My Abdominal Wall Endometriosis Experience
My Exeperience with Abdominal Wall Endometriosis
In November 2004 I had a cesarean section to deliever by beautiful daughter. In August of 2008 I started having strong sharp pains in my abdominal wall caused by endometriosis in my abdominal wall. It later required surgery in October of 2008 for complete removal. Needing surgery for endometriosis in my abdominal wall is rare, but it does happen to a small percentage, some studies suggesting 0.1% of cesearean births cause endometriosis in abdominal wall to develop.
It seems my daughters birth has been the gift that keeps on giving. First, an unplannned cesearean section, then a hernia surgery in November of 2007 due to what is believed to be surgical tearing from the c-section. Now, surgery for endometriosis in my abdominal wall. Lucky me.
Surgery For Endometriosis Pain
It was before the summer of 2008 I started feeling something odd in my abdomen. I had a hernia surgery months prior, and Mirena IUC in my uterus so I figured it was complications of one of these. I did not know yet that I would require surgery for endometrosis in my abdominal wall. I ignored it and went about my life.
In late August of 2008 the uncomfortable feeling in my abdomen was becoming increasingly annoying. I was starting to consider pregnancy, tumor, etc. From Late August 2008 to the middle of September I took 4 pregnancy test. All negative. I also found a lump in my abdominal wall. I was convinced my prior surgery had failed.
Around September 17th the annoying uncomfortable feeling had increased into downright painful. The spasms that feel like stapling, or lightning bolts through my abdominal wall was becoming too much for me. I spoke with a doctor who was convinced as well it was my henria and he offered some pain medication. He said that it would take a short time, but once the hernia got the space it was looking for it would feel better. He was right within less then a week, the pain was still there but strongly subsided.
For personal reasons I was unable to see my surgeon the first day in October. She felt the lump which except for when touched, hurt very little. She ordered a cat scan. When the results came back the first questions she asked if I'd ever had endometriosis. No, my periods had always been simple, and pain free. I didn't believe I ever had endometriosis. Her other idea where that it was scar tissue or very unlikely a tumor.
As The surgery for Endometriosis on October 20th approached I began to feel more and more pain again. By just a few days before I was hurting quite badly just waiting to get this overwith. I was afraid that I had scar tissue and that the pain I was feeling was constant tearing of the tissue.
A few days after the surgery for Endometriosis the results came back that the painful lump in the right side my abdomen was indeed Abdominal Wall Endometriosis.
Ceserean Section Can Cause Endometriosis in the Abdominal Wall
The research shows that in 0.1% of C-section delivered babies. The mother can develop Abdominal Wall Endometriosis years later. The suggested theory is that when the uterus is large and cut open for cesarean section, that some of the cells that make up the lining of the uterus become misplaced and find themselves in the abdominal wall during the delivery.
Long after the birth, sometimes many years later. The Endometriosis in abdominal wall will grow. Becoming more and more painful especially at the time of ovulation(my time is just after the middle of the month, hence the reason for the increased, and then subsided pain).
If you suspect you may have endometriosis in your abdomen, contact your doctor. You may feel a lump, experience increased pain during ovulation, and the pain may feel like quick bolts.
Think You May Have Endometriosis In Your Abdomen
If you think that you may have abdominal endometriosis then speaking with your doctor should be your first step. But, doctor visits, cat scans and surgery are expensive even with insurance. If your not ready for doctor bills but still want to have a better idea, a journal may help.
Keep a journal for the next 3 or so months. Keep track of your cycle including ovulation and menstruation and keep detailed record of the pain you experience and an intensity scale of 1 to 10. This will give you a better idea of when it's really bad. If you notice a pattern that it is indeed much worse during menstruation and such, then definitely pursue more medical attention.