I'll Tell Everybody...

I have epilepsy & have had it for over 20 years. It started when I was 6 & the doctors said everyone can have 1 seizure before being diagnosed with epilepsy. A year passed & then I had another, I was officially epileptic. I went 2 years seizure free & everyone was hoping I was growing out of it. But then, down I went again. Over time it has worsened. I now have 4 types of seizures instead of the initial 1 type. I’ve had serious injuries, & countless brushes with death. But there are many people worse off than me, & I hope to fulfil some or all of my ambitions and dreams! I go out, have fun, & I don’t think about the epilepsy unless it causes a problem.

Vague image of me after a seizure, except no smile
Vague image of me after a seizure, except no smile
My aunt and I half way up Ben Nevis (highest mountain in the U.K.)
My aunt and I half way up Ben Nevis (highest mountain in the U.K.)
Me having fun at a wedding.
Me having fun at a wedding.

Over the hills and far away,

It’s far too far for me to go.

I sit down by our old oak tree

And watch as the sunrise glows.


You’re watching me in every which way,

I cannot think of a way to escape.

I know you are doing everything you can,

But some days I really just hate.


I’m living my life to the best I can,

I try to be all I can be.

I’m living a life of pain and torment,

Nothing compared to others though, and this has helped shape me.


I have asked it, my family have asked it, the big question;

Why me? Or, why her? But, why not me?

It’s just another quirk to add to my list of uniqueness!

I’ve never fitted in, I’ve never been ordinary.


I like to have fun, I like to dream,

I have a vivid imagination full of fantasies!

Right now, I want to learn to dance,

Feel the music around me as I move about!


So I’ll say to everybody:

Let’s dance! C’mon and have some fun,

Just dance everybody, look what we’ve goin’ on!

Let’s dance, coz I just want to feel free,

Free from this life that is surrounding me!

Comments 4 comments

attemptedhumour profile image

attemptedhumour 6 years ago from Australia

It must be tough for you and writing is cathartic in many ways for many people. I'm sure you will find many interesting things to read about and many interesting people to pass the time of day with. It's a good poem because it comes from your heart and tells your readers a lot about you as a person. I hope your seizures are manageable and that your dancing is ten times better than mine, maybe twenty times, then you will really move. Best of luck from sunny Melbourne.


Georgie98 profile image

Georgie98 6 years ago from UK Author

Thank you for your comment. :)

I'm studying at the moment hoping to go on to university next year, maybe learn to dance there. I just have a laugh and take each day as it comes. It's very uncontrolled, and have constant seizure activity, but I live my life to the best of my abilities.


tlmntim9 6 years ago

I'm glad for your strength, it will fare you well. People ask me why I write and read so much...the answer is simple, I say, "I can't dance", no really I can't.

God bless

Tim W


Georgie98 profile image

Georgie98 6 years ago from UK Author

Hahaha!

Everytime something comes trying to knock me right over, I just bounce right back. I have to, my life is hard enough, without making it harder on myself. I've had other crap happen to me too which has helped build up my inner strength, but before all that I was a tough cookie!! :)

I just feel sorry for those who I love and care about who have to put up with everything.

Thanks for reading and commenting.

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