PDD-NOS (Pervasive Developmental Disorder Not Otherwise Specified)
OMG Why is my child different??
Because I am the parent of a child with PDD-NOS I know how stressful, and frustrating it can be when you see that your child is different from other children, and or if other people stare, and comment about certain behaviours your child may have or do. You wonder will my child ever speak, or play with other children? Will they be able to live normal productive lives as adults? I wanted to write this so that if someone has a child that may seem slightly off the norm, and you're concerned about their development that there is hope, and things will get better. This is just a quick list of resources about this diagnosis, and some gadgets for the kids.
Delay in Milestones
What can we do to fix this?
My wife and I first noticed that our son wasn't meeting certain milestones that were typical for infants of his age. He wasn't babbling like other infants, and even as he got older he seemed to have difficulty communicating with peers. After doing research online, and talking to a few people we decided to seek some help from early intervention program in our local area. If you haven't already gone through this step I highly recommend doing this it is the best thing you can do to help your child get the help they need.
Because we had gotten help through early intervention we then got a recommendation to see a Developmental Pediatrician, which you need a referral to go see. With this meeting with the doctor we learned why our son was different, and we can learn ways to help him, and understand him better. Our son was three years old when he was officially diagnosed with PDD- NOS, but the Early Intervention Therapists had suspected that he was autistic from the start. He is now four years old and talks in 4-5 word sentences, so he now can communicate better with his peers. He is also at the stage where he is asking a lot more questions, and wants to know what everything is. While he is not 100% there I have confidence now that he will be okay and that he is on the path to success, because we were concerned enough to seek help.
PDD-NoS is now Classified as being in the Autism Spectrum.
PECS (Picture Exchange System)
Giving your child a way to express their needs and wants
One good tool to use for a child that cannot communicate easily their needs and wants is to use the PECS system or Picture Exchange. Basically this is a book of cards that have words, and phrases allow with a picture that the child can easily identify to an item or activity. Sometimes therapists will use these to encourage your child to make choices and or to better understand them.
Sometimes watching videos about speech can help your child learn the sounds needed to speak clearly. Here is a list of some that we found helpful.
Baby Chatterbox DVD
Baby Babble DVD
Baby Babble 2 DVD
Baby Babble 3 DVD
PDD-NOS related reading material
Some helpful books to educate yourself.
This has to be one of the best books about this diagnosis that I have read.
Helping PDD- Nos Kids Learn through Social Stories
We have used this book more than a few times to help our son to better understand certain situations.
For more info about these books please visit - http://www.thegraycenter.org/