Fun with Chronic Fatigue Syndrome
67CFS Sufferers
What is CFS? CFS stands for Chronic Fatigue Syndrome. If you have it, you know what it means: the crushing, indescribable exhaustion that can't possibly be summed up with the word "tired." It also means having to put up with people who don't understand that their definition of "tired" can't even begin to compare with yours.
DID YOU KNOW?
DARK CHOCOLATE is a helpful dietary supplement for people with CFS? Don't get too excited. The recommended "dosage" is about the size of one small square of chocolate that you would break off of that big candy bar. Still, chocolate is chocolate. Buy a bar, break it up, and take your daily dose for more energy and a little sinful pleasure!
Hi. My name is Christina, and I have Chronic Fatigue Syndrome.
("Hi, Christina.")
I decided to create Fun with Chronic Fatigue Syndrome as an outlet for my frustration with this chronic illness. Okay, so maybe our family and friends will never truly understand how we feel on a daily basis. Does that mean we shouldn't have any fun? No! So this is a place where I aim to dig up interesting information about CFS... as well as get a little creative about working within the limitations CFS provides us.
If you want to use any of my Fun with CFS Myspace Graphics, please feel free! But make sure to link back to this page. That's all I ask.
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Defeat Chronic Fatigue Syndrome: You Don't Have to Live with It -- An Eight Step Protocol
Price: $6.61
List Price: $11.95 |
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Hope and Help for Chronic Fatigue Syndrome and Fibromyalgia (Second Edition) (Hope & Help for)
Price: $11.85
List Price: $18.95 |
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Chronic Fatigue Syndrome and the Yeast Connection: A Get-Well Guide for People With This Often Misunderstood Illness--And Those Who Care for Them
Price: $12.98
List Price: $17.95 |
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Just for a Season : My Journey With Severe Chronic Fatigue Syndrome
Price: $12.95
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Free Myspace Graphics (Just Link Back!)
REALLY BAD ADVICE
- Just go to bed earlier.
- Get more exercise.
- Suck it up. You don't look sick.
- Try the ____ diet.
- Drink more caffeine.
Do you have any more bad advice you've received from people who just don't get what CFS is like? Leave me a comment!
- PatientsLikeMe
PLM is a place for patients to connect with other patients. I love the Mood Community, which has been helpful for managing my anxiety. Track your mood, meds, and therapy, and interact in the forums. - Myspace Graphic - I'm not lazy
The animation says: I'm not lazy, I have a chronic illness. Is there some new medical explanation for your ignorance? Free to use as long as you link back here.
I found it on eBay!
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MM SLEEP AID DIPHENHYDRAMINE HCI 50 mg 96 SOFTGELS
Current Bid: $8.39
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SLEEP AID #1 STRESS RELIEF RELAXATION SUNSETS BEACH DVD
Current Bid: $15.99
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CPAP MULTI-MASK SLEEP AID PILLOW BIPAP APNEA OSA O2
Current Bid: $59.99
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Comments
hi, i have been suffering from CFS for the past 3 years and am at an extremely low point in ym life right now. i have been having strong thoughts of suicide for the past 2 weeks and cant function at all because i am so depressed. it would really help me if i could speak to someone, like oyurself, who also suffers from CFS. could you please email me at kristyy555@yahoo.com by the way, where is clifton park? is that on long island? if it is, then maybe we can even get together because im a student at hofstra university. thanks a bunch
-kristy
Kristy,
I'm going to email you about a website that I think would really help you. It's called http://www.patientslikeme.com and I'm a member of the mood community. Clifton Park is up by the capital (Albany) so Long Island is a bit of a trip for me. But the online support at PLM (for depression) is excellent, and you may be able to find someone who lives near you. There are a few of us who have CFS in addition to our mood disorders.
Christina
working
CharismaBelle says:
3 months ago
hey, how are you doing? I am 31 and I have lived with CFS since I was 13 years old. Since the age of 7 I have had Immune problems. Age of 16 I caught glandular Fever and went down hill from there. I was not diagnosed till i was 19 years old and leading up to being diagnosed I was under doctors who told me to push myself, to run, to diet even though i was a healthy size 12 (australian sizes), i had numerous hospital stays, operations and tests. I was even told my the head of staff after 3 weeks of not being able to eat or keep any food down, that I am sick and my white blood cells were high but they can not find out what is wrong with me. So I might as well go home. I can be sick and in pain at home just as well as in hospital. Then he added of course come back if you break out in any green or purple spots. Yes a actual head doctor said this to me! I heard worse from other people which breaks my heart.
Anyway I am glad you see the good side of life also... just cos we are sick doesn't mean we can't laugh, have a joke or enjoy life. Well done, I am proud of you!
Hope you have many better CFS days than bad and that your loved ones offer much needed support.
Hugs!
Belle