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A Window into the World of Someone with Multiple Sclerosis

Updated on April 13, 2016
girlpower profile image

girlpower lives in the Pacific Northwest. She's an author, a blogger and lives with a man that builds cigar box guitars.

Writing in my journals on San Eliho Beach

WIndow into the World of Living with Multiple Sclerosis

Use the link below to view the entry I sent into the Neuro Film Festival video contest through YouTube that was named "My Story". This seven minutes of slide show and audio expressed the journey I took through a 30 year career of serving people with disabilities and the elderly, and ends with a transition I had to make when I discovered I had Multiple Sclerosis.

 

At my going away party

"The Eve Chronicles by Diane DeVillers (girlpower author)

Three books in one paperback book "From the Waters of Coyote Springs", "Felix and Eve" and "The Arrangement order from dide22@yahoo.com
Three books in one paperback book "From the Waters of Coyote Springs", "Felix and Eve" and "The Arrangement order from dide22@yahoo.com

girlpowers Neuro Film Festival Entry Video

Adjusting to Retirement

 After the going away parties and the farewells came the time to go home and only then did it occur to me that it was all done.  I put away my files and rolling briefcase and turned my office into a hobby room.

I put away all my Rolex's and professional address books and the business card cases and opened my family and friend address book.  So many names that I had just not written to for so long; not having the time for such things.  I transferred the ones to my computer address book so I could email the ones who had email.

I took on projects I could do sitting down in my wheelchair, oiling the window sills and cupboards, cleaning out the silverware drawer, organizing my pantry.  After a few weeks of doing tiny projects I found myself sitting still and listening to the sound of tranquility.

No ringing phones, no voice mails to listen to or return calls. I just sat and realized that this calm i was experiencing was something I hadn't had since before I started working at the age of fifteen.  Of course I had vacations but even those I had scheduled trips or things to do in the yard or the house.

But this time it was different.  The house was silent, and before I knew it, if experienced calm and tranquility.  What a wonderful place I was in.  A quiet not over tasked moment.  It was something that I knew I could get used to.  Welcome retirement.

So now I sleep until eleven. I stay up in my upstairs room until one or two.  I enjoy the sun coming into the room from the window.  My white wicker rocking chair that had been covered with blankets and pillows, was now clear and beckoned me.

I sat down and felt the warmness of the sunlight.  I could hear the birds outside as they came and went to feed on the tiny seeds I filled them with.  I could hear the distant hum of a lawnmower.  I could hear the traffic from the freeway.  So many noises that I had never heard in my life of trying to get so much done.  I became blissful.  I became a new person that day in the wicker chair, that day feeling the sun on my arm.  I was finally whole. I was taking care of me now.

The eBook by Diane DeVillers a MS novelist

Deep in the Wallow Mountains in Eastern Oregon a group of foresters do timber stand inventory in some of the most rugged terrain near the notorious Hells Canyon. Eve a free-spirited, counterculture woman earns her title, "queen of the comeback"
Deep in the Wallow Mountains in Eastern Oregon a group of foresters do timber stand inventory in some of the most rugged terrain near the notorious Hells Canyon. Eve a free-spirited, counterculture woman earns her title, "queen of the comeback" | Source

Stay the Person that you Have Always Been

Just because you have MS doesn't mean you can't continuing being the person that you have always been. Making a few adjustments to how you spend your days can make all the difference. I have to buy my time ahead which means that I have to rest enough before I know I am going to need a burst of energy. Which means I take a nap every day for two hours in the late afternoon so that I can have the energy to make dinner and finish the days chores.

Imagine this: its like you have a bucket of water each day in energy to spend. Each activity is like taking out a ladle-full of water out of your bucket. So if you use all the days energy at once then you will feel tired and drained. If however you use your ladle-full of water wisely you have enough for the whole day. Believe me I learned the hard way, making myself feel miserable by the end of the day and experiencing my back pain that shot way up.

So go easy take care of yourself. Like many of us we put other people first, especially being a woman, we were the caregivers, we took care of everyone but ourselves. My MS has forced me to be good to myself and to be able to say no once and awhile.

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    • Teresa Coppens profile image

      Teresa Coppens 

      6 years ago from Ontario, Canada

      What a powerful video. You are truly an amazing person. Continue to care for yourself now and allow others the price ledge of caring for you as you so selflessly cared for others for so many years.

    • viveresperando profile image

      viveresperando 

      7 years ago from A Place Where Nothing Is Real

      great share!

    • Kaie Arwen profile image

      Kaie Arwen 

      8 years ago

      You are amazing............. keep taking care of yourself, and be sure to give yourself the same care you've unselfishly given to others for all of these years!

      God bless..........

      Kaie

    • PegCole17 profile image

      Peg Cole 

      8 years ago from Dallas, Texas

      Awesome story about a life of service to others. Your adjustment to retirement rings true - discovering all the new experiences and having time to pursue long abandoned dreams. I admire your attitude about your illness and your career in helping others. Now is your time, enjoy.

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