ArtsAutosBooksBusinessEducationEntertainmentFamilyFashionFoodGamesGenderHealthHolidaysHomeHubPagesPersonal FinancePetsPoliticsReligionSportsTechnologyTravel

Dealing with Hemophilia

Updated on February 20, 2013
I knew I shouldn't have jumped from the roof...
I knew I shouldn't have jumped from the roof...

What doctors say...

There is no known cure for hemophilia yet, which is why the old adage of "an ounce of prevention is better than a pound of cure" plays a great role. On the first signs of bleeding, bruising or swelling, immediately:

  • apply cold compress to the affected area.
  • for external bleeding, wash the wound and apply pressure.
  • wrap the affected area with bandage - not too tight though.
  • elevate the swollen limb for better blood circulation.
  • Avoid moving about as much as possible.

Sounds normal doesn't it? Yes it does, but not to a hemophilia patient. These first-aids can actually prevent the injury from aggravating. Otherwise, an unbearable pain would visit in a few hours and you might find yourself in the hospital.

Money down the drain and into my veins...
Money down the drain and into my veins... | Source

The cure

No I'm not talking about the band. I'm talking about one's savings account being squeezed into small bottles or vials. At the moment, there is no permanent cure for this disorder, but infusion of Factor VIII can hasten the healing process of a bleeding.

Small wounds can be treated normally just as an average person does it. However, if we're looking at large, gaping wounds or internal bleeding then that's where infusion comes into play.

Hematologists calculate the amount of Factor VIII that will be infused based on a patient's age, weight, laboratory tests and how severe the injury is. When that is settled, then you're off to being admitted to a hospital anywhere between a couple of days and a couple of weeks.

Although these too can be avoided by seeing your hematologist and getting an outpatient infusion on a regular basis. Either way the process can both be very expensive.

"Dad, I need my sling and 5 pebbles quickly..."
"Dad, I need my sling and 5 pebbles quickly..." | Source

The ounce of prevention

For hemophilia patients like me, living a physical and athletic life can be a little difficult. But there are some other things that you can turn your attention to, like:

  • Music. Learn to play an instrument. You may not be the next Hulk Hogan but you may find yourself ranked with Elvis Presley.
  • Arts and Crafts. If you have the skill, patience and time, try to engage yourself in a hobby you've always wanted. Perfect your skills
  • Join clubs. Be with people who share your interests. Talk to them and gain knowledge as you share them.

Now here are some activities that I suggest you try to avoid if you're a hemophilia patient:

  • Pro Wrestling. The money you earn would only go to medical bills.
  • Boxing. If you're fast enough not to be hit at any given match, by all means go ahead. But then again, the training itself can be very rigorous and may get the better off you leaving you injured weeks before your next match.
  • Mixed Martial Arts. Need I say more?

Please don't get me wrong but you also have to move those muscles. Exercise regularly and strengthen them to prevent yourself from being injured easily. Of course we are free to engage in any activity that we like but always remember not to go beyond your limits.

The bottomline is...

Just stay happy. Try to find good ways of making yourself in high spirits. Don't stress yourself too much. In my experience, seldom do I have episodes of hemophilia whenever I'm pleased and satisfied -- whether at home, at work, with friends, my hobbies, etc. This blood disorder always manifests itself physically, but sometimes (and more often than not) it can be triggered psychologically. When sick, the average person can quickly recover if he or she is happy about something. If it works with others, it will definitely work with anyone.

Wouldn't it be better if you spend your time and money on things that would make your day, instead of spending those inside the hospital or on medical bills? Relax. Have fun.

In analogy, hemophilia patients and normal people can be likened to glass jars. Both are capable of holding water and, capable of being designed and decorated. But some are fragile and can easily be broken.

If you have a relative, friend or anyone who has this blood disorder, don't forget to show them your support. Make them feel loved and cared for. This should bring them more than a smile. It will ease the pain they suffer from -- both physically and emotionally.

I should know. I have hemophilia too.

Comments

    0 of 8192 characters used
    Post Comment

    No comments yet.

    working

    This website uses cookies

    As a user in the EEA, your approval is needed on a few things. To provide a better website experience, hubpages.com uses cookies (and other similar technologies) and may collect, process, and share personal data. Please choose which areas of our service you consent to our doing so.

    For more information on managing or withdrawing consents and how we handle data, visit our Privacy Policy at: https://hubpages.com/privacy-policy#gdpr

    Show Details
    Necessary
    HubPages Device IDThis is used to identify particular browsers or devices when the access the service, and is used for security reasons.
    LoginThis is necessary to sign in to the HubPages Service.
    Google RecaptchaThis is used to prevent bots and spam. (Privacy Policy)
    AkismetThis is used to detect comment spam. (Privacy Policy)
    HubPages Google AnalyticsThis is used to provide data on traffic to our website, all personally identifyable data is anonymized. (Privacy Policy)
    HubPages Traffic PixelThis is used to collect data on traffic to articles and other pages on our site. Unless you are signed in to a HubPages account, all personally identifiable information is anonymized.
    Amazon Web ServicesThis is a cloud services platform that we used to host our service. (Privacy Policy)
    CloudflareThis is a cloud CDN service that we use to efficiently deliver files required for our service to operate such as javascript, cascading style sheets, images, and videos. (Privacy Policy)
    Google Hosted LibrariesJavascript software libraries such as jQuery are loaded at endpoints on the googleapis.com or gstatic.com domains, for performance and efficiency reasons. (Privacy Policy)
    Features
    Google Custom SearchThis is feature allows you to search the site. (Privacy Policy)
    Google MapsSome articles have Google Maps embedded in them. (Privacy Policy)
    Google ChartsThis is used to display charts and graphs on articles and the author center. (Privacy Policy)
    Google AdSense Host APIThis service allows you to sign up for or associate a Google AdSense account with HubPages, so that you can earn money from ads on your articles. No data is shared unless you engage with this feature. (Privacy Policy)
    Google YouTubeSome articles have YouTube videos embedded in them. (Privacy Policy)
    VimeoSome articles have Vimeo videos embedded in them. (Privacy Policy)
    PaypalThis is used for a registered author who enrolls in the HubPages Earnings program and requests to be paid via PayPal. No data is shared with Paypal unless you engage with this feature. (Privacy Policy)
    Facebook LoginYou can use this to streamline signing up for, or signing in to your Hubpages account. No data is shared with Facebook unless you engage with this feature. (Privacy Policy)
    MavenThis supports the Maven widget and search functionality. (Privacy Policy)
    Marketing
    Google AdSenseThis is an ad network. (Privacy Policy)
    Google DoubleClickGoogle provides ad serving technology and runs an ad network. (Privacy Policy)
    Index ExchangeThis is an ad network. (Privacy Policy)
    SovrnThis is an ad network. (Privacy Policy)
    Facebook AdsThis is an ad network. (Privacy Policy)
    Amazon Unified Ad MarketplaceThis is an ad network. (Privacy Policy)
    AppNexusThis is an ad network. (Privacy Policy)
    OpenxThis is an ad network. (Privacy Policy)
    Rubicon ProjectThis is an ad network. (Privacy Policy)
    TripleLiftThis is an ad network. (Privacy Policy)
    Say MediaWe partner with Say Media to deliver ad campaigns on our sites. (Privacy Policy)
    Remarketing PixelsWe may use remarketing pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to advertise the HubPages Service to people that have visited our sites.
    Conversion Tracking PixelsWe may use conversion tracking pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to identify when an advertisement has successfully resulted in the desired action, such as signing up for the HubPages Service or publishing an article on the HubPages Service.
    Statistics
    Author Google AnalyticsThis is used to provide traffic data and reports to the authors of articles on the HubPages Service. (Privacy Policy)
    ComscoreComScore is a media measurement and analytics company providing marketing data and analytics to enterprises, media and advertising agencies, and publishers. Non-consent will result in ComScore only processing obfuscated personal data. (Privacy Policy)
    Amazon Tracking PixelSome articles display amazon products as part of the Amazon Affiliate program, this pixel provides traffic statistics for those products (Privacy Policy)