DVT Deep Vein Thrombosis My Personal Story
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For an In-depth Discription
What They Are And Who Gets Them.
I nevere expected to ever have a Blood Clot, let alone one tht would or could kill me in a few hours time. I had heard that seniors get the blood clots, but I was only 37years old. I didn't know anything about them only that they were deadly if untreated. Now they tell you that it is only from sitting in airplanes that are the cause of them and lack of circulation. I can tell you that is not the only case. I got my from a fall. It didn't show up until 3 months later. I had no idea there was a time bomb ready to go at any moment in my viens from that bad fall.
A Deep Vein Thrombosis (Blood Clot) was deadly if left untreated. For some reason the blood thickens, mostly in the lower part of the body and will form a clot in a vein deep in your body. Mine was just under the knee cap on my left leg. If that clot dislodges it can go to the brain or the heart and it will cause death.
What It Looks Like and What It Feels Like
On the side is a picture of what it looks like after a few hours. These are not my legs. I had my DVT in my left leg. It doesnt' take long for it to get this size. It is very painful because the oxygen is not getting to the extremity--your foot. It feels like someone is twisting your foot around to the back of your leg and it doesn't let up. You also experience muscle cramps in this area. It is very painful. Your skin feels like it is going to split open.
My Support Stockings
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My Story
I had the one DVT. Not knowing that was what it was because I was on Prednisone for some other ailment, they thought that it was the medication. They tried to slowly get me off it in a hurry. I think my doctor had his suspicions when I called him and told him that I had to hold on to a broom handle and pull myself across the floor to get to the phone. My leg was that heavy and that big. After fifteen minutes of calling me and hanging up. I did as he told me to do--wait by the phone. Well he called back and told me that I had to get the the ER ASAP! I couldn't wait for anything.
Once I got to the ER, I was immediately taken in and put in an ER room to wait for a hospital room to open up. They measured my leg and it was 37 cm. which was much bigger then my right leg. The put an IV in me right away and took me to the Ultra Sound Room. I was rolled back out the the same room I came out of. My daughters were around me as we waited on the Doctor to come and see me. It was before my parents had arrived that he told me that I had a Blood Clot and would have to stay in the hospital for 9 days. They found that I also had phlebitis in my right leg as well as the DVT in my left leg.I said that was an old people's disease. He said that it really wasn't and a boy died there a short time ago with a heart attach and he was only in his 20's.
He explained to me that if I moved that the blood clot could break off or dislodge and it could go to my brain or my heart and I would die. It is certainly nothing to be nonchalant about. I finally got a room upstairs and they rolled me up and put me in the bed. I had my feet elevated up past my head. I was not to move at all. Slowly the Heparin Lock went into my veins. Heparin is a drug that stabilizes a blood clot and shrinks it. I have had three different diagnoses with the healing of those. One is that the clot just dries up and goes away. The other one is that it is just pushed up against the vein wall and stays there--but it is much smaller. The last one is that it dissolves completely. I can tell you that it does neither! My leg will still swell in the heat. It will still swell if I sit or stand too long. It took me a very long time, like years, before I could stand for more than 2 hours without my leg swelling. It is very scary! It took me 5 years to get to stand even for the 2 hours.
When I told them that I couldn't stay still for longer than a couple of hours they went ahead and gave me Demoral for the pain and to get me to relax and sleep so that I wouldn't move. That was great and I slept for 3 days! Then they mixed the Demoral with Valium when I awoke. I had never had Valium before and I was very scared. When the nurse came back in he said that I was holding onto the handrails of the bed like I was holding on to life! He asked me if I had ever taken Valium before and I said no. I told him that I felt like I was floating over the bed about 3 inches and if I moved, I would fall off the bed. They took me off of the Valium right away!
With all this happening and the prognosis and what they had told me I was confident that this would just be a bump in the road. This was not the case.
Your body is a wonderful hard working thing. It can guard against any illness you may have and all kinds of things. It is amazing to say the least! If you don't use parts they will atrophy--which means they stop working. It's like the saying, "If you don't use it, you lose it". I found that out the hard way. First let me tell you about the first time I was to go to the bathroom on my own without a catheter in. I thought everything was fine and that the Heperin Block and me being on Coumadin, a blood thinner, Everything would go back to normal. My leg was not swollen anymore and I was able to move around in the bed.
When the nurse came in she had me get to the side of the bed. I was fine then. Ohhh the pain when I put my left leg off the bed. Well it wasn't tht fast. I was fine. When I got it to the floor was when I exclaimed in a loud voice, "Oh My God". She immediately called for a wheel chair. It was as if nothing had gotten better. It was just as painful as when I first came into the ER 8 days ago! I did manage to get to use the bathroom. That was good.
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Getting home was rough. I was on pain meds and had orders to get a certain kind of stocking and get measured for it. I was also to get crutches. So my daughter took me home and went out and got all the things that I needed. I wore those support stocking all the time except after taking a shower. I didn't dare take a bath for fear of not being able to get back out of it. I was also to go back every two weeks and get a blood test so they could check on how thin my blood was. They had to have it the right consistency. If it got too thin I could bleed out. Meaning I could bleed to death and that wasn't good.
Now back to the leg and atrophy. Yes, my leg atrophied! I never thought for once that laying in bed for 9 days would make it so that I had to learn how to walk again. I mean I knew how to take one step in front of the other, but I had to get my leg to obey my command from my brain. That took a few months. It took 3 months-------------------3 months!! I wasn't prepared for that.
Six months later I was allowed to go back to work. So I did. A few weeks later------------boom---------I had another blood clot! Same thing and same procedure and same hospital stay and crutches all over again. I did everything they told me to do and wear! There I was back out of work for another 3 months.
I was finally released from the meds and was told that I could go anywhere that i wanted and so my daughter's and I finally went on a vacation. It was going to be a 16 hour trip in the car, but as long as I wore the stockings and exercised my legs in the car, I was told that I would be fine. We had fun there for a few days and then my leg started hurting again and I saw the red lines go up my leg and I was taken to the ER there. I had another DVT.
So in my experience those blood clots do NOT go away! I have taken the responsibility on myself to take care of that and to watch for the signs and symptoms. I have had a few false diagnoses though, but would have rather done that then have a real DVT again.
Eventually I took myself off of the Coumadin. This isn't for everyone. I put my faith in God that he would take care of that and I never have to be on that again.
I did this for a reason. When I got back from Vacation and went back to work the doctor had my blood too thin and I was bleeding internally. How does that feel------very painful. I had a stomach ache that made me double over several times in like an hour. It was so bad and I lost so much blood that I was put in the hospital on my birthday to get not one unit of blood like most people...but 2 units.
I watch myself now. I take care of what I do and when my leg swells from sitting at this computer for too long I get up and walk around. If I had too much standing, I sit down when I need to. It is hard for me to get a job that is in places like Fast Foods, Waitressing or Retail Stores. I have to be in control and not some other person. It is my body and I have to take care of it.
Many years after this all has happened my father found out that he had a blood disorder with his legs. It wasn't a clot, but something else. That is when my daughter and I surmised that this might be hereditary and that is why I got the clots. When I got them years ago, no one knew how or why I got them. I did think of the fall and I do think that was the major contributor of the first DVT, but the other two--must have been hereditary.
So it is not always an Airplane ride or a long car ride or sitting too long in places. It also could be hereditary and falls ans such menial things one doesn't even think about.
This Is My Reminder
A Souvenir
I am left with a souvenir of the several DVT's that I have had. This will never go away. It is a stain on my ankle. It has been there since the first DVT that I had. The picture is on the right.
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Comments
i am sorry for what you had to go thru, God Bless You!
Thank you g-ma and Happy.
I didn't post this to feel sorry for myself. I posted it so that others can get a true story about how Blood Clots and DVT's really are. On the news and all over the T.V. they plastered that Blood Clots are ONLY formed by those who ride Airplanes. That is simply not true! I did this to spread some truth.
Wow. Thank you for sharing your story. It's a very scary thing. I got my DVT at the age of 29. Mine starts at my bellybutton and goes down into my left leg past my knee. Aren't jobst stocking just too sexy! LOL I don't mind wearing them unless it's so hot I can't stand them. Then I just try to stay in doors. When I wear mine, I have had kids ask their mothers if my leg is real because of the color of the stocking and I only wear it on the leg that needs it. I think the kids think I can't hear them. Sounds like Valium is not your drug. I had a bad reaction to Morphine. It makes me itch BAD. I think I'd rather hurt than itch. I'm so glad you came through this. Take that spot on your leg as a battle scar. You fought the battle and you won! You are strong! If you weren't you wouldn't be here now telling us what you went through! Thank you for educating people. It's important that people know these things. I admire you very much! Thanks for showing me your hub!
Thanks for stopping by. Yes people need education. I had no idea I could get this at such a young age! You never know! It changed my life forever! I don't wear the stocking all that mcuh. I am so in tuned to my body now that when my leg starts to swell I am on the couch with it up asap! It usually swells when it is hot so I have the AC on most times in the summer or I am in the cool bath.
I hear you! Since I started Coumadin, it has made me very sensative to temperature. Hot and cold. Have you had that happen to you?
Allshookup, Yes. I noticed reading my hub that there are amny typo's in it but I will have to get to that tomoorrw. One of my indoor cats have escaped and I am trying to catch him. There are a few males that will hurt him if they got the chance. I just hope that he find the crawlspace which is heated and has straw on the floor and food and water there for them, if I don't get him tonight. He's black and it is dark! Go figure!! This is the 3rd time I have had to go get him today!
Oh me! Not good! Bad kitty! I don't know if I could run fast enough to catch a cat LOL
hi thanks for sharing your story... i have a friend who have DVT he passed away last sept. 8...
khen, I am sorry to hear about that.
I am so sorry you went through this! I've had a DVT experince, that did develop into a PE, when they checked my lungs I had eight clots between two lungs. This occured before I even realized I had a DVT. I was 25 and just had a c-section, my daughter was two weeks old. I have the exact same kind of "stain" on my ankle. I am quite fortunate that I haven't had a reccurance of the DVT, but there have been a few scares. The Lord be with you as you continue to fight this.
Wow, I am sorry for you too. It is a scary thing to have indeed. People don't understand what it is like to have a ticking time bomb in your body and why it is so imperative to have self control of ones daily activities. I certainly had to learn about all this the hard way, just as you did and like I said in the article---I was young too!
Thanks for sharing your story.
Well I am another one who got a DVT in another way than a plane ride or inactivity! I still don't know HOW I got mine!! I climb in and out of the back of an ambulance about 30 times a day so go figure??? Mine is in the calf of my left leg! It really scares me! Being an EMT I know all about PE's and they are nothing to fool around with! All I can figure is I must have inherited the condition because my grandfather and my father both died from blood clots or complications due to clots! I have pain meds but can't take it at work....so I just wear my compression stockings CONSTANTLY and deal with the pain till I get home at night! I work sometimes 16 hour days so I only get relief at bedtime! I was glad to find this website where people can talk about their experiences with DVT's. Blessings to you all!
Charlotte
I know how you feel. I worked at a Walmart once, got fired for something they made up, but I told them that I could only stand for a certain period of time.......so what did they do--put me on a sales thing in the middle of the store for hours and my leg swelled and I went to the Dr.'s, but thankfully nothing was found. It is hard for me to walk into that store and it took 6 years before I did when I found the manager was gone. They don't take it seriously. They don't understand that it is your life.
Thanks for sharing your story.
Thanks for sharing that LG. Scary stuff indeed. thanks god your still alive and the Doc's too. take care dear
I left the rest of the story on your facebook!
Oh My God!! I suddenly dont feel alone. Im 22 years old and recently had a knee reconstruction. The doctors didnt drain my leg properly and i have ended up with DVT. The first scan showed 12 clots in my right leg. I have been on warfarin for 6 weeks and 1 day and was on daily injections for the first 2 weeks. They said the pills would stop further clotting but my body would break down the clots. I have had another scan today and the clots are still there!!! Im seeing a vascular surgeon on Monday about this but i have no idea why they wont go away. I cant go to physio for my leg cause they are scared a clot will break and i will get a PE. Im starting to get really scared about this. Any advice???
Pia C
I don't have any advice. Don't eat Broccoli! It contains a high amount of Vitamin K which clots the blood. Read all you can on Vitamins and such and get acqaunted with your problem. That is about all I can give right at the moment.
this site has been very helpfull and i had my first clot when i was 22yrs in my left leg and again when i was 40yrs and i am now 46yrs old with all the after affects....what a long slog but im here ( thank god )
Lesley, Thanks for telling us your story. Yes, it is beginning to look more like the younger people are getting this instead of the older folks. Something is just not right with this.
What are we doing to our bodies that isn't being let known to us---like some chemical we are ingesting or something that is passed down through families. You know what I mean?














G-Ma Johnson says:
15 months ago
My goodness you surely did a lot of suffering my dear ...Glad to hear you are better now..and hoping it continues...God Bless G-Ma :o) hugs