Dear Avery -- In Memoriam

When you have to let... go..!
When you have to let... go..! | Source

This is Avery Canahuati, born on November 11, 2011. Barely 5 months old on April 11. She was diagnosed with SMA (Spinal Muscular Atrophy), a genetic disorder that attacks spinal neurons and progressively debilitates muscle function. Roughly, her abilities to walk and live a normal life like us, will eventually stop during the next 18 months. I don't want to talk about death, but just 'see you later.' This brought us down to tears, because we lost a baby of our own at 8 1/2 months -- painful memories of placenta detachment (abruption). Yep! Our own blood, had to say good bye, 2 weeks before scheduled delivery.

Unless we find a cure for this genetic disorder (unfairness of life), we will lose Avery. So far she has lost her abilities to sit down and... somewhere down the line, her arms will stop that 'normal and taken for granted' hugs and good byes to mom and dad.

Parents Mike (31), and Laura (29) were carriers of the SMA and they didn't know it. Dad Mike had to blow 2,500 dollars just to find out the sad truth. Technically the insurance didn't cover this disorder's testing since, "you have to know about it to ask for it."

Source


Dear Avery

is early morning and not feeling well

the news of you have moved me to

tears and my whole brain

So many worries of our own, and

missing your smile at day's end

Thinking about our own egos

facing a world that is losing itself

precious angel that touched our heart

wish had the power to heal your pain


Source

Easy to say that we are okay

your own little problem is making us think

Mother's day you will be with mommy

and maybe next time you will win your wings

This is so devastating for God's sake

Where is the knowledge that could save your life

Loved to stop wars for a day and see your smiling face

Don't you think, precious thing?


In her own little words...through her dad's blog

  • Parents, please remember to help your own kids. Keep them live, laugh, and love them, but more importantly, cherish each and every moment with them.
  • 1 out of 6,000 of my friends are born with SMA. So parents, be careful with my little friends.
  • This is my Father saying: "We are all born pure & innocent. We can let the world change us, or we can change the world."
  • And this really made me cry, even if I will stop smiling one day, unless God wants me to stay: "Take it all, but don't take her smile."

Update: Avery Lynn Canahuati, passed away on April 30th, 2012. Rest in peace little soul!

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Comments 55 comments

ktrapp profile image

ktrapp 4 years ago from Illinois

What a precious little girl Avery is. Her contagious smile and innocence must certainly be a treasure to her mom and dad. The ups and downs that life brings are so hard to understand. I hope one day the purpose becomes crystal clear. For now, thank you for sharing Avery's battle and for reminding me to be so happy for the health of my own children and family.


Lord De Cross profile image

Lord De Cross 4 years ago Author

You are welcome Ktrapp! Nice to see you around. God bless as well.


mollymeadows profile image

mollymeadows 4 years ago from The Shire

LDC, I'm so sorry for your loss, and for Avery and her family. My family went through something like this with Dad's ALS and I can only imagine the pain of this happening to a child. My prayers are with you and with Avery and her family...


Lord De Cross profile image

Lord De Cross 4 years ago Author

Molly, Science have to put it together and try to get a cure...in the next 18 months! This is terrible! and ourselves worrying about politics and international policies! Thanks for stopping by! This is really...omg!


Deborah Brooks profile image

Deborah Brooks 4 years ago from Brownsville,TX

Molly is so beautiful.. I am crying. thank you for posting this. these precious babies that get these awful disease and they can still smile. oh wow. so heart wrenching.

Lord you are so great to post this

Debbie


Ardie profile image

Ardie 4 years ago from Neverland

Oh Lord you're tearing apart my heart here. I am so terribly sorry about your own little angel. And dear sweet Avery is such a smile doll. I wish there was some way to take the illness from her. Your poem is beautiful, I know her parents would love it.


tammyswallow profile image

tammyswallow 4 years ago from North Carolina

Whew.. this is a tough hub. That is one precious little bundle. Hearing her story really makes one appreciate the health and happiness of my own children. Thank you for sharing her story and I am sorry to hear about your own loss. When you see children suffer, lost, and in pain, it can really make it hard to keep one's religion and understand why such things happen.


kelleyward 4 years ago

Lord I'm on vacation but had to stop by and read now I'm crying. Praying for you and Little Aveey. She is beautiful! Kelley


cherylone profile image

cherylone 4 years ago from Connecticut

I have shared this on my facebook page. I hope it helps.


Lord De Cross profile image

Lord De Cross 4 years ago Author

You are so sweet Cheylone! Had to stop my Job to thank you! Blessings and I know you have felt our pain..!


kelleyward 4 years ago

Just noticed I had a typo on her name Avery, sorry. Kelley


Lord De Cross profile image

Lord De Cross 4 years ago Author

Kelley is alright. We know you didn't mean to. Will comment tonite. Thanks Tammy, Ardie and Debbie.


xstatic profile image

xstatic 4 years ago from Eugene, Oregon

This is such a heart touching sad story. Words do not come easily to respond...just want to say there are or will be several hundred Hubbers thinking about you and Avery and her family, all wishing with tears in our eyes and hope in our hearts for a miracle.


Pamela99 profile image

Pamela99 4 years ago from United States

This story breaks my heart to look at that precious baby and know her future. I am also in tears. I pray for a miracle for Avery. There are no words to say that make this any better.


Just Ask Susan profile image

Just Ask Susan 4 years ago from Ontario, Canada

This is so sad and it breaks my heart. A miracle would surly be a blessing right now for this beautiful little girl.


Faith Reaper profile image

Faith Reaper 4 years ago from southern USA

lord, there are no words to express the great pangs in my heart for sweet precious little Avery, her parents and you too (as well as for your great loss of the past). My mind cannot conceive of such a terrible thing to have to endure. I will gather all my prayer warriors together,and we will fervently pray for a cure and a miracle. Avery's little life, no matter how long or how short, will have a great impact for sure. When and, if, He is ready to call her home, we know she will have a perfectly new little body without any pain, suffering or tears. And for those left behind here, as you say, "see you later" on another much more beautiful day, where we will see precious little Avery, smiling and running on those streets of gold to greet everyone. Agape love to you all always, Faith Reaper


mary615 profile image

mary615 4 years ago from Florida

What a beautiful child! That precious smile...this is a new disease to me...never heard of it before. I'm SO sorry for these parents. Thanks for sharing this sad story and your poem.


billybuc profile image

billybuc 4 years ago from Olympia, WA

Heartbreaking all the way! My eyes are wet and I feel the pain of the parents. Thank you for sharing this story and for bringing awareness to this matter.


Lord De Cross profile image

Lord De Cross 4 years ago Author

Good evening Deborah Brooks,

As we said it before, life is so unfair. We feel like tied handed and we know what that means. Avery... hopefully will be able to celebrate her 1st year on veterans day.


Lord De Cross profile image

Lord De Cross 4 years ago Author

Hi there Ardie, we are bringing awareness on the matter as Avery's parents did. If you go to her daddy's blog, you will see the counter going up by the second. There is more pictures there and is so touching how a couple gave life to a doll... and now we just expect a miracle.


Lord De Cross profile image

Lord De Cross 4 years ago Author

Hi Tammy, we appreciate life more when we see these stories. This is only the beginning. Avery was diagnosed on this last good Friday, and the sum of all fears were confirmed. Thank God your Princess and your kids are so healthy. Thanks for commenting friend/


Lord De Cross profile image

Lord De Cross 4 years ago Author

Kelley Ward, Just remember your mom surviving another terrible Illness, that's why you are so close to us. You are such a wonderful mom, and I'm glad your 3 boys are full of life. Thanks for being the way you are. Your prayers will help us to get this miracle of a lifetime.


Lord De Cross profile image

Lord De Cross 4 years ago Author

Thanks again Xstatic,

Your heart was felt and we thank you for being with us. We as hubbers have a heart of our own. We overcame that Big E. And this is a tough issue, that we certainly don't know how is going to end. Humbly appreciated for your warm comment.


Lord De Cross profile image

Lord De Cross 4 years ago Author

Pamela99, Your words mean a lot and just seeing you dropping by, makes a difference. Our humanity is being put to the test. We love life, and we need an answer from the big Boss.


Lord De Cross profile image

Lord De Cross 4 years ago Author

Just ask Susan,

What we found is disheartening. Every day her little body will weaken and... her limbs and even chest will... sorry I don't need to go in details. This is too much. This angel deserves to live. If you go to the blog, you will see that she already met a little BF, nad her future alma matter. Her driver license (phony)has been issued and... so many things have been planned in advance for Precious Avery.


Lord De Cross profile image

Lord De Cross 4 years ago Author

Cheryl One, Thanks for posting this hub on your FB. Avery's parents want to raise a million dollars fund for research and... probably be able to save her life. This is like a nightmare... that we don't want for us, or our loved ones.


Lord De Cross profile image

Lord De Cross 4 years ago Author

Faith Reaper,

We know deep in your heart there is this love for your fellow man and we are lucky to have met you. God works in mysterious ways and probably we are being put to the test. Faith and prayer might make the difference between life and death. Thanks for being there.


Lord De Cross profile image

Lord De Cross 4 years ago Author

Mary615, thanks for coming by. We have seen your kids and that little girl of yours. We appreciate your friendship and your stopping by. Hope Avery gets over this disease. This shouldn't be a death sentence on an angel. Her parents loved her too much and there should be a solution behind heaven's gate.


Lord De Cross profile image

Lord De Cross 4 years ago Author

Billybuc and Bev, This is hard enough for us. We know about bthe pain and the load...and the unforgettable past. Thank you my friend... we owe you one. Hello Olympia!


Gypsy Rose Lee profile image

Gypsy Rose Lee 4 years ago from Riga, Latvia

Voted up, awesome and beautiful. How my heart goes out to Avery and I sure would do anything to save her if I could. This is so frustrating. This especially touches me because in 1996 I carried my baby girl practically the whole 9 months only to find out through some fluke she'd broken off the umbilical cord and was still born I will pray for Avery and her parents. Thanks for sharing and God bless.


Lord De Cross profile image

Lord De Cross 4 years ago Author

Thanks Rasma! You are not alone! We had our own loss and things like these will never be erased from our memories. Like you never forgot about your little girl back in 1996. We will pray for Avery and keep our faith in the Maker of all!

LORD


RealHousewife profile image

RealHousewife 4 years ago from St. Louis, MO

Heart breaking! So sad....I'm so very sorry to you Joseph and Avery and her family. I will share this everywhere and I sure hope that a cure is found. I've never even heard of this affliction. There is nothing worse than the loss of a child. Life's inequities are awful.

I voted you up and everything but funny.


Lord De Cross profile image

Lord De Cross 4 years ago Author

Good Morning Kelly, sweet. Thanks for the input and hoping you are enjoying the rest of the weekend. This story is not just a hub about an illness. For the next year and a half, we will hear about this little angel. Is this happening just to wake us up? Anyone would be devastated knowing that he/she will have to say goodbye to a loved one, any minute...or hour. Thanks again RHW.

LORD


justateacher profile image

justateacher 4 years ago from Somewhere Over The Rainbow - Near Oz...

Lord - I just read about this little angel a few days ago. I am so glad that you wrote about her!! I was going to write a hub about, but you did it in a way that was better than I could do! Thanks for getting her story out there!


justateacher profile image

justateacher 4 years ago from Somewhere Over The Rainbow - Near Oz...

I have shared her story before when I first read about her, I will share again! Again, thank you for sharing her story!


marcoujor profile image

marcoujor 4 years ago from Jeffersonville PA

Oh LORD,

I am such a believer in prayer, in faith, in the goodness and strength of hanging onto each other for all we are worth at the times we are most without answer.

I am placing Avery on my Sister's prayer list. She is a religious and has 65 powerful women with her that pray daily for our needs.

I am sharing her story with my friends as well. You are a beautiful man to raise our awareness and I am terribly sorry for your loss, dear friend. Hugs, Maria


Lord De Cross profile image

Lord De Cross 4 years ago Author

Thanks JustAteacher and Maria,

Hubpages is a strong community...and hopefully this message will reach Avery and her Parents. We are to tweet Ellen on May 1st. and ask for her help...and then those billionaires, who have that money sitting down, gaining interests...that might be bound for things that are not for the needs of the heart!

LORD


always exploring profile image

always exploring 4 years ago from Southern Illinois

This is heartbreaking, such a beautiful baby. My prayer is a miss diagnose. Sometimes mistakes are made. I hope this is one of them. Take care and thank you for sharing.


tillsontitan profile image

tillsontitan 4 years ago from New York

There is no pain so deep as that of losing a child, Lord. I am so sorry for your loss. As for this poor little Avery my heart goes out to her parents. I had friends who lost their son to leukemia and it was devastating to me. When he died I was crushed and they said, "don't cry Mary, his pain and suffering are over and he's in heaven." It takes a very special set of parents to deal with what these poor parents will go through. My thoughts and prayer are with them and especially with little Avery. May God bless her and keep her in the palm of His hand.


Lord De Cross profile image

Lord De Cross 4 years ago Author

Always exploring, is just sad that things like this have to happen and make realize that life is not forever. Just checking the news, we all see is campaigning and the Sport of the day. But little angels like Avery are suffering by the day. Thanks for joining us in this cause.

LORD


Lord De Cross profile image

Lord De Cross 4 years ago Author

TillsonTitan,

Avery's smile is a killer, and I see... and feel happy for your kids. At least they are healthy and living a normal life. We will see if Avery was misdiagnose, but dad paid over 2,000 dollars for the tests, and probably they should get a second opinion. Not a doctor, but as a father I would move heaven and earth...!

LORD


picklesandrufus profile image

picklesandrufus 4 years ago from Virginia Beach, Va

What a beautiful child. I know she lights up her friend's and family's life every day.Such a sad and unfair diagnosis. You write a lovely hub for a special little soul gracing us with her presence, even if for a short time.


tammyswallow profile image

tammyswallow 4 years ago from North Carolina

My heart is very heavy to read that baby Avery has died today. Thanks for introducing her story to us. Her parents were so very brave and wise to save their tears and celebrate her life day by day. Prayers and best wishes for this strong family.


Faith Reaper profile image

Faith Reaper 4 years ago from southern USA

lord, I am so very sorry to hear this and will continue in prayer for you and little Avery's family that He will draw near to them in this terrible time of loss. As Tammy said above, each day her parents had with her, they celebrated and treasured each second with her. I had planned this weekend while on a Women's Retreat for all the women to pray for Avery, and now we will do so for her family. Agape love to you and Avery's parents, Faith Reaper


Lord De Cross profile image

Lord De Cross 4 years ago Author

Sadly, we announce Avery Lynn's departure from us, at 3 p.m. on Monday 30th, 2012. Dad Mike gave her CPR, brought her back for a few precious moments.... but one of her lungs collapsed. Our condolences to her brave parents


Lord De Cross profile image

Lord De Cross 4 years ago Author

Thanks Faith,

We still respect the Creator's decision. Dad Mike said, he will continue on his promise to her... to find a cure for this illness that can affect anyone.


xstatic profile image

xstatic 4 years ago from Eugene, Oregon

So sorry to hear that. Words fail.


Lord De Cross profile image

Lord De Cross 4 years ago Author

Xstatic,

I had a child in my arms for 4 hours, but he was pronounced death before I could say bye(placenta abrusion). I was stronger than my wife... Doctors took my little baby boy away, to join other angels... as they said to us. Memories that will be carried away to the grave...


Faith Reaper profile image

Faith Reaper 4 years ago from southern USA

lord, what a beautiful promise Dad Mike made to his sweet precious one. I have no doubt that he will carry that out, and we will be praying for him all the while. Oh, bless you lord, for you will see your sweet little baby boy one day again, just as Avery's parents will, and it will be such a beautiful day then. In His Love, Faith Reaper


Lord De Cross profile image

Lord De Cross 4 years ago Author

Thanks Faith Reaper. This story touched me more than anything... I know the pain and the day to day memories, that little by little we had to leave behind. But I'm glad she is resting and playing with so many little angels. Thanks!


sharonchristy profile image

sharonchristy 4 years ago from India

How tragically beautiful. But ups and downs are the vicious cycle of life and poor Avery, meant to be an up became a down. I am sure she is in better and purer hands smiling away happily, she never knew the pain of being neglected, she had you, she never knew the pain of losing because it was you who lost her and she never knew what it is to have loved and lost for you did it for her, she was born to a dark world and because she was so pretty and innocent, she was taken back to her own father. God rest her soul and may God bless and and give you courage to carry on!


Lord De Cross profile image

Lord De Cross 4 years ago Author

Sharon Christy,

Your deep feelings and wishes deserve attention.We know God did the best for her. We knew she was an angel, waiting to go back. Was sad to see her go so early though.

LORD


PDXKaraokeGuy profile image

PDXKaraokeGuy 4 years ago from Portland, Oregon

I'm no kid lover, but, this brought me to absolute tears. What a precious precious child and what a horrible disease for her to be afflicted with. My prayers for the parents, that they won't feel guilt over not be tested and for Avery that she is enjoying her time with the Saviour.


raciniwa profile image

raciniwa 4 years ago from Naga City, Cebu

this is so touching and her story moved me to tears...what a cute baby...so sad though...


Lord De Cross profile image

Lord De Cross 4 years ago Author

Hi there Raciniwa,

We are trying to comprehend the whole situation and spiritually, we just have to trust the maker. Faith is strenghtened at times like this. Thanks for commenting!~

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