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Rosacea, All About It -updated 3/16/09

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By Lady Guinevere


What it looks like


Rosacea is a skin condition that affects mostly fair to light skinned people.  Through some research on the interent I also found that it is mostly those people with Celtic origins.  Some studies have said that there are mites that cause this that eat the dead skin cells.  I tried to kill these mites but that wasn't it--at least not in my case. There was a study from France and Japan that said that most people who get this "common ailment" are in their 30's.to 60's 

I must be an oddball because I have had this since the birth of my first child and I was only 20 years old.  I did not have acne while in my teens either and I thought that strange, but loved it.  I think it is a hormonal thing. 

According to Medical News Today: "Acne rosacea is an inflammatory skin disease that affects about 14 million Americans between the age of 30 and 60 and is more common in women than in men. It is more likely to affect fair skinned people of European or Celtic descent. Rosacea is characterized by facial redness (erythema), bumps and pimples (papulopustules), and spider veins (telangiectasia). The condition is chronic and gets worse over time. It is cyclical and flares up for weeks and months and then subsides. There is no effective treatment although antibiotics are sometimes prescribed with mixed results. 

My father has it and takes an anti-biotic everyday for it.  I have taken them too and my body seems to build up some kind of immunity to the anti-biotics within 3 weeks.  I have also experienced the flare-ups and yes they last for weeks and sometimes months.  It does come and go.  I will list some of the things that I have tried and the results that I have had with them in a minute. There isn't a cure--not that I have found anyway.

In this new study, done last year and the latest that I have found on this condition it tells that those with Rosacea have a higher level of an anti microbial peptide cathelicid and an enzyme called stratum corneum tryptic enzyme (SCTE).in their skin then others who don't have the condition. 

They also found that those with the condition also have more peptides of the microbial kind, which is a small protien in the immune system,.  Surprisingly they assumed that having more of the cathelicid, which helps illiminate inflamation of the skin, they found the opposite was true.

In conclusion the article says: "Too much SCTE and too much cathelicidin leads to the abnormal peptides that cause the symptoms of this disease."  He also explained why antibiotics sometimes work in treating rosacea, even though the condition is not caused by bacteria:  "Antibiotics tend to alleviate the symptoms of rosacea in patients because some of them work to inhibit these enzymes. Our findings may modify the therapeutic approach to treating rosacea, since bacteria aren't the right target."  "Increased serine protease activity and cathelicidin promotes skin inflammation in rosacea."

Hopefully those who suffer with this condition will get some answers and possible cures soon.  I know that I don't like going out and meeting people.  I do anyway because I need to do errands and grocery shopping.  My mother saw me last, in March of this year, when I went to my Uncle's funeral.  The first thing she said was to cover it up with makeup.  Makeup makes it worse and it is not worth the pain one has to go through afterwards to wear it.  I have found something that covers it well though, but I only wear it on special occasions and going to the grocery store isn't high on that list..  It is made by Covergirl.  The brand is CG Smothers.and it works great!

Some of the triggers that they tell you, such as  coffee and alcohol and chocolate and the heat and cold extremes do not work for me.  What I have found tirggers it is Coke and Pepsi.  I am not sure if it is the dye that might be the trigger or what it is.

Treatments that I have tried are:

Vick's Rub.  I did htis for a two week period of time and didn't get any good results from that--my skin felt cool and soft though.

Goat's Milk Soap products.  No change at all.

Peroxide.  This was as good as water with no help at all.

Anti-biotic creams, ointments and pills.  The creams and oitments were yucky on my skin and it attracted more dirt then without the stuff.  The pills, they only were effective for three weeks and then they stopped working all together.

Bleach.  Don't go off the deep end with this--you'd be surprised what goes into your skin just by driving to work or going out into your yard!  I did this in an attempt to kill any mites there might be from one of the studies that reported that mites caused the condition. This did help lots with the constant itch.  I would put some straight from the bottle onto a cotton ball and rub it into my face on the affected areas.  I would leave it on there for about 1 2 minutes and then take a shower and wash it off.  It isn't on my face long enough to cause a chemical burn, but it stops the itch for at least a week!  It didn't cure the condition, but made it more bearable.

Good Luck if you have this condition or know of anyone who has it.  I am waiting for a cure!  If you find something that works, please let us know!

Updates as of October 14, 2008

I posted this on several other sites that I visit often.  One person told me to try Cetaphil (she uses the CVS offbrand) cleanser and lotion.  I am going to try this and then after a few weeks I will let you know the reaction that I had.

If anyone else uses something else please post it.  We all want to stop this stuff on our faces. 

News About This Condition


Monday, March 16, 2009 Sunburn Might Play a Role in Rosacea
Skin blistering, as well as family history, appears linked to skin disorder, expert says

(HealthDay News) -- New research suggests that people with the reddening skin condition rosacea tend to have a family history of the disease and a personal history of sunburns.

Rosacea, a chronic condition that commonly affects the face and can also cause swelling and vascular abnormalities, affects roughly 14 million Americans. Its cause is unknown.

In a Boston-based study of 130 people, half with moderate to severe rosacea and half without, 34 percent of those with the disease reported having a relative who also had the skin disorder, whereas only about 10 percent of those without the disease had it in their family. The researchers also found that 44 percent of people with rosacea reported having had blistering sunburns at some time, compared with just more than 5 percent of the others.

"Even when we did a more sophisticated analysis of the data controlling for age and gender, we found these findings were statistically significant and confirmed our previous findings," Dr. Alexa Boer Kimball, an associate professor of dermatology at Harvard Medical School in Boston, said in a news release issued by the American Academy of Dermatology. "Although these results are quite preliminary, they are important for future research as we start to explore these positive associations and their implications in controlling this condition." Kimball presented the findings at the academy's annual meeting in San Francisco.

Kimball said the research did not conclude whether sunburns contributed to the development of rosacea or whether people with rosacea just tended to sunburn because of their skin condition. However, she said, she advises people who have a family history of rosacea -- especially children -- to regularly use broad-spectrum sunscreen and use other sun protection measures.

In previous research, Kimball had suggested that being overweight might be associated with having rosacea, but she said that the new study found that both people with rosacea and those who did not have it had an average body mass index (BMI) of slightly above 26 -- putting them in the range considered overweight.

"Future studies should explore the possible connection between a higher BMI and rosacea, as excess weight could be found to be a contributing factor to the condition," she said.

More information

The National Rosacea Society has more about rosacea.
-- Kevin McKeever

SOURCE: American Academy of Dermatology, news release, March 5, 2009

Comments

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Chef Jeff profile image

Chef Jeff  says:
14 months ago

With both Scottish and Celtic ancestry, this runs in our family, but so far I haven't shown any symptoms.  I have seen several relatives who do, and it can be embarassing, especially when little children call attention to it in public.

Great hub and thanks for the info!

Lady Guinevere profile image

Lady Guinevere  says:
14 months ago

Yes I have had children come up and ask me about it. It is embarassing. I just tell them taht there is no cure and they really don't know where it comes from. I really don't know exactly what to tell them.

Jodi Barnhart  says:
14 months ago

Lady Guinevere,

I understand how frustrating the rosecea must be. My friend had rosacea. She got rid of it. There are things out there that work great and are so safe to use. If you want to chat about it sometime, you can go to my website and contact me there. I sure would love to help!

Jodi Barnhart

Lady Guinevere profile image

Lady Guinevere  says:
14 months ago

If she got rid of it then she didn't have true rosacea. Post your link and I will take a look.

Lady Guinevere profile image

Lady Guinevere  says:
14 months ago

I looked at Jodi's site and there is a charge for consultaion and workshops. If anyone wants to venture to her site here's the link:http://www.peaceofmyheart.net/customized-health-wo

Jodi Barnhart  says:
14 months ago

Actually, my workshops are different than my appointments with people who want a solution for a particular health concern. I discuss people's concern to see if what I have is a match for them. There is no charge for that. This is where it explains that: http://www.peaceofmyheart.net/health-welness-consu

My educational workshops where I charge a fee are for businesses and organizations in my area where I live.

Lady Guinevere profile image

Lady Guinevere  says:
14 months ago

I didn't try the cetophyl. It was a bit expesive. Even the off brand was a bit expensive. I asked the pharmacist about anything over the counter and she said that there wasn't. She asked if I had talked a to doctor. I have been on the Accutane treat ment twice and have tried all kinds of ointments and such, They won't use the Accutane more than twice because it causes something to happen to your lipids and has a consequence to your liver. So I am out on that again. I did have a good reaction to that though because my face was clear for two years, and then when it came back it was worse then before. Oh there was something that wasn't so good about it--very dry and chapped lips. It dries all your moisture out of your body--like mucus and other "good" moisture that your body needs.

So again I am trying something else and it "seems" to be working-at least drying up the cysts and pustules I have had for the last year or so. This is IvyDry. I spray it on a cotton ball and dab it all ovver the infected areas--including behind my ears. It is drying things up and taking away that feeling like there is a hair flowing across my face.

This is my update. Anyone else think of something else? Let us know wha works or doesn't work for you.

hitesh93  says:
13 months ago

No one wants to have to suffer with this condition!

Marisa Wright profile image

Marisa Wright  says:
12 months ago

My husband has rosacea and he developed it in his teens, so it's not just an adult disease! It seems that rosacea (which used to be called acne rosacea) is very easily confused with acne because of the similarities, and as a result there's a lot of misinformation on the net. Acne treatment products are often quite harsh, whereas if you have rosacea you have extremely sensitive skin so that's the worst thing you can do.

My husband was on permant antibiotics until he started using NS Wash for shaving and washing:

http://www.cincottachemist.com.au/product_detail.p

Unfortunately I tried Googling and I think it may be an Australian local product.

Lady Guinevere profile image

Lady Guinevere  says:
12 months ago

Thank you.  Yes alot of my friends who have seen my pictures on my 1st Grandson's hub have commented to me that their friends had the same thing and it went away with some meds.  I have had this for 32 years and have tried everything out there--even the weird ones --and not one thing has helped it.  My body seems to build up an immunity to any anti biotic that I take within a 3 week period of time and that is why I don't take antibiotics anymore.  Believe me if there was a cure I would be taking it!!

The sorry thing about all this is--my father has it too and he had a vasectomy when I was a child so that he wouldn't pass it on ---but I didn't get it until after I was 20 years old and after I had my first child.  So he had that for nothing. None of my children seem to have it thank goodness.  My sister's children don't seem to have it either, but then again they are in their teens right now.  My children are young adults now 32 and 30.

Marisa Wright profile image

Marisa Wright  says:
12 months ago

Actually, a dermatologist friend of mine said most people find antibiotics are only a temporary fix and the people who take them long-term are kidding themselves that they're helping.

IPL (Intense Pulsed Light) definitely works - in fact on some people it's miraculous and lasts for years - but it's very expensive (like, $2,000 or $3,000) - which is why my husband won't do it.

Lady Guinevere profile image

Lady Guinevere  says:
12 months ago

I understand that. I had two Accutane Treatments and they did worl for about a year and then it all came back and sometimes it got worse then before I did it. I cannot do another treatment becasue it messes with your liver and they won't allow me to do it again.

This is why I like Hubpages and the internet so much - I don't have to be with people. My mom always wants me to cover it up with makeup--but that does make it really bad to the point that I get the cysts under the skin and they are really painful--so I rarely wear any makeup. It just isn't worth it.

Lady Guinevere profile image

Lady Guinevere  says:
10 months ago

The FDA just approved a med called Oracea. Here is the website address: http://www.oracea.com/

Please read the warnings on the bottom right of the page. I think that I will wait for something else to come up since I am allergic to tetracyclines and really thing a sinus infection is not worth it right now. I have also been on the Metrogel and it did nothing.

Lady Guinevere profile image

Lady Guinevere  says:
9 months ago

I just added a news article on here.

Lady Guinevere profile image

Lady Guinevere  says:
9 months ago

I am going to give this Oracea a try when I get the packet and coupon. Anyone else have tried it please post your results.

prasetio30 profile image

prasetio30  says:
7 months ago

Thanks for great HUB. you have deep research about this case. thanks for pay attention to my HUB.about herbal medicine.thanks a lot.

Lady Guinevere profile image

Lady Guinevere  says:
7 months ago

Well when you have lived with this condition since the age of 21, you kind of get to know all about such things. It comes and goes as to how bad it gets. I have read that certain thngs aggravate it, but some of those cases do not pertain to me.

Thanks for commenting and reading.

Lady Guinevere profile image

Lady Guinevere  says:
7 months ago

A note: I cannot afford the medicine and I don't have insurance to help pay for a doctor's visit to get a prescription for this med. Sooooo I am stuck!

Dink96 profile image

Dink96  says:
2 months ago

I've had adult acne rosacea for years and been treated by a dermatologist with you name it. I have found that the Eucerin redness relief products (cleanser, daily perfecting lotion and night cream) have offered the best relief. My dermatologist remarked that my skin looked less red at my last annual checkup. Also try to get professional facials every couple of months (or as I can afford it!) Good luck!

Lady Guinevere profile image

Lady Guinevere  says:
2 months ago

Dink96, Thanks for all that. I have talked with a holistic and was told to get off of sugar and all refined foods and get more vegetables in my diet. I have a hub on the Sugar in Disguise and you would be surprised at what all has that stuff in it and what it does to the body.

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