I Can't Help Screaming---About Autism
81The Beautiful Face of Autism
Please Don't Judge Me...I May Have Autism
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If you are a parent or grandparent of a child with Autism, then you already know how hard it can be to take that child out in public. And, although you should be use to the stares and whispers and even unkind remarks when your son or daughter has a meltdown in the aisle in the middle of Walmart, it still hurts knowing that you are being judged by complete strangers who know little or nothing about this epidemic disease. They just assume that you are a bad parent with a terribly spoiled child. If they only knew the truth. Autistic children are anything but spoiled. It is quite the opposite. Most are in therapy and work no less than 6-8 hours each day, locked in a room, working one on one with their teachers who are trained therapists specializing in Autism. These children are bombarded with colors, shapes, numbers and words for hours on end with the hopes that perhaps someday they will have a breakthrough or, at minimum, be able to live independently or in group homes.
If the family is fortunate enough to live in one of the many states that pay for therapy for their Autistic child, they may even have several different therapists coming in and out daily. One for speech, another for music, and so on. However, for the families that are not so fortunate, it falls upon the parents, who oftentimes must quit their jobs to stay home and become their child's advocate and full time therapist. These parents are using every minute of every day as "teaching" moments. So, when they aren't locked in a room going over "flash" cards or playing word games, they are teaching these special children to tie their shoes, dress themselves and say the word "drink". They are hard working "saints" and their life's "quest" is to make sure they have done everything in their power to ensure that their Autistic child has been given the "shot" in living their best lives. So, please don't judge them from the tiny glimpse you see of their child out in the world. Although it may be embarassing for the parent or caretaker, it is important that these children get out and learn to socialize and also learn how to react in different situations. And since Autistic children do not like change but need order in their lives, this could be exactly the reason why they have their "meltdowns" in the middle of Walmart.
If you really knew this amazing parent, you would also know that he or she has learned to function on very little sleep for their child can go for weeks without sleeping, literally! This parent is most likely out shopping for the "glutton free" diet that she feeds her child which helps keep these "meltdowns" to a minimum.
So, I woud ask, as a mother or grandmother representing all Autistic children out there, the next time you see an out of control child in a store throwing a tantrum, hitting themselves or banging their head on the floor, please don't judge them. Autism has many, many faces. Although you see, on the outside, a beautiful looking child, they may be suffering from this epidemic disease.
If you think your child may have Autism but has not been diagnosed yet, here are some of the symptoms to be on the look out for:
The Symptoms of Autism:
- Loss of the few words your child had as a toddler
- Change in behavior; more tantrums, sleeping more, sleeping less
- Tantrums that include headbanging on the floor or against the wall
- Your child does not react when you call his or her name
- More interested in playing alone or by themselves than with other children or siblings
- Your child likes to line things up, (toys), straighten photos on the wall or move home decor arrangements around.
- Interest in watching the same video or videos over and over
- Spinning in circles, flapping their arms or flapping hands in front of their face
- Your child walks on their toes
- Staring at themselves in the mirror for long periods of time or mesmerized by their own reflection in mirrors, windows, etc.
If you feel that something is not right, listen to your "inner voice" , your "gut". Go to see your pediatrician with a list. Do not let your pediatrician tell you it is nothing and that each child is different. In these cases, usually the parents are right, unfortunately. We know our children and we just "have a feeling that something isn't okay.
At the very least, insist your child have a hearing test to rule that out. If he or she does not have a hearing problem and your pediatrician still insists your child will "grow out of it", get a second opinion. Time is of the essence as the sooner your child is diagnosed the better.
Find out if the state you live in has programs in place for children with Autism. Many parents end up moving to states that do provide free programs because the cost is prohibitive to most parents and it is vital to the growth and development of your Autistic child that they start therapy as soon as possible. This ongoing therapy will help them in becoming everything they can be. It will also ensure their place in society whether it be in mainstream, a group home or even, on their own someday!
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Comments
Thank you for speaking out. My oldest had many of the symptoms of mild Autism as a toddler. I don't know what changed, but one day he started making jokes, and things have improved greatly since then.
Thanks for the great info. This is of concern to many people as the number of children with autism has increased dramatically in the last ten years. What age do you notice the change in children? what are your thoughts on immunization and autism? Maybe that could be another hub..
Good job!
Your 'request' is distinctive because it is so uncommon, yet we all need to react in tactful ways, perhaps even with helping hands at times...That could help the parent as well as the child. Thanks for the hub.
Perhaps you would be interested in reading my hub on 'skin absorbed nutrition for autistic children' and see about sharing that information too. We all need all the assistance we can obtain! Thank you!
Hello, great write-up, I used to be one of those people who just assumed things about bad parenting, etc..until my nephew was diagnosed with autism. Now I know the exact feeling, because any small thing can trigger ceaseless screaming fits, and it just makes me sad that I cant help him...he is going through all the motions, therapy and whatnot, but more people really need to understand that even if a child "looks normal" they may not be, and their parents are already going through enough (my brother cannot even work full-time because most of his waking days are spent caring for the child) without people giving dirty looks...
Hello what a great post. I have spent a good part of my career working with children with autism and their families. I find it to be very sad the lack of education that our country seems to have on this topic. These kids are normal they just learn a little different and absorb information a little different. I wish more people would understand this as it would help us work towards a brighter future for our kids. With or without autism.
I completely understand all of the frustrations and give it up to any and all parents and family members dealing with this same struggle. It is not an easy one that's for sure. Though through all of the meltdowns I have witnessed or had taken out on me. It is the joy of finally having a break through that keeps us all going.
Thank you so much for your comment. You are totally correct, these are beautiful, smart children who need a lot of education and attention and they are children of the hardest working parents on the planet.
What causes autism?
Great hub! I am an OT who works with toddlers, many of which have been diagnosed with autism. Some of the most beautiful children I have ever met have been diagnosed with autism. I am glad there are more therapies and information out there to help these families. I am so happy that some of the medical community is identifying these cases sooner. I have had clients diagnosed as early as 18 months.
Thank you for sticking up for all of us parents! I am tired all the time I have 2 of these kids, and they seem to take turns staying up for days. I have survived on 4 or 5 hours of sleep a day (or night) for 12 years with no break. I've had to quit working and we barely survive on SSI as thier Father pays no child support. They have been in so many therapies that I sometimes lose track of how many there have been, and yet I still try to find more. I've been working with them for so long that to most people they seem "Normal" until you get to know them really well, and start to notice the repetitive movements and the like. Every day without a meltdown is a miracle to be savored. Everytime I see other little boys playing without the fights and the arguments about rules I wish that mine could be so well behaved and I just try all the harder. Teachers ha! I had a special ed teacher chew me out for "letting my son stay up" a so called school counselor put my sons in the "time out room" basically a closet and when my 12 year old son was still in meltdown he pushed him stomach flat to the floor, shoved his knee in my sons back, and held his hands behind him. Oh yeah special ed teachers and counselors have learned alot! like how to use police tactics to over power these kids and treat them like criminals. Sorry but until these people really use the knowledge they've supposedly aquired for the betterment of these kids mine will remain as homeschoolers and not have to be legally abused by the public school systems employees.
Thanks for the information, I'm trying to understand more about autism as a friend has a child who has it. I just want to be understanding of the disorder when we meet!
My child has autism and I couldnt agree more with your article! We really do need more awareness out there thanks for posting this.




















ladyvenus says:
8 months ago
Every child is a gift from God. No body wants to have a deffective children anyway. But if it happens that you already have child with Autism all you have to do is love and accept that child.