his socks. He will stop everything, no matter how rushed we are, to fix his socks.

Potty training was a tough hurdle, and sleeping, well...sleeping is still an issue. I had to sleep with my son for the first three years, then finally transitioned him to his own room and bed (LOL if you can call it that)and have spent the last nine years sleeping and sitting on the end of his bed until he falls asleep. I discovered melatonin when my son turned seven, and have been giving him a 3mg tablet every night for sleep since then. It helps keep his sleep regulated, and the waking in the middle of night has decreased significantly. Now that he is older, he sleeps through the night except for a bathroom break. I have finally been able to stop sitting on the end of his bed since the purchase of a loft bed prevents me! LOL whatever it takes!

I can certainly relate to your parenting issues, and the surrounding criticism that accompanies it.

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