Living with Neuropathy & Other Chronic Pain Conditions
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You are not alone
I live with severe Peripheral Neuropathy, I have chronic pain 24/7. It may not be severe all the time but it is most of the time. If the weather is bad I really pay. Anyone living with chronic pain knows how it not only affects us but it affects everyone around us.
I use to be very active and never sat down, now I do a lot of sitting down and my legs have to be elevated My legs, feet and sometimes my hands do not want to cooperate, the pain can be unbearable. Sitting at the computer can cause me extreme pain, driving doing anything physical and I hate it.
Managing the pain
It seems as though getting the right pain relief is very difficult. I have been back and forth to different doctors for the past 6 years. Either they want to under medicate or over medicate. There is no happy medium for pain relief.
I don't want to turn into an addict but, cannot seem to get around being medicated. I have started studying natural remedies but to be honest it is hard to find anything that helps with nerve pain. My doctor tells me to stay away from herbal remedies because of the amount of meds I do take and she is afraid I will have a bad reaction.
But to be honest I have gotten much worse since I have been treated with traditional medicine. So, I am looking for alternatives.
Anyway, I have found a few things that have helped me or are suppose to help so I thought I would share. Just wanted to note I am not a medical professional. This article is intended for information only; not to provide medical advice or treatment.
Vitamin B with folic acid is suppose to be very good for your nerves. I am now on 4 a day, 2 in the a.m and 2 in the p.m (of course talk to your medical professional before using). I have not noticed any change yet but it took me many years to get in this shape so it will probably take a lot of time to get any results.
Very warm baths is also great, I spend a lot of time in the bathtub with epsom salts and lavender. The epsom salt helps draw out impurities that are in your body. The lavender helps you relax.
Drinking lots of water helps flush out your system this is good whether you have neuropathy or not. I have read many times that distilled water is good because it grabs onto the bad stuff in your system and flushes them out.
Also, even if you are not diabetic (I am not) you should cut out the sugar in your diet. This is a hard one for me because I use a lot of sugar in my coffee and I have read many times that artificial sweeteners are not good for your nervous system. I did purchase some vegetable glycerin to sweeten my coffee and it is ok but kinda expensive.
Meditate when possible, take time out for yourself. (you can find many books on the subject)
Surround yourself with happy positive people. It will help lighten your mood and take your mind off of your pain. Laughter is a wonderful thing!
Join a support group if you have one in your area. In my area we do not have one, I actually am thinking about starting one.
Pace yourself, let your body tell you when it is time to slow down and take a break from the everyday responsibilities. I stop in my tracks sometimes and put my feet up and try and relax. You need to take care of yourself because if you don't you will not be any good to anyone else.
On the days you don't feel well take it as easy as possible.
Read and educate yourself about your condition no matter what it is. As they say: 'Knowledge is power".
I wish you the best!
Disability
If you have considered applying for disability, there is a Disability Digest you can sign up for, and it is free. It is loaded with lots of information. I ran across it a couple of months ago. Wish I had found it sooner before I was approved for disability. But, it is still very useful to me it is so loaded with information.
DISABILITY DIGEST
- All About Disability
Every last thing you need to know about disability all in one place!
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Peripheral Neuropathy: When the Numbness, Weakness, and Pain Won't Stop (American Academy of Neurology)
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Coping With Peripheral Neuropathy: How to handle stress, disability, anxiety, fatigue, depression, pain, and relationships
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