I am writing this article in hopes to help someone else who may have a child that has this disease or maybe a mother who can't get any answers to their child symptoms..

 What is Cyclic Vomiting Syndrome - CVS

_{CVS is an unexplained disorder of children and adults that was first}

_{described by Dr. S. Gee in 1882. The condition is characterized by}

_{recurrent, prolonged attacks of severe nausea, and vomiting, with no}

_{apparent cause. In some there is severe abdominal pain. Vomiting}

_{occurs at frequent intervals for hours or days (1-4 most commonly.}

_{The episodes tend to be similar to each other in symptoms and}

_{duration and are self-limited with return of normal health between}

_episodes.

It all started about 2 months after my son was born. After he

would be given It his bottle, he would then regurgitate half the

bottle back up. He would choke and turn blue and would scream

for hours and hours. He would straighten his legs and his little

fists would just clench so hard. We took him several times to

the emergency room because he was dehydrated all the time. He

would actually keep throwing up at the emergency room, but no

fever or anything. All his tests would come back negative. To

make a year long story somewhat short, they would keep sending

us home saying nothing was wrong with him. I returned almost 3

times a week. He was losing weight, and would just cry so hard

it made us cry. They would sometimes keep him overnight and give

him IV's to replenish his electrolytes. We switched Dr.s

several times because I knew in my heart, something wasn't quite

right. At 9 mths of age, we took him to the Carle Clinic in

Champaign, IL. We found a very nice pediatric gastroenterolgoist

who said he would run some different testing. They said he had

a rare form of reflux and they would do a surgery on him called

a nissenfundoplication.

That is where they took a piece of the top of his stomach and

wrapped it around the bottom of his esophagus to help keep him

from vomiting. Well, low behold, the surgery actually stopped him

from vomiting and he started gaining weight again. He was so

lethargic all the time and lost so many vitamins & electrolytes,

that he didn't even sit up until he was a year old. He started

walking at 17 months. We thought everything was good now and he

was on his way to recovery.

3 YEARS LATER

>

When he was able start running and playing around 3 or 4 yrs old,

we would go outside and play and after about half hour, sometimes

more, sometimes less, of playing, he would curl up on the couch and

go sleep. He would get up, go vomit, then go back to bed. He would

sleep sometimes for 3 hours, and other times, it would be from 5 pm

at night, until the next day.I remember one time I took him to a garage sale

and it was hot that day. We walked up to the sale, and he said, "Mom, I

gotta throw up." The lady let us in her house and he vomited and sat on her

couch and she gave us a very cold rag to put on his head. This is what we

had to do everytime it got hot out. This went on for several years, and

believe me, I took him and called the Dr. weekly. They thought he had

something wrong with his heart, so they put him on a heart monitor for a

month. Every time he would have an attack, I had to attach it to the

telephone and they would read it. That came back normal. I could go on

and on. As I think back, he had some small signs starting at 2 yr of age,

but wasn't as active, so it was just so hard to really notice anything

significant.

>

>

Mom's had it by NOW!

We were referred by his pediatrician to take him to the Children's Hospital

in Chicago. The Neurologist there took some tests and said he had Cyclic a

condition called Cyclic Vomiting Syndrome. He said he treats about 400 cases

a year. Basically, it starts off in newborns as vomiting , then as they

get older, it turns into severe abdominal pain. Then, in teenage years, it

turns into migraines. This was an absolutely hard time for us. We could

not figure what was wrong with our son.I went from Dr. to Dr. and no one

would take us seriously.

Long Nights and Worries

There were so many nights that my son screamed for hours and there was

nothing I could do. I called the Dr. almost 3 times a week and begged

that something be done, but they couldn't find anything.

>

>

13 YEARS LATER

>

>

_{He can't get over-exerted to this day. He still calls home from}

school when they run track or play inside and have to run. The

vomiting has settled down, but the migraines are horrible. He

will come home and lay down for several hours to get rid of the

migraine.

The University of Chicago said that he probably didn't even need

the surgery because he didn't have a rare form of reflux. All along,

he had CVS.

THE SYMPTOMS OF CYCLIC VOMITING SYNDROME THAT HE HAD WERE:

ABDOMINAL PAIN (SEVERE)

• VOMITING

• SLEEPING FOR HOURS

• CURLED UP IN A BALL

• PROFUSE SWEATING

• PALLOR

• CRYING BECAUSE OF THE PAIN

I have a wonderful list of links I am providing for you. The links are

informative and will give you plenty of information and resources.

This syndrome is very hard to diagnose and watching your child

go through this horrible agony, is very frustrating as a parent.

Dr.s think you are crazy or are being a paranoid parent and that

just makes everything worse. Listen to your gut feelings!

You are the PARENT and know if something is wrong with

your child. Do NOT stop until you get to the bottom of it. Please

feel free to email me, as I would be more than happy to help you

with any questions you may have, as I personally know the frustration.

THANK YOU FOR VISITING MY SITE

>

>