My Child Suffered From Severe School Phobia as a Result of Being Dyslexic
77The Background
I have decided to write about this because, although it is all very personal and was extremely stressful at the time, I would have found great comfort in reading such a story had I been able to find one on the web 6 years ago.
We are a family of four, husband Pete, daughter Gemma (now 18) and son Adam (now 16).
Six years ago, when Adam was 10 years old and still at primary school he began to suffer from severe (and I mean severe) school phobia. He had been diagnosed as severely dyslexic three years earlier and found acadmeic work challenging. However, he was a happy go lucky child most of the time, very funny and engaging, but with a tendency towards anxiety. There were no real warning signs of the difficulties we were about to face apart from a tendency for him to need to know where his sister was in the school at all times and he got very upset if he didn't know where I was also.
One evening Adam felt ill and ran a high temperature. I dosed him with Calpol and suggested he went to bed early , which he did. A few hours later he appeared to wake up but I now know he was just sleep walking/talking and he was saying some very bizarre things about other planets and telling us to stay away from him. I steered him back to bed and the next morning he seemed fine and could rememeber nothing of his previous evening's rantings. He had the rest of the day off school and then the next morning our problems began.
Our Nightmare Begins....
I took Adam to school the next day, just a short drive from our home. By now Gemma had gone to Secondary school so Adam was getting used to being at school without her but despite being fine in the car, when we approached the classroom he began to panic. He begged me not to make him go inside but I chivvied him in as mothers do and we spoke to his lovely class teacher Miss k. As I explained about his illness Adam started to back himself up against the wall and shout that he wasn't staying and no one could make him. I tried to calm him down but he bacame more upset so Miss K decided to pop into the next classroom and ask Mr R to come and help. As soon as Adan saw Miss K and Mr R standing by the door (his only escape route I guess) he picked up a pencil and declared he would stab himself if they didn't move out of the way. By now he was sobbing and shaking and saying he was going to die (full panic attack).
The teachers looked at me in horror and I asked them to move from the door and guided Adam out into the playground. i encoraged him to breath slowly and reassured him he didn't have to go back into the classroom right now.
Anyway I took him home and each day I tried to return with him, something similar happened so in desperation I booked him into the doctors. By now Adam was damaging stuff at home (climbing inside his wardrobe and kicking the sides out, grabbing a knife and slashing door frames, climbing onto the garage roof and threatening to jump) so I had plenty to tell the doctor.
I was beginning to feel really frightened by all this and very worried about Adam's mental health. My husband and I argued over whether we were somehow to blame, had we cared too much, not enough, said something damaging without realising it? and on and on.....
The doctor was very sympathetic and referred us to the child & Family Unit where we met a lovely Psychologist called Dr Finnan.
Although the doctor was lovely and trying her best to help, this was an extremely stressful time for us. Over a period of two years, Dr Finan tried to get to the root cause of Adam's problems (but there didn't really appear to be one - apart from his dyslexia and anxiety about being able to cope in the next school) and ended up putting him on Prozac to cut the anxiety levels.
It was a hard decision to make with regards to the medication, but by now Adam was tryig to harm himself at home, I was struggling to hold down a part-time teaching job and we couldn't bear to see him so distressed so we agreed to give it a try (afterall we couldn't go on like this and neither could he).
Initially the prozac calmed him down and he began to reveal glimpses of the old Adam again. The self harming attempts stopped but getting him into school was still a nightmare. We would go and park in the school carpark and a lovely school assistant would take him to the reception class ( he didn't feel trapped when in with that teacher and the little ones) but he had to be able to see us in the carpark the whole time he was in school or he wouldn't stay. My parents, Pete and I all did shifts in that carpark whilst trying to hold down our jobs - a nightmare time!
Our Nightmare Continues ....
We somehow managed to struggle to the end of the academic year and thus marked the changeover to secondary school. Although the staff at the primary school had been good in trying to help, I think they were relieved to pass the problem on.
That summer was great, Adam was still on medication but without the danger of being made to go into school each day, the real Adam began to emerge again. We began to relax and talk very positively about the next school. Adam even excitedly came and chose his uniform.
Now we asked ourselves lots of questions at this time and beat ourselves up continually about what had happened, how could we have prevented it or handled it better? etc but the bottom line is that we were so stressed that the pressure on us was huge and we tried really hard for Adam not to see that stress but we were so fearful for him and his future.
He bagan secondary school (still on prozac) and for a whole half-term he seemed to cope well and went off with his friends (ashort walk to school) each day. Then we had half term hols and there was no way he was going back to school afterwards.
Very quickly he plummeted back down to where he had been before, self harming, damaging our home, foul language etc. The nightmare had returned so.... the Dr upped the dose of prozac.
This didn't seem to have much effect and daily I would try to get Adam into school, occasionally succeeding but more often failing, whilst still trying to do my job as a dyslexia support teacher at a local private school.
The doctor looked at all sorts of conditions, Bipolar, Schizophrenia, Autism .....but she felt none of them were really a good 'fit' for Adam. He was referred to Birmingham childrens hospital, now on the highest dose of prozac he could be on for his age, and they suggested he stay on their children's mental health ward for 4 weeks for them to observe him.
We went home and discussed this and after a great deal of consternation, decided to wean him off the prozac, remove him from school completely (as the school had been suggesting) and teach him at home. I resigned and we put his hospital admission 'on hold' for now.
The Light at the End of the Tunnel.
This was a brave step for us (Pete particularly who believed a child needed to be in school or else what would happen to him in later life?) but I joined Education Otherwise and found some local home educators to talk to. It seems Adam's story is not that unusual - particularly amongst dyslexic/ADHD/Aspergers children!
I can't say this was a magical solution and everything was suddenly fine because it wasn't. IWe had to wean Adam off the prozac very slowly as he suffered some side effects and he took a long time to believe we weren't ever going to amke him go back to school again. He didn't like being taught by me and we had many battles. He didn't enjoy mixing with the other home ed kids at social functions and we worried about 'socialisation skills'. I missed my job and we struggled for money.
But slowly, very slowly, Adam began to 'get better'. He came off prozac, started sleeping better (up until this point he had been on melatonin tablets to help him sleep) and stopped much of the negative behaviour of the previous 2 years. He was still inclined to angry outbursts, couldn't stay away from home and needed to know where I was all the time. We cancelled the hospital appointment.
Our Son, the Superstar!
Between the ages of 12 and 16 my son has emerged into an amazingly talented Boogie Woogie Pianist, a gifted mechanic and one of the most mature and well-socialised teenagers you could hope to meet. He is due to start his apprenticeship at the local Subaru garage next week (despite having no formal qualifications he beat 200 other teenagers to secure the position), has appeared on stage at the International Boogie Woogie festival and is regularly asked to perform at weddings/events and has just passed his motorbike test so has freedom!
What's more he loves the freedom! He can stay anywhere by himself now, has mature conversations with adults and peers alike, has a large group of friends (all local) and thinks of himself as an adult. In fact, he feels that he was an 'adult in waiting' all his life. He didn't like being a child. He didn't like having little control over events and he certainly didn't like having to wait so long to learn to drive!
We are just immensely relieved that our son has become such a superstar and we are very proud of him!
Advice?
If I can offer any advice or support to someone going through a similar exerience I will - please just email me: nikkiuglow@hotmail.co.uk
If you found my hub interesting and/or helpful please leave a comment below.
Thank you.
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Comments
Hi nikkiu, here's my opinion since you requested it:I feel that your son's story can serve as an inspiration to alot of people out there who went through similar ordeals.More importantly, with regard to panic attack, i strongly feel that medication is not the permanent solution to "curing" panic attack.As you probably would have realize, medication can only ease the symptoms and give your child a well needed break, BUT they cannot solve the REAL problem - irrational fear.If nothing constructive is done and the individual does not change his mentality, than you may find the initial symptoms reoccurring once you stop the medication.Send my regards to your son, well done on his good progress!
nikkiu,A wonderful story considering the victorious outcome! I read it and could relate to what your son went through. I also suffered panic attacks in school, mine beginning in the 7th grade. Mine was later found to be caused by a heart murmur, they first thought was "Wolf-Parkinson-White Syndrome" but aother heart specialist ruled this out 2 decades later and instead said it was due to "Mitral Valve Prolapse". This other common murmur is notorious for causing anxiety symptoms and panic attacks and yet you hear little about it in media.Thanks for sharing your story, it was courageous and informative and should offer hope to others going through severe anxietyproblems. Thumbs-up to that brave son of yours.Anxiety problems often happen to the deepest thinkers and most creative people in society. Tell your son to look at this list of famous anxiety sufferers.
Abraham Lincoln (president)Alanis Morisette (singer)Alfred Lord Tennyson (poet)Aretha Franklin (singer)Barbara Bush (former First Lady - U.S.Barbra Streisand (singer - actress)Bonnie Raitt (musician)Burt Reynolds (actor)Calista Flockhart (Ally McBeal)Carly Simon (singer)Charles Schultz (cartoonist)Cher (singer, actress)Courtney Love (singer - actress)David Bowie (singer)Deanna Carter (singer)Delta Burke (actress)Donny Osmond (entertainer)Emily Dickinson (poet)Eric Clapton (musician)Howard Stern (radio host)Howie Mandel (comic)Joan Rivers (actress)John Cougar Mellancamp (musician, actor)John Madden (sports announcer)John Steinbeck (author)Johnny Depp (actor)Kim Basinger (actress)Lucille Ball (actress, singer)Marie Osmand (entertainer)Marty Ingels (comedian)Michael Crichton (writer)Michael Jackson (singer)Naomi Campbell (supermodel)Naomi Judd (singer)Nicholas Cage (actor)Nicole Kidman (actress)Oprah Winfrey (host - actress)Ricky Williams (NFL - Miami Dolphins)Robert McFarlane - (former National Security Advisor - U.S.)Sally Field (actress)Sheryl Crow (musician)Sigmund Freud (psychiatrist)W.B. Yeats (poet)Willard Scott (weatherman)Winona Ryder (actress)Winston Churchill
Thank you for the feedback. I am so glad my son's story might be able to help others!
What a truly inspiring story, all the best to you and your family.
Panic attacks can really take over your life never mind the lives of those close to us, so good to hear he is out and about enjoying himself again.
You and your family have really been through it but all credit to you for coming out the other end, you should be very proud of yourselves.
I am in the midst of this storm with my boy and can't stop crying while reading this. Thank you for painting a possible rainow at the end of the road.
You have also just made me cry reading your story. My son is 12 and is currently going through all these worries. I have avoided giving him the Prozac that he's been prescribed and hope I am doing the right thing. Thank you so much for sharing your story I hope mine has a happy ending like yours.











ripplemaker says:
17 months ago
Hi Nikkiu, it must have been a pretty tough time for you. I have learned about dyslexia but I didn't know it could also be as terrible as this. Thank you for sharing. I believe there might be people out there who might be in a similar situation and are feeling helpless right now. You would surely be able to help them after having gone through this ordeal. But I am rejoicing with you that you have survived it..esp. your son Adam. May the light keep on shining for you and your family.