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10 Ways to Live A Happy Chronically ill LIfe

Updated on December 16, 2014

When Life Hands You Lemons, Use Them to Garnish Your Lemon Drop Martini!

When I first got suddenly hit with all this sickness nonsense, I assumed I would wake up any day and find it all a dream. Then, I realized after doctor #2 told me "you should stay in bed all day," this was probably not a dream. Then after doctor #3 so kindly commented, "some people never recover and cannot hold normal jobs or live a normal life ever again," I decided to nix the dream idea phase and return to living. The trip I had planned to Las Vegas before being sick? Yep. I was two weeks out of the ICU and on a plane. This past December, we had planned two years before a trip to Israel and Egypt. I told my parents, "I paid. I'm going. We can take my wheelchair." I went and my assistant tour guide helped me through the sand to the base of the pyramids. I also rode a camel!

As for college, I would finish my pre-med degree. I may no longer be able to do the two jobs I had there, but I was going to finish. Even if my wheelchair fell apart, someone would carry my half-dead self to class. I had waited four years to take Immunology. I was going to take it! I am proud to say, although it took me another year, two hospital visits, numerous ER hellos, and one concussion I finished college. I even hobbled across the stage with my cane to get my diploma (so take that Doctor #2).

This past October, I flew by myself, thanks to all the wonderful airport people who pushed my wheelchair and visited a graduate school near my friend's place. My dreams of going to graduate school ended with my illness, but I haven't forgotten them! Sadly, with the amount of energy and work needed, I cannot physically handle it. A sad confession, but true. Still, I am so happy to be out of a wheelchair and rarely need a walker, although, my cane and I are still best buddies that I must share the ten ways of living my happy chronically ill life. If even one person reads this and can relate, than I have done an awesome job!

#1 Rediscover Your Passions!

When I was younger, my biggest desire in life was to become a jewelry designer. I loved jewelry and wanted to make it my life. Diamonds, emeralds, sapphires, I would capture them all in rings, earrings, bracelets, and necklaces. What I made, would sparkle and enchant people. I wanted to surround myself with every element and get GIA certified. I even got accepted to my school of choice! Unfortunately, without the um...significant funds, I could not afford to go (that is okay because I ended up finding another passion in biology). Being sick has allowed me to return to jewelry design. I started my own jewelry line because I wanted to share my work and my passion. For me, being able to make something beautiful is still as amazing and wonderful as before my body fell to pieces.

#2 Take a Trip

After I got out of the ICU, my friend texted to ask.."are we still going to Vegas? Because we don't have travel insurance." My reply? "OF COURSE WE ARE GOING EVEN IF YOU HAVE TO DRAG MY HALF-DEAD BODY ONTO THAT PLANE!" So my family was not exactly thrilled but they were going on their own vacation and would be a closer flight to Vegas than at home (or that was my argument anyway). I went to Las Vegas, I took my wheelchair through the strip, went shopping everyday (the wheelchair is perfect for piling on the purchases), survived one helluva timeshare experience, and had so much fun.

Now, to be fair, we did have to go very easy on my body. I needed to get lots of sleep and we couldn't be out till seven a.m, but I still got to do everything I wanted. My friend and I were even able to party ViP and I held onto her for dear life when ever I put my cane away. Thankfully, my cane folds up to fit nicely into a purse. See? No longer chronically ill! Unless, I let go. Then I might fall over. This picture is from one of our night's out with my cane and I in the Luxor lobby. At this point, I only needed a wheelchair for long distances and a cane for anything more than a few feet.

#3 Learn Japanese

Or any New Language

After living in my bed for hours on end, I decided it was about time I did something. I loved Japan and the Japanese language (hence why my jewelry line is Sasayaku and all my jewelry has Japanese names). I decided...well. I love it. I think I will start learning Japanese! My family comes from all German descent so there was a lot of ok...Japanese...why not German? I don't know. I realized, once I started, that I loved it! I loved the Kanji and the hiragana. I do NOT like the grammar. Language grammar and I did not get along in Spanish or German, so not surprising, we don't get along in Japanese either. Still, I love listen to it everyday and do my best to study when I can. I love it and I finally have time to learn the language!


My Japanese Textbook!

GENKI I: An Integrated Course in Elementary Japanese
GENKI I: An Integrated Course in Elementary Japanese

I started out by learning through webpages and than researching the best textbook. This one is awesome because there is a CD with it and one professor even has podcasts to help explain what is happening. This is one of the best textbooks, it is right up there with immunology and pathophysiology...ignore the last two. If you plan to learn Japanese, than this is the way to go!

 

#4 Take an International Trip

No. It's not the Same as Take a Trip

When I say take a trip, I mean one in your country, where you know the language. Well, sometimes in Las Vegas, they felt like a whole different culture but that's not important. What is important, is to go someplace that you have never been to and always wanted to visit. Just experiencing a whole new culture, was so wonderful and eye-opening for me. To see how other people live, and some of the sad poverty made me appreciate how lucky I am regardless of things. Egypt was a wonderful place and the people were so kind. Israel's people were even kinder. They always went out of their way to make meals I could eat (I have way to many food allergies) and helped with my wheelchair. So I had a wheelchair...I can still travel wheelchair fabulous!

The picture is me in my wheelchair in front of the pyramids. Even though our tour guide Nor looks like he is chasing after me, my chair was probably stick in the sand.

#5 Finish What Ya Started!

When my body was in its lowest point, I needed help to even get to and from the bathroom. Despite knowing I was falling apart, I needed to finish college. No. I HAD to finish college. Dropping out would have meant giving up what I had struggled and worked so hard for. I already had to give up my research job (good-bye counting fish) and taking care of the school's animals, I didn't want to give up what I had tried so hard to achieve. I never finished the semester's classes (except one) where I got so sick I was almost never there. But. I did end up finishing my degree. It took a long time to achieve, another year, two hospital visits, a lot of ER hellos, and one concussion. Despite all that, I made it across the stage with my cane and a big smile!

My picture is of me after the ceremony with my little sister. Ironically, she is taller and a rock climber. She helped push my wheelchair through all mud, snow, sludge, and rain just to get me to class. I am so lucky to have her!

#6 Get a New Hobby

I managed to finish one class during the semester I first got sick. It was the one I was most terrified of, watercolor. Since those scary beginnings, and awful first attempts, I have found a hobby which I enjoy. I find it relaxing, and sometimes maddening, to attempt to create something beautiful from the water and paints. My style took a long time and many sad attempts to find, but I did! Now, I keep working on it whenever I feel the urge to be an artist. I keep getting better all of the time (and least I hope so) and it keeps me feeling alive.

My picture is of one of my latest paintings. My style is bright and manga type people. I like the paintings of Monet but that is not me when I paint. I like my people to be perfect in a non-reality way. I love having hair blowing in a non-existent wind and bright colors. If I feel like blue hair, than I give them blue hair.

My friend loves my style and wanted a picture based on her childhood character love, Sailor Moon. If you are the illustrator for Sailor Moon, I am NOT putting the idea of her as mine. I just did a painting based on her look but not from a specific picture.

#7 Share What You Know

I've spent a long time eating gluten free, then gluten/lactose-free, and now gluten/lactose/yeast free. No one really knows what I eat (even me), but I wanted to share what I could about being gluten-free and traveling or the best products. I believe if I can help one Celiac not get sick, then it was all worth the effort. I wish I had known about all the things I do for traveling internationally prior to now having taken three international gluten-free trips. They would have made life..a lot easier.

The picture is of me at a hotel in Jerusalem. When they learned about my plight, they made me the same dinner that was going to be fed to the head of the whole hotel chain. So pretty and delicious too!

#8 Find the Humor!

Remember that saying, when life gives you lemons? Make lemonade. Yeah. I hate that saying. Use the lemons to garnish your lemon drop martini all the way! When life hits you so hard that it changes you forever, you can't make the same lemonade as everyone else. And you do not have to! My version of life giving me lemons is to turn it around and use it how I feel best. I use my experiences to find the humor in what others would only see as horrible. Yes, sometimes life is so miserable I am throwing up all over. Ok. Then I make a lens about throwing up everywhere internationally. Hospital bedridden? Of course I will make a lens. You cannot change what life gives you but you can change how you use it.

#9 Talk About Your Health Experience

When I first got sick, I was almost ashamed of it. I didn't want people to know and I didn't want anyone to treat me differently. Now I talk about it. People will ask politely and instead of the previous..."I'm falling apart at an early age" with dirty look, I give them a fast run-through. I tell them that it's okay with me to ask questions. People tell me they think it's really cool I keep doing everything I do despite all my health problems. Right now, I am working on a book about my first year of being chronically ill. I had to deal with a lot of dead ends, doctors who didn't believe me, hospital stays, missing school, and being a testing pincushion. I would have loved it if I had known someone who had gone through the same things I did. So even if my book only helps ONE person, then I will have seen all this craziness as a success.

My picture is of me standing proudly sans wheelchair at the Jordan River. I had been on the bus for hours and was so happy it was finally warm and sunny! O. Thank you brother for carrying me down the steps to the river! And to whoever carried my wheelchair down. I forgot your name but I appreciated it!

#10 Try New Things!

Whatever happens in life, I do my best to try new things. I always loved foreign movies but now, I actually have time to watch them. So I learn a little something new with each one and a few more phrases to stash in my language cache. My friend had whiskey stones, okay, I will try them..just not in whiskey because I cannot drink it. That movie that looked weird on my netflix? What the heck! Why not check it out and see. The worst that can happen is you don't like it.

Honorary #11! Try writing for squidoo! I find myself loving it more and more everyday! This place is awesome and a great way to check out what is happening in the world around me.

My picture is of me in my wheelchair meeting that guy from True Blood. I've only seen one season and kinda lost interest but my friend insisted I go. So that was me trying something new, meeting a celebrity. He signed my cane because I had no idea what else to have him do. The photographer took this since I was like..meh..that's okay. I don't need a picture and then they posted it on the store website. I think I can happily say...this is one new thing, I don't need to try again but it was fun (minus four hours of getting there early) anyway.

Have a Question or Comment? Or Flames? - Feel Free to Share

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    • Sherry Hewins profile image

      Sherry Hewins 2 years ago from Sierra Foothills, CA

      I knew you from Squidoo and just remembered this article and decided to look you up. I'm glad you made the transition. It would be a shame to lose this.

    • Michelllle profile image

      Michelllle 4 years ago

      There should be something better than the LotD and purple star stuff. Yep. you go, keep writing and sharing because we are learning so. much. from. you. Wish we (strangers) could send you strength through words typed in comment boxes. If I was an important squish I mean squid I would say the B word. I can only say hey, take care.

    • profile image

      las-vegas-dealer-school 4 years ago

      You're a beautiful girl with a beautiful soul. Thanks for sharing your strength with us.

    • Kalafina profile image
      Author

      Kalafina 4 years ago

      @chezchazz: I will be praying for her. I wrote this lens to hopefully help one person. If I have helped her in anyway then this my success. Tell her not to give up hope and that there is a purpose. I do not know what but I will be rooting for you both. God Bless!

    • WebMarketingPro profile image

      WebMarketingPro 4 years ago

      Wow, what an amazing and inspirational lens! Thank you for sharing your experience and providing encouragement to others who are going through challenging times. I look forward to reading lots more of your lenses!

    • Rankography profile image

      Rankography 4 years ago

      You are quite an inspiration. One of my daughters has Type I Diabetes and she also has kept a great attitude and it has never held her back. It is so important to have such a positive attitude...and you should think about writing a book because you have great writing skills too.

    • SecondHandJoe LM profile image

      SecondHandJoe LM 4 years ago

      Amazing lens. I like the way you write-- keep it up!

    • chezchazz profile image

      Chazz 4 years ago from New York

      You are very brave and my wife, who has been suffering from TBI for the past 8 years found it very inspirational - which is something she really needs right now. Thank you. Blessed and featured on "Still WIng-ing it on Squidoo" It is the least I can do for the hope you have brought to the eyes of the love of my life.

    • profile image

      briancdrury 4 years ago

      I echo the comment below, after seeing your comment on my lens I went to just skim one or two of your pages. I have been reading for at least 2 hours! I love the way you present information and I think you bravery in the face of a challenging condition is incredible.

      Please keep writing and thank you so much for taking the time to help a new Squidoo member like me improve! Be sure to tell us all when your book comes out because I am sure the copies will be flying off the shelves helping so many people in so many different ways.

    • CCGAL profile image

      CCGAL 4 years ago

      I love how you have woven in your other lenses. I only set out to visit your spring quest lens, and here I am, 30 minutes later, still looking at your lenses and marveling at how well you craft them, and how inspirational you are. I really don't have enough words to tell you how uplifted I am this morning after having met you via your work at Squidoo.

    • profile image

      mistaben 4 years ago

      What an inspirational story. Thanks for sharing =)

    • christinebbr lm profile image

      christinebbr lm 4 years ago

      I love the sailor moon painting! and I love your stories!

    • Rodaussie profile image

      Rodaussie 4 years ago

      And now that I have blessing powers even better... Blessed :-)

    • cmb1011 profile image

      cmb1011 4 years ago

      All I can say is I think you are one of the coolest people I could read about. I am humbled.

    • Mamabyrd profile image

      Mamabyrd 4 years ago

      Wow what an inspiring story! It is so nice to meet you thank you for sharing your great outlook on life.

    • MissRubyStars profile image

      MissRubyStars 4 years ago

      Very inspiring!

    • profile image

      monkeyfacetoys 4 years ago

      Your lens is very inspirational! Thank you for your feedback, critiques and all the support you've given me on Squidoo! From one Tim Burton fan to another, I wish you all the best!

    • Cari Kay 11 profile image

      Kay 4 years ago

      Just coming back to bless this one! You have an amazing attitude and I love how you help others!

    • Max Globe profile image

      Max Globe 4 years ago

      You are very beautiful :) and strong...

    • profile image

      dean_w 4 years ago

      You have a pretty smile; it looks so deep and sincere. Don't lose that smile, it will lead to many new friendships and open doors you never knew existed.

    • MrsMaya profile image

      MrsMaya 4 years ago

      very informational and inspiring.

    • Anthony Altorenna profile image

      Anthony Altorenna 4 years ago from Connecticut

      Your spirit, humor and passions are inspiring. Thank you for sharing your story, and for brightening my day with your enthusiasm for life.

    • profile image

      clothing4boys 4 years ago

      Inspiring!

    • justramblin profile image

      justramblin 4 years ago

      Dear Kalafina, I'm back for another visit because the quest today was to find a lens that inspired me. Of course I thought of you and your wonderful outlook on life. Of course your writing skills helped make the lens even more enjoyable.thank you and look forward to more good work from you.

    • CornellMarCom LM profile image

      CornellMarCom LM 4 years ago

      I am inspired and really love your lens. You probably get a whole lot of "OMG look how good blah, blah, blah so I am just going to say...Hey! I toast you and hold you in my heart and mind....keep it up and know you got a bud on Squidoo.

    • sharonbellis profile image

      Sharon Bellissimo 4 years ago from Toronto, Ontario, Canada

      Your story is inspirational and your positive attitude is motivating. You will certainly help many people with your writing. Thanks for sharing and congrats on LOTD - it is well deserved!

    • profile image

      anonymous 4 years ago

      Nice Lense!

    • profile image

      anonymous 4 years ago

      Nice Lense!

    • profile image

      anonymous 4 years ago

      I used to wear glasses

    • profile image

      miaponzo 4 years ago

      Thank you for sharing your story.. I am going to contact you personally about something :) GREAT personal sharing! Beautiful jewelry! GREAT strength of character.. you got it going ! Blessed!

    • Rosetta Slone profile image

      Rosetta Slone 4 years ago from Under a coconut tree

      This is such a beautiful reminder that we always have a choice in how we react to difficult situations. What a lovely lens.

    • lewisgirl profile image

      lewisgirl 4 years ago

      Great LOTD!

    • lewisgirl profile image

      lewisgirl 4 years ago

      Great LOTD!

    • Jogalog profile image

      Jogalog 4 years ago

      Well done on staying so positive. I hope this lens can be an encouragement for other people in a similar position.

    • texan203 lm profile image

      texan203 lm 4 years ago

      Fantastic lens, thank you for sharing. You are an inspiration.

    • Kalafina profile image
      Author

      Kalafina 4 years ago

      @SusanDeppner: Thank you! I am very attached to all my pieces and knowing they are loved makes me so happy.

    • SusanDeppner profile image

      Susan Deppner 4 years ago from Arkansas USA

      Just a quick note to let you know that I received the two pieces of jewelry I ordered. Oh, my, as pretty as they are in the picture, they're even more beautiful in person! Even my husband said, "Oh, wow," when I showed him. I'll remember you - and send up a prayer for good health - whenever I wear them. Thanks so much!

    • Digory LM profile image

      Digory LM 4 years ago

      Wow Kalafina, you are awesome. Thanks so much for the inspiration. I will be thinking of you as I write today.

    • profile image

      anonymous 4 years ago

      @Kalafina: I don't know if you believe in the unseen, but if you do, I know of a great healer and will order a session for you..........google Body Regeneration Healing by brad johnson, God Bless!!!!

    • profile image

      dellgirl 4 years ago

      Love this lens, your title caught my eye and drew me in here. Really Impressive lens, it is very inspiring! Thanks for putting this together and for sharing it.

      Good job and Keep up the good work. ~Blessed by a SquidAngel~

    • Kalafina profile image
      Author

      Kalafina 4 years ago

      @juditpaton: Thank you! I need those prayers.. I am contemplating a lens asking for some this January. Since becoming ill, I have ended up with a hospital stay every January. Most of my usual family will be out of the country from now tii mid-month. So I am a bit nervous...

    • juditpaton profile image

      Iudit Gherghiteanu 4 years ago from Ozun

      Congratulation on the LOD, i love your lenses, and i wish you the best ...praying for you too, even if i am not a praying person.

    • profile image

      shrly67 4 years ago

      very inspirational story

    • darkflowers profile image

      Anja Toetenel 4 years ago from The Hague, the Netherlands

      I love your lens! I'm ill too and have hard time walking and also one hand is paralised, also i have Celiac. I will come back and re-read this Lens, it is very helpful! Thank you and thumbs up 4 you!

      Anja

    • duceedee profile image

      duceedee 4 years ago

      This story sounds so much like my last 2 year battle and you are such a positive person .....now I have to go back and read your other lenses...Very inspiring keep going -Sending prayers to you. Thank you for sharing your story and your wonderful pictures.

    • CanInsure profile image

      CanInsure 4 years ago

      What an inspiration! Thank you for sharing.

    • Kalafina profile image
      Author

      Kalafina 4 years ago

      @Pat Goltz: Arigatou gozaimasu! Check out the free podcasts done by a professor who uses the book. I think it's called Genkier.

    • Pat Goltz profile image

      Pat Goltz 4 years ago

      Konnichi wa! I really like your attitude. LotD is well deserved. Thank you so much for writing this! I will check out your book on Japanese. I need to get better at it.

    • lollyj lm profile image

      Laurel Johnson 4 years ago from Washington KS

      What a beautiful person you are!! Thanks for sharing your experience.

    • Kalafina profile image
      Author

      Kalafina 4 years ago

      @anonymous: How could I? It'not everyday you play biology trivia at 3 in the morning to keep the driver awake! Quick! What are the 4 signs of inflammation?!

    • Kalafina profile image
      Author

      Kalafina 4 years ago

      @victoriuh: Your sister sounds like an amazing person. I am very lucky to have a family so passionate about traveling. In 2014 we are planning a tour in China because I have always wanted to go. My pre-med degree is still useful as it has taught me so much. One day I will be able to use it. I will not give up on my hope to study fibrodysplasia ossicans progresssiva in my chosen research model, zebrafish.

    • profile image

      DebMartin 4 years ago

      You Rock!

    • profile image

      anonymous 4 years ago

      I am inspired by your attitude and resilience. Thank you for sharing this lens with us!

    • profile image

      anonymous 4 years ago

      You have a wonderful lens, it is full of faith, and encourages you to live your life to the fullest.

    • profile image

      anonymous 4 years ago

      don't forget the road trip we took to Texas! :)

    • marynjohnson profile image

      marynjohnson 4 years ago

      So true that finding passion and doing fun things. Thanks for all great inspiration!

    • Kalafina profile image
      Author

      Kalafina 4 years ago

      @darciefrench lm: Thank you so much. I actually submitted the lens I commented on of yours for my favorite lens of 2012. You are such a brave person and your experience needs to be shared.

    • PizzaKid profile image

      PizzaKid 4 years ago

      My mom has a disability too. I think you should do the things you are good at. That is what you are meant to do. Some people are not good at walking. My teacher is one of them. But she is a wonderful teacher and I love her. So do what you are good at!

    • profile image

      mecheshier 4 years ago

      What a wonderful lens. You are a great inspiration. Thanks!

    • profile image

      anonymous 4 years ago

      You have the most refreshing attitude and overcoming spirit, an inspiration and I like how your honorary #11 has become a way of telling your story in its many facets. Congratulations on LotD honors!

    • Ursel001 profile image

      Ursel001 4 years ago

      You are an amazing person. CONGRATS on LOTD!

      I love your spirit and humor :-)

    • MJ Martin profile image

      MJ Martin aka Ruby H Rose 4 years ago from Washington State

      Oh how wonderful all the challenges you have faced with such a positive attitude. Great lens here, thanks for sharing with us on squidoo. Congrats on LOTD and a Purple Star, so deserving. Continuing to read your inspiration.

    • darciefrench lm profile image

      darciefrench lm 4 years ago

      Returning to let you know that I have submitted this lens for the favorite lens for 2012 quest. You have touched my heart and soul and I am so grateful you are here on Squidoo, and living a happy life despite the trials you face being chronically ill. So much to celebrate; I think you deserve all the recognition you can possibly get on the outset of your Squidoo journey and beyond. I wish you the very best! <3

    • profile image

      kayla_harris 4 years ago

      Your Lens are very inspiration! Thanks for sharing this Lens!

    • victoriuh profile image

      victoriuh 4 years ago

      I love your joie de vivre! It is very similar to how my sister deals with her fibromyalgia. In my experience, very few chronically ill people have the means to jet off anywhere, or spend money on a degree they will never use, so you are very, very lucky. Keep on going!

    • shewins profile image

      shewins 4 years ago

      You put me to shame for feeling sorry for myself with my little problems. You are truly an inspiration. I think everyone could benefit from your hub, no matter what the state of their health.

    • profile image

      kenmo007 4 years ago

      I'm Fairly new here, but I must say this is the best thing I have read. Possibly the best thing I have read anywhere online this year. God Bless and keep on keeping on!

    • Fran Tollett profile image

      Fran Tollett 4 years ago

      very inspirational! wonderful lens<3 God bless you!

    • delia-delia profile image

      Delia 4 years ago

      Congratulations on LOTD! A heartfelt and inspirational story...you are an amazing young lady! You have been Blessed with many talents and see this in your beautiful creations.

      I have my Faith that inspires me...so, I Pray for your health to improve and strength to continue your positive outlook...

      ~d-artist Squid Angel Blessing~

    • profile image

      dung-nguyenhuu-7140 4 years ago

      You are a tremendous inspiration ~ thank you for taking the time to write about and share your story. God bless you as you press on, meeting each of your goals and continuing to inspire everyone around you! SquidAngel blessed! B : )

      hàng xách tay | hàng xách tay

    • bossypants profile image

      bossypants 4 years ago from America's Dairyland

      I didn't get to read this when it was LoTD (congratulations!) but I knew I had to come back and see what was under your compelling title. Your spirit is inspiring and I'm looking forward to reading more of your lenses!

    • eightieschild profile image

      eightieschild 4 years ago

      I just voted this my "Favorite Lens of 2012" in the commenting quest, as I genuinely think this is the best thing I've read on squidoo since I joined. :)

    • Paul Parrotte profile image

      Paul Parrotte 4 years ago

      Great lens! Very inspirational! I can't wait to read more of your lenses.

    • Shibamom LM profile image

      Shibamom LM 4 years ago

      This is what LotD is all about. Well done! Thanks so much for sharing your inspirational story.

    • SheilaSchnauzies profile image

      Sheila 4 years ago from Omaha, NE

      Congrats on a beautiful and inspiring LotD and a well deserved Purple Star! See, there's something else new you've achieved!! I've had more than one chronic illness for way too many years. Although there is a terrible cost, there are also huge opportunities to be enjoyed if we can decide to "be" "in spite of." (I know you will get what that means!) There are things I have gained so much from, such as crochet designing and writing for Squidoo, along with my work in dog rescue, that I would have never had time for if not for my illnesses. I really applaud your amazing attitude and wish you the best health possible!

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      waynu719 4 years ago

      inspiring....

    • profile image

      HouseBuyersOfAmerica 4 years ago

      Truly inspirational lens...I really appreciate you sharing this with everyone.

      Congrats on LOTD

    • Kalafina profile image
      Author

      Kalafina 4 years ago

      @GeorgeneMBramlage: Thank you so much for sharing your own experience. When I joined Squidoo, I had no intention of putting my personal life so far out into the world. Then I began writing here and wanted to share more of my journey with the friends I knew read my lenses. Never once did I imagine squidoo would pick me for lens of the day and over a thousand people would be reading my story.

      If you just feel a whim to write, then do it. I never had a plan for this lens. I just decided that hey! today I am going to write about the ways I live a happy chronically ill life. I did not write it for anyone but myself and all it was were my ideas spilling over. Never worry about being concise, just let go and write how you feel. You sound like someone with a lot of experiences to share and I hope you feel inspired to write a lens to share them with all of us. Thank you again!

    • profile image

      KitchenMagik 4 years ago

      Congrats and thank you for a truly inspiring lens. The human spirit can reach far beyond medical 'science' and I have a feeling those doctors of yours aren't through being amazed - well done!

    • profile image

      soaringsis 4 years ago

      You are awesome! Congratulations on your LotD and Purple star award.

    • GeorgeneMBramlage profile image

      Georgene Moizuk Bramlage 4 years ago from southwestern Virginia

      Thank you for putting your thoughts anfd feelings out where others can share with you. This is very courageous. Your lens was clear and concise...you are obviously a young woman who has her "ducks in a row." My husband has had a chronic illness for several decades which has progresed. I would like to write about it, but so far feel I am too close to it to be concise as you were. But it is wonderful to know that there are oters who can write about there experiences and how they handle their lives. Again, thank you! If I were a Squid Angel, I'd bless this lens :+)

    • carocwn profile image

      carocwn 4 years ago

      Lovely lens. Congratulations.

    • BLemley profile image

      Beverly Lemley 4 years ago from Raleigh, NC

      You are a tremendous inspiration ~ thank you for taking the time to write about and share your story. God bless you as you press on, meeting each of your goals and continuing to inspire everyone around you! SquidAngel blessed! B : )

    • karen-stephens profile image

      karen-stephens 4 years ago

      Thank you. This has inspired me to re-inspire others to write their story. Thanks and keep up the great work!

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      artmarks 4 years ago

      After reading I know now why this is lens of the day! Awesome lens and I'm happy that I could see it.

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      anonymous 4 years ago

      Very nice:)

    • tonybonura profile image

      Tony Bonura 4 years ago from Tickfaw, Louisiana

      I would like to congratulate you on Lens Of The Day and to say that I really enjoyed reading your story. You've got guts girl!

      TonyB

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      Joan4 4 years ago

      Congratulations on Lens of the Day!! Your story is an inspiration for everybody! I love your humor and your determination!!

    • OMENA777 profile image

      OMENA777 4 years ago

      What a wonderful spirit you have. Thanks for sharing.

    • justramblin profile image

      justramblin 4 years ago

      Thank you so much for sharing your amazing story. I know the book you're working on is going to be inspiring. In just a short period of time you have captivated me by your positive attitude and delightful take on life. Congrats on a very well deserved honor of Lens of the Day!

    • Emmie16 profile image

      Emmie16 4 years ago

      Your warmth and heart show through in your article, everyone should strive to take more out of life! You sound like a terrific woman, and all the best to you!

    • HalloweenRecipes profile image

      HalloweenRecipes 4 years ago

      Inspiration and humor, thank you for a fun and wonderful lens! You give us all a higher standard to aim. Congrats on all your achievements and on LotD!

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      dealnation 4 years ago

      Love your message. You Go Girl!

    • Diana Wenzel profile image

      Renaissance Woman 4 years ago from Colorado

      I celebrate your indomitable spirit. It's the power and force that shapes true quality of life. May you continue to defy the odds and the naysayers. Invincible. That's you. Congrats on LotD! Looking forward to your next one.

    • dlobel profile image

      Debra Lobel 4 years ago from Oakland, CA

      Thank you for the inspiration. You are incredible and I admire you.

    • Violin-Student profile image

      Violin-Student 4 years ago

      Thanks for sharing. There is some great advice here.

    • EliteDad LM profile image

      EliteDad LM 4 years ago

      Very Inspiring. Great Lens!

    • juicefy profile image

      juicefy 4 years ago

      great lens

    • dawnsnewbeginning profile image

      dawnsnewbeginning 4 years ago

      Great gal! Great lens!