My Diagnosis Of Thyroid Disease And Adrenal Fatigue/CFS
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My story is typical of hypothyroid patients, who went for years wondering why their energy levels were zapped, their stamina was all but gone and their emotions had gone haywire. I made several trips to Doctors before finally getting some blood tests that revealed I had low thyroid function or "hypothyroidism". In other words my thyroid, the master gland of my body was producing inadequate amounts of hormone, to run everything else in my body (thyroid hormone sets the body's metabolism). I later also had blood tests revealing the cause as being "autoimmune", meaning I have high levels of "antibodies" (killer cells from the immune system) attacking my thyroid gland and slowly killing it off (Hashimoto's thyroiditis).
The first Doctor I went to told me I was experiencing an emotional illness and I accepted this diagnosis for a time because I had no knowledge whatsoever about thyroid disease, all the while, I was telling my wife "I know for a fact I have a physical/medical problem going on!" Blood tests I demanded the Doctor's Office order for me, revealed two abnormal results on my thyroid panel, indicating hypothyroidism, so I was finally started on thyroid hormone replacement medication by the Doctor I was going to at the time. Since that time, I have improved in many areas but my life has not been the same since.
Like many hypothyroid patients, I have a co-existing condition called "Chronic Fatigue Syndrome" (CFS), which is very similar to Fibromyalgia Syndrome (FMS), the difference being that the "fatigue" symptom in my case is more prominent than the muscle/joint pain. A major characteristic of both FMS and CFS is "low cortisol levels", cortisol being the major stress hormone from the adrenal glands that regulates inflammation levels in the body but also regulates glucose levels and stress itself. Twelve different cortisol tests I had done, over a year period, revealed mine to be clinically low at times and never above low-normal. Low levels give rise to inflammation, glucose dis-regulation and stress intolerance but can be low and still not be called true or full-blown "adrenal insufficiency" but simply as a dis-regulation of adrenal hormone levels, due to endocrine imbalances.
Many Doctors recognize both CFS and FMS as autoimmune disease related and interestingly, A Board Certified Endocrinologist I began consulting with, told me that autoimmune thyroid disease patients have a high prevalence of also being diagnosed with Fibromyalgia and CFS. Both CFS and FMS are also recognized by the U.S. Government's "National Institutes of Health", with medical research being conducted in regard to these illnesses, going back to the 1980s. Despite this fact, many Doctors still do not recognize these illnesses. The problem with hypothyroid patients also having hypo-cortisolism, (sub-clinical adrenal insufficiency), is that it is very difficult to regulate both conditions at the same time because cortisol replacement hormone (corticosteroid steroids) can only be administered to full blown adrenal-insufficient patients or those with Addison's Disease (adrenal gland destruction). And thyroid hormone replacement medication can lower already low cortisol levels even further in these patients, which is stated by the makers of these thyroid hormone medications. This creates a dilemma for patients who have both low thyroid hormone and low adrenal cortisol levels.
This is what I personally have been living with, hypocortisolism from CFS and Hashimoto's thyroiditis, which caused my hypothyroidism. Doctors believe that at least 10% of hypothyroid patients have a degree of adrenal insufficiency as well because the thyroid itself places a demand upon the adrenal glands and the endocrine system of glands, work together, or in-sync with each other. If one endocrine gland begins to under-function (hypofunction), this can lead to others under-functioning as well. My personal belief is that this adrenal aspect is what causes so many hypothyroid patients to still feel unwell, even while on treatment for hypothyroidism.
The best thing a patient can do, that is found to have both hypothyroidism and low adrenal cortisol levels (adrenal fatigue), is to find a Doctor who is experienced in treating both and to faithfully follow a treatment plan to correct both low hormone conditions.
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Comments
aka-dj,
Thanks for sharing your story and for the kind comments. Your testimony is fascinating and a blessing to read! It also serves as true inspiration to others who have Chronic Fatigue Syndrome or adrenal exhaustion.
Really amazing!
I have been looking for more information, because I was diagnosed with hypothyroidism about a little over 3 years ago, and I have been on Synthroid ever since, but my symptoms haven't completely gone away. and If I don't take my medicine then it is even worse.
I still have symptoms of fatigue and of being sensitive to cold, and emotional problems and not being able to deal with stress.
I am not sure if I also have low cortisol levels along with my hypothyroidism or some sort of fatigue, or if it is just my thyroid disease.
My doctor is one of those people who only cares about the results and not my symptoms and I can not afford to get an endocrinologist. He put me on some different anxiety and depression pills before, but neither of them seemed to help. so I am wondering if they are related to adrenal fatigue.
I just wish I knew what to tell my doctor so he can get my cortisol levels tested.
and suggestions??
Thankyou for giving me more information and I hope you can suggest something to help with this dilemma.
thanks again
Maegan,
In my non-pro opinion, I feel your thyroid hormone levels may not be optimized as they should be. This is the first place I would look if I were you before going on to check for other problems.
If you can get copies of your latest thyroid blood retests, check to see if your T4 and/or T3 levels are above mid-range. If they're at mid or below, you may be under-treated and in need of seeing a more qualified hypothyroidism treating doctor. If your current doctor will agree to better optimize your dose of hormone replacement, if it is not adequate, you may not need to change doctors.
Your TSH level is also an indicator of how good treatment is. If it is only being suppressed down to a "3.0" or higher-normal, your dose can be increased so that it falls to about "1.0". (The goal of thyroid hormone replacement is to suppress TSH that elevates with hypothyroidism.)
I won't quote medical sources but trust me in that they agree with what I have just stated, this includes the U.S.Gov.-National Institutes of Health and the American Association of Clinical Edocrinologists. If a doctors wants to disagree, he'll be disagreeing with these reputable sources.
In my opinion with feeling cold & your other symptoms, your dose may need tweaked by a doctor willing to do so (second opinion).
Synthetic T4 does not work for a very large number of people with Hypothriodism. The reason being that we dont produce any T3 ! You need to check out the following web link to see what is all about.
Since I have changed from Synthetic T4 to natural throid extract I am so much better !
Web site www.stopthethyroidmaddess.com
Best wishes
David
David,
I too have always believed in the superiority of thyroid hormone replacement that includes T3. In many patients it results in better improvement than does T4-only. It's good however that T4 is available because there are people to whom porcine products (pig derived) cause them an allergen. Some people also have to avoid porcine for religious reasons. Yet others are simply intolerant to oral T3 but that scenario is not common.
From my own opionion, most people will do better on T4/T3 rather than on Synthetic T4 - I'm one of them.








aka-dj says:
9 months ago
Interesting. I think I had this disease (or some form of it) many years ago. The doctores never did find the cause, nor did they have a cure. I know that I was healed as a direct result of prayer, and faith. It took about three months from fist simptoms to all clear. (The prayer/healing was received about the peak of the symptoms.) Family and friends were sure I was dying, it was so debilitating. I couldn't function "normally" for more that about two hours at a time.
I had almost forgotten all about it till I came accross your hub. Thanks.