Fibromyalgia is a multi-symptom syndrome featuring chronic fatigue and pain. Unfortunately, the syndrome is poorly understood by doctors meaning it can be even more difficult to explain fibromyalgia to loved ones. There are two main themes that should be addressed when discussing fibromyalgia; the symptoms of the disease and the broader issue of living with a chronic illness.

1.Compare fibromyalgia to situations a loved one has experienced. For example, have they ever had mono or been flattened by the flu? Basing a discussion on a loved one's life experience will help foster empathy. Arthritis Today suggests describing the pain as "arthritis of the muscles."

2.Use written materials and video to explain fibromyalgia. Give your loved one a copy of The Spoon Theory by Christine Miserandino to explain the challenges of a chronic illness. Ask them to read a book about fibromyalgia or direct them to resources online (See the Link section for a link)


Watch the 'Living with Fibromyalgia' documentary and use it as a springboard for discussion.

3.Dispel common misconceptions about fibromyalgia. For example, fibromyalgia is not depression or laziness. While there is some argument in medical circles about exactly what fibromyalgia is and how to categorize it, experts to acknowledge the symptoms are real

4.Discuss the ramifications of having a chronic illness like fibromyalgia, including any accommodations you may need to better cope with symptoms.

5.Ask family and friends to help you come up with solutions for those times when fibromyalgia creates a logistical or relationship problem. The need to explain fibromyalgia often arises from the conflict caused by the chronic nature of the syndrome. An open, honest discussion of the conflict and possible solutions will improve communication and ensure everyone's needs are addressed.

6.Share your fibromyalgia treatment goals and strategy to show that you are being proactive about your illness.Note times during fibromyalgia treatment where you may need extra help or assistance so your loved ones know what to expect.

7.Be matter of fact about your symptoms and how you feel. Don't whine or give the appearance of being a victim. Sometimes people interpret this as being manipulative or even faking, which can cause loved ones to stop listening to what you have to say.

8.Recognize that multiple conversations may be required. Don't expect to cover everything in one conversation.