"Fibromyalgia," You Say? "In My Professional Opinion, You Need to See a Psychiatrist."
Have You Ever Heard That Line Before? I Have!
If you have fibromyalgia or chronic fatigue, you've probably heard that response from a doctor at some point along the long, arduous, twisted, medical journey you've taken. I've had it now for about 26 years, and I just heard my doctor say that the day before yesterday! Can you believe it?
Well, here's what she actually said, "I think what you have is more in the realm of the psychiatric."
I said, "Are you saying I'm a psycho?"
She said, "No. That's not what I'm saying. I'm just saying that sometimes you may have a headache when you wake up in the morning, and you'll get up and say to yourself, 'Maybe I have a brain tumor.'"
I said, "So are you saying I'm a hypochondriac?"
She said, "No. That's not what I'm saying. It's called somatization."
That can be very discouraging to hear after you've been sick for about half your lifetime! Especially if you have heard it more than once!
Okay, a definition of somatization:
"Somatization disorder is a chronic condition in which there are numerous physical complaints. These complaints can last for years, and result in substantial impairment. The physical symptoms are caused by psychological problems, and no underlying physical problem can be identified."
Okay. That might fit. Everyone knows that stress and tension can manifest themselves in physical symptoms. I know that, and I'm sure a significant part of my aches and pains are stress-related. In fact, a lot of the symptoms they have listed fit within the huge definition of fibromyalgia and chronic fatigue. However, this is what the dictionary also said:
"You should not be told that your symptoms are imaginary. With the current understanding of the complex interactions between the brain and other body parts, scientists recognize that true physical symptoms can result from psychological stress."
Well, I WAS just told that my symptoms were imaginary, and guess what? It created more stress!!! I went home and cried. I was mad. I told my husband, "That's it. I'm finding another doctor."
I don't know if doctors have figured out that they are one of the major causes of stress in people's lives. Do you think so? I sure do!
Well, come to find out, my doc calls again yesterday. She says, "I've been reading through your chart and looking at your bloodwork that you've done in the past year or so, and I think we need to re-test some of these because the values are very high."
I was tempted to say, "Duh."
So now she thinks I really AM sick, and in fact, I most likely have a heart condition and diabetes. Okey dokey. Did I say doctors stress me out? Ah, yes, I did mention that.
Well, all this monkey business with doctors aside, let's take a look at fibromyalgia and chronic fatigue.
1. What causes fibromyalgia?
2. What are the symptoms?
3. Are there any cures?
4. What type of doctor should you go to if you think you may have it?
Read on below and get an education!
FMS Treatment Update
The latest treatment method for fibromyalgia that I've found is detailed in the book entitled "What Do You Do When the Medications Don't Work? A Non-Drug Treatment of Dizziness, Migraine Headaches, Fibromyalgia, and Other Chronic Conditions" by Dr. Michael L. Johnson. It involves figuring out which side of the brain is misfiring and treating the body accordingly. It involves oxygen therapy, chiropractic adjustments, manipulation and stimulation of the opposite side of the body (that corresponds to the side of the brain that is misfiring), eye exercises, smell and sound exercises, supplements and nutrition to support whatever is going wrong in the body, etc. So far this has helped me and I'm sleeping somewhat better and seem to be less clumsy, dizzy, and achy. I have better stamina and strength when exercising. I get little to no angina when walking uphill now. Also something that was lost about 6 years ago--my urge to urinate (doctors labeled it a "neurogenic bladder" and taught me how to catheterize myself)--has returned to normal! Amazing! More on this as things improve...
Improvement to date = 63% overall
Fibromyalgia and Allergies: Are They Related?
Brand New Article Linking FMS and Allergies
By Lisa D. Ellis
Reviewed by QualityHealth's Medical Advisory Board
In for those that suffer from fibromyalgia, the brain actually magnifies pain messages, making them feel much more extreme than they would be to someone else without the condition. A similar dramatic reaction also occurs in the nose, causing the lining of it to swell and become congested and painful, mimicking the symptoms of seasonal allergies but without the triggers.
Further compounding the fibromyalgia and allergy symptom link is the fact that fibromyalgia often causes muscles to tighten and put more pressure on different body parts, including the nasal passages. This can also cause your nose to become blocked and to create sinus problems, as well as related postnasal drip and cough.
Fibromyalgia and Allergies: Does any Direct Relationship Exist?
Keep in mind that there's no hard evidence to prove that fibromyalgia and allergies have such a direct relationship, but to some researchers, these assumptions make sense.
Along with the possible fibromyalgia and allergies connection, a variety of other factors can also come into play to make a person more susceptible to this illness. These can include such things like emotional and physical stress, as well as other health problems, including arthritis, lupus, other rheumatoid disorders, spine disorders and various types of traumas.
Take Control of Your Health
If you suspect you could have fibromyalgia, you'll want to talk to your doctor about your nasal symptoms and find out how best to prevent or at least manage them. You may also want to keep track of the things you eat and the symptoms you experience to see if there could be any food allergy link.
There's no cure for fibromyalgia, but many patients respond well to a combination of medication and alternative therapies to help them manage the discomfort on a regular basis.
American College of Rheumatology
The Mayo Clinic
US News and World Report
Updated: March 9, 2010
Copyright Â© 2010 QualityHealth.com. All rights reserved.
DVDS on Fibromyalgia from Amazon
What is Fibromyalgia?
A Helpful Article by Fibromyalgia Network
Fibromyalgia produces widespread pain, disturbed sleep, and exhaustion from head to toe.1 Fibromyalgia means pain in the muscles, ligaments, and tendons-the soft fibrous tissues of the body. Although the muscles hurt everywhere, they are not the only cause of the pain. Instead, the diffuse, body-wide symptoms are greatly magnified by malfunctions in the way the nervous system processes pain.2,3
Regional muscle pain not related to arthritis or the nervous system also occurs in the majority of people with fibromyalgia.4 Patients describe this as firm knots in the belly of muscles, often causing restricted movement and radiating pain.5 These muscle nodules are myofascial trigger points and some researchers suspect that these painful areas overlap with the tender points used to diagnose fibromyalgia.6
The symptoms of fibromyalgia are unpredictable and most patients are frustrated by their physical limitations and inability to make plans. You may feel as though you have to "push yourself" to get things done.7
Most patients with fibromyalgia say that their muscles feel like they have been pulled or overworked, and sometimes they twitch or cramp.8 Even the skin may feel badly sunburned.9 To help your family and friends relate to your fibromyalgia symptoms, have them think back to the last time they had a bad flu. Every muscle in their body shouted out in pain. In addition, they felt devoid of energy as though someone had unplugged their power supply.
Given that the symptoms may be similar to a viral flu, experts in the field of fibromyalgia and chronic fatigue syndrome believe that these two illnesses may be one and the same.10 Gulf War syndrome also overlaps with these two conditions.11
Pain - Fibromyalgia pain has no boundaries. People describe the pain as deep muscular aching, throbbing, shooting, stabbing, or intense burning. Quite often, the pain and stiffness are worse in the morning, and muscle groups that are used repetitively may hurt more.12 In addition, the severity of regional pains (particularly those in the head, neck, shoulders and lower back) are a strong predictor of a person's overall pain rating.13 The muscles in these painful areas can feel tight, knotted and rope-like. Pressing on the firm, knotted region hurts and often causes the pain to shoot to other muscles when a myofascial trigger point is present.
Fatigue - This symptom can be one of the most incapacitating for people with fibromyalgia. Patients may feel as though their arms and legs are weighted down by concrete blocks and their bodies may be so drained of energy that every task is an effort.7
Memory and Concentration - Difficulty concentrating and retaining new information may seriously interfere with everyday mental tasks.14 This symptom is referred to as "fibro fog" and may hinder job opportunities. In particular, fibromyalgia patients have serious difficulty retaining new information if they are distracted.15
Sleep Disorders - Patients report trouble falling asleep and more importantly staying asleep, but the unrefreshing quality is what makes the disorder much worse than insomnia. Repeat arousals prevent patients from reaching deep, restorative sleep.16 As a result, the night is spent in "quasi-sleep" and patients wake up feeling as though they have been run over by a Mack truck. An overnight sleep study will likely show repeat arousals with bursts of awake-like brain activity occurring throughout the night, but a specific sleep disorder may not be identified.17
Exercise Difficulties - Moderate intensity exercise activates a powerful pain-relieving system in healthy people, but it makes the pain of fibromyalgia worse.18 This is why initiating an exercise program may make you achy and tired. However, if you do not exercise on a regular basis, the performance of normal daily living activities will start to cause more pain. Rather than give in to the increased pain sensitivity related to exercise, patients are advised to do mild exercise in short intervals (such as five minutes at a time) to keep the muscles fit while not over-taxing them. A study in Sweden revealed that half of the fibromyalgia patients found it impossible or difficult to climb stairs and a majority of patients could not run. Just standing for five minutes was extremely taxing to one-fourth of the patients.19
Irritable Bowel Syndrome - Constipation, diarrhea, frequent abdominal pain and bloating, abdominal gas, and nausea represent symptoms commonly found in roughly 40 to 70 percent of fibromyalgia patients.20
Chronic Headaches - Recurrent migraine or tension headaches are experienced by 50 to 70 percent of fibromyalgia patients. Most headaches are rated as severe, occur at least two times per week, and often have a migraine component.21 Referred pain from myofascial trigger points in the shoulder, neck, and head muscles are suspected to be responsible for most tension-type headache and also play a role in migraines.22
Jaw Pain - Temporomandibular joint dysfunction causes tremendous jaw-related face and head pain and affects one-quarter of fibromyalgia patients. Typically, the problems are related to the muscles and ligaments surrounding the jaw joint and not necessarily the joint itself.23
Other Common Symptoms - Non-cardiac chest pain, acid reflux, irregular heart beat or palpitations, shortness of breath, numbness and tingling sensations, the feeling of swollen extremities, chemical sensitivities, nasal congestion, premenstrual syndrome and painful periods, irritable bladder, interstitial cystitis, vulvodynia (vulvar pain), difficulty focusing eyes, dry or burning eyes and mouth, dizziness or feeling faint, profuse sweating, muscle weakness and balance issues can occur.24,25,26 Fibromyalgia patients are often sensitive to odors, loud noises, bright lights, some foods, and often the medications that they are prescribed.27
Aggravating Factors - Changes in weather, cold or drafty environments, hormonal fluctuations (premenstrual and menopausal states), stress, depression, anxiety, and over-exertion can all contribute to fibromyalgia symptom flare-ups.12
Fibromyalgia Quick Facts
Affects 3 to 5 percent of the general population28
Occurs in people of all ages, even children
Men develop fibromyalgia too, although more women are diagnosed with it
Symptoms are chronic but may fluctuate throughout the day
Roughly one-quarter of people with fibromyalgia are work-disabled12
FDA approved the first drug for fibromyalgia in 2007 and more treatments are being developed
All information is copyrighted by
Fibromyalgia Network, P.O. Box 31750, Tucson, AZ 85751 (800) 853-2929.
This site is provided for informational purposes only. To remain unbiased, we do not accept endorsements, advertisements, or pharmaceutical industry grants. Patients should always consult their physician for medical advice and treatment.
Hope for a Peanut Allergy Treatment
by Lisa D. Ellis (http://www.qualityhealth.com/featured-article-segment?fa=107453&rf=45946&mc=MjM0NTIwMjg.&ct=36917)
By Lisa D. Ellis
Got a child with a peanut allergy? If so, you know all too well the serious risks that go along with it. While this condition can be life threatening, researchers have recently discovered that it might be successfully treated in some cases. Find out how.
Could a Peanut Allergy Treatment Exist?
In the spring of 2009, scientists from Duke University in North Carolina and the University of Arkansas for Medical Sciences released their research on 33 children with peanut allergies that they were treating to help them build up a tolerance to peanuts.
The technique they used was to administer peanut powder on a daily basis to the young patients, starting with very tiny doses and working their way up to larger amounts. Over the course of the study period, many of the children were increasingly able to change their immune system in order to tolerate this trigger, with some of them working their way up to eating as many as 15 peanuts a day without ill effects.
The researchers also wanted to see if the positive effects were lasting. Nine of the young participants have successfully continued consuming peanuts as part of their maintenance therapy for several years, while four children have even been able to stop the treatment and maintain the results.
What this Means for the Future of Peanut Allergy Treatment
Now, the scientists need to conduct further research to see what happens over an extended period. They also want to better understand why some children have more success with the treatment than others. This information may help guide future efforts to prevent and treat peanut allergies.
Several other research studies are also looking at the importance of exposing children to peanuts at a younger age in order to build up a tolerance to this allergen right from the start. Some researchers believe that this step will go a long way in helping to reduce the risks of children experiencing a serious peanut reaction.
A Word of Warning
Wonder what this all means for your child? If he's highly allergic to peanuts, these findings offer hope that new treatment methods will help overcome the problem in the not-too-distant future. However, the researchers strongly caution the medical community and parents not to use these results as encouragement to try their own similar tolerance-building efforts just yet. Since some children are highly sensitive to peanuts and may not tolerate them as well as the study participants, it could put them at real and unnecessary risk.
Further, until more research is conducted on how to overcome peanut allergies fully, it's extremely important to stay vigilant about helping your child avoid all exposure to peanut products in order to keep him safe and avoid any negative effects.
Duke University Medical Center
What About New Pandemic Viruses?
Are there answers?
Our world is full of more and more virulent viruses every day. Are there any answers? Most doctors will tell you there aren't. Watch this video and then click the link to find out one of the best answers out there for viruses and toxicity.
FIBROMYALGIA IS NOT "IN YOUR HEAD"
This is taken from a pamphlet that came in my medication Savella for fibromyalgia. It is written by Forest Pharmaceuticals and Cypress Biosciences.
"It is not yet understood what causes fibromyalgia. However, recent research shows that people with fibromyalgia often have a lower tolerance for pain than people without fibromyalgia. Experts believe this is caused by CENTRAL SENSITIZATION, a state in which pain signals the body would ordinarily perceive as minor instead become amplified and more intense. Although you may feel pain in your muscles or joints, central sensitization may be caused by a change in the central nervoius system (the brain and spinal cord).
"As a result, some fibromyalgia patients may find normally nonpainful experiences--such as a hug--painful. This is called ALLODYNIA. They may also feel more pain than others would under similar circumstances. This is called HYPERALGESIA. Because of these changes in the way pain is processed, common pain medications like ibuprofen may not provide relief.
"You can take comfort from the fact that fibromyalgia is recognized as a real condition. And although fibromyalgia is not "in your head," there are certain chemicals in your brain that can impact it. They care called NEUROTRANSMITTERS. Neurotransmitters are responsible for passing along and, sometimes, changing pain signals."
New Doctor, New Hope!
I finally got some answers to my urgent questions.
I found a new doctor who is not only an MD, but he's also very knowledgeable about natural supplements, super nutrients, and other non-harmful cures. I'll save you time and delineate what he recommended for my problems with out of control weight gain (even though I eat hardly anything and no sugar or simple carbs), my yeast/fungal overgrowth, and my messed up hormones.
1. The hormones were the big issue. I am going to get bio-identical hormones compounded that address a lot of the issues I've been dealing with including migraines, pain in all my joints, and major brain fog. The compounding pharmacy works with the doctor to come up with the right balance that I need. One of the ways to detect this is by saliva lab tests. They detect what is really going on as opposed to blood tests which are less accurate.
2. To purify my blood of parasites, bacterial infections, and other things he recommended that I use hyssop herbs, which can be obtained at www.HyssopHerb.com. Hyssop has been used for many centuries for all sorts of problems, one of them being toxins in the blood stream.
3. To kill off the yeast/fungal overgrowth I will be taking Oxysilver--click below for their website. The oxygen and silver combination makes a very unfriendly environment for the yeast and fungus and doesn't allow it to spread or grow. If you're wondering if OxySilver is the same thing as Colloidal Silver, read this and check out the microscope photos: http://www.oxysilver.com/aff/Colloidal_Silver_Comp...
I'll check in again and let you know how these things have worked. I plan to give a true and unbiased evaluation according to my body's response to these treatments.
Yea for some positive answers for once!
FIBROMYALGIA: INVISIBLE PAIN
[I thought the historical references after the explanation were really interesting. Apparently this has been around for a lot longer than most people think. Especially my doctor!]
Pain is truly "a four-letter word"Â®. Pain can neither be seen, felt, touched, nor measured, and the most reliable description we have of pain is from the patient.
If we think of fibromyalgia, or as we should rethink fibromyalgia, we have to look at fibromyalgia as a newer problem, not necessarily as a disease, but we will call it a syndrome. A syndrome is a group of problems, not an individual disease. These groups of problems have unique characteristics, and any one of them might be finding an effective treatment pathway, that helps us unravel the troubling problems caused by fibromyalgia.
Fibromyalgia is a syndrome. It is, by its nature as a syndrome, not really a disease as people would know.
Taming the fibromyalgia dragon requires understanding of the many aspects of an individual's symptom experience. Are your symptoms from your stomach, muscle? Do you have irritable bowel? Do you have fatigue? Do you have a substantially interrupted sleep pattern? Are you unable to do anything that you used to do due to unrelenting widespread pain? Fibromyalgia is agreed upon as one thing-a disease entity or a painful entity. In fact, fibromyalgia really is a calamity. It took years to be recognized. It was ignored and misunderstood, and there are still doubters who consider this disease a legend more than accepted disease entity.
When we talk about pain, pain is not a traditional disease. We heal, but do not always cure. Think of it like diabetes and hypertension. Fibromyalgia can be managed, but it needs to be managed differently than a standard disease. Remember, it is a syndrome.
The pain is biological, psychological, and social. It affects all parameters, including even a spiritual or religious component. We call it biopsychosocial. We cannot separate these three because the brain will not separate those three.
Fibromyalgia is a disease machine. It takes its own direction, and many people have their own personal experience.
Does fibromyalgia really exist? There is "fibro" history. Two thousand years cannot be wrong.
"Is there nothing to you all that pass by behold and see is there any pain likened to my pain which is done unto me wherewith the Lord has afflicted me in the day of his fierce anger?
From above, he set fire to my bones…and I am weary and faint all day." Lamentations 11:12-13.
"…[A]nd whereas the nights are appointed to me when I lie down I say 'When shall I arise and the night be gone' and am I full of tossing to and fro unto the dawning of the day…and the days of affliction have taken a hold upon me. My bones are pierced in me in the night season, and my sinews take no rest." Job 7:3-4, 30:16-17.
Even letters of Bernard Noble (1833-1896) described what many patients quote today. "Is it possible that I am more seriously ill than my doctors think. The pain will not go away…I have been a frozen wretch my whole life, hardly able to stand a whiff of wind or pain. My rheumatic pains leave me no rest. I suffer from stomachaches. My headaches are so terrible that life seems filled with bile…paralyzing fatigue…."
Sir Maningham (1750) described fibromyalgia as a "little fever,"
George Miller Beard (1839-1883) "Living on a plane lower than usual, neurasthenia.
The first rheumatology textbook was in the 1940s by Dr. Hencha ? where he first termed "fibromyalgia". In 1990, the American College of Rheumatology adopted criteria. ACR criteria retired old definitions, eighteen tender trigger points.
The "flawed fibro" concept: Fibromyalgia and myofascial pain syndrome.
Flying with Nasal Allergies
By Lisa D. Ellis
[Since I'm going to do some traveling soon, I thought this article published by QualityHealth.com was helpful, and it affirmed some of the things I practice to avoid problems on airlines. I hope it helps you too!]
Flying in an airplane can make nasal allergies worsen-find out how to alleviate your pain.
If you suffer from nasal allergies, you know that many simple activities can feel more difficult when your head is full and clogged. And this can be magnified when you step on a plane to fly, since at 30,000 feet in the air it is even more difficult to control your environment and changes in air pressure in the cabin can make you miserable as the plane begins to climb.
When flying with nasal allergies, you may be particularly concerned about experiencing your symptoms while you are in transit, and about being so far removed from medical care and treatment if you should need it. How you can best handle such a scenario depends on what your triggers are and what type of reaction you might get. But knowing these facts can help you to devise a plan that can make flying with allergies manageable and can minimize possible complications that can occur.
You may have seasonal allergies that are already in full bloom when you board the flight. Or, it could be that your allergies are sparked by things like cleaning supplies, perfumes and other air-borne allergens you may encounter in the closed airplane cabin space when there is nowhere to escape.
In either case, you may need to take an antihistamine or decongestant before you fly. You should also always carry your asthma medications with you if respiratory symptoms are a concern. In addition, if an anaphylactic reaction is possible,[i] you should have an epinephrine injection easily accessible in an emergency.[ii]
The Ear Connection
If you've ever flown with a cold or allergies, you know how much pressure the flight can put on your congested ears. In fact, one expert speculates that as many as one-third of travelers can experience ear discomfort even if they aren't sick. But when you add nasal symptoms into the mix, your likelihood of ear pain or clogging increases a great deal and can even put you at risk for your eardrum to become infected with fluid or even to burst in extreme cases.
While some people try chewing gum or using steam to reduce the pressure, some doctors say this really won't do the trick. They recommend, instead, trying any (or all) of these easy tips when flying with nasal allergies:
* Swallow or yawn in order to open up the ears and reduce the pressure that exists.
* Close your mouth and hold your nose, then forcing air through your nostrils to equalize pressure on your eardrums.
* Use a nasal decongestant spray a few hours before you get on the plane.
* Wear ear plugs while you fly to keep air from getting inside your eardrum.[iii]
All of these methods may actually help you to keep your equilibrium and enjoy your trip without feeling sick.
SO, YOU THINK FIBROMYALGIA IS PSYCHOLOGICAL?
THE FDA AND THE MAKERS OF LYRICA BEG TO DIFFER!
[This is from: http://www.lyrica.com/content/fibromyalgia_symptom...]
Here's What They Have to Say About Fibromyalgia
Fibromyalgia (pronounced fie-bro-my-AL-juh) is a real medical condition. It includes all-over muscle pain that can make it hard to do even day-to-day tasks. The pain may vary from mild to severe.
The muscle pain from fibromyalgia is one of the most common types of chronic widespread pain in the U.S. They may not know what is wrong with them or what is causing their pain. They may feel alone.
Once, there was no FDA-approved treatment for fibromyalgia.
LYRICA is the first FDA-approved medicine to treat fibromyalgia in adults, 18 years and older. It can help relieve the unique pain of fibromyalgia.
This Web site will help you learn more about fibromyalgia and LYRICA.
The exact causes of fibromyalgia still are not known. However, recent research suggests that changes in the central nervous system may be responsible for the chronic pain that comes with fibromyalgia.
Every part of the body receives electrical signals from the nerves in your brain. But sometimes, these nerves can get damaged. And damaged nerves sometimes send extra signals. Signals that healthy nerves would not send. These extra signals may cause pain.
Nerve damage may occur for a few reasons. For example, a viral or bacterial infection. It could also be linked to injury.
Symptoms and Diagnosis of Fibromyalgia
What does fibromyalgia feel like?
People with fibromyalgia typically have many different types of symptoms. Some of the most common symptoms may include:
Chronic widespread muscle pain
Other symptoms may include:
*LYRICA is indicated for management of fibromyalgia and not for improvement in symptoms such as problems sleeping.
Dull pain in the muscles
Even though the pain of fibromyalgia is hard to ignore, it may be difficult for some doctors to identify this condition. For example, no blood test or X-ray can be used to help detect it. Plus, many of the symptoms of fibromyalgia are also found in other conditions, such as rheumatoid arthritis.
According to the American College of Rheumatology (ACR), to be diagnosed with fibromyalgia, a person must have widespread pain lasting for at least three months. Plus pain in at least 11 of 18 parts of the body called "tender points."
Other factors may contribute in diagnosing fibromyalgia. Only your doctor can make an accurate diagnosis.
The Latest News from Fibro and Fatigue Center Newsletter
Isoprinosine Update: Immunovir - A Promising, Low Cost and Safe Prescription Antiviral
By: Alina Garcia MD
Fibromyalgia and Fatigue Center, Las Vegas
Recent findings presented at the 2009 International Association of Chronic Fatigue conference in Reno, Nevada Conference by University of Miami researchers revealed promising potential for Isoprinosine (ISP) in the treatment of Chronic Fatigue Immune Deficiency Syndrome. Sixty one patients were studied, and treatment in all patients resulted in clinical and immunologic improvement.
Isoprinosine (ISP), a non-toxic immune system stimulant, is a nucleoside, which is a basic compound comprising cells. It is extremely safe and has been available in Ireland and Canada for 20 years. Until now ISP has not been extensively utilized in the U.S. Although the University of Miami study was small, and larger placebo controlled studies are necessary, these preliminary findings are quite promising for sufferers of this relentless condition.
ISP has been studied extensively in AIDS research and Sub Acute Sclerosing Pan Encephalitis (SSPE). Researchers in Brazil have published results that ISP may even inhibit replication of viral RNA. Latent viruses are often associated with chronic fatigue and fibromyalgia.
ISP has shown promise in treating CFIDS specifically via its immune modulating functions. Cheney, et al, has shown that ISP enhances Natural Killer (NK) cell function which is known to be suppressed in many CFIDS and FM patients.
I have been using Isoprinosine in selected patients for several years with favorable clinical outcomes in the majority of cases. ISP is more cost effective than other immune modulators and may therefore be a more viable option for some patients.
The Fibromyalgia and Fatigue Centers Inc. are dedicated to treating chronic fatigue and fibromyalgia using an integrated comprehensive approach.
For more information visit www.fibroandfatigue.com or contact a patient representative at 1-866-443-4276.
I have read the book Fatigued to Fantastic! by Dr. Jacob Teitelbaum. It's excellent, and he's a genius of a doctor! I know, he was my doctor for several years.
I haven't read What Your Doctor May Not Tell You About Fibromyalgia Fatigue, but if it's by the same author who wrote What Your Doctor May Not Tell You About Hypothyroidism, I've read that and it's a very informative book, and helped me understand that complicated disease.
MORE ON "SOMATIZATION"
Aren't You Lucky You Ran Across This?
Look at the list of symptoms that doctors have chalked up to "somatization":
"Some of the numerous symptoms that can occur with somatization disorder include:
Pain in the legs or arms
Pain during urination
Shortness of breath
Paralysis or muscle weakness
Pain during intercourse
Excessive menstrual bleeding"
That all according to www.fibromyalgia.com.
You might as well not go to doctors because it's all in your mind. You're a psycho. You're nuts. Just kidding! :) I was getting into that doctor role there just a wee bit too much!
Things That Are Helping
I realize that I need to update this lens on FMS once in a while since the things that I'm trying (as well as the doctors I'm going to--unfortunately) keep changing.
I'll list them to make this easier to read.
1. Savella--this is a new medication specifically for fibromyalgia. There are three others, but the only other one I know of specifically is Lyrica. I'm sure you've seen the commercials. The up side of this medication--increased energy, improved mood, decreased appetite (which I don't really need, but...), and slightly better sleep. The downsides--constipation, rosasia, and weight plateau.
2. Sleep--I'm trying three new supplements for sleep. I get them from vitacost.com (a little plug for them--tell them I sent you!). They are Iovate Sleep Fast, Enzymatic Therapy Sleep Tonight, and a homeopathic supplement called Insomnia. They all seem to help out. Sleep is definitely a huge challenge for me.
3. Exercise--This is an area in which I fail frequently, especially when the weather is cold or stormy. I'm just so sore at those times I can hardly get myself to move. Ideally, I try to walk 3 miles 3 times a week. It's been a little while since I did this, but I feel a lot better when I do.
That's all I can think of at this time. More updates later.
What Doctors Have to Say Lately About Fibromyalgia (excluding my doctor!)
Here are some facts about fibromyalgia to help you better understand this common cause of widespread pain.
1) The muscle pain from fibromyalgia is one of the most common types of chronic widespread pain in the U.S. It affects millions of Americans. However, LYRICA may not be right for everyone.
2) People with fibromyalgia typically have many different types of symptoms. Some of the most common include chronic widespread muscle pain. Other symptoms may include: muscle soreness, tenderness and flu-like aching, problems sleeping;* stiffness and fatigue, and dull pain in the muscles.
3) According to the American College of Rheumatology (ACR), to be diagnosed with fibromyalgia, a person must have widespread pain lasting for at least three months. Plus pain in at least 11 of 18 parts of the body called "tender points."
4) Fibromyalgia mostly affects women. In fact, 80-90% of those diagnosed are women. Men can have fibromyalgia, too.
5) People with fibromyalgia have been shown to experience pain differently from other people. Scientists believe that the condition may be due to injury, emotional distress, or viruses that change the way the brain perceives pain, but the exact cause is unclear.
6) Fibromyalgia was once thought to be a mental disorder, but studies have shown it is not a psychological condition. People with fibromyalgia actually experience a heightened sensitivity to pain.
7) Exercise, such as walking, jogging, biking or gently stretching muscles may help ease the pain of fibromyalgia. So can having good emotional support and medication. People with fibromyalgia have more treatment options than they did in the past. Before starting any exercise program please consult with your doctor.
8) Fibromyalgia can be treated by several types of healthcare providers. Family physicians, general internists, and rheumatologists are the doctors who typically treat fibromyalgia.
*LYRICA is indicated for management of fibromyalgia and not for improvement in symptoms such as problems sleeping.
Do you think you may have fibromyalgia? You are not alone. Talk to your doctor. Or click here to request your free information kit and/or any updates about LYRICA and fibromyalgia or call us toll-free at 1-866-822-1571.
Are You Taking Questionable Drugs? Cymbalta? Paxil? Effexor? You Need to See This!
This is an excerpt of a film called "Making a Killing."
It's not flattering to the pharmaceutical companies or to general trends in the psychiatric profession.
We recently had a "physician" aggressively push a dangerous drug on a 91 year old family member.
The warning in the pharmaceutical company's own fine print clearly stated that this drug created a danger of heart failure in patients with the very same symptoms our family member had.
The doctor responded: "It's just a baby-sized dose. It shouldn't do any harm."
We've fired the doctor.
I hope you treat all doctors enthusiasm for new, under-tested drugs with maximum skepticism.
Don't assume they know what they're doing.
Odds are they don't.
What Your Overworked Liver Is Dying To Tell You
June 17, 2010 by Dr. Michael Cutler (from http://www.personalliberty.com/health/what-your-overworked-liver-is-dying-to-tell-you)
Low energy, chronic fatigue, problems sleeping, high blood pressure, unstable blood sugar, digestive problems, muscle and joint pain, headaches and weight gain are symptoms of an overworked and possibly toxic overload in your liver and kidneys.
These symptoms are your body’s way of talking to you and I encourage you to listen to what it has to say.
Prescription drug and alcohol use, pesticides and chemicals in your air and water and a high-fat, junk food diet all wreak havoc on your liver and kidneys and cause serious health problems. To make matters even worse, most doctors don’t even think of checking your liver and kidney health when they treat you. So the damage continues until one day you’re facing a fate almost worse than death—non-functioning liver or kidneys.
Your liver is that “often-forgotten” four-pound organ located on the right side of your body that performs more than 500 bodily functions and chemical reactions every single day to keep you alive. In fact, your liver is so important, medical experts agree that if your body was a corporation, your liver would be the president.
Your liver is under constant abuse from over-the-counter and prescription medications, air and water pollution, alcohol use, chemical food additives, stress hormones and a host of other toxic weapons that are out to destroy it.
And the fact is that if your liver breaks down, then your body breaks down and you could die.
Your liver removes toxins and impurities from your body before they can cause you harm. But there’s a very good chance your liver is not performing at its maximum ability. And if you’re over age 40, you may already have the beginnings of a sluggish liver that can lead to an exhausted body.
In fact, by the time you reach age 40, the tubes and ducts leading to and from your liver can start to get clogged with undigested fats, environmental toxins, gallstones, scar tissue and metabolic wastes. And by age 50 you may only be producing a quarter of the bile your body needs to break down the fats from all the foods in your diet.
When your liver can’t make enough bile to remove the toxins, it encapsulates and stores the toxic materials, which will affect and harm your body for years to come. Some of these toxins become hard mineralized stones stored in your gall bladder—commonly known as gallstones.
As time goes by these stones accumulate and can block normal bile flow from your gallbladder to your liver. So if you have gallstones, you have a clear warning of a possibly serious liver problem.
But you can improve the condition of your liver with simple and natural ways that safely help remove dangerous toxins from your liver, unclog your liver cells and boost your liver function.
There are herbs, antioxidants, super-nutrients and amino acids that can help you detoxify and promote proper liver function. Some of these are milk thistle, soy lecithin and artichoke leaf. Other nutrients such as n-acetyl-L-cysteine (NAC), alpha lipoic acid (ALA) and trimethylglycine can also help contribute to a well-functioning liver and a healthy body.
—Dr. Michael Cutler
About Cymbalta--info from www.iGuard.com - I was taking this and it helped me a lot! I also like iGuard because it keeps track of all my medications and supplem
Why do patients use Cymbalta?
iGuard.org is currently tracking more than 21,550 patients that use Cymbalta (or similar drugs with the same active ingredient(s)). Use the table below to learn why iGuard users take this product; click on any underlined condition to get information on other medications used for treatment.
DISEASE / CONDITION % AVERAGE SEVERITY
PAIN - FIBROMYALGIA 15%
PAIN (OTHER) 9%
PAIN - NEUROPATHIC 5%
PAIN (UNSPECIFIED) 5%
PAIN - BACK/NECK <5%
How well does Cymbalta work?
iGuard.org regularly asks patients taking Cymbalta to provide feedback on: disease/condition treated, effectiveness/satisfaction, side effects, and information they wish they knew prior to starting the medication. This feedback is continuously updated for the benefit of other members of the iGuard community.
Average Satisfaction Score
(out of 10)
Average Effectiveness Score
(out of 10)
75% of patients are confident that the good things about Cymbalta outweigh the bad things.
What do iGuard.org users wish they were told before starting this product?
Patients who wished they learned more before starting 21% of patients taking Cymbalta wish they were told more about this product before they started it.
TOP THINGS PATIENTS WISHED THEY KNEW...
1 MORE ABOUT SIDE EFFECTS
2 IT CAN BE EXPENSIVE
3 MORE ABOUT HOW IT WORKS
4 ,POSSIBILITY OF SEROTONIN SYNDROME
5 IT TAKES TIME TO START WORKING
6 IT CAUSES NAUSEA THAT GETS BETTER WITH TIME
7 MORE ABOUT POTENTIAL SIDE-EFFECTS,IT TAKES TIME TO
8 MORE ABOUT DRUG INTERACTIONS
My reasons for stopping taking Cymbalta were:
It was too expensive.
It interacted badly (created serotonin syndrome) with a lot of other medications.
It made me gain weight and not be able to lose it.
Other than those three areas, I liked how it made me feel. It is a good medication for some people.
New Poll Module - Please click off your response below
I'm very curious, so please do it, okay?
Do you believe fibromyalgia and chronic fatigue are real physical conditions?
Video on Fibromyalgia - I can relate to this poor young woman.
Brand New News on Fibromyalgia
New Fibromyalgia Treatment
There is increasing evidence that a regular exercise routine is essential for all fibromyalgia syndrome patients. This is easier said than done because increased pain and fatigue caused by repetitive exertion makes regular exercise quite difficult. However, those patients who do get into an exercise regimen experience worthwhile improvement and are reluctant to give up. In general, FMS patients must avoid impact loading exertion such as jogging, basketball, aerobics, etc. Regular walking, the use of a stationary exercycle and pool therapy utilizing an Aqua Jogger (a flotation device which allows the user to walk or run in the swimming pool while remaining upright) seem to be the most suitable activities for FMS patients to pursue. Supervision by a physical therapist or exercise physiologist is of benefit wherever possible. In general, 20 minutes of physical activity, 3 times a week at 70% of maximum heart rate (220 minus your age) is sufficient to maintain a reasonable level of aerobic fitness.
Fibromyalgia Resources: New Fibromyalgia Treatment
What is Fibromyalgia by
Cause of Fibromyalgia by
"You have a psychological problem." How would that doctor's comment make you feel?
New Amazon Voting (Plexo) - Books on Fibro and CFS and Other Underlying Conditions
In this book Dr. R. Paul St. Amand offers the first effective protocol to help reverse the autoimmune disorder, Fibromyalgia, in children. The authors have adapted the programme in their first book, an alternative treatment using guaifenesin, a common ingredient in cough medicine, to treat children successfully. This inexpensive medication, available over the counter as well as in prescription strengths, has successfully eliminated symptoms in an astonishing 90% of his patients. In this landmark book parents can discover: * Why pediatric fibromyalgia is often not diagnosed * How to help children cope with symptoms before guaifenesin takes full effect * The link between pediatric fibromyalgia and hypoglycemia * Guidelines to determine the proper dose of guaifenesin for your child Inspired by his own Fibromyalgia to find a treatment, Dr. St. Amand spent 40 years researching his revolutionary program, which treats the causes of the condition and not just the symptoms.
Roughly 6 to 8 million people in the United States alone are afflicted with fibromyalgia. A widespread muscular-skeletal syndrome, fibromyalgia touches people of all ages, male and female, as an unrelieved aching and burning pain, often accompanied by fatigue, that leaves its victims feeling exhausted. Fibromyalgia inflects terrible wounds that leave no scars, and it is very difficult to treat. While drugs and pain suppressants are available, healthy food alternatives, including herbs and other natural foods, also help in combating the pain and exhaustion associated with the syndrome. The Fibromyalgia Cookbook is designed to help those who suffer from this affliction to find relief from their discomfort. Focusing on natural foods and herbs, the authors emphasize pure foods with no additives, the lowest levels of toxins, and the greatest amount of nutritional value. The rules are few and basic: No red meat. No green peppers. No eggplant. Avoid heavy, starchy foods. The diet is low in sodium and low in fat, with no processed sugars. (Natural sweeteners such as honey and fruit are used.) No white flour (spelt flour and rice pasta are good substitutes). Soy butter, virgin olive oil, and flaxseed oil are suggested for salads. Many other satisfying possibilities are provided. An introduction by Dr. Alison Bested explains the nature of fibromyalgia and the role of diet in finding relief from its symptoms. A glossary explains the strengths and dangers of specific foods. The 124 delicious recipes are divided into Soups, Salads, Veggies, Fibro-Fish Dishes, Dressings, Sauces and Dips, Fruit, Rice and Pasta, and Bread. COOKING; HEALTH 6” X 8”, 172 PAGES PAPERBACK
The original edition of this classic survival manual offered the first comprehensive patient guide for managing these conditions. Its extensive set of healing tools included targeted bodywork for painful trigger points and strategies to helpccope with chronic pain and sleep problems and the numbing effects of fibrofog. More than 75 percent of the second edition is new or updated material, including coverage of promising new research on the causes of fibromyalgia, evaluation of new treatments, complete discussions of special issues for women and men, and the latest information on medication. An update of the first edition's popular provider index helps sufferers select those practitioners who will take their complaints seriously and offer knowledgeable treatment advice.
Fibromyalgia is a severe musculoskeletal pain and fatigue syndrome that afflicts approximately 3 to 6 million Americans. Fibromyalgia: The Complete Guide from Medical Experts and Patients is a compilation of a diverse group of health care practitioners and a comprehensive guide for patients and families. The book provides authoritative, practical advice and answers to common questions about this condition to help patients and families achieve a greater understanding of all aspects of dealing with fibromyalgia. Physicians incorporate newest research on fibromyalgia. This resource offers material never presented in any other fibromyalgia book.
Nearly eight million Americans suffer from it. Cutting through the history and medical jargon found in more exhaustive and incomprehensible reference books, this guide focuses on the most important things readers need to know in order to effectively understand and manage fibromyalgia, especially important now, with 22 new fibromyalgia-fighting drugs on the market. This new edition teaches readers how to: Â·Communicate better with doctors and healthcare providers Â·Evaluate pain medications and non-medical therapies Â·Develop exercise and diet regimens Â·Identify and treat symptoms
I sure have them!
Check these out for some awesome help: