ArtsAutosBooksBusinessEducationEntertainmentFamilyFashionFoodGamesGenderHealthHolidaysHomeHubPagesPersonal FinancePetsPoliticsReligionSportsTechnologyTravel

Autism Diagnosis. How can I fix it?

Updated on May 28, 2014
Its okay I can still sort this, right?
Its okay I can still sort this, right?
Eventually you run out of bargaining tools and its time to face the truth!
Eventually you run out of bargaining tools and its time to face the truth!
PECS i.e. Picture Exchange Communication System for children with Autism
PECS i.e. Picture Exchange Communication System for children with Autism
ABA helps about 47% of Autistic kids to learn
ABA helps about 47% of Autistic kids to learn
Stages of accepting an Autism Diagnosis
Stages of accepting an Autism Diagnosis
Autism and the bargaining stage
Autism and the bargaining stage
Some place their trust in the state autism services.
Some place their trust in the state autism services.
Autism is a lifelong condition.
Autism is a lifelong condition.
The bargaining stage eventually turns to grief and then acceptance
The bargaining stage eventually turns to grief and then acceptance
Accepting an autism diagnosis leads to hope for the future.
Accepting an autism diagnosis leads to hope for the future.
Stages of Autism Diagnosis
Stages of Autism Diagnosis
After grief comes acceptance
After grief comes acceptance

Looking for a Speech Therapist

Spotting early signs of autism

Temple Grandin worlds most famous and accomplished Autistic woman

Life with an Autism Diagnosis

As I have already explained in the first two parts of my article series on, 'Receiving and Accepting an Autism Diagnosis,' i.e. (1). Autism and the Denial of the Diagnosis, (2). Autism Diagnosis and coping with the anger i.e. after Denial and anger then on comes the bargaining stage. So when you as a parent get to the Bargaining Stage of an Autism Diagnosis you have mistakenly assumed that you are now totally together about this Autism issue.

‘Yes,’ I said, ‘I know it is Autism and that’s a serious condition. Yet on the other hand I have found out that Adam is considered to be in the mild to moderate range on the Autism Spectrum. So I mean even though I know that is classed as Autism maybe it’s not really full blown Autism as such! Well what I am trying to say here is that it’s not a total Autism diagnosis either and if I get my son all the right Early Intervention now a.s.a.p. then it doesn’t necessarily need to be a lifelong problem really does it?’

So the bargain that I made with myself was that I would be pro-active enough now for the next few years to get Adam every therapy that ever existed and then before we know it I will have this whole autism issue firmly under control.

Okay so I have faced it fully and it is autism but that doesn’t mean it has to be all that bad really does it? I mean like I know he has a Speech Delay but maybe by the time he is three he might have caught up? He’ll be talking away with us and we’ll be wondering what all the fuss was about anyway.

Right and yes I know they also say that toilet training can also be a big problem for autistic children but my son is so bright that that probably won’t be the case with him, will it? Maybe he pays no attention to us now but won’t a bit of Early Intervention sort that one out? Yeah by the time he is four he’ll be off to the local preschool and nobody will be any the wiser?

Now though when I started the bargaining stage I was also still working through the anger stage. I think I also convinced myself that the angrier I could be then the more this would benefit Adam. For many months I put my heart and soul into this battle. Also I just couldn’t understand how other parents around me often seemed so much more resigned to the situation than me. Of course now though I realize that this is because they’re at a different stage entirely of their child’s autism diagnosis acceptance and they have possibly already resolved their anger.

Everyone will choose their own individual bargaining tool. Some may in fact turn to God and think he’ll put in the work. Others pick an Early Intervention therapy program such as A.B.A. i.e. (Applied Behavioral Analysis), or perhaps the Son Rise Program or Intensive Auditory Integration Therapy or the GFCF Diet it really all depends on the individual child and just what actually works best in each individual case.

An excerpt from my book, Raindrop Window.

‘Mom, I was playing with my Sylvanian rabbits and Ethan just came into my room and grabbed their blue convertible car and turned it upside down. Then they all fell out all over the place.’

‘Really?’ I gasped Getting mildly excited. I jumped up from my swivel seat and rushed towards Naomi’s bedroom. If Ethan actually was pushing the Sylvanians car across the floor then that was definitely normal little boy playing (i.e. imaginative play to the uninitiated) and it could be a major breakthrough.

When I peeped in the door, all my hopes were quickly dashed. Ethan was just abandoning the Sylvanian car which he had already turned upside down. He had actually been spinning the blue car rapidly around the floor. That wasn’t the worst of it though because then he started doing something far more worrying. My heart thudded as I watched Ethan doing something new. One by one he carefully picked up all the discarded Sylvanian rabbits and then he slowly lined them all up in a neat straight line.

I knew by now that this was considered to be the classic symptom of Autism that I had kept telling myself Ethan didn’t do i.e. lining objects up in straight lines. Now Ethan got a Barbie doll, the Sylvanian car and a Toy story character and added them to the equation. Then just to finish me off completely he got up and stepped back from his momentous straight line.

Now from the corner of Naomi’s bedroom he swiveled his head to study the neat line from the corner of his eye. He was obviously happy with what he saw because then he stood up and flapped his clenched fists excitedly.

I on the other hand felt like somebody had just punched me in the stomach. ‘Oh my God,’ I sobbed, ‘it really is Autism. I just know it is now. That’s one of the most classic symptoms.’

Aaron looked at me as if it he definitely knew something too i.e. it was time to have me carted off. I had obviously just had some kind of a breakdown.

‘Ah you can’t say that Sarah just because he has picked up a few toys?’

‘Mom, I pick up toys all the time, do I have Autism as well?’ An alarmed Naomi added.

‘No,’ I sobbed again, ‘of course not, it’s just the specific way he has put them all in a straight line and stood back to study them.

Ethan had now moved over to the other side of his sister’s room and was turning around to observe his neat row from a new angle and again this seemed to greatly excite him.

‘Ah Sarah, wait and see what the Speech Therapist says tomorrow anyway. You can’t be jumping to conclusions just because Ethan likes walking around toys looking at them.’ Aaron said while still looking at me like I had just turned into the mad woman in the attic from Jane Eyre.

This time though Aaron’s words of consolation were just no good. The penny was definitely starting to drop. The blinkers had been thrown off and I just knew what the problem was here. It really was the dreaded unmentionable ‘A,’ word.

‘Mom, what will happen if Ethan really does have Autism?’ a wide eyed Naomi asked.

I looked at my daughter and tried to smile, ‘I don’t know pet, I just don’t know.’

End of excerpt from my book, Raindrop Window.

So after much deliberation on this issue I eventually got my son into an excellent Early Intervention class where they combine many different Early Intervention approaches. While Adam has made great progress here at some stage a light bulb flicked on i.e. the bloody Autism won’t go away completely no matter what progress is made.

Instead eventually I had to accept that Autism was with us to stay and that the whole future I had initially envisaged for my little man was now going to be completely and irrevocably changed. There is no easy way around this time of realization. It is just a plain painful time and there’s no escaping the grief that this transition often brings many parents.

Then on comes Stage 4 i.e. the grief stage and thankfully folks this is the eye of the storm i.e. once you can navigate through these choppy waters everything gets a lot calmer and at last you should be able to adjust to your new life and continue on. That’s all any of us can do at the end of the day. The last part of the Autism Diagnosis is Acceptance of the things that you just cannot change or fix.

Comments

    0 of 8192 characters used
    Post Comment

    • thewritingowl profile imageAUTHOR

      Mary Kelly Godley 

      6 years ago from Ireland

      Thanks eHealer yeah you are dead right, that's exactly what I was doing i.e. grappling for control on situation when I just didn't have any. Thanks for other comments too.

    • eHealer profile image

      Deborah 

      6 years ago from Las Vegas

      Great hub TRO, bargaining is an attempt at control, when you really know there is no control. This is really good, with good info on ABA, thanks!

    working

    This website uses cookies

    As a user in the EEA, your approval is needed on a few things. To provide a better website experience, hubpages.com uses cookies (and other similar technologies) and may collect, process, and share personal data. Please choose which areas of our service you consent to our doing so.

    For more information on managing or withdrawing consents and how we handle data, visit our Privacy Policy at: https://hubpages.com/privacy-policy#gdpr

    Show Details
    Necessary
    HubPages Device IDThis is used to identify particular browsers or devices when the access the service, and is used for security reasons.
    LoginThis is necessary to sign in to the HubPages Service.
    Google RecaptchaThis is used to prevent bots and spam. (Privacy Policy)
    AkismetThis is used to detect comment spam. (Privacy Policy)
    HubPages Google AnalyticsThis is used to provide data on traffic to our website, all personally identifyable data is anonymized. (Privacy Policy)
    HubPages Traffic PixelThis is used to collect data on traffic to articles and other pages on our site. Unless you are signed in to a HubPages account, all personally identifiable information is anonymized.
    Amazon Web ServicesThis is a cloud services platform that we used to host our service. (Privacy Policy)
    CloudflareThis is a cloud CDN service that we use to efficiently deliver files required for our service to operate such as javascript, cascading style sheets, images, and videos. (Privacy Policy)
    Google Hosted LibrariesJavascript software libraries such as jQuery are loaded at endpoints on the googleapis.com or gstatic.com domains, for performance and efficiency reasons. (Privacy Policy)
    Features
    Google Custom SearchThis is feature allows you to search the site. (Privacy Policy)
    Google MapsSome articles have Google Maps embedded in them. (Privacy Policy)
    Google ChartsThis is used to display charts and graphs on articles and the author center. (Privacy Policy)
    Google AdSense Host APIThis service allows you to sign up for or associate a Google AdSense account with HubPages, so that you can earn money from ads on your articles. No data is shared unless you engage with this feature. (Privacy Policy)
    Google YouTubeSome articles have YouTube videos embedded in them. (Privacy Policy)
    VimeoSome articles have Vimeo videos embedded in them. (Privacy Policy)
    PaypalThis is used for a registered author who enrolls in the HubPages Earnings program and requests to be paid via PayPal. No data is shared with Paypal unless you engage with this feature. (Privacy Policy)
    Facebook LoginYou can use this to streamline signing up for, or signing in to your Hubpages account. No data is shared with Facebook unless you engage with this feature. (Privacy Policy)
    MavenThis supports the Maven widget and search functionality. (Privacy Policy)
    Marketing
    Google AdSenseThis is an ad network. (Privacy Policy)
    Google DoubleClickGoogle provides ad serving technology and runs an ad network. (Privacy Policy)
    Index ExchangeThis is an ad network. (Privacy Policy)
    SovrnThis is an ad network. (Privacy Policy)
    Facebook AdsThis is an ad network. (Privacy Policy)
    Amazon Unified Ad MarketplaceThis is an ad network. (Privacy Policy)
    AppNexusThis is an ad network. (Privacy Policy)
    OpenxThis is an ad network. (Privacy Policy)
    Rubicon ProjectThis is an ad network. (Privacy Policy)
    TripleLiftThis is an ad network. (Privacy Policy)
    Say MediaWe partner with Say Media to deliver ad campaigns on our sites. (Privacy Policy)
    Remarketing PixelsWe may use remarketing pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to advertise the HubPages Service to people that have visited our sites.
    Conversion Tracking PixelsWe may use conversion tracking pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to identify when an advertisement has successfully resulted in the desired action, such as signing up for the HubPages Service or publishing an article on the HubPages Service.
    Statistics
    Author Google AnalyticsThis is used to provide traffic data and reports to the authors of articles on the HubPages Service. (Privacy Policy)
    ComscoreComScore is a media measurement and analytics company providing marketing data and analytics to enterprises, media and advertising agencies, and publishers. Non-consent will result in ComScore only processing obfuscated personal data. (Privacy Policy)
    Amazon Tracking PixelSome articles display amazon products as part of the Amazon Affiliate program, this pixel provides traffic statistics for those products (Privacy Policy)