ArtsAutosBooksBusinessEducationEntertainmentFamilyFashionFoodGamesGenderHealthHolidaysHomeHubPagesPersonal FinancePetsPoliticsReligionSportsTechnologyTravel

Cancer Caregivers Support Groups

Updated on March 21, 2015

Caregivers Need Sustaining

Get yourself some flowers to see and smell.
Get yourself some flowers to see and smell. | Source

Help the Helpmate

We certainly know that the caregivers for someone with a major, chronic illness can be burdened with many responsibilities. Whereas the patient can direct most energies into getting better, there is more on the plate for the surrogate nurse. The usual stress-reduction methods will help. However, there is an additional resource: the cancer support group.

There are several ways to find a group. My partner’s oncologist has support group names, addresses, and contact information on a bulletin board in the office waiting room. Furthermore, local hospitals can direct you to the right place. In addition, there are virtual social networks whose purpose is caregiver support.

Things to Consider

I suggest any of these questions to ask, the desired answer being dependent on your preferences and needs.

Is the group moderated or conducted by a medical or social services professional?

Is this group specific enough to my situation (some items may be the kinds of cancer discussed, the age of the caregivers, the age of the patients)?

Are they imparting useful information or is it neutral (or even harmful) to my mental well-being?

Is the meeting time convenient? Is the location convenient?

Is there a way to develop connections so that I could phone someone in between meetings?

For live and virtual groups – is the format one that works for me?

Not All Support Groups are the Same

Not all groups are the same. I found one at a hospital that was very depressing and “misadvertised” as one for caregivers. It was, in fact, a group of cancer survivors with multiple recurrences of cancer throughout their bodies. Rather than encouraging me and lifting me up, it pushed me down. This was NOT what I was seeking! In addition, I checked an online community wich operated by sets of strands that I did not find to be user-friendly. So, check out groups if you feel you need people who are in the same trench as you and persevere until you get your needs met.

A. C. O. R.

ACOR is the acronym for the Association of Cancer Online Resources. THIS is an excellent help for the caregiver and patient, although, being an online community, it does not provide real hugs. As it states on its home page: "ACOR offers access to 159 mailing lists that provide support, information, and community to everyone affected by cancer and related disorders." What I like about it is the disease specific content in a group, and the real word from people, patients, family, friends, in the trenches.

ACOR links

I am posting these links from ACOR in August 2011. They were focused on lymphoma in particular, but many are useful for other cancers.

National Cancer Institute statements on treatment of various cancers:
http://www.cancer.gov/cancertopics/pdq/adulttreatment Choose the L's -
scroll down to 'lymphoma'. Choose the health professional's version.

National Library of Medicine MEDLINE for research papers published on
various treatments:
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=PubMed

Lymphoma Research Foundation of America http://www.lymphoma.org

Steve Dunn's CancerGuide site re how clinical trials are run:
http://www.cancerguide.org

NCI clinical trials search engine:
http://www.cancer.gov/search/clinical_trials/search_clinicaltrialsadvanced.aspx

Drug assistance programs from pharma companies
http://www.cancersupportivecare.com/drug_assistance.html

FDA information on gaining early access to unapproved new drugs:

http://www.fda.gov/ForConsumers/ByAudience/ForPatientAdvocates/AccesstoInvestigationalDrugs/ucm176098.htm



Marrow donation: NMDP medical professional's newsletter
http://www.marrow.org/PHYSICIAN/Medical_Education/index.html

Document providers for obtaining full text of research papers:
http://www.infotrieve.com http://www.paperchase.com (Some journals
provide free access to full text -- try first via MEDLINE above before
ordering from a document provider.)

CancerEducation www.cancereducation.com

Lymphoma and leukemia acronyms - Burkitt’s
http://www.burkitts.org/acronyms.shtml

PatientCenters (chemo)
http://www.patientcenters.com/lymphoma/news/nhl6.html

LymphomaInfonet
http://www.lymphomainfo.net/lymphoma/glossary.html#W

General Medical dictionaries MedicineNet http://www.medterms.com/


Drug information such as route of administration and adverse effects
http://www.rxlist.com
http://www.nlm.nih.gov/medlineplus/druginformation.html

Health and medical calculators:
http://www.calculateforfree.com/online16.html

Alternative meds: http://www.quackwatch.com
http://www.cancer.gov/cancer_information/list.aspx?viewid=14821490-ee6c-4e7c-80b5-c4fb3cbbb07e
http://health-track.org/

All ACOR cancer lists and their archives (including ours):
http://listserv.acor.org/archives/

Interaction of citrus fruits and some drugs (liver enzyme Cytochrome
P450) http://www.consumer-health.com/services/cons_take14.htm

"Pocket reference" of meds that affect or are affected by Cytochrome
P450: http://medicine.iupui.edu/flockhart/

Caring for a port (venous access device)
http://www.cdc.gov/hicpac/pdf/BSI_guideline_IssuesMay17final.pdf

DoseCalc –various tools http://www.meds.com/DChome.html

ASCO (American Society of Clinical Oncologists) abstracts
http://www.asco.org/

NCI Office of Cancer Survivorship http://dccps.nci.nih.gov/ocs/

Castle-Connolly Guide to Best Doctors
http://www.castleconnolly.com/index.cfm?dws=ey

BEST HOPES for you all

Hang in there. 

hug, hug, hug

Photos and text copyright 2008 Maren E. Morgan

Comments

    0 of 8192 characters used
    Post Comment

    No comments yet.

    working

    This website uses cookies

    As a user in the EEA, your approval is needed on a few things. To provide a better website experience, hubpages.com uses cookies (and other similar technologies) and may collect, process, and share personal data. Please choose which areas of our service you consent to our doing so.

    For more information on managing or withdrawing consents and how we handle data, visit our Privacy Policy at: https://hubpages.com/privacy-policy#gdpr

    Show Details
    Necessary
    HubPages Device IDThis is used to identify particular browsers or devices when the access the service, and is used for security reasons.
    LoginThis is necessary to sign in to the HubPages Service.
    Google RecaptchaThis is used to prevent bots and spam. (Privacy Policy)
    AkismetThis is used to detect comment spam. (Privacy Policy)
    HubPages Google AnalyticsThis is used to provide data on traffic to our website, all personally identifyable data is anonymized. (Privacy Policy)
    HubPages Traffic PixelThis is used to collect data on traffic to articles and other pages on our site. Unless you are signed in to a HubPages account, all personally identifiable information is anonymized.
    Amazon Web ServicesThis is a cloud services platform that we used to host our service. (Privacy Policy)
    CloudflareThis is a cloud CDN service that we use to efficiently deliver files required for our service to operate such as javascript, cascading style sheets, images, and videos. (Privacy Policy)
    Google Hosted LibrariesJavascript software libraries such as jQuery are loaded at endpoints on the googleapis.com or gstatic.com domains, for performance and efficiency reasons. (Privacy Policy)
    Features
    Google Custom SearchThis is feature allows you to search the site. (Privacy Policy)
    Google MapsSome articles have Google Maps embedded in them. (Privacy Policy)
    Google ChartsThis is used to display charts and graphs on articles and the author center. (Privacy Policy)
    Google AdSense Host APIThis service allows you to sign up for or associate a Google AdSense account with HubPages, so that you can earn money from ads on your articles. No data is shared unless you engage with this feature. (Privacy Policy)
    Google YouTubeSome articles have YouTube videos embedded in them. (Privacy Policy)
    VimeoSome articles have Vimeo videos embedded in them. (Privacy Policy)
    PaypalThis is used for a registered author who enrolls in the HubPages Earnings program and requests to be paid via PayPal. No data is shared with Paypal unless you engage with this feature. (Privacy Policy)
    Facebook LoginYou can use this to streamline signing up for, or signing in to your Hubpages account. No data is shared with Facebook unless you engage with this feature. (Privacy Policy)
    MavenThis supports the Maven widget and search functionality. (Privacy Policy)
    Marketing
    Google AdSenseThis is an ad network. (Privacy Policy)
    Google DoubleClickGoogle provides ad serving technology and runs an ad network. (Privacy Policy)
    Index ExchangeThis is an ad network. (Privacy Policy)
    SovrnThis is an ad network. (Privacy Policy)
    Facebook AdsThis is an ad network. (Privacy Policy)
    Amazon Unified Ad MarketplaceThis is an ad network. (Privacy Policy)
    AppNexusThis is an ad network. (Privacy Policy)
    OpenxThis is an ad network. (Privacy Policy)
    Rubicon ProjectThis is an ad network. (Privacy Policy)
    TripleLiftThis is an ad network. (Privacy Policy)
    Say MediaWe partner with Say Media to deliver ad campaigns on our sites. (Privacy Policy)
    Remarketing PixelsWe may use remarketing pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to advertise the HubPages Service to people that have visited our sites.
    Conversion Tracking PixelsWe may use conversion tracking pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to identify when an advertisement has successfully resulted in the desired action, such as signing up for the HubPages Service or publishing an article on the HubPages Service.
    Statistics
    Author Google AnalyticsThis is used to provide traffic data and reports to the authors of articles on the HubPages Service. (Privacy Policy)
    ComscoreComScore is a media measurement and analytics company providing marketing data and analytics to enterprises, media and advertising agencies, and publishers. Non-consent will result in ComScore only processing obfuscated personal data. (Privacy Policy)
    Amazon Tracking PixelSome articles display amazon products as part of the Amazon Affiliate program, this pixel provides traffic statistics for those products (Privacy Policy)