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Commisso Family Story - A Very Special Family

Updated on October 7, 2012

The Commisso Family

L-R Cosimo, Tony, Sonia & Alessia
L-R Cosimo, Tony, Sonia & Alessia

A plea for help, compassion and prayers

I am writing this to introduce you to a very special family and my hope is that anyone who reads this will share it with all of their friends and families.

I know the Commiso family through their son Cosimo who went to school with my son and our church. They have suffered indescribable pain thoughout the years and yet somehow through their faith, remain positive. The Commiso family are role models who are loved and admired throughout our community.

This is their remarkable story...

The Commisso family consists of Tony, Sonia and their children, Cosimo, Jesse and Alessia

This family has endured many changes over the years with several family members having experienced serious health related issues. Their story details many of their heartbreaking challenges which they have had to face and overcome. Their daily obstacles and struggles have been very stressful and have impacted them physically, mentally, emotionally and financially. They have persevered in faith, hope and love.

Tony has Multiple Sclerosis; his son Cosimo has a seizure disorder and a learning disability. Their daughter Jesse passed on in 2001 at the young age of 2 years and 5 months due to complication of a Mitochondrial Disease and Congestive Heart Failure. Alessia too has been diagnosed with the same disease as her sister Jesse and has a seizure disorder as well. Sonia is the sole caregiver of the family and has been overwhelmed with a significant amount of responsibilities over the years and is experiencing severe stress levels.


Tony
Tony

The Commisso family story - By Sonia Commisso

Tony Commisso

Tony was diagnosed with Multiple Sclerosis at the age of 32. He is now 46 years old and over the past 14 years his MS has progressed rapidly and has experienced severe physical and cognitive decline as a result. Tony requires a power wheelchair to get around as he is unable to walk or stand on his own. He is unable to use the left side of his body and is also being treated for a seizure disorder. Tony’s speech has been severely impaired and he has a difficult time speaking, eating and swallowing.


Cosimo
Cosimo

Cosimo Commisso

Cosimo is now 19 years old and he too faces many struggles. He was diagnosed with a seizure disorder at the age of one. Over the course of his life, he has been on several different anti-epileptic medications that have helped reduce some of his seizures. However, the side effects of these medications along with the seizures themselves have impacted his cognitive ability requiring special education and assistance with daily tasks. As well, Cosimo faces many emotional challenges and has a very difficult time managing his anger which now requires professional consultation.


Jesse
Jesse

Jesse Commisso

April 25, 1999 to October 1, 2001

Jesse is our angel. She passed on to complications of congestive heart failure due to a rare mitochondrial disease. She was 2 years and 5 months when she left this world. She is always on our hearts and minds

Alessia
Alessia

Alessia Commisso

Alessia is nine years old. She is a very happy and playful little girl who lives life to its fullest, despite the challenges she faces. She was diagnosed at the age of 18 months with a mitochondrial disease and has faced many struggles in her young life. Like her brother Cosimo, she too has a seizure disorder that requires close monitoring.

Alessia’s fine and gross motor skills are not as advanced as other nine year olds. She cannot walk or stand up on her own and requires a wheelchair and walker in order to get around. However, she is able to sit, roll and crawl on her own. She is involved in intense physiotherapy in order to improve her motor skills, her tone and her strength. The goal is for Alessia to walk using canes. She is not far from this goal!

Like her sister Jesse, Alessia’s heart has been affected by this disease and she requires constant supervision to monitor her respiratory rate, heart rate and blood pressure. Her fluid intake and her calorie count need constant monitoring as well.

Alessia’s cells require a considerable amount of energy to keep her body functioning. The energy is derived from her calorie intake where the nutrients from the food are converted into energy. This task is performed by the mitochondria. Her body requires food and fluids to keep the energy cycle going in order for her to have a normal day. She therefore cannot have anytime of fasting.

Alessia’s intake is complex and must have a balance of fluid to stay hydrated and food to keep her energy levels maintained. When intake is not balanced, complications occur such as heart failure and fluid overload of the lungs, resulting in hospitalization.




Sonia & Tony
Sonia & Tony

Sonia Commisso

Sonia is the sole caregiver to all her family members. She is appealing to the community for assistance with her family. Given all these challenges, she is looking to find ways to increase support for her family and hopes that through this brochure you will have had a glimpse into this family’s complex situation and life.

MITOCHONDRIAL DISEASE

Mitochondrial disease result from failures of the mitochondria, specialized compartments present in almost every cell of the body. Mitochondria are responsible for creating more than 90% of the energy needed by the body to sustain life and support growth. When they fail, less and less energy is generated within the cell. Cell injury and even cell death follow. If this process is repeated throughout the body, whole systems begin to fail, and the life of the person in whom this is happening is severely compromised. This disease has affected both Jesse and Alessia. (umdf.org) For further details about mitochondrial disease, you can visit: www.mitocanada.org

The Commisso family is in need of:

  • Nursing Care
  • Respite relief
  • Medical supplies, i.e. condom catheters
  • Medical equipment
  • Mobility equipment
  • Medications and vitamins
  • Horse therapy (hippo therapy)
  • Physiotherapy *** so very important to maintain muscle strength.
  • Swim therapy
  • Family counseling
  • Therapeutic Recreation
  • Ongoing care expenses


Journey of Love - Commisso Family

Donations

Due to the many needs and lack of income, both Tony and Sonia are unable to work, the Commisso’s are in dire need of financial support.

An “In-Trust Fund” has been set up for ALESSIA COMMISSO

Donations can be made to any TD Canada Trust Bank

Branch #1741, Account #6355262

Or make cheques payable to Sonia Commisso

We feel that Alessia’s progress is a result of the countless prayers, along with the emotional and financial support from family members, our friends and the community.

Most of us cannot understand what it takes to endure the emotional challenges faced by this family coupled with the financial burden in the efforts of living day to day to strive for a normal life. However, through all these struggles and heartaches, the family has persevered in faith, love and hope. They feel blessed to have so many family members and friends who take care of them and pray for them. They bring new meaning to the phrase, “I cried when I had no shoes until I met someone with no feet!” It is truly inspiring. Please keep this family in your daily prayers.


A Facebook page has been set up for Alessia, go to: PRAY FOR ALESSIA COMMISSO. Please join together with us to storm the heavens with prayers




Final Note:

The strength, I have witnessed in Sonia Commisso is unbelievable. Every Sunday, the family is sitting in the front row at Saint Patrick's church. Her faith and positive attitude is something I have never seen before. Her incredible love for her family, her ability to take on each day with hope, love and faith leaves many people including myself wondering how she does it. Somehow she does. I believe that Sonia is a living angel whom God blessed this beautiful family with.

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    • billybuc profile image

      Bill Holland 4 years ago from Olympia, WA

      Amazing story! How much suffering can one family endure? Bless you my friend for bringing their story to the light of day. My prayers are with them.

    • profile image

      Janhorner 4 years ago

      This story has touched me so much! The family need their neighbourhood to help out! How much suffering must one family have to take on. They are all such beautiful people, and Sonia is my Star!

      Perhaps an organisation could be put in place to help Sonia and her family and other families with similar cirumstances. The government should be doing something financially to take away the stress of money problems; this family have enough to suffer without this added worry.

      They will be in my prayers.

      You have penned this brilliantly, send it to your local paper!

      Jan Welwyn Garden City Unitd Kingdom

    • profile image

      oceansider 4 years ago

      Hi T4an,

      As I read your article about the Commissos, I felt very sad for what they are going through, and how they had lost their baby girl at 2 and a half yrs. old....that is heart breaking!......As I read, I was praying for Sonia, Tony, and their children, and I will continue to pray for the healing of Tony's multiple sclerosis ( I also have a friend who has this disease), and for Cosimo's seizure disorder & Allessia's heart, which you said is affected by the disease she has.....Our Lord Jesus Christ can do anything, so I pray that in His great mercy, He will bring healing to this family and strength for Sonia to be able to care for everyone.

      God bless you, thank you for writing this.

    • T4an profile image
      Author

      T4an 4 years ago from Toronto, Ontario

      Thank you Billy, Jan and Oceansider. I thought hubpages would be a good place to let the world know about their story and continued faith. I approached Sonia and she sent me the details of every family member. I didn't want to write the wrong information. Unfortunately, I have not been able to help them financially, only through prayers and I thought putting their story out there could be a gift I could offer. Please share this with your friends.

    • MsDora profile image

      Dora Isaac Weithers 4 years ago from The Caribbean

      What a story! Suddenly, I have no complaints about any thing. Thank God for the faith of this wife, and the moral strength of this entire family. Will visit the other sites. Will pray for them too. Thanks, T4an, for sharing.

    • T4an profile image
      Author

      T4an 4 years ago from Toronto, Ontario

      Thank you MsDora! Sonia is incredible. She has never given up, has never stopped praying and has never stopped being thankful for her beautiful family.

    • rls8994 profile image

      rls8994 2 years ago from Mississippi

      This is such a heartbreaking story that made me feel so bad for them. The poor mother and wife sounds like a great person. I will keep them in my prayers :)

    • profile image

      Kevin Aguanno 8 months ago

      Very, very sad story. We will keep your family in our prayers.

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