- Diseases, Disorders & Conditions
Do You or people you love have epilepsy?
I have had epilepsy for 26 years.
I have had epilepsy for most of my life. It was not diagnosed until I was about 21. When it was first diagnosed, but it was probably there before it was diagnosed. When I was a child I remember having vision that sort of became shaky, but I never told anyone about it. My mother also had epilepsy, but it was not as bad as mine. My seizures were always Grand Mal. They kept getting worse. About 10 years ago, I had to be put on disability because nothing could control the seizures. It was sad, and lonely. They continued to get worse. In September of 2010 I went to the Clevelend Clinic and had surgery. Have not had a seizure since. Took a lot of protein bars and protein shakes to help my healing. That worked very well. I emailed the companies and they sent me wonderful coupons! That was so nice of them. There are a lot of web site that explain seizures and what can be done to help someone who has seizures or loves someone who has seizures. That is how I found out about the Clevelend Clinic and asked my neurologist to send me there. There is a group on facebook that is wonderful for people with epilepsy or people who love people who have epilepy. I belong to it. I helps me sometimes.